FionaH

Well done Win! You really are a force of nature all on your own

I am so sorry it has come to this Zoe. I ave read your past posts and can see how long and hard you have fought to keep your relationship going. You have to look after your children and yourself as well as Richard and as others have said no one has the right to judge you until they have walked a mile in your shoes. x

Good luck I was scanned 4 weeks post clip when I was readmitted with severe pain (a little water on the brain it turned out). I am being scanned again in November and then at 5 years. It seems that the attitude is clipping carries more risk at the time but is seen as needing no monitoring to speak of afterwards unlike coiling?

Hello and welcome to BTG I am so sorry you were treated so badly by the hospital. My husband put a complaint in because when I was taken in to A&E I was left alone for 3 hours unable to stand light, vomitting and crying in constant pain. As soon as the doctor saw me he realised it was something serious and got me scanned and we went from there. Anyway I'm telling you because putting an official complaint in took a couple of months to get a response but when they did the Chief Exec wrote a long letter and apologised and told me all the changes they were making as a result. If you feel up to it talk to your local patients liaison panel so they can help you. I am sorry people are also being so unsympathetic. I am nearly 6 months post SAH now and just finally starting to get my life back, it is hard for others to understand and some don't try x

Phew! Great news Win x

Karen I am in a very confused place right now but everything you wrote rang very true with me. Thank you x

Hello and welcome to BTG I am sure you will find lots of support and understanding here :redface: I had my SAH earlier this year, I'm 31 and felt a little of what you describe. Although I can't imagine a much more physical job than working on a farm I was someone who walked miles and miles every week, it was my bit of 'me time' in a hectic life and right now I don't even have that. Everyone seems to experience and deal with their SAH in different ways but you aren't alone here x

I know sometimes these weights can't be avoided while tests are checked and double checked but it doesn't do much for our blood pressure or stress levels does it? It is one conversation of many they have in a day for them and a big deal to us! It sounds to me like they have wanted to be extra cautious and go over your results very carefully and are happy now that all is OK?

Headway sent me a booklet called 'My Mum Bakes The Best Cakes'. There is a 'My Dad...' one too but I can't remember what it's called. Anyway they seem very helpful for explaining the longer term effects of a brain injury to younger children. They might be worth a look? x

Most of my friends have been amazing. They have looked after me, looked out for me, took me places, made me laugh and told me I can carry off no hair and a huge scar no problem. A couple have been equally phenomenal in their self centredness, they have managed to make it all about them. One spent my first get together with friends after I got out of hospital in a different room telling a another friend for 4 hours how stressful she found it all. It was the first time I'd seen her. Another told my 3 year old that if she didn't stop making so much noise I'd wish I had died to get away from her. She is 3, did I mention that? 3! I wonder if he's figured out why I haven't spoken to him again.... Still I have found that in the grand scheme of things that the relationships that really matter to me are much stronger now and as for the rest, stuff 'em. Life is really too short! I love the idea of leaflets, any written information to take home from hospital would be fabulous. It is really hard to explain what we have gone through to others as it is, even harder when we leave hospital not fully understanding it ourselves!

Whilst trying to have a positive outlook is always a good attitude Win it's not always possible sadly. Minan it sounds like you've had a lot of difficult relationship stuff to deal with that would be difficult even without an SAH. Caregiver burnout is a very real thing. I have felt it myself when looking after others in the past and can see too the strain it is for my husband sometimes looking after me. I don't know if there has been much discussion on the topic before but hope others will feel able to give their experiences.

Hi Minan:-D Welcome to BTG. Looking forward to chatting

Welcome to BTG I am amazed you were back at work so quickly. I'm 17 weeks of so post SAH (I was clipped too) and in no state to return yet, I didn't come out of HDU for 2 weeks! You sound incredibly strong and motivated

Hi Kate Welcome to BTG. I had my SAH 3 weeks after you It sounds like you had a tough time of it getting a diagnosis We're all different and experience different after effects and recovery times I think but we all understand you:-D

I am actually finding I am much less emotional post SAH. I have got tearful a handful of times since coming out of February and if anything feel a little detached from my feelings right now. I'm not depressed at all although it is very difficult at times and I am dealing with an ongoing medical problem I've had since birth too. I wonder if my reaction is a way of protecting myself and I am dealing with all that's happened one step at a time. I guess our brains all worked differently before our SAH's, our SAH's were in different places and so affect us in different ways. There is no right or wrong:-D