perrycornish

Thanks Leo Great to know we have support isn't it? I think ( hope) that the recoiling will be either at the end of August or early September ( Swine flu permitting) No! I haven't got it, but just hope the hospital beds don't fill up as I'm sure elective surgery will be the first to go I like your Dad's saying very, very true, obviously a wise man

Thanks for this Scott, I have not heard it all yet but am impressed with their attitude, I shall I hope get the book it sound well worth it

Adam, poor old you and I bet you won't be surprised if I say that your feelings are very, very similar to most of us Caroline (Charty) has it exactly right in my opinion! You may ask who am I to say that, but here goes, for reasons other than my SAH I had to take early retirement at about Caroline's age. Then and now, fifteen years or more on, I needed to do something as I was and am far from ready for a zimmer I am now pushing 70 very hard, so to speak My solution, keep at it, whatever you want to do, but do it in your own time or as a volunteer, keep the remaining brain cells at top speed. This all allows you to recover at the speed your body and brain want to and no pressure, except that exerted by you Develop your hobbies, use your skills but above all listen to your body and your wife and GP My brain is not what it was but Yep! It still works even if it does things differently and I think the best compliment I have had is from a forty years younger than me friend who described me as seventy going on thirty-six

This is definitely Good News Anne, but it really is pretty overwhelming whilst it lasts isn't it? So pleased that things are on the up, my fingers are crossed for August

Another Hi Adam and Yes, you guessed!.......Another 'Wow' that was a wonderful achievement so soon after SAH. I won't add anything much now, but agree with all that the others have said A big welcome!

Hi Bobby and welcome, even if you wish there had not been a need to find us! I won't add anything else at the moment as I reckon the advice you have been given is excellent........but do go to your GP as Karen says he/she is the important one Enjoy the golf, and look forward to enjoying the new car, what is it? The make I mean I am not yet so far down the slippery slope that I don't know what a car is!

Leonie 'tis a bit of a worry, but as you rightly say at least you and they know what is going on and where to look to check. I have reached that conclusion too as after my angio, ( see update post of mine on Sub Arachnoid Forum) I too have now, after seeing the neuro consultant, been told that I have not only lost some of the coils and having mini bleeds as a result,the coils are to be replaced, but apparently I too have an aneurysm elsewhere in what passes for my brain which they are not going to treat at the moment as it is only small and not showing any changes so there you go two of us on extra angio's! I don't mind the actual angio, it's the disruption to one's daily life that is a nuisance, but definitely better that, then another sah Good Luck and shared thoughts

I was really pleased to find this Karen, I have not noticed it before to make a long story short, the neuro radiologist who did my coil, as he was 'on call' when I was admitted, normally specialises in AVH. The point of me posting now, is that if we do manage to get a support mechanism up and running here in NI I will of course use the info on the AVM website do you know anyone there, or shall I just warn them when we get that far that they may have a dramatic increase in traffic? I gather that there are more people with AVM than SAH but the AVM folk often need coiling but only rarely haemmorhage. I also found out a great deal whilst reading their website

Thank you for all your support I have now seen one of my consultants ( I have four greedy pig;))This was the neural-radiologist who did my coiling to talk through the results of my angio and make decisions re treatment. In order to facilitate earlier treatment he has asked me to give him permission to pass my case on to another consultant ( one I have met, in fact he did my angio a few weeks ago, I agreed quite happily as they are both top men here in NI. I am to have recoiling probably at the end of August or early September, I gathered also that they are watching another anni, which appears to be pretty stable at the moment and is not increasing in size ( long may that continue) Keep at 'em John, it works. He was very sorry about the lack of communication and has asked me to help (politically by lobbying as our own Stormont assembly now holds the Northern Ireland purse strings and then we discussed the need, of which he is very aware, for a support network. He was interested to hear about BTG and has taken a note of the URL and will I'm sure be paying a visit! He has also agreed that I should go talk to the new consultant recently appointed to our Stroke Centre in Coleraine, where I was in rehab, to help to get a support network rolled out province wide I was really pleased at how receptive he was to my pointing out the big gaps in support and care and that he fully accepted that this was indeed the case All suggestions, gratefully received with ideas on how to deal with this don't forget that my brain got banjaxed too

Poor you what a time you have been having Zolabud I think that you are right Tina, one does have to be the chaser all too often sadly. Obviously your hospital Jess has the same policy, I think that all do, as over here it is five years not seven, although if you have treatment at all within the time limit your notes should still be there and of course updated!

Hiya Anne, yes I did experience this and it was in fact not at all like me. I have always been fairly determined and single minded. It was in fact spotted by a medical student who was working with my GP. He left her to her own devices, with my permission. She made several suggestions based as it turned out on her recent experience in a neuro surgical ward. She was pretty sure I was suffering a mild but troublesome depression because of the mega drama of the SAH. She was quite right, I was put on and am still taking a mild anti-depressant. It worked, although I still get tired etc etc, my motivation has improved big time Maybe this is worth discussing with your GP? Especially give any other concerns you may have at the moment as uncertainty about anything is known to increase any motivational crisis. Although you said concentration was not a strong suit previously, concentration and motivation are not necessarily related Good Luck

Hiya Sasbo ( or Sarah) whichever you would rather I think by now you will have come to the conclusion that counselling is worthwhile and a great opportunity to help with all round healing. I can hardly say that I don't agree as I was, until I retired, a counsellor myself But at least you have had the opportunity to hear others opinion I agree with Karen that it is something that should at least be on offer for us all ( me included) as it is no good me trying to sort myself out, it just does not work on oneself, not remote enough and far too subjective. You have had a barrow load, I do hope that your counsellor is able to help, let me say one thing though, if you do not feel comfortable with her/him please say so; a pro will always accept that with good grace and no anger, honestly and will be happy for you to see another, different counsellor. It does not happen often but it can and no good comes from pushing, move on! There I've had my say, PM me too if you think I can be remotely helpful about the practicalities, not the problem, that would be very unprofessional of me

Good news The secretary not only got back to me in response to my message but she did so at 9.15 a.m on Monday ( Secretaries can be great allies) She did not know anything at all but said she would find out! On Friday I received an appointment to see the neuroradiologist next Thursday and my consultant surgeon in September We should at least now find out what is going to happen. They must have known that I had already decided that I was going to go through the complaint channels I am glad that as things stand I may not need to and I must admit to feeling relieved that someone is about to do something, even if it's only to keep me in the loop :?

