Janet

Just try to remember your husband is in the best place and will be getting monitored closely by the medical staff in the HDU. Really hope that everything goes well tomorrow for your husband. Janet x

Hi Donna You're certainly not on your own with those sorts of feelings. My head quite often feels really heavy at times and it is mostly at night more especially so if I'm overtired. I also do still get anxiety attacks but not as bad as the one you had. I'm on my own most nights and when its really bad I have to read myself to sleep to take my mind off the feelings of panic. Like Stephen I try to find other things to do too much concentration on any one thing has always made my head muzzy and sore. Janet x

Hi Your G.P will be able to give you a sick note once you explain the situation to him you'll have no problems. Its understandable that work is going to be the last thing on your mind at the moment. Really hope that the Angiogram shows what the problem so your husband can get the treatment he needs quickly. My thoughts are with you both. Janet x

Hello Welcome to BTG so sorry to hear about your husband it must be a very anxious and worrying time for you. The Angiogram they are doing will allow them to locate the area of the bleed and also if it is an Anuerysm will show them where it is. If it is an Anuerysm they will then be able to decide on the best method of treatment. If your husband does need treatment the Neurologists will explain the procedure to you both and the Neurological staff will be able to answer any questions you may have. Please let us know how your husband gets on my thoughts and prayers are with you both at this really traumatic time. Janet x

Hi Mollie Sorry to hear that you've been so unwell lately. I hope the tribunal goes in your favour the list of Solicitors they supply are independent its just Solicitors used to handling Tribunals. Tribunals are completely seperate from the DWP and base their decisions on the information you provide so you will get a fair hearing. My memory is still not all it could be at times but I'm more fortunate than you as I have other people living in the house who can remind me of things. I still get confused about tablets though and can never remember if I've taken them or not which can mean a painful few hours until I can take more. Do you have a local Headway Group you can get in touch with. I'm sure they could offer you help and support see useful websites n the Homepage. Take care and hope things start to improve soon for you. Janet x

Hi John So sorry to hear that you are still being messed around. I really hope that it is resolved soon for you. My only suggestion is the hospital PALs service who act as go betweens between yourself and the hospital. Janet x

Hi Sean Welcome to BTG and thank you for sharing your story with us. You have posted in the right place. Lovely to hear that your feeling so much better are you already back at work full time ? The fatigue and tiredness does improve over time its just learning to pace yourself sometimes easier said than done. Look forward to hearing more from you. Janet x

Hi All I'm sure some of you will have read the thread by Cookie (Jan) regarding the trial she is taking part in being done by Walton Neuro Centre. I have been very frustrated borderline depressed with my inability to lose weight since the SAH also the constant head/nerve pain I suffer with. Having a good Doctor I mentioned possible Pituitary problems to him. He promptley sent me for more blood tests even though the ones I had had 6 months before showed no irregularities. The blood test returned normal but as I pointed out to my G.P normal test don't always show problems. Living in a world of not what you know but who my G.P is friendly with a Consultant Endocrinologist at the Royal Liverpool so said he would have a word and forward me if necessary. Within two weeks I had an appointment so yesterday I went to see them. I must admit they were really thorough and talked through all my concerns and problems both post and pre SAH. At the end of my examination I was told that Endocrinologists are very aware that SAH's can damage the Pituitary but they do lack research as yet. I was also advised that in most cases it is likely to be several years or more after the event and that as the problems are so subtle it is very hard to diagnose. Therefore I had more blood tests but she does think that personally I probably am not suffering from damage to the Pituitary as yet obviously if my blood test shows anything they will call me back sooner then my next appointment which is in six months time. I was just grateful that I was taken seriously both by my own G.P and the Endocrinologist. Iam posting a link for the Pituitary Foundation with one word of advice when you read the different conditions and symptons we as survivers can relate to at least one or more of them. Hope that some of you will find it useful and will let you know how I progress. http://www.pituitary.org.uk/ Janet x

Hi Bessie Welcome to BTG hope you find it useful. Sorry to hear about your Mum but as the others have already said she is in the best place. With regards to memory and speech the first few weeks are really hard its so difficult to concentrate and words can be jumbled or totally inappropriate but it does get better with time. Remember to look after yourself as well the road to recovery is long and rocky and your mum will need all the help and support you can give her. Take care and best wishes to your mum. Janet x

