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Everything posted by Macca

  1. Well done Jess, a complete privilege to be a mod with you and the others. You are an inspirational character and clearly a fantastic Mum and human being. Hope you have had a fabulous day!
  2. Thank you all very much for your kind words. I really find it difficult to believe how long it has been since this awful event happened to me. The silver lining though is that I came into contact with all of you. From my point of view, I think you underestimate how much of a help you all are to me with the inspirational things you do, sometimes in the face of terrible adversity. I think this group is a kind of push me pull you type of thing where we all bounce and thrive off each other and long may it continue. Just for the record, my wife and I had a fabulous meal l
  3. https://web.behindthegray.net/topic/6862-sah-informing-the-dvla-uk-only/ Link to the 'Driving after SAH' topic for your information as it covers notification to DVLA. Also consider your insurance policy which may have different terms than the DVLA rules, you may need to notify them - check your terms and conditions. Hope this helps. Macca
  4. Well, I made it! Ten years to the day since my 'event' and I'm still here. It just shows it can be done! It is also eight years to the day that I married the lady that saved my life, my wife Sandra! It is hard to believe that all that time has passed. I am eternally grateful to my surgeon and his team. Well, the weather is fine, the sun is shining, it's a clear blue sky (not often you can say that in Salford!) and we're going for an Italian tonight. Here's to the next ten and thanks to everyone who has supported me through these last ten ye
  5. Ann your bond with your little one will be strengthening day by day. He obviously might not understand the finer details, but he understands for sure you were very ill and he realises he loves his Mom very very much. I'm sure he enjoys doing things for you and realising he is helping you to get better. Mentally, it is very lifting for him and for you and it's' almost an unwritten declaration and demonstration of love between you. It will stay with you both forever and your husband witnessing that will also be beneficial for him. You will come out a stronger family in the end.
  6. No time like the present Jean - even if you start one now you will see changes over time - they might not be a dramatic or as pronounced, but they'll be there for sure. Good luck! Well worth doing!
  7. Hello Ann, Sorry you had to go through this twice Ann, that really is unfortunate. I remember my surgeon telling me that over time coils can compact themselves under their own weight, but that 'it was as rare as hens teeth' was how he phrased it. So you really have been unlucky. The good news is that you survived. I would certainly go looking for answers, if only to understand what happened. On the positive side though - you survived. I've never heard of it actually happening before, but I knew it was a possibility from something I read once. Thank you for
  8. Hi Carolyn, Great question. I'll answer from my own experience and I'm sure others will add theirs. firstly 6.5 weeks is virtually nothing in recovery terms. Months and years is more the order of the day. What I did, and it was completely wrong, in my opinion, with hindsight, was to set myself a goal of getting back to normal. What's wrong with that, I hear you ask? Well, what was 'normal?' In my head, It was back to being the old me, where I was the day before I had the 'event.' But then, that was all I knew. I realised later that was never going to h
  9. Hi Carolyn, Remember fluid is in foods too, so it doesn't necessarily mean just water. Tea and coffee, fruit juice,milk etc is ok. There is also water in melons and cucumber, fruit etc etc. Just drink small amounts regularly throughout the day, as well as taking in foods that contain water. Time is the great healer in this, and everyone is different in this regard. Resting well is as important as exercising well, but get the advice of your own doctors before embarking on any exercise regime. Doing what you want to do, and what you need to do, are sometimes
  10. Hi there, Many congratulations on reaching this anniversary! Your logic is that "it's always there, isn't it?" Well so is the chance of getting knocked over by a bus every time you cross the road, or hit by lightning next time it thunders. Yes, it's there, but so are a hundred and one other risks. Don't let it dominate you! Live each moment to the full and enjoy it. You will have your down moments, of course you will, but try to have more up than down. As Subs says, it is very rare and progress is in front of you, not behind, so grab it with both hands.
  11. Hi Allejam, Not everything you experience will be down to SAH. If I were you I'd get to the dentist again, things might have changed since the last time but you need experts to diagnose and as you know - we can't do that for you because we are not medically qualified in any area. I'm not aware of anyone on this site who has experienced this - but why wait, or suffer - go and get it seen to by the people who really do know what they are doing, dental pain is awful and the sooner it is dealt with the better. (I've never heard of it before, but maybe someone el
  12. Keep your chin up Sallios. It can be frustrating waiting for checks and scans etc but I guess no-one foresaw a world-wide pandemic! Nice to hear from you! Look on the bright side - at least it sounds as though nothing has got worse! If the situation changes contact your docs asap or get down to the emergency department at hospital! best wishes, Macca.
