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Janet

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  1. Janet

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    Hi Diane So pleased he is home for you just make sure he gets plenty of fluids and rest and hopefully you can catch up on some rest as well now.
  2. Hi Diane I agree with Tina and the others the headaches are part of the healing process. I had a crainiotomy on the left side so most of my pain was located in that area in the first few months. Really hope that Mark is allowed home soon for you and its a really good sign that he is starting to get mobile again.
  3. Hi Diane Headaches are quite normal when first sitting up and Mark has been completely flat for a couple of weeks. The headaches will probably continue for a few weeks and it is also normal to feel quite dizzy and wobbly when you first get up as well. If you have a look at the Non-Anuerysm Forum you can see what others have written about their recovery symptoms and follow up. We all tend to have similar symptoms though and recovery is a very individual thing. Its good news that Mark maybe allowed home soon it will relieve some of the stress for you and the long drive to be with him. Wishing you both all the best.
  4. Hi Helen Definately not nuts and pretty normal really. I think in the first few months you're just so happy to be alive that the enormity of whats happened hasn't sunk in properly. Then a few months down the line we realise we're not able to do what we could before and thats when the emotions go into overdrive. We end up feeling angry and extra sensitive to situations that before would not have affected us. As Karen has already said the triggers are tiredness/fatigue. Hope you feel better for letting out some of those pent up emotions and we're always here if you need us.
  5. Hi Sam How awful that your G.P is not taking it seriously has he not read the letter from your Neurosurgeon. Might be time to change your G.p to one that can at least try to understand the impact a brain injury can have which is both physical and emotional
  6. Michelle I only take 10 mg at night they can take a few weeks to start to feel the benefit and they do help me sleep a bit better as well.
  7. Hi Dianne I agree with Sam it has been a really tense and frightening time for you and if no cause is found it must be very worrying thinking of taking Mark home. As you know we do have several members who have had non-anuerysmal SAHs but the important thing to remember is that recovery is a very individual thing. Hope all goes well tomorrow and if Mark is allowed home just make sure he gets plenty of rest and fluids and try and take some time out for yourself as well if you can.
  8. Hi Michelle I take Amytriptilene in a low dose for the nerve pain in my head and have done on and off for the last couple of years. In between I did try other types of treatment but the Amytriptilene seems to work best for me, it is an anti-depressant but used in lower doses can calm certain types of nerve pains, Hope this helps you.
  9. Hi Susie A warm welcome to you and thank you for telling us a little bit about yourself. We are a friendly bunch on here so any questions feel free to ask look forward to hearing more from you soon.
  10. Hi All Just been on the Brain and Spine web site they have some new leaflets that maybe of interest to some of our members. One for dizziness/balance and the other is Vestibular exercises links below if anyone is interested. www.brainandspine.org.uk/dizzy www.brainandspine.org.uk/exercises
  11. Lyn so glad that you and Graham have an appointment now and thankfully its only a wait of a few weeks rather than months. Best wishes to you both.
  12. Hi Pamela Welcome sorry to hear your Other Half seems to be getting worse if you're really worried have a word with your G.P. It could also be loss of confidence and depression causing the change which is quite normal and can take a while to come on. I think at first we alll feel so glad to have survived that when we come down from that high it can have a very emotional effect. We certainly don't mind you coming on thats what we're here for to offer help and advice to fellow sufferers and their friends and family feel free to ask whatever you need someone will always try to answer.
  13. Leonie I have never been offered a nerve block injection even though I have now be told it is most likely a trapped nerve due to the operation but nothing further can be done. I tried several different types of anti-epilepsy and depressants in low doses until I found one that helps for me, that and a steady supply of paracetomol when the pain gets really bad. Good luck with work and hope the headaches and tiredness start to ease soon for you.
  14. Hi Diane Welcome to the site glad you found us as there is quite a lot of useful information that should help you and hubby. Karen as usual has given you the best advice and that is to stay positive but I realise how hard that must be when its someone you love that its happening to. Any questions at all just ask there is always someone who will try and answer them for you. Congratulations on becoming a fully qualified Nurse and remember if you can to take some time out for yourself.
  15. Hi Leo Mine was trial and error I initially returned at about the 7 month mark on 20 hours then increased after a few months to 25 then 30 hours a week. In my second year I realised that all my weekends and evenings were spent recovering so slowly reduced my hours down. I now only work 20 hours a week over 4 days and find that this suits me even if the cut in pay was really hard to take at first. I suffer with permanent nerve pain in my head but I think it took a few months before the really bad headaches and tiredness lifted got better.
  16. Hi Lyn and Gray Welcome hope you find the site helpful. Gray's headaches may also be increasing due to all the stress of the past few months. It must have been hard losing his job and his home and as you say having to take a lower paying position must be really hard. I get the momentary brain freezes generally when I'm tired or stressed out. Really hope you get the counselling you both need soon. Lyn the post didn't come across as you think you sound like a very concerned and loving partner. Look forward to hearing more from you.
  17. Hello and welcome sorry to hear that you were treated so badly but there are quite a few members who were sent home and told it was migraine. I myself was slightly luckier and was admitted to my local hospital had all the necessary scans but had too wait for nearly 6 days before Nuerosurgeons could see and diagnose my condition and was then speedily treated. It would be helpful if you could let us know your name and how long it is since you had your SAH. Look forward to hearing more from you.
  18. Hi Anne So sorry to hear about the redundancy I really emphasise with the confidence thing. I know that if my present employers get fed up with the amount of time I have off sick with my head problems I would be in the same situation as I find it extremely difficult retaining any new knowledge I do learn. I really hope that you can find another suitable job soon wishing you the best of luck.
  19. Hi Paul Hope all goes well for you at the Headway meeting. Hope they can give you some useful advice.
  20. Hi Vicki So pleased your mum is showing such good improvements and it will do her the world of good to be able to spend longer periods in her own home. Best wishes to you all.
  21. Hi Ali Much better news hopefully John will continue ot improve and soon have the transfer to the local rehab unit.
  22. My short term memory is still quite bad as well and I'm very nearly 3 years on. Glad the scans were clear that must be a big relief to you both. Good luck with the Gastrscopy.
  23. Hi Caz Well done on returning to work and Tina's right the housework will keep. I know my first couple of months back were really tiring it good that you are doing a gradual return just take it at your own pace and good luck.
  24. Hi Ali Welcome to BTG as Tina and Paul have said this is a fabulous site and we will try to offer you the support you need at this difficult time. It must be really hard for you being so far away from your family and friends but hang in there. As Paul has said if there are real problems the hospital would have called you back again to let you know. Hoping the news isn't too bad when you get there please let us know how John is getting on and remember to look after yourself as well.
  25. Hi Laanka Welcome if you want to tell us a little about yourself just put it under the Introduce yourself section. Just tell us as little or as much about yourself as you like. It must be a really worrying time for you having to make such a hard decision. In many ways I was lucky in as much as mine ruptured so I didn't really have to make the type of decision that you have to make. Really hope that after reading some of the stories on the site it will help you with your decision. Look forward to hearing more from you.
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