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  1. Subarachnoid Haemorrhage/Stroke Discussion

    1. 23.6k
    2. Non-Aneurysm SAH or Perimesencephalic SAH

      This is the forum to post in, if you've experienced a SAH with no known cause.

    3. Subarachnoid Haemorrhage Polls

      This forum allows members to post a question on Subarachnoid Haemorrhage matters which should also include a Poll. All newly started Polls will be subject to Admin and Moderators approval before they appear on this forum.

    4. Stroke Discussion

      For all other types of stroke and childhood stroke

    5. Carers Support

      Discussion for carers of an SAH or stroke survivor.

    6. Untreated/Unruptured Cerebral Aneurysms

      Please post here if you're living with aneurysm(s) that haven't been treated or totally occluded.

    7. SAH/Stroke Anniversaries

      Please feel free to post details of your SAH/Stroke Anniversary here .

    8. Cerebral AVM's - Arteriovenous Malformations

      An abnormal connection between veins and arteries, usually congenital.

  2. General Discussion

    1. Advice & Tips/Healthy Living/Benefits

      Tell us what you've found useful as an aid to your recovery (such as relaxation techniques etc.) and discuss natural diet advice/healthy living tips. This is also the forum to post in, if you need or can offer advice on Benefits that can be claimed after a SAH/Stroke

    2. Introduce Yourself

      Tell us about yourself here and please feel free to include an account of your SAH/Stroke.

    3. Driving After SAH

      Sharing experiences of getting back to driving and useful suggestions and tips. 

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    Adam Mac
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    • Ilse, that's great news on all counts - remember to still take it easy when you can though.  I am so loving your attitude to life and your recovery - well done you!! xx
    • Well, did my first two days at work and .. I’m pretty much okay. Was well tired yesterday, but think that’s more because sunday’s Line of Duty’s cliffhanger left me a bit hyper and unable to sleep than due to work 😂    I work a bit slower than I used to (that speed was untenable however ... I was like the Duracell bunny on speed), but hectic mix of phone calls, huge open work space with colleagues dotted about here and there, the adoring public when they come to make a complaint, politicians badgering you, ... (it’s such a joy being a local civil servant 😜) ... so far, I’m dealing with it quite well. The 80% progressive return was approved, am off tomorrow to just laze about.    Had results back from last week’s MRI (neurologist really, really, really wanted  to be sure there wasn’t a hidden aneurysm, so had to psych myself up again to get into that damn machine... claustrophobia)  and everything is okay. It was definitely perimesencephalic. Only one more neurologist visit to go: mid august, so I’m legally allowed to drive again (by law at least a 6month ban in Belgium).     Already booked a holiday to the South of France beginning of September, so ... the countdown begins: getting vaccine, getting driving license back and then off to the mountains to take pics, drink Chartreuse and eat humongous amounts of excellent food 😂    
    • Hi Adam   A very warm welcome to BTG, so glad you found us. How very scary for you and your family not being able to be with you because of Covid ! I was told 6 months to a year for recovery from a ruptured aneurysm that was clipped. Totally unrealistic.    You are right, everyone is different in their recovery. Some great advice from Sarah and Sami. Rest lots and drink plenty of water. I also got very anxious and had panic attacks. My GP arranged for me to have counselling, it did help.   The fatigue is something is still struggle with nearly 14 years later. Listen to your body and pace yourself.  Sometimes i found i went one step forward to go two steps backwards if i pushed too hard to quickly.    Wishing you well with your recovery and we look forward to hearing more from you. Feel free to also join in the daily banter in the Green Room.   Take care Tina    
    • I got my second Moderna shot a couple of days ago. Getting a bit of brain fog, fatigue, and headaches--kind of what I was already experiencing due to the NASAH! The only new thing is my arm hurts. But other than these things, all of which are to be expected, not experiencing any problems. And very relieved to be fully vaccinated.
    • Hi Adam, and yes, a very warm welcome to the 'family'.   I can't imagine what going through this alone in hospital must have been like for you, or for your family not being able to be there with and for you either.   I agree with Sarah regarding the comment about yours "being a good one" - no-one can define a brain bleed as good in any way, shape or form!  It might not have been "serious" but a bleed is a bleed and it has a massive impact on the patient and those around them.   As for the 6 - 8 week recovery, a slightly unrealistic standard time frame given by medics who have never had the misfortune to suffer one.  It took me a year to stop needing to sleep during the day - like Sarah, mine was a ruptured aneurysm. I now know that I am "lucky" to have come through relatively unscathed, but when anyone told me at the time I was lucky, I wanted to take their heads off!!     The panic attacks and anxiety can be caused due to PTSD and it's worth getting counselling if you can - I did and it was a tremendous help.  I thought I was losing my mind and that mixed with the overwhelming feelings of guilt for what my family had gone through, didn't help.   Tiredness and fatigue are part and parcel of recovery and you have to listen to your body - it will tell you when to stop.  Plenty of fluids and resting / sleeping when you need to or can are the most important things right now.  Try to avoid stress (not easy during recovery, I know) as this will help with any head pain - along with the all important fluids - the brain needs to stay hydrated.   I say this to almost every "newbie" to BTG - it can be a long road to recovery, but take as many pit stops as you like a long the way - we are your pit crew and are here to help and listen. The only thing we can't do is give medical advice as none of us are qualified to do so.   Look forward to hearing more from you and accompanying you on your journey to recovery. Take care.
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