perrycornish

Hi Paula and welcome to our 'caring site' I am sure you will find it is exactly that and youwill get lots of support. I am one of quite a few on here who are regularly monitored because we have another aneurysm, believe me that is a good thing, as it means it will never get out of hand and rupture, I'm sure you too will reckon that's a good thing :-DYou are still early on and I'm sure you do feel pretty horrid, it does get better, that is a promise! The length of time varies very much as it depends on so many factors, I look forward to hearing more from you:-D

Hello Jan and a very warm welcome from me too. I won't add much as the others here before me hae, I think said it all:-D So pleased that your GP sounds supportive and that your initial worries about finance have receded a bit. Just listen to your body, it will have got it right. If you have any little niggles at all, about life after SAH, and all it involves please don't just worry and fret.......Ask, there will be someone here who knows the answer. I look forward to your next post and to getting to know you better:-D

I love mine to bits:) They're abound on the internet and if you are an E-Bay shopper you will have no problems at all, get the best you can afford:)

I am busy debating with myself, if it is the cold weather or me! Yes, I really do feel ropey and far from my usual recovering self. I'm honestly not sure what it is but the athritic parts of me ( most of my parts;-)) certainly do not like the cold.I am gradually trying to find out what is going on and I'm sure you will all understand if i say I hope it is the weather as at least I can be fairly sure that will improve. I don't seem to be able to cope with the cold at all, it is not something we get much of here in NI, we are considered to be one of the milder parts of the UK. Not at the moment though, as I write the temperature is -8 and going down! That is almost unheard of here, everything seems to be ice, including my brain:roll:

I feel a bit of a fraud here as I haven't had an untreated aneurysm coiled, I have an untreated annie and as yet it is remaining uncoiled, what I have had recently is my existing ruptured aneurysm re-coiled as it had managed to uncoil itself. I was indeed only in hospital for a very short time, I came home after three days from the date of the recoil, so not long and I gather that is about the time for a coiling of an unruptured annie, as |I asked the medics so that I knew how long it would be if I ever have to have the unruptured one coiled:-DSorry not to be of more help, but if I am anything to go by, the second stint in hospital was much much easier and i have not had any setbacks to my recovery from the original SAH, in fact there are no effects at all!

Hello Anne and welcome to Behind the Gray, a good place to be I promise:-DAs others have said don't push too hard,take things as they come and I bet like us all you will have to rein yourself in, I think most of us want to run before we can walk. Let your body tell you when it's ready it will know;-) The important thing is to let things be, don't let yourself get too worked up if you think you could be doing more and above all don't push.....it just doesn't work. Brain injury is very serious and takes a while but we do recover which is the best bit;-) Look forward to hearing more

Ali! I don't know how I managed to miss all your posts, but I did, I only found them this evening:oops: You have had the roller coaster to end all roller coasters so i'm at least pleased that others on here were more observant than me! You will start to see much more improvement no that john has his shunt, apparently I was the same, doing all sorts of dramatic things like talk rubbish, have seizures and generally worry everyone sillt than my shunt was fitted and I turned the corner, apart from a feqw set backs over time that improvement has continued and now as I put it to my partner, I am nearly me again:-D With my thoughts and my apologies for previous neglect.

A good find, thanks:)

Celia what can I say? I really thought I had left a comment for you, it's good to have you back, even if you are feeling a bit the worse for wear:frown: I'm so sorry on looking I could not find a comment from me, so a very humble apology to you. Would you believe I have actually been talking about you to my partner and was very sad when I saw the dear old brain had let me down again. Hope that things are gradually improving. All the very best:oops:

Mel as Janet says there can be all sorts of reasons for an SAH, in most of us we don't know they are there. At least those of us who have had one know at least that the docs will keep an eye out for any problems, hence the returns for scans, so that aspect is lucky for us;-) I gather that because we can control much with medication the likliehood of further haemorrhage is much reduced

Paul, I don't feel as though I can add much at all to what has been said already by various folk:) They are spot on though ( I know I have changed) The one real positive I can offer is that when you and Mandy are able to work through this each knowing that the other has needs (try to get Mandy to see you need help too!) then you both may find this new person is kind of nice and worth getting to know;) It's a hard old journey but it is very worthwhile. What I can do is welcome you and say read all you can of the posts on here, talk about them to Mandy and come back with more questions when they arise, there will be someone here who has the answer, that's a promise

Ern those folk are the bane of our lives! I know some and obviously so does Skippy and I'll lay bets ( and I don't gamble:roll: ) that everyone else on here knows many like it! I decided finally for those I knew well enough to say 'Well, I think, but only think I'm glad I'm not dead, but then filled 'em in with all my moans! It worked!

