Gill C

HI & welcome to BTG, as Janet says it is very early days for you & rest is key to your recovery> Fatigue is unwelcoem but all to common & if you psuh yourself too hard too early you will feel the effects (its a case of do as I say rather than do as I do in my case I'm afraid). My memory is ok in general but multi tasking is a distant mmoery & i find myself overstimulated if I am somewhere for 4 hours or more & ahve to rest (even the beacj becomes unbearable ). i have a referral for a neuro psyxh in October bit initially I was todl there was a 16-18 week wait! It beats me though why it isn't offered to very SAH patient on dishchage as meotionally I am all over the place! Talking to people on here is a great help though as we all understand where you are coming from. Looking forward to hearing more from you xx

When I had my headache I was given diclofenac (anti infalmmatory) which didn't help me at all. I took co-codaomol which did help & the only other thing that helped was amytripteline which is a muscle relaxant. Since my clipping I usually manage on paracetamol or cocodamol but my SAA din't rupture so I know I am very lucky not to suffer too much with headaches.

I'm even earlier days than John & JayKay but what you ahve writen makes a great deal of sense to me. I sill haven't learnt my limits although I do lsien to my body more & rest when I can. having an SAH is part of my life so I don't think I will ever get over it or forget about i either. But it's true it srts out the true friends in life for you

Hi Kimmy, nice to hear your story & lovely pic in the gallery from the bbq. It's great to hear from someone who had an SAH a good few years ago, an inspirartion to many of us I am sure.

Hi Debbie & welcome to BTG You sound very very normal to me right down to the mood swings & the fear of another bleed. It's so ahrd once you are discharged to accept that one day you have alll the nurses in the ward looking after you & the next you get nothing, I found it very hard to accept. iflinch at every twinge, neck pain or eye paun i get worryoing that it will happen again. The headaches & dizzness & over whelming tiredness are all classisc SAH symptoms & you will be told that rest id important so take the advie (I didn't initially & paid the price after a too busy weekend!) from people who ahve been there. If you check out Karen 78's latest post you will see that 6 months on things are much the same & people just seemt to 'roget' how ill you have been becuse you look ok on the outside. Unless you've been through SAH you can't begin to iamgine how we feel post op whcih is why BTG is so great. I hope you continue to get better & recouperrate at your on pace. I was clipped 3 months ago & am still exhuasted a lot of the time (might have something to do with a certain 4 year old boy tho!) but am lucky in that my headaches aren't too bad. The diziness is still the same or slightly worse for me but then I have double vision which is slowly getting better. take care Gill

Hi erin from what the cons told me last week there are a group of nerves that control your eye movement etc. the 3rd nerve controls the dilation ofyour pupil & movement to the centre (each muscle only move in one direction so the 6th nerve pulls your eye to the right & the 3rd nerve pulls in the opposite direction keeping the eye central). As my anni squished the 3rd nerve my pupil was massively dilated & didn't respond to any light, I culdn't open the lid either or move the eye to the middle or top to bottom. My right eye was basically pointing in a completely different direction from my left resulting in double vision. My eye will now move right to left & my lid opens almost fully but my pupil is still dilated & I cna't move my eye up & down so still have double vision in some planes. I guess you found a lot of this out on your google?

Hi Erin you are doing amazingly well to be typing all this now espeially one handed! you've been though such a lot it's hard to take it all on board & personally i have found the emotional recovery the hardest part. Although my anni didn't actually burst I had vasospasms during the op & hd some left sided weakness/numbness which did go eventaully with the triple H therapy (gelofusin) but I find my left leg isn't as responsive & lacks fine motor control (when putting my knickers on I can't guide the leg into the hole I have to put the hole over my leg). I also have problems with getting out of a chair (especailly a soft chair) or off the floor & need to go onto my knees first & then haul myself up. AS for the eyesight I too had 3rd nerve palsy which is gradually getting better alhtough they are not sure it will recover completely. It is def a case of a step at a time & it's a journey into the unknown for the medics too as everyone recovers so differntly. I have learnt to rest now when I need to & find that being anywhere for 4 hours or more is enough for me & I need to be somewhere quiet &calming. I hope things contiue to get better for you, with your strength & determination I am sure they will

I had my SAA clipped in June this year, my anyurism didn't burst but caused a 3rd nerve palsy to my right eye. i am still suffering double vision alhtough the palsy is now only partial. My eye Cons doesn't seem to think the nerve will fully recover but my neurosurgeon seems to think it will. I have a review at the eye clinic in Sept (2 motnths after the last one) & assume if there has been a change in my eye they will review me again in another 2 months, if there isn't a chang I suspect it will be more like 6 months. my left eye is unaffected by any problem & the sight in my right eye alone is fine (I jsut have double vision when suing both eyes at the same time) I can't answer about coiling eiter I'm afriad. As for haemorrage behind the eye a friend of mine suffered on as a young girl & it did gradually get better although she did lose soeme sight in that eye. Hope things improve for you soon

hI Tacey, I too had my SAA clipped in June but am a couple of weeks ahead of you. You sound very much like me wanting to get back to 'normal' but it really doe s pay to take it slowly. I had a nap yestrday afternoon which is very rare for me but ws just tooo tired to stay up. If you do too much you pay the price of a couple of days absolute rest (I know because I didn't listen to advice or my body). You've been through a huge amount & you need to recouperate & rest in order to heal. BTG is a fab place to talk to others about how you are feeling/doing so look forward to chatting to you some more

