perrycornish

Indeed an emotional day, for you and for Maggie, but it's great to be here isn't it? Maggie has come on so much since your first post Elaine hasn't she, I hope that you have too! I don't suppose any of us will ever forget and it will make no difference whether we are survivors or carers, we have all survived a trauma, and for that well done guys

Hiya Suse, and welcome home No diagnosis of Ataxia as such here either but yesquite a lot of the symptoms but they definitely do improve as time goes by, although I too find swallowing difficult and like Karen at first it was a lot of the time, but now only sometimes and particularly if I'm tired, I have so often been left with tablets still dissolving in my mouth ( Yuk!) and the water I use to help me take them, has gone happily down Tremors also again worse when I'm tired. so it looks as though none of us are alone with the afflictions good to know they do improve I assume you arehaving ataxic problems too?

Michelle, Karen thank you both, am now going to follow up all those links, they are ringing some very loud bells in this old head I don't think it will be tonight though as today has not been my best day ever. I wonder what we would all talk about if we met and had the pub to ourselves I bet there would be an awful lot of info swaps and a great deal of noise I add more another day

Keith, poor you! Very Scary and yes we should take heed but rarely do, after all as Michelle says we're British and I bet as others from the US, NZ and Aus will tell us ( sorry if I left a country out ) they do it too, I think it's because we're human. But take care ,your body has spoken......at least do as it,( and probably your wife) tells you Thinking of you, be as good as you can, but not one bit better than you have to be

Mo, I'll start by asking for your forgiveness! I had not even seen this thread ( Grrrr! I used to be observant! 'Enough said! I am another mini stroke person, I was rehospitalised ,for only about a week, after I had been discharged post SAH and although nothing showed on the scan, the consultant felt sure that was what had happened, interesting to see that Scott and I think it was Jess (?) felt that some of the effects of that were worse than the SAH aftereffects. I don't know but think you both could be right :? You said: One of the oldest yes, but not the oldest I was 67 My opinion is it may be tough for us, but I am so glad I wasn't as young as some folk on here, at least I had fun pre SAH and believe me intend to have fun post!!!!

Neil, I do agree about home grown veg Plus as a result, my soups are I gather legendary ( I always was a modest lass ) I have PM'd you about the seeds, many thanks for the offer

Hello 'dragonfly' poor you what a dreadful dilemma You love him and I assume he too loves you, even if he cannot tell you at the moment, never lose sight of that. What Kim says is 100% on the ball and it is just time that will heal, in your moments of being down in thew dumps, which I'm sure are many think about your love for him and how about checking out first of all for yourself what it is you miss, why you love him etc etc, then later you will be able to share it! I was out for the count for some time and unable to talk, but my partner watched me very closely and said she knew I was not only there but listening and understanding when she showed me a published article she had written and I smiled and held it to my chest. So watch, watch carefully, keep on loving and keep sharing your fears, that my love is really important. We are here for each other I'm back again, I have just been telling my partner, who is a member, about your situation and she has this advice. 'Keep him in the loop, share with him the things you would normally share, show him things you have bought or have good memories for you both, I'm sure you get the gist.' It's not easy but you know what they say about 'love'.....it conquers all

It is probably one of the most difficult decisions you will ever have to make Until last year I was the Chair of a selection board for Primary School teachers and I'm going to say, don't hide it, no employer honestly wants someone who feels they can 'pull the wool over the eyes'! However the advice given here by several people to emphasise the positive is excellent advice and one other statement, and I'm afraid my addled brain has forgotten who said it, but it is a vital one. This is something you should certainly do, on two counts, one to ensure that you were not being victimised because of past illness and the other to help you to see why you were not short listed. Good Luck and keep at it, do PM me if you think I can help

Hi Poppy, good to know that at least Dee now knows what might be going on, it is certainly true to say that some feelings are hard to describe, I find that very much which is also frustrating as I am used to having no problems at all with vocabulary etc. Definitely one of those things that are sent to try us

Shelley, I will of course check with my GP, but think that I might just agree with you.Nothing personal but I hope never to spend time in hospital again Thanks everyone for your support and if you could your help with this one

Neil, well done indeed so glad that life is returning to normal for you, keep taking care, keep listening and you will be fine. I name you unofficially as one tough dude!

