MaryB

You have come a long way baby! I cannot imagine how your son felt sitting in the car? Jeez... So glad thats behind ya, huh? I am thankful they don't happen again! LOL!! Do you find that when someone use a pain scale it is like "do I include the SAH as a ten or is it the 10 before that 10?" Not knocking anyone pain tolerance but I thnk we all know what a 10 is and it is not the 10 they ask you about other pains your having.. lOl. I will fb YOU later alligator......... I need to hem a dress I sold....augh!!! Big bear hug to you! maryb

Mary, I am not an expert but the spasms seem odd compared to what I had - My headaches left at 6 months - never spasm kind but they came back at like 7 1/2 months much milder. I am having back spasms so I REALLy get that spasm word right now. I just had one shortly ago that went from my back to my stomach, don;t even know where to grab to make that stop!!! I do have a Corona theory if I drink 4 my head feels better. LOL

Well I was having a very lazy day and my memory is shot this week. I mean really shot! So I know I had a busy week with new neuro appt which leads to more appointments etc.... a friend invited us to a cookout. I did not want to attend but later I thought about and was up to it after my nap. Anyway my husband never really feels all that comfortable with these people and I was surprised he wanted to go. Our kids are best of friends but all live in different states now etc.... Anyway we went and had a really nice time and dinner. They have a lovely home etc. but Brenda kept apoligizing for not knowing I was still having issues. Its amazes me when people think you can just get over this kind of thing? She has always been so supported but I am shock to think that someone thinks I am not daily dealing with this. I have taken 3 steps back and I do not know if it is the lack of estrogen the dr took away form me or what but I am an idiot!!!! LOL. So when I say to people I am getting along and I "look" normal am I suppose to say something different like some kind of code to let them know I am not "normal yet"? I mean I love these people but I just do not get how they think you have all this happen to your brain and suddenly you heal and are fine. DO some peole feel fine after a SAH? What is the % of SAH survivers feel fine & normal? I think it is bothers me most that first off I have fibro and second off I had a SAH, stroke, something else ( never can recall what that was??) and a lurking brain tumor. So what do you say to friends when they ask how are you? Evienently they assume you are completely fine. I dont feel I should go into detail how I am doing with a casual question. I usually say I am hanign in there or coming along. If anyone has any answers let me know. Thanks. Just had to get that off my chest. I don;t like to have to EXPLAIN myself because I feel like I am asking for pity or something. Maryb

Ah Louise.....Your Indian name would be "The Wise Woman". ( mIne was "Runs with Scissors" now it is "One who cannot remember 5 mintues ago") Just wanted to say enjoyed the reading. I try to live in present what is past is past- that goes for your crappy childhood or bad marriages, the way people treated you, all the wrongs that you feel you did not deserve etc..... I have tried to really live in the moment. I am 53 so I may see things a little different, both set of our parents are gone & have been, my kids missed out on grandparents as I never even knew mine. SO many things to regret or be sad about but it is what it is. I know it sounds so simple but for me I have evolved to a place in my life where I am thankful for good friends, the most wonderful sister inlaws that treat me liek one of their own. I see my boys becoming fine young men with good ethics and morals, that do the right thing and are bothered by the injustices of the world. I wish I could do more and do get frustated but it uses up my spoons and I do hang on to my handful of them and use them with great care. I do not wish this on anyone so if it had to be someone let it be me and not my family or close friends. I recall saying after my brother in laws crash that I woudl give anything to be able to ease that memory from his mind but he is as strong as I am and will be fine. I have been surrounded by so many that have horrible going on and happening all the time jus tby the luck of their own gene pool. I just think this is my baggage and I am glad I can walk and talk. I get others and feel for them but I am at this point in my life. I have seen sorrow and sadness, unfairness up close. I do not think I am so special that I think I can escape without something. I think my job now is to set an example to show how to "keep on truckin" along the best I can. I do not want to take away anyone process as I did not "get here" easily. I had much anger and pain along the way prior to this happening to me but i feel it taught me well. Big HUGS. maryb

What is your Dr. Saying? I would think with muscle spasm ( as I have them in my back right now) you need an anti- inflammatory medication or cortisone? Something to setttle it down. Good luck.

I am sorry this happen to you. Most of us have headaches it seems. I often get that stiff neck, nausa headache if I over do it. I also have Fibro so that type of headache was something I was use to. I also just stopped having bad headaches a month or so ago. I had my SAH in Sept,2011 and a few other things going on. I can only say water and rest. It takes time, most do not return back to work for at least 3 months. I sometimes can only be up right for a few hours at a time. I do not know if you are allowed to get a massage or not?? May be something to check into? I also use epson salt soaked washcloths and put it on my sore areas. I had aa hard time finding something soft enough to lay my head on for several months. Do you rest several times a day? Let us knwo what your day is like, and you will get some respones. Most live in UK or Canada so they are not up this late. Tomorrow you should have more people give you information. I wish you well. Maryb

Anne, Never boring to hear sound facts from a professional! Thanks for sharing. MaryB

Well maybe that was sept 2011. LOL

We are here for you, please give us a little more information. How old is your husband etc.. I live in the USA so I am on a different time schedule as most post. This place is my glue that holds me together. Everyday gets better, every month is a big improvement. I wish I kept a diary for how far I have come. I had my SAH in SEPT 2012 long with a stroke, and a brain tumor. I am improving each day. Tonight we had our small town "Taste" & "Art" wrap up party and I did great with live band etc. I wish you both well, this is a great place to come. MaryB

