JamesW Posted July 26, 2015 Share Posted July 26, 2015 Hi All, I have just joined! I thought I would post about my family's current situation. My dad suffered a ruptured aneurysm on the 2nd June this year. Initially it was a grade 2 bleed but then progressed to a grade 4 as he was in hospital waiting to be seen. He was then transferred to the specialist neuro hospital (Preston Hospital) on the 2nd and had emergency surgery during the night to fit a drain. He then had the aneurysm coiled on the 3rd in the morning. He remained in critical care for just over a week. When he came round he was very emotional but he also seemed pretty normal. He was then transferred to HDU where he stayed for 5 weeks. He was referred to another consultant neurosurgeon who came to the decision that fitting a shunt would really help dad as both his ventricles were still slightly "plump" and lumbar puncture wasn't as successful. Dad had a permanent shunt fitted and the improvements were noticed straight away. Visiting him the day after the shunt operation was wonderful as dad was laughing and joking with us and singing along to ridiculous old time songs. The whole family was in tears with happiness. However, whilst being in HDU, he only sat out of his bed on two occasions and had to be hoisted. He then transferred to the Royal Blackburn Hospital for one week on a gastro ward (slightly ridiculous as he had no problems with digestive system etc). We had to fight to get him to a stroke rehabilitation unit. He was transferred to a fantastic stroke rehab ward last Thursday and has made amazing progress since. Still has to be hoisted. His speech is fine and his long term memory is excellent. He still has a fantastic sense of humour. He has also just recently started eating purified food and is able to drink by himself. Since Thursday he has been sat out in a supportive chair for the majority of the day. Last Friday was a big day for him as he received physio for the second time and he became very very tired. He is however, becoming increasingly agitated. He is still on an NG feeding tube despite being able to feed himself he also has a catheter. His NG tube he has pulled out about 7 times and he has also pulled his catheter out once (Ouch). My mum has been amazing and is dealing with it exceptionally well. My sister and I, although we know its ridiculous, want things to happen quicker and we are currently worried about him walking. Dad was very fit and healthy pre bleed. He didn't smoke, drank in moderation and was generally a robust strong norther man. However, being bed bound for 7 weeks has really taken it out of him. His muscles are obviously weak and he has lost a lot of weight. He is determined to get up and walk and keeps saying that he has been walking around the ward etc. My sister and I are both worried that he won't be able to walk again. Dad can move all his limbs with some power - the only exception is his right arm which he wasn't able to move very much but this has improved immensely (yesterday he held a mug of tea in his hand and was able to drink easily). Another thing we noticed was that he was moving his feet alternatively in time to some music that was playing from the ward radio. We are seeing all these things as a good sign. However, dad is still very shaky and weak - we hope his weakness is due to him being bed bound rather than his SAH. What worried us even more is that upon arrival to the Stroke Rehab word the nurse explained that some patients are transferred directly to a residential home and they also asked us questions about wheelchair access in his home. Dad is a fighter and has determination. Yesterday he told mum and I that he had learnt a lot whilst being in rehab. He says he is determined but he has to take things slowly. Any advice gratefully received. James Quote Link to comment Share on other sites More sharing options...
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