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Everything posted by Macca

  1. Hope you find the answers you are looking for!
  2. Hi, I think you hit the nail on the head when you said there isn't much research out there. Talk to your doctors, ie someone who knows, as Catwoman says above. Either way, it can't be as good as not doing it at all. There isn't a lot of research and even less, if any at all, on whether it would affect us a SAH survivors. With all sorts of chemicals possibly in vaping, are you substituting one peril for another? Speak to the professionals rather than us. Any information you get about this here would only be hearsay and probably very unreliable at that. Sorry not to be of more help, but I think we are the wrong audience for this question. Good luck.
  3. Hi Mike, I'm not laughing - your advice is inspirational to others - we all have to adapt in our own ways, dependent upon how SAH affects us and to what degree. Brilliant advice, and put across in such a positive way. Thank you. Change happens - it's how one deals with it that counts. Well done indeed! I do similar things to help my short term memory. I also find repeated repetition helpful. Best wishes, Macca
  4. Hi, I will give you a slightly different look from the outside at what you have written, laced with a little irreverence, humour and a lot of love! Your credits, not your deficits, your positive changes and increased sense of who you now are, thanks to your nurses and your reflection! I take your points one at a time in the order you made them! 1) Your perception has changed and made you reflect on what is important in life - well done, you made the right choices with regards to work life balance, 2) Keep trying the salsa steps, it will sink in when you are in the right mood and frame of mind - get to work in parrallel with someone who knows the steps and do them at a slower pace until it sticks. Instead of Salsa steps call them Spanish steps - if Spanish is going in call them Spanish! Worth a try! 3) This is part of your brain telling you it recognises things in their familiar place. If it works for you then keep doing it! Your parking space can be called the Spanish spot! 4) This is good - you have their attention! 5) These emotions display a level of honesty, just be mindful that perhaps a little more tact is called for, not a change of opinion. People often blame others when they want to deflect fault from their own actions to yours. They know your weak spot - do you know theirs? 6) We all do that, it's just you are more aware of it now. You remember the important ones but not the ones that are less significant to you. You can't remember everyone, don't beat yourself up about it. If needs be, write their names down and why you need to remember them. If there's no reason, then there's no point to remembering them - therefore no worries so go back to point 1 - laidback! 7)Nothing wrong with that - repetition transfers short term to long term memory thus eradicating the problem at issue! Great! Laugh - because it's a comedy - it's good to laugh! 9) Another good point - why keep up with toxics - getting rid was a good decision - well done! 10) With regards to your Spanish again - buy a Spanish car and then maybe you'll remember where you left it - (in Spanish of course!) Lateral thinking! What's Spanish for "Credits not Deficits?" It's just a different way - and hopefully more positive way of looking at things! Good luck Macca
  5. Macca

    Janet's Story

    Hi Janet, Welcome to BTG. I hope I can give you some answers here but no miracle cures unfortunately! Firstly, two months out from a bleed is next to no time. Please don't underestimate what you have been through. It was a very serious event that happened to you. Yes, a bleed such as you describe is classed as a form of stroke and its classic sign is the thunderclap headache. Very often you won't have the classic stroke signs advertised in the NHS FAST adverts ie Face drooping on one side, Arms, can you lift them, Speech, is it slurred and Time - get you to the hospital asap. Sadly, they don't say H - headache of the thunderclap variety, get to hospital, bluelighted! In my opinion, they should because it is every bit as dangerous as any other kind of stroke. Another problem is that you can't see it - it is internal and you look normal to everyone else so they tend to underestimate it when you tell them! It's not like a broken leg where you can see the plastercast! So you have to communicate with everyone and tell them what's happened. It's like looking at a car without an engine - looks like a car, feels like a car, but it won't start because the engine is faulty! To answer your questions:- 1) How long does recovery take? Answer - it takes as long as it takes. Everyone is different, depending on how bad their bleed was, how strong you are, and how it affected you. Some recover very quickly and for others it can take months and years. In your case you've only just started to recover so don't beat yourself up about it. You could have a way to go yet. 2) Should you quit your P/T job? Only you could answer that in the fullness of time, but give yourself a chance to recover first. You've only just started. How about a phased return to see how you get on? Or a change of duties on a temporary basis whilst you get your strength back? 3) Hit the wall? That will happen, especially in the early days that you are now going through - that's your body telling you that you've had enough for one day - listen to it. You won't need anyone to tell you - your body, remarkably resilient though it is, will do it for you. Heed its advice and rest. If there is no improvement over time or if you are worried then see your doctors again. What you describe is not uncommon after a bleed - it's normal - we've mostly all been there. We know it isn't nice and can be frustrating but there's no quick path - you just have to be patient and listen to your body. Again, if you are worried, keep in contact with your doctors. 4) What caused it? We would all be rich if we knew the answer to that one! My surgeon told me to imagine I was riding a bike - one minute its all ok and then you suddenly, and unluckily, get a puncture. Some believe stress can play a part - but you can't measure that because its effects and causes are variable in everyone so it can't be measured - but avoid it where you can. One last piece of advice - because you can't see it - communicate, communicate, communicate. People can't help you if they don't know what's up with you - so tell them and keep on telling them. Good luck in your recovery! And be patient, the world will still be there when you are ready to face it! I've been there and got the T-shirt!
