Jump to content

Holding yourself upright

Recommended Posts

Hi All,

I was wondering how many of us had a bad balance problem after the SAH op.

I was coiled and out of it for a long while but I remember not being able to hold myself upright.

I had a big backed wheelchair

I used to fall towards the left and always fall on my lovely daughter and I am not a light weight.

I look back on those days with a smile and thank my lucky stars I am alive to tell the tale.

So if anyone's loved ones are at that stage it does get better.



Link to comment
Share on other sites

Win I had quite a few balance issues. My team put that down to the hydrocephalus more than anything as the fluid I think is quite crucial to keeping the spine in balance plus of course keep the brain bathed.

I couldn't walk any distance in hospital , had to have someone hold me up , and when I was finally allowed off the ward for a wheel about and some much needed fresh (London!) air we used to giggle as the wheelchairs were often more skewiff than I was. I felt every bump and jolt, it was agony. Then post shunt it was the same all over again. :roll:

When I finally discharged I couldnt get up stairs without help, a tiny walk just into the kitchen would exhaust me but that was my small target. I used to try and walk a little more each day and have done. My lovely mum bought me a lucky stick with a hares head carved on the handle, I promptly dropped it, fell over and the nose broke off, so my lucky hare is also slightly damaged like me, still we toddle along.

If I am tired now then I fall quite easily, I just seem to forget to pick my leg up, my brain says it has, my leg didn't get the message and down I roll. I have gotten quite good at parachute rolls. I try and walk the dog on the days I know I have energy too and he stays much closer these days but not so close that I have landed on him yet.

One other thing I have noticed is that when I meditate( which I do now to help me relax) if I do it sitting then I always tilt over quite drastically to the right hand side. That's also the side I usually fall on. I ponder that sometimes but not for long.

I would love to run around in the garden chasing girls like I used to but having reclaimed so much I can only hope that I might get there before they get too old to be chased! A friend did say the other day that I am walking quicker than I was so my stamina is improving with time.

We've done well Win. Little steps eh? Even if they are shuffling ones. Keep going my lovely.

Link to comment
Share on other sites

Snap Win as I was the exact same, coiled, out of it for about ten days.

Wheel chair for a good few days and when I would stand up I would rock back and forward and as my feet would point out they would hold me up but my heels struggled on the backward motion.

Few scrambles there i tell you lol but it's all good now...

Edited by Tina
Link to comment
Share on other sites

I have balance issues but it is more to do with only having single vision than the anni itself.

I was at an appointment on Friday & he was standing me up & sitting me down & turning me round! I fell against the door at one stage!!

I still can't do a toe heel walk!

Win you've done amazing x

Link to comment
Share on other sites

I was totally wobbly...they wouldn't let me use a cane, so I got discharged with a walker instead. However, I was so agile before SAH, they had me doing most of my therapy on a balance beam! Wild. Also, before my SAH sometime, I had really bad Disembarkment Syndrome as I had just ripped my seasickness patch off after coming home from a cruise and had terrible withdrawal symptoms. I learned what kinds of exercises to do for vertigo back then, so I was in really good shape as far as knowing what I had to do to start recovering. After my SAH, I felt like I was literally in a gyroscope 24/7 even while sleeping. Eating was really hard as I felt sick all the time.

Now, I get dizzy or uncoordinated when my brain decides I need a dose of it. I have learned that I can not even manage it when it happens or let alone control it. I fell over in yoga one day for instance...and I never can do tree pose! At night, I also have this thing where it feels so good to lean backwards like when you lay down. I do it a few times just for kicks because it feels so good just to go backwards. I used to get this same feeling every time I braked while driving...the one good feeling I had back then.

I'm so glad it is better now as vertigo and unsteadiness invades every part of your life when it's with you.


Link to comment
Share on other sites


I distinctly remember the 'weeble' feeling when the nurses first sat me up in hospital. I did not have any balance in my core at all and needed full support to remain upright.

This 'weeble' thingy quickly improved, but the balance problems continued in other ways. I frequently felt that I was listing when I was walking and often felt that I would fall out of bed whenever I lay down to rest.

My balance has continued to improve, but as with so many other symptons, problems resurface quite dramatically whenever I am tired (which is often!).

Take care,


Link to comment
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Reply to this topic...

×   Pasted as rich text.   Restore formatting

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

  • Create New...