MaryB

Mine too, David and Kris...Kris fix it for a woman and I will steal it. I could not write a poem if I had to...........

Congrats David, I will be thinking of you tomorrow. I hope you have a lovely of a day as your poem was. Thank you for all you give.......even if it is a kick in the pants when I need it. Cheers & I toast a beer to you! Maryb Turn it up!

Hi Vicki, I find the hair dresser the most annoying of places to go. Both my hair dressers want to talk and both are really loud and I cannot stand that. I would like to sit in quite and relax and get my hair done. I found for me not having to get into all the details to say "I had a stroke" and I am getting better all the time. It just simplifies it for me. I also will tell the cashier if I am having a problem processing my wallet and money or debit card. "sorry, I have had a stroke and it is a bad day for me". It gives me time to think and stop beating myself up and it give them a moment to think about their customers as individuals. I also live in a small town and sometimes I just say " I am doing better and I do not want to talk about it today!" I do this with of course a smile and a laugh!! I find for me being more blunt - maybe as blunt as people are to you is what works for me. I think if they are all talking about it in front of you - your response may need to as blunt for them to understand. It does not seem like beating about the bush works for those people. LOl. Good Luck!! maryb

I have always had them and have them now bad when tired. Last week on friday at work I forgot how to take a payment from a client.....along with not being able to remember why they came and write it down., All better today. I am worse when tired or done too much.

Hiya! My headache lasted 6 months left for 2 and came back but not nearly as severe or every day. Except this past weekend I had a 3 dayer and wanted to poke my eyes out with a fork!

Nik, I am glad you have recovered so well. I as a 53 year old mother, from the US. I feel sick to my stomach when I think about what I know now about head injuries. My oldest played football and wrestled for 7 years. I would now have a real issue with sports that cause a lot of head injuries. I am just saying as a "mom" it freaks me out. I am sure this is a “MOM” thing. I also have a mengioma that they will check every year. Benign or not you should know where it is as so if it starts growing and you know the symptoms – Mine would be loss of balance. Tumors can grow fast benign or not, hopefully neither of ours will. Good Luck, Maryb

Can I ask if they even give you something for the dizzyness or do they not becasue they cannot find a reason for it? Silly...... hopefully they are giving you some kind of medication that helps. maryb

Jaffalinda, Welcome to BTG, you have found the right place for support. Glad to hear your daughters are there for you as it is important to have support and love. You have truly been through it & I hope we can all help you now. MaryB

I so long for quiet easy going days where I can go at my own pace. How wonderful it is not to have a demanding schedule and be able to have a pleasant day, week, month of going at my own pace.

This makes me feel a little better about my upcoming testing. I of course live in the states so things are different but I know I only have so many spoons a day and 1/2 day of work takes them all for the next several days.,I fear the testing but on the other hand I jsut want to get it over with and have a name for where I am at. I am a fighter but my quality of life is fair to poor- if I work I will be on the sofa on lunch hour and after work, as I use up everything I have by working. I hope I get answers and pointed in the right direction. My boss had a wood farm puzzle on her desk the other day and when you put the correct farm animal in the right hole the cow would moo etc so I think I may do ok. LOL Michelle you are my hero.

hahaha, I had to post in green room. Good one! maryb

I left work early Firday, I just felt odd with just overall weakness and headache wanted to lay on couch in the dark- Friday at midnight I was on bathroom floor unable to move my head because of the lightening strike pain and vomiting. Thursday prior I had a tooth pulled, Wed i flew back from California, 6 months prior I was writing odd sentences in charts that made no sense and I was complaining of extreme fatigue like after SAh fatigue but without headache. I still have no one that will tell me why I was sick prior an dthey do not feel it was SAH bu tI think maybe one of the strokes I had? I also about 6 months prior felt like a firework sparkler was going off in my right eye for about 30 seconds one night. Thats about it but I was under a great deal of stress anfd heartaches for over a month prior to SAH.

Good for you Carl to start walking again. We all know how badly the stresses are for us. I know exercise it so helpful and my charting shows it does. I just wish I could do it while I am on my work week..I found it great effort to wash my hair when I showered after work so adding a walk or anything is overwhelming for me most of the time.In fact I wish somene would bring me a glass of water as I am dying of thrist! Keep it up Carl - I am proud of you for being able to do it. Feel free to inspire me. Maryb

I think that is what insomina really is..... I had been that way for years..b4 sah b4 fibro. I have friends the same way without SAH. But with stress of kids ( I think that is why so many mothers end up with insomina), illnesses in general, work worries. I am so lucky to have a Dr. that felt giving me something to relax my mind that may be addicting was less harmful than not sleeping was to my body & mind. One night of not sleeping and having my mind race from thought to thought does me in for a week. I think not resting and sleeping is the beginning of not being well. I you do not sleep your body cannot heal and the cycle begins. Just adding my thoughts. Maryb PS sorry I just reread Carls post . sometimes during the day my thoughts are jumping all over the place. I do best if I make a list and STICK to it, sometimes I have to turn on TV so I can just listen to something other than my racing thoughts when I am home. WHen I know I am having a hard time getting control over them. I like silence but I will use music or TV to have me stop listening to the voices in my head. Another thing when I quit smoking many years ago I would start thinking about a smoke and I would just say STOP to my thoughts, I do that now as well. When I find myself with racing brain I say STOP and try to focus. Since my SAh my ADHD is so much worse so some of the things I use to control myself I need to use more often. Wish I coudl fix that filter from my brain to my mouth!

