HollyEllen Posted March 5, 2013 Share Posted March 5, 2013 Hi Everyone! On January 17th I experienced a brain bleed and in hospital they found 2 aneurysms which I had coiled. My hospital stay was only 2 weeks (although it felt like a lifetime to me). My effects have not been horrible honestly. My mind is fuzzy and my short term isn't what it was... I have my memories though and motor skills. I know I'm lucky but I'm terrified, angry, frustrated and in general I don't feel I appreciate how lucky I was. I even continue to smoke ... I'm confused and lonely in my recovery which led me here. Not sure what else to do for myself. Quote Link to comment Share on other sites More sharing options...
paul99 Posted March 5, 2013 Share Posted March 5, 2013 welcome holly im glad you found us you are not alone in how you feel im pleased you have no serious side effects apart from feeling fuzzy angry and frustrated many will come on later to help you come to terms and the fact things do get better in time keep please keep the fluids up and listen to your body and take one day at a time please i will pop in later take care and be safe Quote Link to comment Share on other sites More sharing options...
Winb143 Posted March 5, 2013 Share Posted March 5, 2013 (edited) Holly, Read Amexdm post about a meeting it is good or perhaps David/Amexdm can send it to you. You will get better, don't overdo it, and think how lucky we have been. Keep smiling and singing it helps. ( I gave up smoking and drinking she screams lol) Love WinB143 xx Oh and welcome to BTG xx Edited March 5, 2013 by Winb143 Quote Link to comment Share on other sites More sharing options...
HollyEllen Posted March 5, 2013 Author Share Posted March 5, 2013 Hi Everyone!On January 17th I experienced a brain bleed and in hospital they found 2 aneurysms which I had coiled. My hospital stay was only 2 weeks (although it felt like a lifetime to me). My effects have not been horrible honestly. My mind is fuzzy and my short term isn't what it was... I have my memories though and motor skills. I know I'm lucky but I'm terrified, angry, frustrated and in general I don't feel I appreciate how lucky I was. I even continue to smoke ... I'm confused and lonely in my recovery which led me here. Not sure what else to do for myself. I suppose that's not all... They have been unsuccessful in getting my BP down and I still range 160's/120 so tomorrow I will see a BP specialist at the ambulatory center in Hamilton. They also fear heart issues and I'm scheduled for an Echo on Friday. One aneurism continued to have fluid flowing into it after coiling so I've been told the chance of impacted coil is high and may need recoiling in a month or two. I'm not myself and that scares me. I confuse easily just cutting some cheese for my kids, far from the multi tasker I was. My headaches have continued and vary in severity most are pretty awful. Quote Link to comment Share on other sites More sharing options...
Daffodil Posted March 5, 2013 Share Posted March 5, 2013 Aww holly. Big hugs. It will get better. They couldn't get my BP down even after 6 weeks in hospital, in fact we used to laugh in the end because we knew the readings would be so high. All my echos were fine and i hope yours are too. So at the age of 39 I got to start popping BP pills. The people on here helped me to understand that was ok. I'm sure their investigations will get to the bottom of what's causing yours. They will be keeping a good eye on you it sounds, many of us have other anneurisms or things they are watching with us, we are the lucky ones. It's good you have been released so quickly, that means they are happy with you, but now you need to take things slow and start the hardest job of healing. There's plenty of us on here with kids so we know how hard it is to slow down but slow down you must. The headaches come with the territory but if they change in intensity then seek medical advice. Main thing is drink plenty of water, rest as much as you can and steer clear of noisy and intense environments for a while. I found TV was a no no for quite a while, it wiped me out. Take care now. Quote Link to comment Share on other sites More sharing options...
Winb143 Posted March 5, 2013 Share Posted March 5, 2013 Holly, I say this a lot, but look back on how far you have come since January, you are still recovering. Take it slow and do not overdo it. with children it is hard but they will help in their own little ways xx Look back in 4 weeks time see if things get better, I am still remembering how I was and it might only be small steps but I was told I would not walk again, still tough but doing short walks. We will show them lol Now cheer up and sing xx we are alive x Love WinB143 xx xx Quote Link to comment Share on other sites More sharing options...