  6. Hi Joe, I used to sit at a screen a lot. My eyesight was ok, but I got tired after long periods at the screen. You should have a break every half hour, there are plenty of studies that back this up. However, one thing I did do was get my eyes tested and there are three possibilities I know of that will help. One is to see an optician and get them to make you a pair of glasses that are adjusted to your eyes (perfect or not) adjusted for your eyes in relation to the screen you sit at and which take the glare off the screen to make it easier on your eyes. Another is to buy an anti-glare screen that attaches to your VDU, again which takes the glare off and in some cases will increase the font size as well. These days you might be able to change the settings on your screen to do this, so go and see your office computer bloke/lady to see if this can be done for you. Best wishes, Macca
  7. Congratulations Super Mario!! Have a great day tomorrow!
  8. Hi Vicky. Welcome to BTG. Firstly, your health is your absolutely number one priority. You need to keep going back to the team that treated you to seek re-assurances, to ask questions and to be sure the treatment you are receiving is the correct treatment. Then you can follow up your complaint - and if you were unhappy, you were absolutely right to complain. However, make sure you do it diplomatically and in the right way - you don't want to bite the hand that feeds you - nevertheless, they need to know that what they did wasn't acceptable. If, they say that saving your life was their priority, rather than having good manners, then you could cut them some slack. How else would they find out, and improve things if people didn't complain? In terms of talking about it making your blood pressure rise, I think there are a couple of points to bear in mind. 1) The clinical team are there to look after your medical needs, not your social ones, so sometimes it can seem as though they have just turfed you out and cut you off. It's just not their field of expertise that's all. 2) Find a close friend to talk to in a calm situation who can sit down with you and let you talk about what has happened to you, without judging you, or telling you that you may be getting upset too easily. They just need to let you get it all off your chest, and you will feel a lot better for having done that. 3) Set down some questions on paper and then approach your doctors armed with that. It is much easier to do that and talk in a structured way than with an adhoc approach that can get out of hand because of your understandable emotions, in play because of what you have gone through. 4) Although the people treating you are probably very good at what they do in repairing you, in almost all cases, they have not lived the experienced themselves, and so they don't have that social empathy that we have for you, for instance. 5) Now that you have complained, let the investigating body do their job, they are taking the strain for you now, so try not to get too worked up about it. you can only make your next move when you get a reply to it. In the mean time, talk to people, such as your friends and family, who you know will lend you a sympathetic ear. It is very difficult for you, being at the centre of this, not to get emotional because it is without doubt, a very real and terrifying experience to have lived through, However, you will find that their response may feel 'matter of fact.' If I were you, I would get your friend or family member to open the letter in your presence, and take you through it line by line, talking about it as you go, making sure you take in what it says, with their support to hand. Just my opinion, that's all. Good luck and best wishes, Macca
  9. Hi, welcome to BTG! I sense that you are a person who is very independent and who likes to help everyone else, but doesn't like to accept help when the boot is on the other foot. Welcome to the club. There are many of us on here in the same boat. Good advice from Casey. Have a think about that! The emotions you are feeling are quite common in the aftermath of SAH, so don't beat yourself up about that. Emotional turmoil of one kind or another often crops up. In the meantime, just consider what has happened to you. Time for you to think out of the box for a minute. This change has been thrust upon you in an instant. You had no time to prepare, no time to ask for help - it just happened and there you are, plonked in no mans land, up the creek without a paddle. Now what you see is people around you offering to help, whereas previously, in what seems like only moments ago, you were one of that group. You've been tossed out of the boat by a freak wave and these others are now trying to help you to get back in the boat! Accept their help. If you were tossed out of a real boat, you would accept their help without a second thought to get back in - so what is different? I know it is difficult to accept at the moment, but as time goes on and you accept what has happened, you will reflect more and understand what I am trying to convey to you. We've been where you are and we've lived it and came out the other side. You will too. There is absolutely no reason for you to feel guilty - although I know the feeling - but in life everyone needs a helping hand from time to time. You can't get through life in splendid isolation. Humans are social animals - we interact with each other, it's what we do - it's just that now it is your time to take, instead of giving - it's just that you weren't ready for it that's all. You were just unlucky in that it happened to you - but lucky that you came through it relatively unscathed. Your lottery ticket just came up! Grab that second chance with both hands and help your daughter grow into the woman you always wanted her to be - You can still do it - go for it. Watch her achieve, watch her get married and have children of her own - it's all there in front of you and you will be there to see it! No guilt - you still have a massive role to play in life - learn from your experience and use it to full advantage in yours and your daughter's future. So accept help with good grace, and with the love that it is being offered with. They are doing for you what they know you would do for them in a heartbeat. Think positively and make the most of your opportunities and that is the best thanks, and probably the only thanks, that anyone will want from you. Good luck and best wishes, Macca
  10. Hi Maria, My heart goes out to you. You have had a really tough time of it and your compassion is endless. Although you are in a difficult position, it speaks volumes about the kind of person you are and how lucky Paul is to have you in his life. You are doing all you can, and huge respect and love to you for that. You can do no more than you are already doing, so please don't reproach yourself in any way whatsoever. As I said to you in an earlier post, all you can do is deal with circumstances as they are. Yes, they are upsetting, for sure, but you are doing the right things. You can do no more than that. Please come on here and offload when you need to and we will try to help and/or support you in the best ways we can. Macca
  11. Congratulations Julian! Glad you are progressing, still on 'the long and winding road.'
  12. Hi Trish, With reference to your question above, it depends on individual circumstances and treatments given to you by your healthcare professionals. Not everything is down to SAH, but whatever happens, you can't control the past, only the future. Learn from the past and move on as best you can. You may have to adapt certain things in your life, but you've already shown you can do that. With regards to the medical aspects, only your doctors and you can answer them. Some may take longer than others, just try not to let anything stand in the way of enjoying your life. Some things may be permanently changed - not better or worse, just different - that's the way to look at it, in my opinion. Best wishes Macca
  13. If you are worried, the thing to do is to go and get checked out by your doctor or the team that dealt with your NASAH. Sadly, we are unable to give medical advice since we are not qualified to do so. There could be many reasons/explanations why this has happened, and they may not be related to the NASAH. The lesson, though, for you, is to listen to your body when it gives you signs it isn't happy with what you are doing, and also, don't be fooled into thinking you can do anything on days when you feel good. You aren't stupid, you weren't to know you would have such a reaction. Take care - go and see your medical team for professional advice!
  14. Hi Clive, Mine was over eight years ago and was my left anterior communicating artery. I was coiled too. I recognise much of what you say and I too can remember old footy results but can't remember today's or last weeks! welcome to the club! Frustrating at times, I know. However, you survived and things get better. Mine happened at 54 and I retired four years later and haven't so much as looked back once. Enjoy your retirement. Just remember when you are next out in the sunshine having lunch, your ex colleagues are inside, toiling away, stressed and complaining about being overworked and underpaid! There are some things and people I miss, but I definitely don't miss some management colleagues and the stress I was under, often unnecessarily, because of others incompetence and intransigence. Hey - enjoy life, you got a second chance, make the most of it! You are learning to change things around a bit and eventually you will settle into the new normal for you. Glad to have you on board! Macca
  15. Hi Angela, Congratulations on reaching the one year milestone! Yes , you still have problems but on the bright side, they are able to do something about them, which is not always the case! Try to look at the longer term benefits rather than the short term angst. Once the procedures are done, they're done and you can look forward with confidence that there will be continual improvement and a better future ahead. Great news that you are keeping a diary. It works. Another technique I find useful with things I want to remember is to keep on repeating them until they transfer into your longer term memory. Using your diary will help with this too if you keep writing things down and looking at it frequently! Good luck and I wish you well in your treatment programme!