Thanks for the information- Chris, David, Gill & Anne. I am 53 and I work in a very noisy enviroment with phones ringing, music playing, dogs barking & people talking all at the same time. I also had parents that could not hear anything either! I am doomed....I do think I need my hearing tested. I am sensitive to noise & cannot cope in that enviroment, yet deaf & can't hear people talking, along with cannot tell "what that noise is".......... Hopeless. Adding the startle reflex being out of whack it is great. I really have a hard time on the phones at work. I often have to ask 2 or 3 or more times their names...I shoudl practice "Just a minute while I get you someone that can help you!" maryb

I have just started to reread this thread. Funny when I see I have written something and I don't even recall any of it. I am about to see my new neurologist and needed to get a clear set of notes about work. I see such wonderful people form caring wonderful relationships that are truly inspiring. This is a wonderful thread MaryB

Skippy - You need to start a diet thread of support. I made it through yesterday. Today I have a sore throat or allergies. I had the house opened up past 2 days because temps lowered but I closed it up this morning. I just made a crystal light ice smoothie for my throat. I need to lost 30#'s realistically but I need to lost 5# right NOW!

I started one today, jeez....... love my water class but I pulled something in my back in feb in yoga hyper extended my rib cage and I re injured it the other day again so I off exercise until it settles back down. Just got a shot and some anti inflams for it. I need to track my meals, that i sthe onlly way I ever lost weight but I think if I get a couple of breakfasts, lunch & dinner choices with X amount of calories it will be ok ..... for now to eat the same meal over and over. Except my husband is too thin and he works out. errrrr. mary

Hi Alison, SO glad things are going well. I hope everyday is better for both of you. I remember early on I would stand forever looking at all my whote socks trying to pick a pair out. I have the opposite of inpatience!I finally had to tell my to "Just grab a pair!!!". It took me a full 7 1/2 months even though I was working to really grasp what happened. I think we tend to go through motions but we can't keep what we just learned or read about our health in our heads very long. You both are in my thoughts. MaryB

Welcome Hellen, I am glad you found this place so soon. I live in the US so our health care is a little different but we are not told one thing prior to dischage either. I thought I would be back to work in a few weeks. I am 9 months post SAH along with a host of other head issues and this place is like home for me. It brings me peace and comfort daily. I have no idea how depressed I would be without it. I do not think Dr.s are sure what to tell us. I understand the neurosrugeons job is to surgically fix the brain but the follow up with a good neurologist is where the issues come in. It is like if they were honest with us we would not understand or something. Or maybe they just plain do not know what to tell us to expect, maybe there are actually people that go through this and are completely ok in 3 months??? HUm, I wonder if that ever happens??? ( if my NEW neuro man I see in a few weeks is nice I will ask him that!). My follow up's were on schedule but once again I live in the USA and I pay for my own health coverage. AND that is why I had to go back to work after 4 months slowly but after 9 months my life is pretty normal except I cannot go like crazy anymore, I need rest, can't over do it and I have learned to listen to my body. I do wish I would of kept a diary of my recovery. Good luck Hellen, Keep checking in and let us know how you are doing and feel free to ask questions or just vent. Big hug, maryb

Carl, Thanks for posting those links, very interesting. Mary

Thanks Dawn. I also notice if the TV show I am watching has background music I keep trying to turn their music down so I can hear the voices.

Hi you all, Have any of you thought since your SAH that your hearing is not the same? I seem to not hear as well along with not being able to tell "where that noise is coming from". I also would say I hear bells but really I must be crazy on that one but I think I do hear bells every once in awhile. I know most of us can't hear in public places but I am talking about at home alone type of hearing loss or hearing a slightly different words than spoken ( OK, sometimes it is not even close but???) Thanks, maryb

Perfect words "A different kind of lifestyle". That is what we make for ourselves.

I agree with Sami, well everyone else. I was thinking I would never be able to go to a rock concert again but this weekend I went to BB kings and heard some blues. We stayed for about an hour or so. I was happy I was not overwhelmed. I do believe the anticipation can be worse in a lot of cases, mind you I had rested twice a day on our trip and it made it ok. xo Maryb

Teechur, It is ok to be angry (sometimes) as long as it does not hold us back from going forward. I do not think Dr.s know HOW we will turn out or what to do with us for the most part. Medical world has not caught up yet. I feel that that say everything will be fine because they don't want to disscourage us. I think if they "knew" us or say "me" they would know I can take it but be truthful so I don't feel like I am crazy when I am still struggling. I can see I am moving forward but geez..........treat me like I am an adult. I think that they have to be positive because so many people would just give up. I feel I can adapt but I do not have the physical limitations that you and Dawn have either. I do know I have never sent more time reflecting on my life and it's purpose. I am sure you inspire so many Teechur as you have a great spirit.

Vitamin D does cause fatigue but it is probably not all the reason for yours! SOrry, Did they check B vitamin levels or hormones? Just wondering. Mary

I have ALWAYS startled easily now it is worse than ever. I can jump and scream at my own shadow. It's awful. My husband scares me several times a week just doign nothing but I am so focused on my business I see him and scream.

When I was so fatigued last summer BEFORE my SAH I could not sit up in the chair waiting for the Dr to come in room and I had to lay on table while I waited. My husband gets what fatigue means as he sees it every day or at least 3 days a week. I iwsh I could lay down right now ........maybe I will b4 I head back to work. later guys & gals.

Sandi, I love that you are seeing someone so positive and you are sharing it with us. I think I turned the radio off 5 times today and someone kept turing it back on. Errrrr. Sorry for your luck David and mine too! hahahahha and Carolyns! Someday we will get our help. I am in the hunt for new neuro man now. I am not talking test ( don;t think) until I see new neuro. I heard Sheryl Crow and I share same brain tumor! Need to eat dinner now! XO