Tina

Congratulations Clare  

You are an amazing lovely lady and have done so well in 2 years

Huge respect for getting back to work and for all your caring support to others on BTG  

Take care

Love Tina xx

Belated Happy 13th Anni-versary Super Mario

You are indeed a real inspiration to us all and an amazing lovely lady I have had the pleasure to meet  

Lovely posts for a lovely lady

Thank you for all your helpful caring support on BTG xx .

Take care

Love Tina xx

Hi 

A very warm welcome to BTG.  So glad you found us.

Bless you, it is such early days for you in your recovery. 

I agree with Clare that you should stop working and take time to recover. You body is telling you to slow down. Your body has had a major life threatening trauma. Go and see your Dr as it sounds like he understands and explain how you are feeling. Ask him to sign you off work. it is very hard as you say, when you look well on the outside to others.

I also can't believe the way you were treated in hospital !   Sadly It seems most of us are discharged from hospital without any information on recovery or support. What you are experiencing with the headaches, anxiety and frustration is all very normal, especially at only a few weeks in recovery.

Things will get better, it just takes time. Listen to your body. 

Keep  in touch and let us know how you are doing. You have certainly come to the right place for lots of information and friendly support to help you with your recovery.

Take care

Tina xx

Hi Victoria,

Bless your heart, please dont be in despair. You have come so far and done so well.

It took me along time to come to terms with the new me too. It is so very hard when your whole world as you know it, is turned upside down. It's a huge step forward that you now can accept what you cant do and know your limits. Feel very proud of the new you and try to embrace the things you can do.

Have you ever considered counselling where you both go and can talk things through. Sometimes family just dont get it. Its not because they dont care, they just dont know how to cope and deal with their own feelings because you did not just 'snap back to normal'. 

Things will get better, it just takes time. As Jess has said, tell your husband how you are feeling.

We are always here for you. Take care and let us know how you are doing.

Sending a big cyber hug your way.

Take care

Tina xx

Great news Sophie  good luck xx

Hi Sharon

A very warm welcome to you and your partner. So glad you found BTG.

Some great advice above from the others. It really is patience, rest rest and more rest and plenty of water. Two weeks is so very early in your partners recovery.

You will find a wealth of information here and lots of friendly support for you both.

Keep in touch, take care.

Tina xx 

Hi Jennifer

At two years I was also struggling just like you. You are still in the early stages of recovery.

The fear of it happening again even though we are told it wont is only natural after such a life changing trauma.

Have you thought of asking your Dr to arrange some councelling for you? I know it really helped me and many others here, just to talk things through. PTSD is very common after SAH. You are not alone and have definitely come to the right place for help and support.

Look forward to hearing more from you.

Take care

Tina xx

Hi Robert

A very warm welcome to BTG.

I  agree with Clare that you may well be struggling with anger and anxiety due to fatigue. I think your body is telling you to slow down.

I had my SAH 9 years ago and i still have numbness in my forehead and side of face due to nerve damage from my surgery. My right eye brow is paralysed. I also suffer from anxiety and fatigue, I dont cope with things the way i used to before SAH. As much as I tried and pushed myself to get back to work, sadly i could not. 

Maybe as Clare has suggested you could step back, reduce your hours and see if things improve for you.

Take care and keep in touch.

Tina xx

Maya, wishing you a wonderful Christmas and a very Happy Healthy New Year xx

Good luck for your appointment on the 11th January.

Let us know how you get on.

Take care

Tina xx

Hi Maya,

Good news you have been to see your Registrar and hopefully after the next meeting you will know exactly which way forward is best for you.

Endovascular treatment is coiling and is less invasive than being clipped, so is a positive.

I was clipped, but I am sure others will be able to reassure you about the treatment.

Here is a link below that may help you.

Take care

Tina xx

Hi Myra

A very warm welcome to BTG.

Some great advice from Sami, Subs & Clare.

Like you, i have terrible trouble sleeping. Try getting into a routine of going to bed at the same time that's good for you. if possible. I found i sleep a little better if i do this.  

As the others have said, you are in the very early stages of recovery. I think your body is telling you to slow down.  Be kind to yourself and listen to your body. Dont rush back into work, give your brain time to mend.  

Wishing you well with your recovery and look forward to hearing more from you.

Take care

Tina xx 

Hi Howard a very warm welcome to BTG

I had to wait for over 2 years before i got the all clear for driving again because of my double blurry vision.

I was referred by my Neuro Consultant to Moorfields eye hospital at St Georges and had regular checks & tests. They have hospitals in many areas, some NHS some private.

Maybe as Sami has suggested you could see your GP, they may be able to refer you to an eye specialist if you have not been already. 

At 14 months you are still in the early stages of recovery.  Keep in touch and let us know how you are doing.

Feel free to join in the daily banter in the Green Room, we are a friendly bunch.

Wishing you well with your on going recovery.

