ninja Posted March 14, 2009 Share Posted March 14, 2009 Hi All Just an update on my recoiling. A month ago we were told I was one of five waiting now I'm told I'm one of fifteen. Apparently the neuro radiologist is conferring with the main man whoever he is as they have to get the theatre ready to do the coiling and they have to do the urgent cases first. I really can't see how they can estimate the urgent cases as we all know aneurysms strike without warning. It is now just over six months since I was told I needed to be recoiled and that it was dangerous to leave. I was also told not to exert myself, not to bend, not to carry anything heavy etc., then my wife rung some time after and was told I should live my life as normal!!! Obviously they know what they are doing but theres an obvious lack of consideration to the patient. I really feel sorry for the secretary as she has to do all the explaining but is also very sympathetic. Watch this space!!! Cheers John Quote Link to comment Share on other sites More sharing options...
Tina Posted March 14, 2009 Share Posted March 14, 2009 Hi John I do feel for you....must be awful waiting....i really hope they get their act together for you soon, so you can be recoiled and get on with your life without worrying. Take care Love Tina xx Quote Link to comment Share on other sites More sharing options...
Vivien Posted March 14, 2009 Share Posted March 14, 2009 Sorry to hear that you are still waiting, it must be nerve racking. My coils have compacted slightly, so I will have to have more scans and if they compact anymore I will have to be recoiled. it has sent me into a bit of a decline when I first had the SAH I didn't really know what was going on, now I do and am scared!! Hope this is resolved for you soon Vivien x Quote Link to comment Share on other sites More sharing options...
perrycornish Posted March 14, 2009 Share Posted March 14, 2009 John, I really do feel for you, it must be so scary and demoralising to have to wait with no immediate hope of being told when you will get your recoil My thoughts are with you, I trust that you will hear soon and that in the mean time they will make up their mighty minds Vivien, it must be awful to know what can happen. Just hang on in there knowing that the powers that be truly will act fast if you are more at risk than you should be. It's easy for me to say ( I don't need a recoil, I don;'t think!) but try not to be scared come on here and shout about it!! Quote Link to comment Share on other sites More sharing options...
myratas Posted March 14, 2009 Share Posted March 14, 2009 Dear John I am sorry for you, it's so unfair to be treated like this, no one deserves to be treated like that. I hope you get the answers and actions that are needed quickly. Take care. Myra xx Quote Link to comment Share on other sites More sharing options...
jess Posted March 15, 2009 Share Posted March 15, 2009 John so sorry you are still waiting hope they get you sorted out soon. Jess.xxx Quote Link to comment Share on other sites More sharing options...
Skippy Posted March 15, 2009 Share Posted March 15, 2009 Hey John It all falls back to that post code lottery doesn't it!! Hope it all gets sorted soon hun. I'd raise my concerns with your specialist or GP and see if it helps. Fingers crossed. Love Sami xxx Quote Link to comment Share on other sites More sharing options...
tennissmithy Posted March 15, 2009 Share Posted March 15, 2009 Hi John, You really aren't having much luck are you! I agree with Sami about the postcode lottery. Hope you get sorted soon. Love and hugs Laura Quote Link to comment Share on other sites More sharing options...
ninja Posted March 18, 2009 Author Share Posted March 18, 2009 Hi All My wife Babs rang again today and told the same thing that the neuroradiologist is in consultation with his managers to get a room ready for fifteen that need recoiling. Its becoming a bit of a farce now and I have in fact gone to my GP who is also amazed and is arranging for me to have a full neurological examination so once again I say "Watch this Space" Cheers John Quote Link to comment Share on other sites More sharing options...
michelle C Posted March 18, 2009 Share Posted March 18, 2009 Hi John How awful for you its nerve racking enough awaiting recoiling, i know i was the same, it made me very nervous which also adds to the pains and fatigue etc. I had my SAH nov 07 then angio in march then recoiled in sept 08, mine was delayed due to staffing and then their holidays. I think you did the right thing going to your GP John i seem to have got more answers that way, there are still some she cannot answer but she has got things moving reguarding my last MRI and splint for my leg. It shouldnt really be up to us should it but what else can we do?! Good luck John hoping you get some answers soon, sending love and hugs. Michellexxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx Quote Link to comment Share on other sites More sharing options...
Tina Posted March 19, 2009 Share Posted March 19, 2009 Hi John....thinking of you.....must be very stressful for you waiting....i really hope your GP can help sort things out. Take care Love Tina xx Quote Link to comment Share on other sites More sharing options...
MUTTI Posted March 19, 2009 Share Posted March 19, 2009 JOHN SORRY YOU ARE STILL WAITING, BUT DON'T GIVE UP CALL THEM OFTEN. AS JIM ALWAYS SAYS THE SQUEEKY WHEEL GETS THE GREASE. TAKE CARE EVELYN Quote Link to comment Share on other sites More sharing options...
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