Thanks for that information Karen I was able to save it in my favorites for later! mary

Kris, Last month when I went to my yearly with my gyno Dr. as he was getting ready to leave he stopped and came back, took a seat and told me of his near death experience and how it was not scary at all. In his mind he felt he made a choice to go back to life as he just opened his practice, was not married yet or had children etc. It was really heart warming to hear this from a Dr. that could of easily of left the room and said "See you next year!"

Donna, I believe al cases are so different. I had a month, 3 month and 6 month scans done & follow ups - but I was also "nicked' atmy brani stem when they did the angiogram- so that was extra problem the other was they saw a small brain tumor and they followed up at 6 months with a scan to see if any growth. I will be scanned yearly now- kind of like a mammogram if you have a benign lump. I am only seeing the neurologist ( I think) as I was having problems with memory, great fatigue and falling prior to SAH, stroke yada yada yada. I still have neuro issues either due to the SAH etc or the Fibro so that is why I am following up with a neurologist now. My SAH was sept 2011. Hope this help. Maryb

Good Luck Mike, I hope you find some answers. I hope you find the right people to help you as well. I am out of my league here with any real help. Good luck, it will get easier. maryb

Cath, You are doing great, just the new enviroment is so different, noises etc... I felt like the "new girl" when I went back and things came together. One tip I had with a yoga move is if you need a little 5 minute relaxation make fist and stack them and put your forehead on them for about 4-5 minutes and relax. It can be doen almost anywhere but it an easy move to help with tension etc. Good Luck. Sarah???? 3 jobs & kids, you are super woman to me. I mean it. I would be hiding in my closet!! Well no, I know you do what you have to do but I am too old to change! You are amazing. maryb

Wow David that is great! I wish you well. You will be back up to full time in no time. I had a really, really hard week and I am just spent. I could not do one more thing any of the days. I am hoping to reload this weekend. If my job was a little less stressful (meaning all the stuff you don't want to know) I maybe could manage the stress better. When Cath said she went to see Chicago I was so impressed! Any big evening events are very taxing to me. Or it seems any big appointment or event during the day exhaust my brain for days. I must say that Sandi you are my example and you give me strength to keep up with this "investigating" my brain. I have been really wondering why I am going through with the testing and psyche eleval etc......there are days I feel it will not change my outcome or diagnosis. I do not think I would of done any follow up without you. I feel I just do not have the energy to do the work to make it better on my bad days/weeks. Even when I think about reducing my work load that seems overwhelming. I cannot simply have it all right now. On one hand I still do so much more than so many without an injury to the brain so I wonder what I am complaining about. Balance, balance, balance. How many people do you figure have a SAH never do anything after it as far as follow ups, or they are normal and have nothing wrong? Or just were told this is the way it is? Oh that cold never happen as they never tell use anything! LOL, They just watch us talk and are wondering if we are trying to pull a fast one on them or something. I wonder what those Dr.s think?? Hum?? Someone has to ask one someday when they are just looking at us with a blank face. Just had a moment ...........BTW means "back to work", there that is a great example of my brain and how it functions!

I lost 6 first week although most was just water from sweating so much, gaind back 3 this week.

Mike, I personally today would go with the drugs but....... tomorrow I would want the real help. I am sort of in the same boat of getting "evaluated" right now. I dreadddddd itttt! But I guess I want to move in the right direction forward and not be stuck here in 2 years. I somedays do not really know why I bother to want to change, I do not know if the work & $ will matter in the long run. I am just talking about myself, you may feel entirely different. Good luck , mary

I just ordered this the other day....cannot recall the other book I ordered with it though??? hum??

Carl send me your email address and I will show you my map.........and if it helps or matters I still feel like Forest Gump. I watched Dr. Phil do a show about screamign kids in public and I was telling one of my best friends this story - she says "screaming kids bother YOU in a store?" I was like where have you been? I am goign to finsih my map so I can give her a copy and maybe she will understand why my head hurts like a hang over everyday- even on good days. Same is true for that stupid woman who honks their horn 12 times a day when she drives past her moms house!!!!!!!!

Right & Left occipital lobe infarct (strokes) Acute Left Posterior Cerbral Artery in brain stem (SAH) Inoperable Tumor in left tentorium (Bonus diagnosis!) I have AVM When I had my angiogram there was a mistake made and I ended up with a Vertebral Artery Disscetion and then I stood up and broke my foot......................... It does help to know what you had but on the other hand I am still very confused as I am a visual person ( now with a visual impairment!! LOL). I really, really need someone to hold that colorful fake brain in the office up and show me exactly where everything happened. AND I would need to video tape it to "learn" it. So even though I know it is still confusing. Maybe too much going on for me to keep in my head. I have to look it up when someone ask that quesion. I did however make a pamplet for myself to understand it.....But I need someone to check my homework. If anyone is intersted in my pampet and how I did it send me a PM with email address. I have not copied it into computer yet but i can.