perrycornish

I too love my V shaped pillows ( I have two, one for bed and one for on the sofa;-) They are getting on a bit now, I might even have to get new ones as I certainly would not want to be without!

Hello Anne, you know why I have said nothing about your redundancy before now:-D You also know that I feel so sad for you, but I'm so pleased to hear that your OT has been able to refer you on, it is not something any one of us should have to face alone, a very scary situation, do keep us posted on how things go:-D I'll be thinking of you too, but that won't get you a job!

Hi I too have a shunt and it goes mainly unnoticed:)

Welcome Anneec and Laanka. I think I'm glad I was taken by surprise the first time, no decision to make. However I am electing to go for further coiling on the second aneurysm. As I certainly do not want another rupture and am not sure I would have the courage for a waiting game, sorry I'm afraid that wasn't much help. I will at least think of you as you do decide

Hello Sam, can't add anything as I'm one of the boring ones with aneurysm but I can say the folk who know will help and I can say Welcome glad you found us:-D

So glad that all went well as far as you can tell. The actual Angio doesn't take very long BUT!!!!! as you discovered;)

Good luck when you have the 'Bubble Test' Andi, hope the news is good:)

Glad that you asked this Celia, I feel that I have learnt more too and certainly more understanding of the recovery process

How did things go Rod, although you may not know much yet, just get on with living whilst you wait though;)

Hello again! To the best of my knowledge, the two different types of scan are both good diagnostic tools but vary in clarity according to which part of the body is being scanned. This varies a lot but a good example is CT Scan not so good on bones and MRI very good in soft tissue the clinician and radiographer are in the best position to judge :-DIt certainly will be the case that your consultant will have asked for the scan to be that which will give him the best results vis a vis the symptoms and the site

Spike, I can't say much except to say I am thinking of you that is one hell of a position to be in, do what you feel you have to, but please take care of you, blow everyone else! Do come on here and at least get things off your chest. Thinking of you and wishing you luck:)

Andi! Your body, your arm, your choice

Huh! In answer to the last two posts. This has given me much needed ammo for my case for support from the hospitals, not just for the weeks we are in hospital but during our recovery, the real one of months or years not the so called Text Book Theory!. I am thankful that my Neuro team are not as rude, but yes to a extent we feel belittled when questions are just brushed aside. In a few weeks I am supposed to be having a BrainStorming session ( no pun intended;-)) with three consultants, two politicians in our devolved government and three senior civil servants in order to start into life a support group and literature for patients who have had an SAH or have aneurysms about which they are concerned. We have a long way to go and the red tape causes me to wish my name was Houdini, but we will get there. This is all dependent on them actually getting round to actually fixing my rapidly unravelling coils! Should have been done in the middle of September but there were no beds. Melbury and Nurianna we certainly need the fighters on board, yes please you too Skippy;-) Wish me luck etc

Hi again Caz, Glad that you are sorted to a great extent,(sort of!) the risk of stroke is always there with anyone who has any 'interference' in the brain is at risk of a stroke. We all were and in fact most of us have had 'a stroke' but not in the sense that most of us understand strokes to be, but the damage caused by SAH is stroke like. I am actually having mine recoiled as my coils are falling out of the artery:shock: and The choice was left up to me,as there is a risk of stroke but the risk is a very small one ( but not as small if the person is still smoking! (I stopped after my SAH despite the fact that I had smoked for fifty years! I am just a year younger than your Mum but chose to take the risk, an important decision so it should certainly be one that one is free to make:-D Sorry very tired tonight if this is too jumbled to understand do ask! I have not I don't think been as clear as I can:oops:

Lori! Hi and a big BTG welcome, we are all very pleased you found us and look forward to your next post:-D

Caz, very worrying for you best thing would be for you to telephone the hospital and ask for the consultant's secretary. Ask her to put you through to him or to relay any questions you have to him and send you a written reply, if he is the old type of consultant who prefers not to talk to patients directly!They (at the hospital) are duty bound to answer any legitimate questions. Do mention that you are a daughter:) Hope you succeed!

Good evening and Welcome, Helen. What a valuable friend you have and it is good to know that Occupational Health folk are aware of BTG! Our founders surely deserve that:thumbsup:I'm sure you will find that we are all happy to share and to support and someone will always be here. Hope to talk' again some time:-D

Think it is something many of us find we get, amongst a zillion other things!

I think that you are right to assume that the bleed does the damage. I have certainly been led to believe that the aneurysm is not necessarily a problem but the bleed is. I shall certainly watch my BP from now on I had high blood pressure before the SAH, pretty normal now, but I'm watching very carefully as we know there is another aneurysm lurking and I ceratinly don't want it to pop:roll:

Hello Ray and a big welcome:-D Sensible nurses you have down there;-) You are right 'tis very early days, take your time and if you need to wait awhile until you return don't worry about it, we won't and we won't forget you either:-D

Rod, I can fully understand your frustration but think about this. Not all patients do as their physio/OT ask so it's probably good for the physio's assistant to make sure that Merril does;-) Or maybe the physio can't think what else to do with the assistant, it must be difficult sometimes and maybe you and Merril look kind;-)

From me over here, for you over there, Tammy 'Attagirl' talking it out is just the thing. There is no reason at all why you should be 'over it all' Neil isn't I bet, his problem is different but we care not only about Neil but about you! I owe you and Neil an apology, I should write and promise that I will and soon, life just seems a tad hectic at the moment. I bet you take as long to heal fully as that old boy you married;-) Talk about Traumatic and Stress watching an SAH must be IT in spades, I'm glad I didn't witness mine!

Andi, I'm pretty sure the doc was right when he told you about how much brain died, but the nurse who said you only had a 'little' stroke should try it herself, her assertion could not be accurate, because she isn't you! Every one varies but the important thing to remember is that although the brain cells which died will not recover, any function that was their responsibilty can be learned by other cells. You may hear about or read about 'the plasticity' of the brain. This is what it means it can and will learn tasks new to it, I have a super OT who is helping me to retrain the grey cells I have left;-) They are slow, but I suppose when I was a baby I too was slow, if you think about how slowly human babies develop;-) Keep asking and you will keep learning. It's a shame there isn't a handbook we could borrow!

That sounds about right, often when a specific time is given in info it can be confusing, each individual varies ( I found that to my cost as I was one of the longer term patients too;-)Perhaps we misbehaved;-) That last remark was i'm afraid me being flippant, it really does depend on so many factors, I was long term by comparison with some as I got hydrocephalus which refused to drain and I fitted several times now recovering on schedule, well at least my consultants say I am An having some repairs done soon, but it is I think important for us to remember that whilst we may have similar symptoms no two folk seem to be exactly the same :-DKeep asking on here kelly as it a very good way to find out, I find it so much easier than trying to communicate with the hospital, who are helpful but work at a different level;-)

Nothing that I can find Rod, that is so often the case isn't it? We get left without follow up. I suppose though he may want a bit of peace and quiet, I know I would have done !