janevo

Hi Shelly, Well done for being back at work - I had a ruptured anni on the 14th June 2010 so we are at the same stage. I also have to go back in and have another coiled but I have not been told I will need an angiogram so can't help there but just wanted to say hi.

Hi Amelia, I had my follow up scan in liverpool on 20th Jan and got my results on 10th Feb - so not long to wait. Fingers crossed for you x

Welcome Fiona and well done for posting so soon. Having little information on discharge seems to be the norm but I have just received an invitation to a "road to recovery" course which is being run by the BH support group. It's on for 4 weeks and the neuro surgeon, psychologist and welfare officer are all taking part. I don't know whether there will be anything like this in your area - I will ask tomorrow night and let you know. Take care - Jan x

big hug to you karen. Know how you feel and can only send all my love to you. Look at the photo's of your gorgeous little girls - they would cheer anyone up and make you realise that you have a lot to live for and 3 of the best friends you could ever wish for right there with you. x

I have weakness in my left leg which is only noticeable when I am tired and have overdone things. I feel as if my left leg is dragging and have been asked on occasion if I've hurt my foot - it's only then I realise that I am dragging it.

Hi just to let you know that I phoned the surgeon this morning and am on the list for the op so hopefully I won't have to wait too long. Hubby has said we are going on a holiday before the op so it will take my mind of the wait. Don't know where we will end up but as long as it's warm it will be lovely. Once again - thanks for all your comments x

thanks - all your comments have helped me to come to my decision. I'll probably change my mind 10 times a day until I've signed on the dotted line but I know that getting it done is the right decision for me and my family. Love and thanks to you all x

thanks sally - great that you are all there - my family have even started asking me what you all say. fame at last eh haha

thanks for the quick replies - now that I've had a few hours to think about it and spoken to my family I am pretty sure I am going to opt for surgery. The consultant did give me 2 months to make the decision but I think I will be phoning him before then as don't think I could have it hanging over my head for that long.

thanks sarah, you said you had been thru coiling twice - was the second one your decision or a rupture.

thanks for the reply sami - He said if it bled then it's a 50/50 chance of surviving whereas the op is 3 in a 1000 of having complications like a stroke. I know the odds are in favour of the op but it's still scary to have to make the decision. The one thing I'm most worried about is putting my hubby and daughters thru any more trauma. I'm really lucky to have come thru the SAH as well as I have and although he has said that I will only be in for a few days at the most it would be interesting to hear if it has been the case for others.

Hi, I have just been for follow up with consultant. My 1st one after SAH in June last year and he has told me that out of the 3 anni's that I have left - 2 are of no concern because of the position of them and the other 1 they will coil if that is what I want. He has given me all the statistics and risks of either having the coiling done or not and I have to make a decision. I know that there are others on here who have been in this position and would love to hear of your experience and how you coped with it all.

So sorry to hear your news - If I could I would give you a big hug - be strong for your mum and take care x

HI, I had been in hospital and had my gall bladder removed on the friday. Was supposed to be a day case but felt unwell - hurt to breath and chest pain - so they kept me in overnight. They sent me out on saturday, I was still unwell but put it down to the operation. On the monday afternoon went down to stay with my daughter - sent hubby out fishing and I was going to relax and read until she came home from work. I remember going to the loo but nothing after that - apparently I collapsed and she found me later when she finished work at 9.30pm - don't know how long I had been there - a couple of hours I think. Still not sure whether the SAH happened whilst i was in hospital or whether it was when I went the loo - but apart from the obvious stress of the operation I was quite laid back.

Hi, Mine was on June 14th so am a few days behind you and I am feeling the same - I am so emotional - cry at the drop of a hat and if anyone asks how i am i fill up. Most of the time i tell everyone i'm doing great (which i am physically) but don't want to go into the emotional side as don't think they'll understand and i'm not used to talking about my feelings. It helps knowing that this is normal and i would have been lost without this site.

Hi - my sah was in june and was coiled but I still have a small untreated one. Most days i put it out of my head and get on with living but some days I find it hard to forget and the fear takes over. As has been said on here - I was told that a lot of people walk round unaware that they have one - whereas at least we are going to be monitored. I've an appointment 2morrow to see the Neuro surgeon about mine - don't know what i'm hoping for and don't know how I'll feel if I have to go in for another op. I'll let you know after tomorrow.

Hi Rhiann, I had my SAH on 14th June and was coiled on the 15th, so we are at the same stage in our recovery. Don't know how you have coped with 4 children - you deserve a medal. I have 4 grandsons aged 8 months to 12 years and love seeing them but do get stressed after a while and look forward to the peace and quiet again. Like you, I find the tiredness is really hard to cope with but I am managing to do a little more each week. At first I went all out on good days and then had a few days when I felt really bad. Fortunately, reading this site helped me to realise that it was normal and I've worried less but it's still depressed me. I've got an app. tomorrow with my surgeon (the 1st follow up) - it wasn't supposed to be till Feb but they have brought it forward so I'm a bit anxious as to why but keep telling myself that it's best to get it over with. I think the first thing they should teach us after an anni is patience, cause we sure need a lot haha. Take care and rest loads. jan x

Hi, sounds like i'm in the same boat as your husband. I'm 5 months on but just reading your post has made me cry cause i can see myself in it. My husband must feel the same as you and that really hurts me but i can't help it. I've always been the one who took charge and after about a month of my SAH i was expected to take charge again. I'm still now having to sort stuff out from then cause he hasn't bothered - i wake up anxious every morning and don't know what to do to sort myself out. Am waiting for an app with the physc but don't know when that will be.

Does anyone know of any benefits that can be claimed if you are self employed - as i am. I haven't been able to carry on with my business since June - Hubby retired end of may so we only have his pension coming in now. Like you Gill, I have my licence but can not manage to work yet.

My brothers and sisters have been advised to be checked as mum also had a SAH but my daughters have been told they should be ok as they have not got two 1st line relatives.

Enjoy tomorrow with your mum - I have looked after my mum since her SAH 3years ago and I took her out on my own last week for the 1st time since my SAH. It was a bit like the blind leading the blind but we managed (haha). I was fit for nothing for the next 2 days but it was worth it to feel normal for a few hours. Have fun and a good rest when you get home.

Hi Lorraine, My SAH was in June and I flew to Turkey on 23rd August - didn't set any alarms off and although I was worried about the pressure during take off and landing I didn't have any adverse effects on the flight. Make sure you get plenty of rest wherever you are going and enjoy yourself. Jan x

Welcome Grace. Great to hear how you are after two ops as I am waiting to find out if I am going back in December for another coiling and am terrified. It's only when you read stories like yours that you realise that there is light at the end of the tunnel.

Thanks for the advice karen, I've got a V pillow so will dig it out.

thanks mace. I will mention it 2morrow - hope you get your app soon as don't know about you but it's only now that I'm up to asking questions. My hubby won't talk about what happened, he thinks that I'm back to normal now and should get on with looking after him and my daughter is still having flashbacks as she was the one who found me so I can't talk to her as she gets upset. I know I should be happy to be here but I still want to know what happened in those few weeks. Sorry to moan - having a blue day!