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Super Mario

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Everything posted by Super Mario

  1. I had the same sort of pain pre SAH several times, I felt as though I could tear my eye out, so painful it was. Is yours like that? I was sent to the eye clinic where iritus was diagnosed and is only treatable by steroid drops. I would ask to be referred to an eye clinic as well. I think that because you have had an SAH doctors often automatically think that it is the cause of many other symptoms. I am no way medically qualified and the above is just a suggestion as what it could be.
  2. She was under the same neuro surgeon as me and some others on here. I hope life treats her kindly from now onwards.
  3. Paracetamol may cause rebound headaches, I have experienced them. You may need to try and cut them out and see what happens to your headaches. It is not instant though and may take a few days to disappear, while it is getting out of your system. Besides which paracetamol may cause liver damage so I would be concerned about the number you are taking. If after "drying out" from them you still have frequent headaches I would see your GP to look at alternative painkillers. As for the balance problems, I also get severe dizziness on turning my head rapidly left to right, I also go dizzy just by looking upwards. Falls are a frequent happening, crossing roads is a nightmare, for example. Don't be embarrassed to use a stick, I now buy them like you would a handbag or shoes, I treat them as a fashion accessory, but with a stick I have to hang on to someones arm, so I use a walking frame to go out on my own, and I am only 61 and have had the frame for 7 years now. Do not let pride take away your independance, freedom and safety, it is not worth it. Many on here know I travel abroad frequently on my own with my frame, without it I would be unable to achieve so much. Live life to the full and enjoy it by using whatever aids are neccessary.
  4. Now Richard has HRC of DLA someone could claim Carers Allowance but the criteria has to be met by the claiment. http://www.direct.gov.uk/en/caringforsomeone/moneymatters/dg_10012522
  5. Nearly 7 years post SAH I walk everyday, go to the gym 3 times a week and water aerobics twice a week. I also try to find time to fit a swimming session in as well. I have had no ill effects from exercise at all.
  6. I was exactly the same for about 6 months.
  7. I agree with Keith, you need to see your doctor for interpretation. If you google the phrases you don't understand it is still as clear as mud.
  8. Plus headache, nausea and extreme tiredness. That is what I was told by neuro when I asked how I would know if my shunt blocked or stopped working. This may help, but please do not try to self diagnose, if you are worried seek medical help. http://www.ninds.nih.gov/disorders/hydrocephalus/detail_hydrocephalus.htm#151083125
  9. That I can't answer. If you are concerned seek a medical opinion.
  10. I have and it started 3 days after my SAH apparently. Temp drain for a couple of weeks and when it didn't resolve itself a shunt was fitted.
  11. Can't remember whether I have replied to this or not. If I have, sorry. Think very carefully before answering any questions as this short film made by Birmingham University will show you. I know it is about mental health issues but the principle is the same. http://www.ceimh.bham.ac.uk/tv/benefits.shtml Also beware of the doctor not recording the answers you give but what they think you mean to say. ATOS do not have a good record of getting it right.
  12. The right side is usually used for any type of angiogram but if, for some reason they can't use the right side they will use the left. If you noticed all the angiogram suites are set out to use the right hand side. This is from someone who has had both cardio and brain angiograms, 4 in total. What they may have said is if they can't use the right for some reason they would then use the left. Copied from duplicate thread, no wonder I couldn't find the original posts.
  13. The right side is usually used for any type of angiogram but if, for some reason they can't use the right side they will use the left. If you noticed all the angiogram suites are set out to use the right hand side. This is from someone who has had both cardio and brain angiograms, 4 in total. What they may have said is if they can't use the right for some reason they would then use the left.
  14. A reconsideration is part of the appeal proccess and that will be how John got his award because he did not have to go to a tribunal. Sally your appeal must have been rejected at the reconsideration stage and that is why you are having to attend a tribunal..
  15. Well done John, what a bonus for Christmas. As you say, anyone who has been refused ESA challenge the decision, it is worth it as DWP seem to get it wrong 9 times out of 10.
  16. I actually had a couple of neck and back massages on the boat when I did a Nile Cruise. It was wonderful and really helped my back pain, plus they left me feeling totally relaxed.
  17. I did link to another site that could help but this one is better advising on how to fill in the forms and how to appeal. http://www.benefitsandwork.co.uk/
  18. I actually get very frustrated and angry and shout at hubby an awful lot when I am trying to do something that I used to be able to do easily. In actual fact I try to do things that deep down I know I haven't got a cat in hells chance of managing. A classic example is decorating, I love it and used to do it all, especially wallpapering, so I alway try to still do it, only having to give up in the end. It is not easy trying to hold yourself upright on steps with one hand and hang paper with the other, in fact it is impossible and dangerous for me, as time has told me. Now I just have to get frustrated looking at rooms that are badly in need of doing with not a chance of doing it myself. I hate to get a decorator in, as well as being very expensive, I feel as though I have failed.
  19. There was a forum that was brilliant for benefit advice and it has now re-opened. One of the mods from the original is there and what he didn't know about benefits wasn't worth knowing. He is an ex welfare rights officer and ex DLA tribunal member. So for those of you who are seeking advice it may be worth a peek and to ask questions. http://www.youreable.com/forums/forum.php I hope this is allowed and sorry if I have broken any rules.
  20. Your hubby may be able to get Pension Credit. http://www.direct.gov.uk/en/Pensionsandretirementplanning/PensionCredit/index.htm
  21. Ern Re: Invalid Carers Allowance is now called Carers Allowance and is only payable in respect of someone who receives the HRC component of DLA. The hours of care to be given are now 35 per week and the person doing the caring cannot earn more than £100 per week independantly. As you say, things will have changed.
  22. There are courses for anger management. Possibly these could be accessed through your GP. Why not go to see him/her and explain the problems that your hubby is having with his anger. No you are not selfish and uncaring, there is only so much a person can take.
  23. http://latestnews.virginmedia.com/news/uk/2010/11/05/vitamin_e_could_raise_stroke_risk
  24. I often fall indoors when I am trying not to use my frame. I just say "I bounce well". I will never attempt to go out without it as it is too dangerous for me. I am dreading the time if I break something through falling, I will be totally cream crackered for mobility until it has healed. I also cannot bend over to do anything, like going down to get things out of the oven, I have to hang onto something with one hand to hold myself up or to do things like dusting the skirting board. These actions are almost impossible and if I do try I am left feeling very nauseous which can last for over a day. The result is that I have to have a cleaner for the house and hubby has to do the cooking. I used to do all our decorating but that is a no no now and I really miss that. Another thing that causes me to go dizzy is moving my head from side to side, I have to do that very slowly to prevent the dizziness. For this reason I am not allowed to drive anymore and crossing roads is a nightmare. Putting shoes, boots and socks or tights on is extremely difficult when I have to sit on the floor leaning against something and bend my foot up to my hands. Goodness how long I will be able to do that for and am dreading the time when I am going to need help to dress myself, possibly as I get older. I have to sit when showering as I fall over standing. It is difficult but I have learnt stategies to help me cope so that I can live life to the full to the best of my ability
  25. I was left with balance problems immediately after my SAH almost 7 years ago. They are so severe that I have to use a walking frame. I have also been accused of being drunk. My SAH was the same artery as yours. Neuro deny that the SAH was the cause and to look at my other medications. I was taking them for years before my SAH with no problems at all, so how could that be? I believe that the brain is so complex that even the most eminent neurologists do not know all the answers.
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