  16. Well done Paul and John! I am 8 years out and now 63, and you are right, there is life after SAH. Just make adjustments to what you did before. Change the way you do things, sometimes it will take a little longer and we each have our personal journey but we get there in the end - well done lads! I took early retirement and I wouldn't go back to work if they paid me - I love it!
  17. Hi Jean, You have a positive outlook which is great. You are right in that you are 'the only one who knows how you feel' and that 'you are looking to be the best self possible.' Wasn't that always the case, but that now you are just simply more conscious of it? Now you are aware that something was trying to stop you doing that, but instead of making you fail, all it did was to reinforce your need to redouble your efforts to be the best you can? That is fantastic because far from defeating you, you have become a new you, a different ,resilient you with a new and invigorated value of the importance of making the most of your life. Those people who have never had a SAH don't get that . You don't do anything better or worse you just do it differently. Every day is a challenge, you say, but wasn't that always the case too? I hope others take heart from your words and derive some comfort from them. I think you have recovered well, not just physically, but mentally also, and you are an example for us to look to for inspiration. There is always room for improvement, (and recovering from a SAH doesn't make it easy, I know), but we think that when we are one hundred per cent well too don't we? Embrace the changes in your life. I think you are doing just great. Well done! Best wishes, Macca
  18. Hi JoJo, Like Clare says, you will become accustomed to a new you over time. You will find lots of the old you in the new you, it just takes a bit of time to recognise it and accept that what has happened has happened and none of us can turn the clock back. However we can shape the future. You say you did things hardcore - well now you may have to do things lighter-core but do it for a bit longer and bit slower, whatever your body will accept. it has a way of telling you when you've had enough, so learn to listen to it and accept its new boundaries. You won't be better or worse, just different. You just have to be a bit more flexible in what you do. Change occurs in all our lives, but most of it happens gradually over a period of time. You've just had it thrust upon you rather abruptly, and it takes a bit of time for you to re-adjust. When you get a bit of time to yourself, get a pen and paper (remember them?) and sit down and go through your daily routines and see what you can get rid of, what you can do differently, what you can delegate, and so forth. You'll be amazed at what you can come up with. Do things a little more moderately and create the space to do things for yourself and your family, and get them to do a few more things for you. It just takes a little time and planning and some proper discussions with those around you - it can be done. If you leave things as they are, life will be more difficult than it need be, so change it and it will improve your health, your mood and your state of mind. That in turn will rub off on those around you and everyone's a winner! As the Spaniards (and Iola above, it seems) say, manana, manana (tomorrow, tomorrow). Lots of good advice above, pick out what you need and be positive about it. Don't be afraid of change, it's what makes you resilient! Good luck, Macca
  19. Well done Colleen! Many congratulations! What's that other saying? When the going gets tough, the tough get going! Don't let the blip be the thing you remember, what about the good things in the 9.95 years. Good beats bad - that's the headline! Just goes to show though, that even ten years out, a SAH can still have an effect. Think positive thoughts, you're through the blip and hopefully it'll be a long, long, time before you suffer another, if at all. Best wishes, Macca
  20. No, not necessarily. They may call you in just to discuss your result and reassure you all is going to plan. On the other hand, if they have spotted something, then far better to know about it and tell you what they propose to do about it than to just leave it! I am eight years out and every time I had a scan I saw the consultant. There was nothing to worry about. My SAH was from an irregularly shaped (rather than the usual berry shape) bleed and I was coiled and kept an eye on for longer than is normal. Nothing was wrong and each time I had a scan I was ok and the consultant told me so. So don't panic. If it had been urgent they'd have called you in sooner! Best wishes, Macca
  21. Hi Bill, I didn't know you back then - my event hadn't happened then,and I didn't know this site even existed. However, what I can see is that you had the strength to carry on, that you were given strength in return by your family to do so. But also, you gave them strength - a kind of push me, pull you type of strength where you both had a common goal that you came through together - and as a team, you won the match and came through it. Now it's time to win the league and keep on winning, every battle, every day! You say you are not in control, but you are, just not of the same things. They're not better or worse, just different. Glad to see you meet others with different problems, but fighting them together you have found a way to overcome them and find solutions. Life isn't easy, but it is life. I try to look at the other side and try new things that I can do, rather than at what I used to do, but no longer can. The only reason I look back now is to learn from things, but I try not to dwell on them, rather use them as a stepping stone to new ventures and abilities. This 'little thing in your brain' is like a set of points in your car, just because they sometimes fail doesn't make you a bad car, you just need to re-adjust the points and away you go! Bill, you've come back, make the most of us and stay in touch, when you're happy or when you are sad. Like someone said 'you fix the roof when it's sunny, not when it's raining!' Welcome back Bill!
