Tina

Hi Luke

Sending loads of positive vibes your way and hope things work out well for your Mum and Dad.

You are such a wonderful supportive Son, take care of yourself too.

Thought are with you and as the others have said we are always here for you.

Take care

Tina xx

Wow! Congratulations Louise, on your 17yrs SAH Anniversary

Feel very proud of how well and how far you have come with your recovery !

I personally want to thank you for all your caring support to me in my early days of my recovery, meant so much xx. Also for all your caring support to others on BTG over the years. 

Hope you can do something nice to celebrate lovely lady. xx

Take care

Love Tina xx 

Congratulations Colleen on your 8yr SAH Anni-versary ! 

So good to read you are doing so well and not as anxious as in the early days.

I hope you had a wonderful time celebrating with your lovely family.

Thank you for all your caring support to others on BTG xx

I am sure Win and all of us will help you out with your Halloween chocolate candy left over 

Take care

Love Tina xx

Hi Verna

A very warm welcome to BTG. glad you found us.

How you are feeling, is how many of us feel on here, especially in the early stages of our recovery.

It is such a traumatic time mentally, physically and emotionally.

When i had my SAH it turned my whole world upside down.

I was so scared i did not want to be on my own.

To help me cope with my feelings, my Doctor suggested counselling to me.

This really helped talking to someone away from family and friends.

When did you have your SAH? Do you have family and friends around to help support you ?

You have come to the right place for lots of helpful information and friendly support.

Look forward to hearing more from you.

Take care

Tina xx 

Hi Cassandra  

A very warm welcome to you and your husband.

I also had a ruptured aneurysm brain stem and can relate to all you mention. 

The nerve pain down the right side of my face is always there, but the numbness has improved over the years. my nerves were damaged and my eyebrow paralysed. I have metal plates in the side of my face and head, because they had to remove my cheekbone to get to the aneurysm  to clip it.

Antidepressants helped with the pain but made me feel so ill I had to stop taking them. I could not function,   My SAH was eight years ago, I was clipped. You are in the first year and few months of recovery and your brain is still mending from a huge trauma. Make sure you are drinking plenty of water and try to rest up as much as you can.  You are doing really well.

 I still suffer from the dreaded fatigue, but have learnt how to pace myself. If I push too hard my body lets me know. I used to get so frustrated and still do sometimes that can't do the things I used to.  Be kind to yourself, listen to your body,  rest up and try to be patient, not easy I know .  Things will improve it just takes time.  

I agree with Paul & Win not to keep googling things as will just add to your stress. 

You have certainly come to the right place for lots of helpful information  and friendly support. I hope reading through some of the posts will give you comfort. Look forward to hearing more from you and your husband. 

Take care

Tina xx

Hi Gemma

Wishing you well for Tuesday and hope that all goes ok and that you will be home really soon. Sorry you have had to wait so long, but good that your husband can be with you. Take care & keep in touch. 

Love Tina xx

Hi  

A very warm welcome to BTG.

So pleased you found us, you will find a wealth of helpful information and friendly support for you and your wife Kim.

Your wife is still in the very early stages of recovery and bad headaches and pains are normal while Kim's brain is mending and recovering from a major trauma. 

Can you tell us a little more about Kim's SAH and is Kim able to come onto BTG with you, to read through some of the posts from other members. You both may find reading, other members experiences  give  some comfort and reassurance .

If Kim's head pains are really bad then maybe get checked out,  for peace of mind.

It is a very scary traumatic time for you both. Post Traumatic Stress is also very common after SAH, maybe speak to her Dr about some counselling. Many on here have found it very helpful.

Please feel free to ask any questions. we can't give out medical advise but can share our experiences with recovery.

Look forward to hearing more from you both.

Take care

Tina.

Hi Stacey

A very warm welcome to BTG. 

I agree with Super Mario, definitely  ask for a referral for peace of mind because of your family history.

Keep in touch and let us know how you get on. 

Take care,

Tina xx

Thinking of you today, really hope all goes well for you Jan. Take care xx

Hi Chris

Congratulations on your 1st year NASAH Anniversary !

Well done you for doing so well and getting back to work....huge respect 

Thank you for sharing your on going recovery and for all your support & friendship back to others. You are very much part of the BTG family  

As Subs has said, 

1 hour ago, subzero said:

Also thanks for introducing us to your lovely family. Your participation and humour in the Brain Games help keep us all challenged, and your helpful comments in the various  Forum discussions have been a great support.

 

Hope you have a very enjoyable, relaxing day and celebrate with your lovely family

Take care

Tina xx

Hi

That's great news and so pleased you will be with colleagues at the hospital that you are close to and will support you  so important and what you need right now if back at work.

I really hope that time will move fast for you. 

Keep in touch.

Take care

Tina xx

So very sorry to hear your op has been cancelled  can totally understand how you feel!

