jamesyreid Posted April 10, 2022 Share Posted April 10, 2022 Hi there, I stumbled across these forums completely by accident this morning, and already I've found a lot of useful information. I'm going to provide a brief summary of my experience, which I am hoping others can relate to. I'm also hoping that some of the posters here can offer me some advice with regards to my recovery, which already is proving extremely frustrating. Ok, here goes. I am a 46-year-old male who lives in the UK. I don't smoke, rarely drink alcohol, and am definitely not overweight. I had always considered myself fit and healthy, and would walk at least a couple of miles every day. On 25th February I got up to get ready for work and felt fine. It was just like any other day. 10 mins later, I had a "thunderclap" headache which came from nowhere, and felt dizzy and nauseous. I get a lot of headaches, but this one was completely different to anything I had experienced before. I knew immediately that something was wrong. I called my GP, who immediately sent me up to hospital. A CT scan didn't reveal anything untoward, but a lumber puncture indicated that there had been a bleed. I was then sent for another CT scan, this time with the "contrast" dye, which again didn't show anything, but as a precaution was then transferred to a specialist neurological unit for an angiogram, which didn't reveal an aneurysm. So I was diagnosed with a non aneurysmal subarachnoid haemorrhage, and after only 4 days in hospital was sent home again, with absolutely no information about recovery or what to expect next (from browsing the posts here, this seems to be a common theme). There are no follow up appointments, and I haven't to go back to the hospital again. Since being discharged from hospital, I have been suffering from the following: 1 - Extreme tiredness. From reading up about SAH online, I know this is probably the no 1 issue that will affect people who are recovering. 2 - Headaches/facial pain. For a week or two immediately after the haemorrhage, the headaches were very frequent, but could be managed by paracetamol/ibuprofen. The issue I have now is a "facial pain", which feels very much like sinusitis. The bridge across my nose is painful, as is the surrounding area (forehead, cheekbones). I contacted my GP, who said that based on the scans they took in hospital, my sinuses are clear, and three separate medicines I have taken for sinusitis have made no difference. Has anyone else experienced sinusitis-like symptoms during recovery? 3 - Lightheartedness/dizziness. Basically, I don't feel too steady on my feet, although this is fairly mild. 4 - For a while, I had back pain, although this has eased off now. However, ever since the SAH my neck makes a horrible grinding/crunching noise whenever I turn my head. This definitely didn't happen before the SAH. I asked the GP about it, and their reply was it is nothing to worry about. It certainly isn't painful, but the noise is absolutely dreadful. 5 - Anxiety. I'm not sure if this is common after experiencing a major medical issue like SAH, but I am now worried that I am about to have another health emergency that appears without any warning. For example, I have a very slight pain in my chest bone, and I'm convinced that I am experiencing symptoms of a heart attack. I'm also worried about how long I am going to be off work for, as given the way I'm currently feeling there is no way I could even think about returning to work just yet. Possibly worst of all is that I'm now concerned my progress has halted, or is even going backwards. One week ago I could have gone out for a fairly long walk, but this past week the tiredness has meant I've barely been able to make it out of bed. I know good days and bad days are to be expected, but that's now a bad WEEK I have experienced. So in summary, I guess I'm wondering if the issues I am experiencing are to be expected. I know everyone is different and will recover at different rates, but I'd always thought of myself as being fit/healthy and a quick healer, and I'm getting more and more frustrated that after around 5 weeks I'm not making as much progress as I would have liked, or even that the progress seems to have stalled. One final thing (bearing in mind I am from the UK). I was informed upon leaving hospital that I wouldn't be able to drive, and would have to contact the DVLA. I completed the medical form a few days after being discharged and sent it off to the DVLA, but since then I have heard nothing. Does anyone know when I am likely to hear anything back from the DVLA (I'm assuming they have a post-COVID backlog), and how long I am not going to be able to drive for following my NASAH? It's not an issue at the moment as I don't feel anywhere near well enough to drive, but I wouldn't mind knowing how long it is going to be for. Is it likely the DVLA will send me for some sort of medical examination, to ensure I am fit enough to drive again? Thanks!!! 3 Quote Link to comment Share on other sites More sharing options...
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