  22. Hi Sam, I was treated (coiled) at Salford Royal. It has been rated the second best hospital in the country recently and the care I had there was second to none. The surgeons there are excellent and the hospital care is superb and the nurses excellent at what they do. I hope that provides you with some reassurance! Your son was excellent and you are lucky he was around for you! Your parenting skills haven't gone away so don't beat yourself up about that one. Your recovery time has been short - it takes a long time to get over these things and a second operation like the one you are about to undergo will cause you to require even longer to recover. Takeaways - so what - some people practically live on those these days. You just concentrate on getting through this - everything else can be dealt with later. Health is no1 priority for now. Make sure you tell each other you love each other and resolve to fight this and recover as best you can. It may take a long time but every journey starts with a single step.
  23. Hi Valene, With regards to stress, no one knows for sure what it can or can't do. it is almost an immeasurable thing because it is different in each and every person and there are so many external factors that can affect results or outcomes, such as mood, the issue that causes the anxiety, other domestic or business issues in your life that may be at play etc. So the thing to do is to keep in touch with your medics and try to do things that don't place any extra pressure on you than is necessary. Rising blood pressure can be caused by lots of different things and they may - or may not - be related to your bleed. In effect, you are asking for an answer we cannot give. The way to play this is to evaluate what causes you stress and pressure at the moment and then try to cut down - or cut out completely - those things and let your doctors do the rest. Common sense is that pressure and stress after a bleed is the last thing you need - so reduce it as best you can. Above all, talk to those around you to help relieve, or spread the load, of those pressures. Good luck! Macca
  24. Hi, If you are worried, go back and get yourself checked out and at the same time get professional advice from your medical team on how to regulate your blood pressure. When you know what the problem is ie; you have identified it, then you can do something positive about it. Just speculating and worrying won't do you any good. Just worrying will increase your stress levels and that in itself is not a good thing. It will just eat away at your nerves, so take back control over the problem, identify it, isolate it and tackle it! Good luck, I wish you well! Macca
  25. Thank you Charlie. I was, of course responding to Michelle but if others can benefit from it that's great. The problem with SAH is that there is no single answer that fits all. We all have to find our own answers, but other peoples answers can help you find them quicker than if we are all left to our own devices. I too suffered headaches, and lying down in a darkened, quiet room, lots of sleep and hydration eventually eased it for me, but it all takes one common denominator - and that is time. Brains need to re-wire themselves, blood is re-absorbed into the body, and it doesn't happen overnight. We are lucky to be here after doctors repair the initial damage and it is important, in my view, to give ourselves the best chance of a second chance at life, by not trying to get back to normal. or as near normal as possible, whatever that is (it's different for each and everyone of us) too soon. Our own individual attitudes to life, and the circumstances we are in, dictate our moods because of threats to the way we perceive the future. The way I look at it is, don't see it as a threat, see it as an opportunity to go and see the scenic route in life instead of always trying to go down the motorway (freeway or interstate if across the pond). You never know, you might just enjoy it. Take others in your life down that route with you too. As long as you can find something to pay your bills, anything extra is a bonus. Money isn't everything. Health and happiness with a family that loves you, is. That's just me. I came to accept that things were different but it probably took me twelve to eighteen months to fully realise it. I have come a long way, but I would be a liar if I said it was easy. It isn't. It is a long hard slog, but one can get through it with patience and perseverance. It was mentally, as well as physically tough. Now, I am happier than I ever was and enjoy my new life immensely. I think the key is as much about the way you think about things than what you actually do. Always look at the flip side and then make your decisions. Two sides to every story. Try and look at what you can do, not so much at what you can't do. It isn't a sign of weakness to change things around, it is a sign of strength. Weakness is in not changing, for that is what will bring you down, whereas changing will help you grow and to thrive. Best wishes, Macca
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