Welcome Anders so glad that you have now found us! That must have been very tough to cope with early retirement at 32! I will let you into a secret your English is about 100% better than my Norwegian;)

Another barometer head here too! I have always been aware if storms approached ( I was a migraineur) Now though since the SAH it needs only to be a much smaller weather change:confused:

Hello and welcome Mel:-D I will start by making you feel good about your chosen career;-) My OT who is on our Brain Injury team was a real inspiration to me and keeps an eye on me even now, nearly two years down the line. She bless her, could see immediately that I needed more than just to be a couch potato! Other professions allied to medecine, seemed to take the approach of well, you don't fall over any more so off you go:confused:

Hello Ern and welcome. Quite a lot of our members have flown with no serious after effects. My doc said I was fine to fly and that was about eight weeks after my SAH and only a week after I came out of hospital, just as well really or I might find it difficult to go anywhere as I live in Ireland;-) My advice would be don't worry all will be well but do check with your Doc first He/She knows you and your state of health, certainly tell the insurance people, they are unlikely to be worried as the one good thing about SAH is that it rarely happens again:-D Hope to hear from you soon again.

Hello and Welcome Padstow, 'tis a scary thing indeed and you are right to ask for support which you will certainly get on this board:-D I had an SAH, then hydrocephalus as your father has. My drain was not enough so I was treated for Hydrocenphalus and then given a shunt, I really don't notice it any more except for the lump in my skull at the site of the drain, but even that I only notice on rare ocassions. At first I was reluctant to lie on the side of the drain/shunt and did have a bit of bother from adhesions at the abdominal site where the shunt ends, but no more, they really sorted themselves out over time.I have even been knocked very hard on the 'bump' by my over exuberant puppy with no ill effects whatsoever. I really do not notice it any more altho' I have to confess my new 'thinking' strategy is to poke my finger in the hole:lol: whilst I ponder. Once the hydro is under control that is usually it, as far as we SAH'ers are concerned, unlike children and young people who can have quite a few problems. I wonder if your dad's hospital will do what the Royal in Belfast had to do for me. When I came back from theatre after they had drained some of the fluid, they very much needed me to lie still and flat, because it was fairly early stages and I was still pretty ill, apparently they could not get me to keep really flat down so they hitched me to a Bog Standard Homebase spirit level:lol: The only thing I'm sorry about is that no-one took my photo whilst so hitched;-) Don't worry about the shunt it really is not a problem just always remember that time is your best ally, Good Luck

Congratulations Jim, it's a great landmark to reach. Keep going from strength to strength and treasure that holiday:)

I am on the list as 'at risk' (I'm asthmatic) but then was told I was too old! Anyway I have now got immunity, I had swine flu all week! Much better now, but I don't recommend it as a way to spend your days, so if you are offered a jab, say yes!

Hello John, At last you are able to relax a bit, I'm so glad that you got a written apology and clarification, which is nearly but not quite as important;-) I have been recoile and sorted by our team and had face to face apologies, so we are both now 'Happy Teddies' Hope that your biopsy is done soon and the results are what you want to hear. Good Luck:-D

You are not going mad! Never fear. What does seem to happen to some folk is a sort of meltdown and it is often triggered by something very insignificant or indeed by nothing at all. For you to do now is accept that you are as normal as the rest of us and take time and some mollycoddling so that you can recover from the trauma, for trauma it is especially when the outburst ( whatever form it takes is out of character) Remember this always, Your brain was injured, it takes time to get itself sorted. We are all rooting for you:-D

Hi Michelle, My brain is not yet fully in gear so I will try to understand the findings of your MRI later;-) Probably much later;-) I am on 10Mg amitryptaline at night, I have it to help with pain ( nerve trapped in arthritic neck/shoulder joint)and to help me to sleep. It does and no real worries this is a very low dose. It sounds as though your consultant is at least trying to get to the bottom of your problems. Good Luck:-D

I think that Caz's neuropsychologist has got it sussed This is just the best advice for us all it matters not one bit if we are trying to work or just trying to live this is IT!

Hello Diane and welcome to the site. Karen has once more put things in a nutshell, her advice is always useful and good so I won't add anything else, but I will say well done on your graduation, i do hope that you continue to do well and your husband too, who sounds as though he is being well looked after and is doing well:-D

Welcome Viki and so glad your Mum is doing well, sorry not to have 'spoken' to you before this, but I was 'unavoidably detained! I was back in hospital having a recoil and shunt adjustments!