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perrycornish

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Everything posted by perrycornish

  1. Good for you Caroline Definitely the toughest, much easier now onwards. Have a day of happiness and just be yourselves
  2. Sorry can't really oblige Karen, but it may help the stats No pregnancies at all,before or after
  3. Well done indeed to everyone concerned, it certainly is no mean feat as I know only too well and it just shows what determination can do For those of you old enough to remember this, I reckon we should award, Karen Keith Chris and Laura a CDM. If you are too young to understand, ask and I will tell
  4. Tahnks for this Caroline and of course, Karen and Jess
  5. Hope it goes well Leonie, I know how much a supportive GP can help, mine is too and behaved in almost the same way as yours, I think he has even been known to visit BTG since I mentioned it to him.
  6. Thanks for this Janet, I have had a look and like you will also be reading later, I suspect if I read tonight, I would fall asleep at my desk! Just one of those days!
  7. Karen, I think that would be a great idea and certainly there is not much on offer out there, I do so hope that folk hear about this opportunity, can we highlight it in Google etc, ( I know you can but don't know how to ensure that a particular site will come up at the top of the page of searches if various criteria are met. Hope you know someone who knows about this :? I think too that what is not often realised is that children with other severe underlying conditions can experience stroke and well remember albeit forty years ago my godson who had leukemia suffering a pretty massive stroke aged 23 months Good luck
  8. OK! Leo, the next step? Ask your GP to request that your concerns be addressed by the NS, some secretaries take too much on! They do though to an extent have to 'protect' the consultant, but not to the extent that you can't discuss concerns Keep at 'em
  9. Tisha, this is a horrid experience for you, but I reckon the best thing for you is your one day at a time and that wonderful,true, message of support from Karen Lloyd, Hang in there and keep loving, we are all rooting for you both
  10. Hmm Leo I can well understand your reluctance to be 'the first' go for it though, tell your Neuro Surgeon all and that you are worried, I always remember a friend of mine ( he happened to be a priest) saying, I do wish people would tell me things my radar is not always switched on! In other words tell those who can help. It will be interesting for us too, I'm quite content to let you be a guinea pig instead of me ( sorry my appalling sense of humour got the better of me then Good Luck and do let us know what the NS says
  11. Zip, so pleased for you, stable is a good 'un to have isn't it? Thanks for keeping us posted, it must be a great help for those who have not yet been able to have much intervention
  12. There I go again getting things mudddled ( is it me age or me SAH ) thought Tammy said you were having an angio on Wednesday, must have misunderstood, she meant you were going for check-up, forgive please! Post now for all who want to read lol! I've finished apologising to Neil I had an Angio on Thursday as unbeknown to me ( why tell me it's only my brain)there had been evidence when I had an MRI in February that the aneurysm had developed a neck ( I knew that necks existed but thought they were there from day 1!) and that the coils had consequently sunk and were letting blood seep out, hence the various strange goings on I have experienced of late, my poor GP had not been told either and has been fretting about my treatment! They are to have a consultant confer and decide if they will leave it be and hold a watching brief, or if they feel that a recoil would be better. I should hear in about a week or ten days. I'm almost glad to be honest at least the odd goings on in my person may now have good reason. I thought I was becoming a fuss-pot I will keep you posted
  13. Hello Pam and a warm btg welcome Like the others I too am pleased that you found us, and hope that you manage to fulfil your desire to 'read everything' best of luck I don't think I have even yet and I've been here since......'erm?..........about July -ish last year, I think maybe it's more there goes my memory again But welcome anyway Edit: I see it was May last year
