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Neuropsychologist.


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Hi all

I have a neuropsychologists appointment tomorrow and have been getting abit nervous as the days go by i don't know what to expect and to put more pressure on me my occupational therapist is awaiting the outcome of whatever happens.

Sorry i know its not good for any of us to worry putting bp up etc its taken me all this time to post this...i didnt realise how much i was stressing about it until i mentioned it to my sister this afternoon.

I was thinking perhaps its something to do with the absences/fits i have been having. or maybe not.... anyone know what happens at these appointments???

Help and advice needed please:confused::confused::confused:

Michelle x

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Hi Michelle,

It seems to be a postcode lottery as to the services that we're given post SAH .... but I certainly wasn't offered anything post SAH .... Wish that I had been!

Make the most of it and don't worry or get stressed.....the more help, the better! .... let me know how you get on .....xx

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Thanks Karen,

I will let you know how i get on Neils coming with me thank goodness i don't know what i would do with out him hes my rock!!

Saturday i have a full MRI scan this must be my 8th one in nearly two years on my head...neck and spine 40 minutes of banging and clanging YAK ... why do all appointments come at once. xxxxxxxxxxxxmichelle xxxxxxxxxxx

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michelle seeing the neuropsyscologist would i think been very helpfull to you and i beleive he will be able to lift a great deal off your shoulders he is also related to post traumatic stress disorder as well please dont worry unnessasarlyplease i thnk you will be very surprised and also very helpfull in your recover take care sweetheart

the appointments comes all together cause your smashing

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Michelle, don't you stress about it, he/she will simply chat and ask questions of you, questions about which things are difficult for you etc etc, nothing that will seem in the least peculiar. Just tell it exactly like it is and never forget he/she is on your side and will help your team to treat you in the most effective way:-D

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Hope the visit to the neurospyschologist goes well (did I spell that right)?

My GP has just referred me back to see the neurologist for a counselling referral, my wife has been nagging me for ages. It would seem that I'm having difficulty getting to know the new me!!!!

Seriously though, I'm sure it will be fine, he's there to help you, I hope it goes well and helps to solve some of the issues you are still having.

Best Wishes

Adam

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Morning,

Thanks all for your replies.

I had a bit of a rough night so totally shattered this morning.

Thanks Paul you made me smile about all the appointments and Adam its a bit of a spelling i always mix it up. I have days when i don't know the 'new me' and put a bit of a mask on so no-one is worrying, i know now thats wrong!!!! well off at 10.00 for 11.00 appointment.

Michelle C xxxxxxxxxxxxxxxxxxxxxxxxxxxxx

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Hi Michelle

Not sure if my reply too late. I saw a neurpsychologist for 6 months straight after my SAH, as an outpatient at the rehab hospital. The neuropsch worked closely with my OT. Seeing the neuropsch helped me tremendously. Her role was to carry out an awful lot of tests on all aspects of my memory, cognition etc etc. She was also someone I could speak to about things and at the time I was really distressed about my taste disorder (food tasted very sewagey) and she did cognitive behavioural therapy to help me come to terms with the taste problem.

At the end of the 6 months my nueropsch compiled a detailed report on how I was and my cognitive abilities, which was sent to the OT, my GP etc.

Seeing the neuropsc gave me a lot of answers to things I'd noticed - I have difficulty recognising people (my eyes are fine, it's my brain not working properly for that) and she was able to explain what was wrong and she also gave me tips to get round things.

I think everyone should see a neuropscylogist after a SAH. Their specialism isn't really counselling, more analysing cognitive abilities. Look forward to hear how you get on.

Best

Anne x

Hope you get on well.

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Hi All,

Thanks your all your kind posts.

Well the appointment went ok i think, she was quite nice and she made me feel safe and relaxed, she asked what my most worries were, which i told her about the pain in my arms, hands etc. Neil added that i didnt want my arms 'going' the same way as my leg...then ono my memory, concentration etc.

I told her i was totally shattered and having a conversation like this is how i am...she did a lot of note taking....as a result of concentration and tiredness i started as i do stuttering, forgetting what she had asked me and i couldnt remember what i was talking about at one point and also my problem of not finding the correct word i wanted. Like Neil says at least she saw you as you are.

After a very long 1 hour appoinment she did say that with everything and all the test i have going on at the moment she thought it was best to leave it until i have seen my neurologist and had the results of all other tests, so i was happy with that and spent the rest of the afternoon flat out, and totally shattered.

Hey one other thing.......she knew of our website...I mentioned it and she was so pleased she said she knew of the forum and complimented all the hard you all do and the support it gives to all of us here:-D:-D:-D:-D.

Love luck and laughter

Michellexxxxxxxxxxxxxxxxxxxxxxxxx

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  • 6 months later...

Hi,

Well here is a small update.

I have to have another MRI yes another one this month on my neck to check if my syrinx (syrinomyelia) has expanded which could be causing the pain in my neck legs and arms apparentley. The only thing the neurophyc confirmed was foot drop but as i said i already knew that one! and that was after muscle/nerve testing (painfully). I am still having the absences/seizures mainly at night but i did have one just before going into my appointment to see him:roll: apparently you can have them when you are totally relaxed as it can be a sort of trigger as well. Thats it up to now.

Love luck and laughter

Michelle c

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Hi Michelle,

just checked my list of upcoming appointments and low and behold I have one with a Clinical Neuropsychologist for next Friday. Now I have read your visit I will have to compare notes. I am to be the lucky recipient of a neuropsychological review.:confused:

Does sound posh.:wink:

I have had to wait in the system for an appointment, but I am not planning on going anywhere in a hurry.

Glad it went well Michelle, take care and good luck with the scan.:wink:

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  • 4 weeks later...

Hi all

Thanks for all the good wishes not been around much due to head/eye pain etc.

MRI done not seen any results yet but they did say it takes a least 6 weeks!!

Anyhow i now have an appointment on tuesday to a Mr Grimwauld (probably spelt that wrong hee hee) he sorts unexplained mysteries and thats what i seem to have become??!! neurosciences i believe. well thats it for now i have had a bit of a tough day pain wise so fingers crossed i maybe able to catch up with all the posts i have missed tomorrow, so bye for now and take care

Love luck and laughter

Michelle c xxxxxxxx

ps if anyone has any info on neurosciences please let me know.

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hiya michelle , i saw a neurophysiologist after my sah at the walton in liverpool , and from my personal experience i thought it helped alot they understood what part of your brain does what so helped me understand why i was thinking and doing certain things and they can help you with coping techniques , after my sah i became very angry and very scared but after seeing the neurophyc for a couple of months she helped me a great deal . i hope it works out for you how many sessions have you been booked in for ??? lynz .....

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