The 31st is a long time extra to wait. Such a nightmare for you.

I suppose in a way, it is a good thing that the Consultant wants the best working along side him, so is putting your safety first.

Maybe if you feel up to it, going back to work may help take your mind off things a bit. Only if work is not stressful and tiring. Also only if you have understanding and support in the work place.

Lots to consider. Keep in touch.

Thoughts are with you.

Take care

Tina xx

HI Suzy

Goodness me you were brave !!!!

I could not bare loud noise for a long time after my SAH. I certainly could not have gone to a concert as also struggle with crowds. Things did gradually improve over time though.

One thing i could suggest if you have not already, is get some ear plugs.

They really helped me . As Win has said maybe avoid Concerts for a while   you are still very early in your recovery.

Take care

Tina xx

Hi Boozysuzi

A very warm welcome to BTG.

You have come to the right place for lots of helpful information and friendly support.

So sorry you are having to go through this bless you, a very scary time for you and family xx

I agree with all that Paul has said,  it is a very good thing your Neurosurgeon is going to operate and prevent a bleed.

Also wishing you well for next Wednesday and for a speedy recovery.

Keep in touch and let us know how you are doing, we are here for you.

Take care

Tina xx

Hi Evelyn

Good to hear you are feeling better, but do feel for you with your bone broth and steamed vegetable diet, bless you. Really hope all goes well with your biopsies. Sending lots of positive vibes your way.

When you feel up to it, please us know how you are doing.

Take care

Tina xx

14 hours ago, Chris said:

Reading isn't for me being dyslexic I can read through a paragraph or so and then it's like staring at a word search.

 

To help me read, because of my double vision, like you everything seems to blur and jump all over the place. I sometimes use a ruler to break down paragraphs to no more than 4 lines. I have also used a sheet of paper to block the rest out and work my way down. Hope this may help. 

Chris, here is the link below to 'A Letter From Your Brain'  that the lovely Win was mentioning :

Just click on the bold print at the top.

Chris just take your time and as said before be kind to yourself.

Its good that you have your dog to walk each day, as some kind of routine is a good thing.

What is your dogs name?  I used to set myself a small goal each day and it felt good that i had achieved something. I used to run my own business from home, i tried to get back, but it was just too much.

With the short term memory, to help, i always use post it notes or put reminders on my phone.

I have to do this daily. Maybe put a post it note in your wallet when you go shopping so you wont forget what you were going for. The fatigue is a horrible thing....if you push too hard, your body tells you to slow down. I have learnt to pace myself, does not always work though lol  !

Maybe we should leave the singing to our lovely Win   ha ha

Take care

Tina xx

Hi Luke

Thank you for updating us on your Mum's progress.

Great news that all your efforts and thoughtfulness has helped your Mum to feel a lot happier

So pleased that life is finally starting to look up. 

Wishing you all well and look forward to hearing how you are all getting on.

Take care

Tina xx

Hi Chris

A very warm welcome to BTG, glad you found us.

I agree with Super Mario, a very harsh statement from your neurologist.

When i had my SAH i was all over the place in the early stages, physically, mentally and emotionally. It turned my whole world upside down. I  also could not sleep very well at all, in fact i still have problems with sleeping now, nearly 8 years on, but it has improved.

Its not surprising you are short tempered at the moment, with lack of sleep and also you are in the very early stages of recovery. Your brain has had a major trauma and is trying to repair and continue to work as normal at the same time. Can you try and rest up during the day at all ? If you are thinking of going back to work, a phased return is always a good idea to consider. Go steady and be kind to yourself, things will get better.  

Look forward to hearing more from you and as the others have said you have found the right place for lots of helpful information and friendly support. As Michelle has mentioned above, feel free to ask any questions and  join in the daily banter in the Green Room .

Take care

Tina xx 

Great news Ian  really pleased for you !

Wishing you well.

Take care

Tina xx

Hi Julie

Thinking of you and hope all is going well.

Take care

Love Tina xx

Happy 2 year anni-versary Rob  hope you have a great day xx

Hi Jan  

Here is a link you may find helpful xx

http://web.behindthegray.net/index.php?/topic/1798-back-to-work/&page=1

Hi Nicky

A very warm welcome to BTG, so glad you found us.

You are still in the very early stages of recovery, everything you have mentioned i can relate to feeling. It does take time to adjust to the new you and can be very frustrating at times. 

Karen, our founder once said to me 'be kind to yourself and listen to your body'....very wise words

So pleased you made it through to press your reset button with the support of your lovely wife, family & friends, a very scary worrying time for them too. 

As Subs has already said so well, feel free to ask any questions and join in the Green Room banter. Win will sing to you  We are a friendly bunch. 

Wishing you well with your on going recovery and look forward to hearing more from you.

Take care

Tina xx

Unbelievable Julie !!! Really feel for you.

Also have everything crossed for next Wednesday xx

Take care

Love Tina xx