  14. Neil I have only one thing to say...........Terrific, please still keep in touch. How was your Angio???
  15. Scott, many congratulations on your sensible but tough decision, sorry that statement sounds a bit patronising, it is not meant, but I just trust you will know what I mean. A life changing event can be destructive or constructive and you have made it so clear which is the best way to go Mainly I want to thank you for your courage in saying this 'tis obvious already that people are being helped by your very brave decision.........no more to say just congratulations and an offer of support should you need it, but that I doubt
  16. Great stuff, a truly sobering but very inspiring video and a courageous act for you both to use your experiences to help others. At the same time increasing the awareness that SAH causes brain injury and ain't fixed overnight! You are both inspiring people and please may I offer my congratulations Well done indeed and a cracking good video
  17. Laura my dear......First of all poor you, what horrible dilemmas for you, I wish I could reach from here to give you a hug, but I can't so please just consider it done I have been trying to think and am wondering, what about looking at the potential of working with Adult Literacy and Numeracy ( if you can add up which I can't ) I imagine that in England like here you have colleges where Adult Literacy etc is offered? Presumably there would be less in the way of lesson prep or resources needed and maybe less hassle as it is likely you would be working one to one or at worst very small groups....... I don't really feel I know enough about opportunities over in the mainland now, but I do know that good teachers are at a premium everywhere. Good luck Laura, and keep that chin up but remember always you and your family are the most important, but I do understand the stresses and strains of needing cash to reduce the worries. Thinking of you a lot
  18. Tisha, I'm so pleased to hear that you have seen a little improvement in Tina, it may be small but it is in the right direction, so pleased for you both and I'm sure that as the sedative effects clear things may start to look even brighter, you will be able to communicate so much more too I expect when the tubes etc are removed, the tracheotomy should help a lot, we will all be thinking of you both
  19. As I said i would I have told my GP who poked about ( Yuk) and has concluded that some of the scar tissue is indeed adhering wrongly and certain movements could well cause the 'ouch' factor, paul it looks as though you were right and I hope it helps you others, it's good to know why things happen though isn't it?
  20. John, I'm so sorry to hear about your dog, it's a toughie to handle isn't it? Especially when they have been companions for so long. Sad too to hear that you are still waiting, I'm with the others, stay polite but keep up the war of attrition! Will be thinking of you
  21. Me too Rod, confusion has been around for some time now, but like most things post SAH it does improve as time passes, it still happens to me and I think to others but not as much now unless, I am for instance, very tired etc Have just remembered that you asked about body temp, I have no real idea what my temperature is, but I certainly can for example feel very cold when friends tell me it isn't cold and at other times I feel hot 'within myself' so to speak but in fact am cold to the touch. I have assumed that my body is pretty thoroughly mixed up after the various traumas it is hard though to put a time estimate on these things as we all vary so much in how long we take to adjust and for that matter what signs and symptoms we experience post SAH, it's very annoying and would be so much easier if we were all experiencing the same things but it just ain't like that
  22. Hello Rod, good to 'see' you although your reason for being here may not be a happy one I hope that your wife is feeling slightly more human now that she has been able to rest. I honestly don't know if shunts cause a degree of sickness, all I know is that I have a shunt and am being sick more than I have previous to my SAH. One thing I'm pretty sure about is that the intervals do get longer in between bouts. Hope this helps at least a little
  23. Hello Melissa and welcome, i agree with all that has been said by others on the site, but not that ***** medic, how does he know you should be without symptoms now has he had an SAH? there I have finally said it, good practice for me as the very next time any medic says it to me, I'm going to ask then that!!!Got that off my chest so now look forward to chatting again, you will be an old hand 'user' by the time we have finished with you, never you fear! Bye for now
  24. Welcome Suse So pleased you are a 'dog' person, me too, and cats in my case The sense of humour is the most valuable thing isn't it, I'm so glad about mine, although 'Yes, Karen' "Hissy" fits sometime here too
  25. Hi Tisha, no way is there any reason to feel it is wrong to need a break, the other half of you is very unwell what a terrible strain that must be, if my own experience is anything to go by ( very similar to Tina's) I had no idea what day it was, how much time had passed or when and if there was anyone there so Tina won't be aware that you needed a break, and think about it, if she was, I bet she would understand! You need time for you otherwise you will not be able to give Tina the support she needs, so please don't feel guilty, just take that breather and keep talking to us, to help to relieve the pressure.We will all be thinking of you and about Tina. When you go in again, give her a big hug from all of us Trisha, I have just reread your post and seen that the doc had said that there has been irreversible damage, please don't get too down about that statement, all brain damage is irreversible, but it does not need to mean she will die or that her brain damage will be necessarily severe, her body now needs that compulsory rest to try to recover, you just hang on to that. All of us on this site have irreversible brain damage, but we are very much alive, as guess you will find out I was not really expected to live, but I'm still here, still functioning and a pain in everyone's butt, just ask all the others
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