Hi Sandie Walton has a support group there is info on the SAH forum but if you need it I have the contact number for one of the women who help to run it. Some Doctors can be so unhelpful if you're really worried there is a SAH support nurse at Walton who you can contact her name is Catherine Stoneley. catherine.stoneley@thewaltoncentre.nhs.uk The above link to Neurovascular Nurse can only be used by Walton Centre patients. Hope this is of help to you. Janet x

Thanks Karen very interesting. Janet x

Hi Caroline My left leg was really weak and achey in the first year or so but once I started going to the gym it seems to have strenghthened it. Only gets reall bad now if I do too much walking or allow myself to become really overtired but then its all my limbs that feel like lead. Janet x

Hi Sandie A very warm welcome to you. Thank you for sharing your story with us it certainly brings back a lot of the memories and feelings of the first year of my own recovery. It does get better with time but oh so frustrating actually going through it. Be kind to yourself and as hard as it is try listening to your body and rest as much as possible and no I didn't always listen either its just so tempting on good days to overdo things. Look forward to hearing more from you soon. Janet x

Hi Welcome to BTG so sorry to hear about your friend look forward to hearing more from you soon. Janet x

Hi John So glad that you have decided to take further action on this matter. Have you also thought of having a word with the Pals Service at the hospital concerned they can also be helpful in finding things out for you. Really hope you get a speedy response to this matter as it has been going on for far too long. Best wishes and take care of yourself. Janet x

Hi Debbie A warm welcome to BTG so glad that you have found the information here of help to you. As Myra has already said the support groups in this country are few and far between as well. Thank you for sharing your story with us and I'm sure any questions you may have in the coming weeks there will always be someone who can set your mind at rest. Just remember to try to get as much rest as possible and plenty of fluids and start to make notes of any questions you may want to ask at your follow up appointment. Look forward to hearing more from you. Janet x

Hi Phil What fabulous news really hope that Sharon can get the specialist treatment she deserves now. I think that it is your constant support and love that has helped Sharon so very much and no matter how long it takes I know you'll be with her every step of the way. Sending lots of love to you both. Janet x

Hi Adam I think when it comes to returning to work you do have to think about a phased return. I returned after 7 months but phased it in gradually only ever managed to get to 30 hours but have since reduced that back down to 20 hours a week. I found working too many hours meant that it took me all weekend to recover leaving me no time to do much of anything. We are all very individual in the way we recover and many members have managed to return to full-time working. Have a word with your Doctor and if the company have them Occupational Health. Going back to work does increase your confidence and sense of normality though. Just make sure you can ease back in on your own terms. Best of luck with it. Janet x

Hi Sheila Welcome to site with regards to flying I was told six months but it seems to vary depending on your Neurosurgeon. I went to Corfu about six months after my SAH and the flying was fine just more of a build up of pressure in the head than before but that could have been nervousness. Just check with your G.P sure if your blood pressure is under control it should be fine. Look forward to hearing more from you soon. Janet x

Hi Adam Sorry another wow about going ahead with the wedding and welcome to the site. Think the others have said it all for now so will look forward to hearing more from you. Janet x

Hi Bobby Welcome to the site I hope you find it as useful as I always have. As Karen says it is very early days for you and even with a non-anuerysmal SAH you do need to get plenty of rest. With regards to flying it is always best to check with your Neurosurgeon/Radiologist but if I remember from earlier conversations each one has their own opinion as to when its safe to fly. Good luck with your recovery look forward to hearing more from you soon. Janet x

Hi Anne I don't think I struggle too much with motivation unless really tired or like Louise and Karen when the weather is hot and humid. My main problem is still concentration even now don't know if its related to the constant headpain or not but can be very frustrating at times as seem to have lost the ability to multi-task :? Janet x

Hi Perry So glad that you managed to get the ball rolling best of luck with your appointment on Thursday. Janet x

Hi Tisha Lovely to hear that Tina is starting to improve as Paul said hopefully you'll be able to get her outside soon for some fresh air. Good luck with the MRI results really hope everything is ok for you. Janet x