Hi Charty & thanks for the welcome, nice to meet you too. Good to know that things carry on getting better even if they take a while. Hope to chat to you soon

welcome donna mari, sorry I missed you in chat last night but by 9pm, I'm shattered & in bed! Welcome to BTG, it really does make a world of differnce fo have people to talk to who have been through the same thing. WE've all been there so don't worry about finding it difficult to write what you are feeling (()) Hope to chat to you sooon

YOu can do it online but I wouldn't know how to word it! Channel 5 are asking for cases to investigate, perhaps it would be worthhile contacting them? http://petitions.number10.gov.uk/

John it's so wrong, maybe we should get a petition going to re-evaluate brain injury? I wish you all the best with your appeal

Jess thanks for the welcome, os sorry to hear about the baby (()) Look forward to getting to know you

I agree with everyone else, you can't take chances with this & you need to be seen at the hospital. Don't letthem fob you off or waste time with your GP (()) Hope you get is sorted soon hon

Maggie I feel anythign but brave, am absolutely terrified if the truth be known! Scared about going through another major op & not coming out of it as well as I have with the clipping:crazy: The registrar was very blase about it all but having shares a ward with coiled patients I know it's no walk in the park!

Well had my review with the registrar, good news is that my 3rd nreve pasly isn't total nay moer & my eye no moves from side to side instead of being over to the right, also having some single vision when looking over to the right. I am mostly headache free & only occasionally need painkillers. I saw my angio pics & the aanny was on the right posterier communicating nerve which runs over the 3rd nerve to the eye.I was also told that my eye was clipped with 2 clips as the first one didn't occlude it completley, the anny was then aspirated of the blood so this is probably why the pain had gone after the clippping. The bad news is that I possibly have a mirror image anny on my left side, I remmeber the Cons saying the left side didn't look great but blanked it out I guess. They neeed to look at my angio again & depending on what Mr Sparrow thinks I have to ahve another angio in 3 months & possibly an elective coiling or clipping if it's needed. to say I am gutted is an understatement but they tell me it should only be 1-2 days in hospital & the side effects should be minimal as it's a preventative measure not emergency surgery.I shoud hear somehing next week hopefully & Cons is going to consider me driving & possibly write to my GP if he is happy for me to drive again.

Alan Erin is doing so well, I know how frustrating it can be when progress seems so slow but she is doing fab. I hope you & the family are bearing up ok with the strain of hospital visitng (hard work). It will all be worth it when she spends a few hours at home. Fingers crossed it's soon

Gary I think you are right, the CT scan is a donut shaped scanner whereas the MRI is the metal tunnel noisy one with magnetic pulses. My angio was with a small black overhead scanner that looked like neither a Ct ot MRI scanner but was done ith dye through the groin (& flshing lights behind the eyes& funny tastes across your mouth)

After having really bad period pain this month I am now decided the coil is for me, I felt so rought yesterday (sick & sore) that i'm not letting it ruin anything ever again! I've made the call & waiting for them to ring back with an appointment as there is a waiting list!!

Hi Liz I hd my clipping just over 10 weeks ago & am the classic bad patient! I am not used to resting/taking it easy feel totally frustrated that I cen't do things I would consider 'normal'. am also struggling to cope with the emotional fallout of the operation as it scares me witless thinking about what could have happened & not knowing if it could happen again. The fabulous support on here has mde sure that I know to rest when my body tells me to, to cry or get cross if I need to get it out of my system. These feelings & worries are common to most SAH'ers & part of the recovery process. It helps to talk & if you need help to do that ask your gp or your neuro consultant for support. WE're always here to listen if you need us. Take care

Sally not sure on age limits but I was on it at 40 without any questions asked & am overweight). I haven't heard of anyone being refused it due to age either. It's worth asking fo it if it agrees with you??

louise can she get to her local library for some computer time? Or a friend locally that can show her where we are? I for one would be lost without sites like this & to be able to get a reply syaing what I'm going through is normal. Perhaps she also needs to contact Headwya for support at home isf she can't get online?

Thanks ladies, I think I will give it a go. Was on the pill after having Nathan & was told to take it back to back & it really messed my system up, don't want to go there again!

Eddie your Dad has made tremendous improvements but sorry to hear about the pnumonia, hopefully he will fight it off soon as he is clearly a strong man. I am so pleased he is able to recognise you & talk (even if it doens't always make sense - that will come). Wishing him a continued good recovery & best wishes to you & your family