Take care

Tina. 

http://web.behindthegray.net/index.php?/forum/9-the-green-room/

Graham, above is a link, click on it, it will take you to the Green Room Section.  

Hi Deb

So sorry you are having such a bad day.

Really hope you can get some sleep and you will hopefully feel much better for it.

Sending you a huge hug and much love.

Take care & go steady.

Tina xx

Hi BigE

How is your therapy going?

Hope it is helping you to feel better.

Let us know how you are getting on.

Take care

Tina . 

Hi Stacey 

Hope you are well.

Hope you managed to get a referral to a Neurologist and got some answers for your Uncle?

Take care

Tina xx

Maya, thinking of you today and hope all goes well.

As Clare has said above, we are always here for you xx

Suzie,  I think is a very good thing you are  de-stimulating your life a little and trying to leave a few blank spaces in your diary. Hope the sleeping improves. I still have problems now, 9 years on.

Hope your Mum is on the mend too ? xx

Take care

Tina xx

Hi Cassandra

That's great you have all these things in place to help you with your on going recovery.

Keep in touch and let us know how you and your husband are doing. It is a difficult time for our family too.

Please feel free to join in the daily banter in the Green Room, we are a friendly bunch.

Wishing you well.  

Take care

Tina xx

Hi David

A very warm welcome to BTG.

I agree, wow..... what an inspiring story, thank you for sharing.

We look forward to hearing more from you.

Take care

Tina. 

Maya, sending you a huge hug and lots of positive vibes your way xx

Please try not to look on the internet, it will just make you stress and worry more.

Hopefully the antibiotics have started to kick in and the coughing will stop and you will feel much better. 

Take care Maya.

Tina xx

Hi Suzi 

Thank you for your update. So very pleased you are doing so well with your recovery.

Its a very good thing you did get your uncharacteristic headaches checked out !

I am sure it was your body telling you something was wrong.

Have a wonderful Christmas and please dont rush back to work, just take your time.

Sorry to hear about your poor Mum, bless her.

Wishing you both well. 

Take care

Tina xx 

Hi Deb

I am so sorry you are struggling in so many ways, bless you, sending a huge hug xx

All i can say is  I went through all those feelings too. I can so relate to how you are feeling.  I was not depressed i was just so frustrated with the new me, found it very hard to except the new me. I was and am very lucky i have a very supportive understanding GP. I always go and see him, make sure that he is on duty or like you would end up with another Dr or locum that knows nothing about you. 

Can you make another appointment when your usual GP is on duty and try again to get some help ?

Things will get better, it just takes time, patience and learning to accept the new you.

My GP arranged counselling for me, had to wait a few months, but it really helped to talk to someone away from family and friends. If you dont have any joy, go back to your Neuro Nurse and ask for more help.

Deb, we are always here for you. Take care and keep in touch.

Tina xx

Hi Suzi  

So glad all went well and you are now home. Make sure you rest up and drink plenty of water.

I had a ruptured anni brain stem that was clipped. I was in hospital for over a month.

When i came home i had really bad pains at the back of my head & neck. The pains then started to move down my spine. I was told it was the blood dispersing down the spinal cord. For me it lasted quite a few months and was very uncomfortable, but it did inprove over time.

As Win & Sami have suggested try the Coxxyx cushion,  it may help you with the discomfort. You can get them from Argos or Amazon etc for around £10.

Take care and let us know how you are getting on.

Tina xx

Hi Wendy

I agree with the others, I would go and get checked out by your Dr and hopefully they will give you peace of mind.

Let us know how you get on.

Take care

Tina xx 

Hi

A very warm welcome to BTG, glad you found us.

It is very early days for you in your recovery from your NASAH and what you are experiencing is very normal after a bleed. The best advice at the moment is to rest up lots ,drink plenty of water and listen to your body. Everyones recovery time is different. Try not to push yourself too hard or your body will let you know  Be kind to yourself.

Re driving etc, this was a post by Karen Hyder and may be of help to you:

'It's down to each individual or their partners to contact the DVLA, as the Doctors/Consultants don't do it for you. You also need to declare the SAH to your Insurance Company or you could find your insurance invalid and therefore, not insured to drive. I believe that an Insurance Company cannot discriminate, due to disability and will not increase the premium, but you do need to let them know what's happened and also let them know when the DVLA have declared that you are fit to drive.

I was never asked to surrender my licence, but was advised not to drive for 3 months. There's a lot of different criteria between each SAH patient .... whether you were coiled or clipped .... suffered seizures etc.. so each person can be categorised differently, so you need to contact the DVLA, as one size doesn't always fit all, when it comes to driving post SAH.

There are quite a few posts on this website about this subject matter, so would advise members to do a Search .... you can find the Search button at the top of your screen.'

Hope this helps, Wishing you a speedy recovery and we look forward to hearing more from you.

Take care

Tina.