Gill C Posted March 5, 2013 Share Posted March 5, 2013 Holly my BP is usually fine but since my op its been higher. Recently I saw the GP that knows my full history & she took my BP & it was borderline high. I thought the lowest dose would sort it out but it didn't, neither did the second dose so now I am on the same dose as hubby & it has finally come down, the bottom figure is now 80 whereas it was 90 & slightly above. I just had some bloods done & my cholesterol (always been fine before) was up so I told her what I had to eat the day before the test so she asked for it to be redone (again borderline high) & now its down to 2.7 but another part of it is higher than it should be so its back off to discuss the next step with her on Friday. My risk factor was assessed & although very low with my history she doesn't want to take any chances at all so if I need tablets then so be it. There are so many things that can be done for us these days so I'll take whatever they think I need!! I do get hadaches & sometimes some eye pain which can cause me to wince but most of it can be controlled by paracetamol. If they are much worse than that you need to see a Dr for sure. I also get fuzzy headed but fo und taking a daily vit & mineral tablet did help somewhat although it hasn''t cleared up completely As for recovery time I almost 3 years post op & still have fatigue issues, some memory issues but Iam hoping to get back to doing some form or work this year, I'm starting with voluntary work to see what I can actually do. Everyone here will tell you there is no set time for recovery, the nearest I got to a realistic answer was 1-2years from the nuero psych I saw at the local hospital. You do need to rest when you can & drink lots & try to avoid situations that make your fatigue worse, not easy with kids I know!! Take care xxxx Quote Link to comment Share on other sites More sharing options...
Louise Posted March 5, 2013 Share Posted March 5, 2013 Hi Holly Warm welcome to the site so glad you found us. No your not alone in the way your feeling right now it all fresh, it will improve honistly, just take things easy & when your tired relax & drink plenty of fluids.. take care Quote Link to comment Share on other sites More sharing options...
HollyEllen Posted March 6, 2013 Author Share Posted March 6, 2013 I suppose that's not all... They have been unsuccessful in getting my BP down and I still range 160's/120 so tomorrow I will see a BP specialist at the ambulatory center in Hamilton. They also fear heart issues and I'm scheduled for an Echo on Friday. One aneurism continued to have fluid flowing into it after coiling so I've been told the chance of impacted coil is high and may need recoiling in a month or two.I'm not myself and that scares me. I confuse easily just cutting some cheese for my kids, far from the multi tasker I was. My headaches have continued and vary in severity most are pretty awful. Do many of you or did you experience the rage??? Just after my operation (hours) I subjected my husband to a brutal & harsh count of memories, many from years & relationships before him. I called him names and said horrible things but I'm still not positive on the extent as I'm afraid to ask. Still almost 2 months later I'm angry and unsure I understand why. It's so intense and its not quite like me Quote Link to comment Share on other sites More sharing options...
paul99 Posted March 6, 2013 Share Posted March 6, 2013 holly you are normal you are still in the very early days of recovery your body is still trying to dissapate the blood which came out during the bleed that can take up to three months to complete and your body settles down it depends where the bleed occured which may give you peace of mind there are many on here which have gone through the same sort of anger and flying off the handle its normal honest hopefully hubby will understand he can also join in because we are here for suffers and carers if thats the right word we will support both parties then he may understand how you are feeling and maybe he can also understand and we can help him comes to terms with what has happened .the bleed does have many effects which many people keep locked up inside which is not good for anyone take care and forget what happened and try and take a step forwards together because an sah is a major event to everyone close to you take care Quote Link to comment Share on other sites More sharing options...
Gill C Posted March 6, 2013 Share Posted March 6, 2013 Holly the rage is normal honestly. Google the 5 stages of acceptance & you will see where you are within those steps. Its is still very early days so try not to stress too much, rest when needed & drink lots of water take care xxx Quote Link to comment Share on other sites More sharing options...
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