Karen, please go and take some time for you, I don't mean, sit and do nowt but worry, I mean talk or write to those you know, know and care for you, try not to get too worked up, although I can talk, I'm sure I would be just as unsure, but we are here for you too

Neil, I had a brainstorm I reckon :? Have sent you a pm not something I do often!

I'm curious and don't seem able to find the answer to this one anywhere I have a drain which was inserted just after the SAH, during the brain surgery.There is then at tube from the drain, in my brain (sorry that's my dreadful sense of humour!)which finishes in my abdomen( at least I assume so as I was unzipped there!) at times it causes sudden acute pain, the sort that brings forth a protest, it feels as though something is trying to tear it out Does this happen to anyone else and if so have you discussed it with your neuro surgeon/GP ? If so, were they able to enlighten you?

That is good news Keith and well done that man ( you I mean ) As the saying goes 'large oaks from little acorns grow', perhaps this young man will influence a lot of others, he sounds to me like a young medic with a positive future

Hello Linda and welcome I'm afraid I'm not much good to you either as I was coiled and only managed hydrocephalus not anything else so no plate, just a drain, so that my brain doesn't drown I bet there will be help around for you, our Tina for starters, I think that Neil advice is spot on, if you don't feel that you want allthe gory details, have a word with a Staff Nurse, Sister etc ( I'm old fashioned and can't call them Ward Managers and the like ( I was a manager, but could not manage a ward if you paid me huge sums even! One thing is for sure we will all be rooting for you and no-one will ever say don't be daft, that's for sure

Hiya Tosh There is no way that you should feel a fraud, and there are folk on here in the same situation as you so please take heart! Think about it, so your aneurysm has decided not to pop, but you are now being monitored and I'm pretty sure that the experts will do their best to make sure that nothing gets the chance to pop! You say you are scared, so I will ask you one question, do you think there is anyone out there who knows that something is not quite right in their brain, for goodness sake, on which we are pretty dependent! Are any of them not scared, I doubt it. Next time it gets scary or you have a question to ask, come in again and ask someone will know the answer. Good Luck to you

Hello Donna Congratulations, that is most definitely, the worst bit done with! You say It has been an amazing journey That is the very word, we learn so much about ourselves don't we? I think I would still be blundering around in the dark without Behind the Gray, so I'll join you in thanking our Karen and Keith ( and anyone else involved) a site like this is not only supportive it's d*** hard work!

Another one from me! I do wish my memory would return Elaine, how about waving that article and perhaps some others at your Mum's GP etc? I do that, often will print it out and give to him, he already knows I'm potty and we get on well;)

Anne thanks for that! It is indeed an interesting article, I'm almost certain that I don't have PTSD for which I am more than thankful but agree so much with Karen and all that you have said about support and counselling . Penny well done and what a lovely post, Keep on Truckin'

I just wanted to share with you all that today was for me a landmark day, I have two main hobbies (apart from the animals )Photography, which I have been able to do to a limited extent and gardening which was for a whole year just out of the question, today I spent an hour pruning clematis and starting the mammoth task of bringing the garden back to look as though there is a gardener who lives here We have a huge garden, about one and a half acres, some cultivated ( about half of it and one acre is supposed to be a nature reserve/conservation area, at the moment it is to my chagrin a wilderness Now I can really start and will get there in the end, I need to celebrate it's a great day

Hello, I too can back up what Penny has said. I have flown with no ill effects whatsoever Have a great time, please may I get in your luggage, a visit to NZ is one of my dreams:)

Hello Caroline, Yes, more or less the same as you, my stomach which I have also decided is because of the shunt, also various odd bits and bobs, face, arm, fingers but not all that much. I have always felt that at least the face, arms and fingers would improve as time goes by, and so it is now after one year. Stomach still numb though and maybe that is a good thing

Congratulations to you both, I don't say much, but I promise I do think of you

Hello Vivienne and well done, it's such a relief isn't it, to be told that you are on track Your GP sounds as though he is very supportive, I may say that so is mine, I rather think we might be amongst the lucky ones! Keep up the good work but don't stop listening to your body. I too lost my appetite for anything sweet, in fact I now really dislike chocolate......so am getting skinnier and skinnier