  13. Glad I could help, thank you! It's what we are here for. Sit down and plan how you will explain your injury. Rehearse it if necessary. English is a great language for finding alternative ways of saying things. Good luck. Macca
  14. Hi Shell'ey, I just read your post with interest. I have spotted a couple of potential issues and I hope by pointing them out that I may help you. It is interesting that you, yourself are a rehab therapist. So here goes: 1) A brain injury is invisible, so only you can understand how it has changed you on the inside. So you have to keep communicating to others about how it has affected you. It doesn't all have to be negative - it can be "It did this to me but this is how I coped with it....." 2) Are you helping everyone else without looking at y
  15. Hi Veronica, Thank you for posting this answer. It is pure class, and is a fantastic response to a difficult problem. You show a lot of experience and understanding. It is also interesting Dramblys, for us to remember that carers too, have their own issues to deal with, and that SAH sufferers are not the sole keepers of pain and problems. The world isn't perfect and it is often a cruel and unforgiving place. Life can be a struggle for many of us, and it can be a difficult job to prevail. I think what matters is that we are all able to offer care and compa
  16. Hi Majella, One good thing about being in the 60 plus range is that we are good at adapting to change as we get older, perhaps because our lives are changing anyway. Life's experiences and maturity often mean we take change in a more philosophical way. Remember, as you move on, that resting well is as important as working well, so listen to your body, it will tell you when you have had enough. Remember too, that there is still much in life to enjoy and marvel at. If you want to ask questions just fire away, someone will answer you and let those
  17. Hi Michelle, Congratulations on reaching this milestone and I hope to continue to improve! Great to have you on board! Enjoy the day and just enjoy life!
  18. Hi Matthew, Fatigue is a common bugbear with most of us. Brain injuries are different from any other conditions because the brain is your body's control box! Nearly four years isn't that long in brain recovery times. Everyone is different and some take longer than others. I' m nearly ten years out and I still suffer with fatigue and i know I always will. The brain seems to take longer to repair than other parts of the body. You may well recover, but it will take a long time. What you need to do is adapt to how you are now. Resting well is as important as working well
  19. Hi, As Supermario says make sure you appeal within 28 day of the the date on the decision letter - not from when you receive it. Unless theere is something blatantly wrong, the DWP will usually back their own, original decision. So try and get your appeal letter prepared before it arrives so it is ready to send off straight away. You can always amend it slightly if there is something unexpected in your letter. Make sure your letter says I wish to appeal the decision of --/--/----. When the appeal date is due, make sure you attend. The decision will more likely go
  20. Hi Iola, Nice to hear from you again! It's hard to pull away from work, but what I would say to you is consider working differently. Can you become the traffic police officer - directing instead of doing, delegating and organising, instead of being the worker bee all the time! just try and do little things that ease the pressure and the stress. I don't know what you do, but usually there are things that can be changed or adapted. Well done for getting to seven years. It will be ten for me in September! Good luck, hope things are well with you a
  21. Hi Carolyn, When I was coiled, my pituitary gland was damaged. As a result some of my hormones and vitamins became deficient. I now have to have daily injections of a hormone to combat fatigue. It hasn't completely cured it but I am much better than I was. I am a rare case, I know, but if it can happen to me........... I am not for one minute saying this is the cause of your fatigue, because there could be a number of reasons, but what I would say is broach the subject with your medical team and get them to check it. At least that could be explored and eliminated. At
  22. Devastated by this news. My SAH was almost ten years ago. It was some time before I found out about this site and when I joined Win was one of the first people to greet me and she told me about singing and having a laugh. I didn't think much of it at first but then one day she said something very profound and it has stuck with me ever since. She told me there was always someone worse off than yourself, and rather than be miserable and look on the down side of life, I should look for new opportunities as the 'new you.' It didn't dawn on me until a couple of days later what she was
  23. Hi Mark, When you next go in for a check up, ask them to check your hormone levels. That feeling worse than you did when you went to bed is well known to me, and I was shown to be deficient in hormone levels and I now have replacements. I'm not saying that's it in your case, because you just might need time as your event was so recent, I'm just saying it's worth mentioning and having them checked. In my case it went on and on and on, and my levels were checked and hey presto, I'm on HRT for life now! (Remember that song? (Man I feel like a woman! Shania Twa
  24. Brenda, I think what we're all trying so hard to say is, "You'e not alone now, don't carry the load all by yourself, share it with us."
  25. Hi Brenda and welcome to BTG. Short term memory is one of the casualties of SAH. Your husband's brain will be trying to re-wire itself. From the great replies above, you will gather that it is quite normal or usual to have these problems. Longer term memory is less affected. Over time, it will get better to some extent - as did mine - but as Tina says it is still very early in recovery stages. Good things to be doing for him will be to make notes of anything he needs to remember, keep a diary, keep on repeating things until they become long term memories. Once you
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