Spiderwebber Posted June 14, 2018 Posted June 14, 2018 Hi. Its 18 months since my life was turned upside doen. I had a SAH due to an aneurysm rupture. The resulting craniotomy to clip the pesky artery has left me with homonymous hemianopia on the left side. Im not allowed to drive anymore, but i have become much fitter, completing a few half marathons and the London marathon this year with my partner running as my guide. However, i still get low, frustrated and angry sometimes. I miss my old life.
ClareM Posted June 14, 2018 Posted June 14, 2018 Hi Welcome to BTG, sorry I can’t make you feel any less low but hope you find the site useful. I think it is normal to miss our old lives, a Sah is so sudden it never gives you a chance to adjust. People always say be grateful you are still alive but that doesn’t take away the yearning to be back as we were. Sounds lke you are doing really well with your running! It must be great to have such a supportive partner. I run too but not marathon distance! Clare xx
Daffodil Posted June 14, 2018 Posted June 14, 2018 Well done on the marathon, that’s an amazing feat and especially post SAH and I hope you enjoyed it. Do you talk to anyone about how you feel? It sounds like your partner is very supportive but sometimes when things change life as we knew it so suddenly and dramatically then it’s difficult to adjust without resentment and frustration and anger and at the same time you find yourself with a sense of grieve for the life you had. I do recommend getting some counselling, it helped me adjust to some of my life changes. Also try writing it down, that also helps you get some of the thoughts out. I know it probably feels like a lifetime but 18months is still early and there will Be changes and progress I hope for you as you continue to adapt and adjust but the feelings I thing are normal but don’t let them fester , get some support to work it through. And keep running!
Winb143 Posted June 16, 2018 Posted June 16, 2018 Hi Jase, My old life was work get a few bottles of wine on the way home, and I am surprised I had an SAH lol So I do not miss my old life apart from not being able to walk that far nowdays. So if you see an old dear in Sainsbury's being pushed by her hubby ..Yep it is me especially if the air is blue lol xxxx Be well and thank your lucky stars you can spend time with Partner xxxx Without my Hubby I would be lost. So pleased you made it xxxx Welcome to BTG ….The Survivors club. There is a life after a bleed. Well done on being able to run xxxxx
Chris G Posted June 19, 2018 Posted June 19, 2018 Another runner here, but not marathons. Hang in there! The new you is every bit as special as the old you. Chris
Tina Posted June 19, 2018 Posted June 19, 2018 Hi Jase a very warm welcome to BTG. Some great posts above from Clare, Daff, Win & Chris. At 18 months i felt very much like you do now. It does get better, just takes time to adjust to such a life changing event. There will still be good days and bad days along the way, but you survived and sounds like you are doing really well. Be kind to yourself and be proud of how far you have come and all you have achieved. Take care and let us know how you are doing. Tina xx
Spiderwebber Posted June 21, 2018 Author Posted June 21, 2018 Thanks all for your lovely replies. It really is encouraging. Im terrible at replying in a timely manner ? if only id ticked the box below to notify me. I blame the brain surgery. ?
Winb143 Posted June 21, 2018 Posted June 21, 2018 Good excuse Jase alias Spider ..I'll call you Jase as I don't like spiders lol ..Brrrr just shuddered lol Regards Win xx
Spiderwebber Posted June 21, 2018 Author Posted June 21, 2018 Is there a topic open for SAH caused by aneurysms. Would be nice to get another perspective.
ClareM Posted June 21, 2018 Posted June 21, 2018 Hi Spider if if you take a look at the forum list the first one listed ; Subarachnoid Haemorrage Discussion, is open for all bleeds including those caused by aneurysms.
Kay Posted June 22, 2018 Posted June 22, 2018 Absolutely amazing that you managed to do the London Marathon so soon after a SAH, that is hugely positive to have achieved that. It should help to give you real belief in yourself, I'm sure you can now achieve anything you put your mind to.
Spiderwebber Posted June 22, 2018 Author Posted June 22, 2018 Thankyou Kay. I’d like to think so. I’m really proud of my new found running skills. Just need to get a grip of myself.
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