Ponigirl Posted January 23, 2015 Share Posted January 23, 2015 I am very curious about a couple things- this may vary from UK to States or other countries. When I was released from the hospital and rehab I feel like I was given very little if any instructions on what to do now. I went from ICU to "step down" then to rehab. I do not have any memory of any of that or even the weeks/month before I had my SAH. When I was released from Rehab (at Kernan) I was pretty much just told to go home and come back in 2-3 months to see the neurosurgeon; no mention of driving or not driving, etc. Before I saw the neurosurgeon I had to bring an updated CT scan of my brain, he said it was fine. When I saw him he told me I could return to work (no restrictions), he said driving was up to me, and that I did not need to see him any more or make any follow up appts at all. I felt very "lost". I returned to work 3 months after my SAH. I started having more and more memory problems, I had a hard time understanding and comprehending. I was in tears almost everyday (now I've read the emtions are normal after a SAH), I wish I had known that at the time! I called the neurosurgeon and told him all this, he asked me if I had a neurophysc test, I couldn't remember- so he checked my records and said there was not one done- so he scheduled me to have one done. It was very extensive, 8 hours total - they let me take it on one Friday and come back the following Friday to complete, and it was also very expensive $$$$$, lucky we have very good insurance. Believe it or not but I felt so much better when I failed it, because I felt like a crazy person. I wish when I was released I was given a "How to live with having SAH for Dummies" Book - or something like that. I noticed that so many people get on line right away after having their SAH/BI but I never thought to do that. I felt like I was floating in a cloud or something. I didn't even find an online support group until at least a year after mine. I just had my 2 year and there are so many things that I am find out now that I wish I had known a long time ago. I would really like to hear what your experience is/was and what your thoughts are on a book for when people get out of the hospital. Thank you!! Quote Link to comment Share on other sites More sharing options...
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.