Poor you Michelle, you are having a tough old time, I do hope that the EEG will help to get to the bottom of your 'absences' pretty scary for you. I will be thinking of you so do keep us posted on how things are and when you go for the EEG

Michelle having a wobble is what we all do and yep it improves, I agree with what the others have said, the main thing is support whilst you wobble

Hello everyone, I realised that like a fool I have been pottering on as we do, but not really being honest with myself or with you my friends. I have been having little old problems here and there and have done what many of us do I think and put it down to 'early days' . Then came the call to go back to see my consultant for a checkup, he was pleased with my progress so as far as I was concerned, so far so good, but the problems 'poor balance, lousy memory, extreme tiredness etc, well I don't need to tell you what was going on still went on.....'early days I supposed! I then was told that I was to go back up to the hospital for an angio, which I assumed was a routine thing, but no! I was told when I got to the hospital and was giving my consent that when I had an MRI scan months before it had shown that there had been some slippage with the coiling and that there was also evidence of further 'bleeds' After the angio I was assured that the consultant neurophysician who did the angio and my own neurophysician would meet with the neuro surgeon within a week and they would decide if they would leave me alone or decide to recoil, that was four weeks ago yesterday!!!!! (Today, having established that my GP knew nothing of all of this ) I tried to get some info but not a bit could I get there was no-one there who could help. I'm afraid I have left a 'to the point' message for my consultants secretary to get back to me on Monday as I want to know what is going to be done! In the meantime we plod on, far from feeling well and struggling as you can imagine I know John (Ninja) will know what I mean!I suppose eventually someone will get in touch, I hope I'm still around to hear what they have to say! Sorry I've had a bit of a rant, but I know you will all understand! In the meantime I will sign off as Frustrated of North Antrim

Hello 'the other Michelle' and welcome I too agree with all the others have said, and trust that like us you too will find some darn good answers here We will be thinking of you

In reply Anne, I feel that Louise is right about improvement being a more or less continuous process. It is known that the brain is considered to have 'plasticity' in other words parts of, or cells within the brain, which have not been involved in a particular function can be taught or can learn to adapt and perform the function of the damaged parts of the brain. If that all sounds too muddled for words, tell me off and I'll try to reword it For me this is the single most hopeful thing I have learnt about me and my brain

Hi Stephen and I do so hope that the reduction in your meds helps, feeling unworthy is the pits isn't it? I agree with Karen that it took courage for you to post that and tell us how it had been, I think there are quite a few of us that have what I refer to as my POP days, I shall leave you all to work out what that stands for, suffice it to say it is three words LOL

I suppose I have been sitting on the fence on this one, Ireally don't know, but more and more I feel there may be a connection. I first had migraine (common, no aura)but was very incapacitated, sick etc etc.at about 17 ad this carried on until I was about fifty one. I had a 'helpful' GP who when I was twenty one told me I would get better after the menopause As it happens he was right but at twenty one I did not want to hear that! I do have headaches since the SAH but not the same as migraine

Hello Karen! Don't work too hard, you make me feel bad lol! now 15months on from rupture of aneurysm in rt cerebral artery. Also have shunt because of Hydrocephalus. Improving daily but still plagued by, fatigue, giddyness, poor balance and a very 'iffy' memory. Am not sure if this has a bearing but apparently I need a recoil as there is some slippage and residual bleed, which I assume will slow down the recovery

Hang on in there, through it all, it is so good to hear that the progress has been there for you both. Don't worry too much about the permanent shunt I honestly don't think she will ever go back to square one, although I can see what a worrying thought that is for you. I have a permanent shunt so know how much it can help Her docs will do their very best for her just as you are I know. Sorry this is a bit disjointed but I'm sure you know what I mean

Phil, just how up and down does life have to be? I bet you wonder that a lot! It's so good to hear the positive side of Sharon's recovery but do so understand your fears and concerns that you cannot 'apparently' give her the help she wants. I said apparently deliberately because you can and you have and I am more than sure that your dear Sharon knows that. I agree with the others on the nagging advice, but know just how tough that can be....just remember you are doing it for Sharon not for you and it will seem easier. Good Luck and our thoughts are with you

Karen, certainly you are making sense, why more women than men/ Hmmm? There are two factors I wonder about but don't know the answer What is the Male/Female ratio generally anyway are there more men than women or vice versa, it might add up/ All women, on balance, menstruate, therefore does that bear any relation to the incidence? Keep it going Karen, research is both valuable and fun

From my point of view, any permanent change ( or even long term temporary change) is a disability, but it is very important to recognise that disabilty is not inability and can be empowering Edit: by perrycornish Just want to add, that employing someone with a disability is usually a positive response for employers as it means that they are complying with the laws of disability and discrimination, a positive staement for them to make. Never forget there is no shame, stigma or whatever you wish to call it in disabilty and it can have benefits