Louise

As far as I know I wasnt told but honistly dont remember or know.

I had headachs on & off for a while before the SAH (can't remember now how long it was), got my eyes tested everything was ok, I even got them to check the back twice (for some reason). I didnt smoke but used to put it down to the smokey atmosphere in the pub, didnt really drink all that much in the year leading up to it either. Had a lot of stress in my life at the time a lot of different things going on Ronnie was made redundant from Royal Mail, his brother & his wife spit his brother blamed us (easiest way to explain, wasnt true he couldnt see it though still don't see him), they found my Dad had a mental health problem (big stress) then the normal day to day stessy things. It happened 3 months to the day after turning 40, life changed or what!!! Louise.[/b]

At the start of all this I would sleep 18 hours a day if I'd been alloud to..wasnt. I was on Sodium Valporate of seizures so that was the reason, now my sleep pattern varies depending on what's going on I usually sleep righ away on getting to bed & once I've had 2/3 hours I wake & sometimes that's me till 5/5.30 then I sleep right though I dont use an alarm most of the time I wake around 7.30. Dont remember my dreams but I know that I do have vivid one's, they were very, very vivid in hospital & I still remember it clearly... I only sleep in the afternoon when there is something happening in the evening, otherwise its only when I'm not feeling well, I had to get myself out the habbit of afternoon naps it was the only way to sleep during the night, I was convinced that I needed a nap in the afternoon but once I broke that it was fine, took a while to brake it though I just hung in there. Louise.

That has been the biggest battle I have had to cope with all this time. But it has got better there are lots of great/good days followed by not so good days. Louise.

Yes I've been told 'they see no reason why I can't fly' but me I'm not so sure :? I think what I may do sometime is fly to London for a weekend see a show meet up with my cousin & it I had to get a train home, reason for going to a show & meeting up with my cousin it would give me something to look forward to balance out the thought of flying..... Louise.

My memory has been very affected short term to about 10years anything after that I do although fuzzy, I used to remember things from way back it was like watching a TV really weird, I used to look at someone but see them as they were when I first meet them very strange. This only happened in the first year or so. Also I cant remember things, when you recall an event you can picture it I dont have memories like that. I was told to do word searches write things down, I used to keep a diary of things that's good because now I can look back on it & see just how far I have come along. Louise

Hi How true...... Louise.x

Hi Hannah That is really good news, I've just asked my husband & he says that I was in hospital then the re-hab for about 14 weeks I find that the recovery is still on going. Take care Louise.xx

Hello Marian Hi Hannah Marian welcome to the site yes Hannah has told us about you nice for you to be able to see for yourself a bit. I know what a 'brain power' just reading can be so bye just now & hear from you again soon. Take care Louise.xx

Hi Ursula, Welcome to the site. I too had a seizure when I had the SAH I was on sodiumvalporate for about a year & a half but I was lucky that I didnt have anymore in that respect I was lucky. Hope to hear from you again soon. Take care Louise.

Huge Hug on its way for you Karen.... xx

Big hug coming down the line from me too Sami...... 5 months hey don’t be so tuff on yourself Sami Yeh I've done a lot of crying through just sheer dam frustration, at how I cant do what I used to, how it gets me down, how I want to do more to help Ronnie & I feel guilty that I cant, & he tells me that it doesn’t matter & he’s cool about it & I wonder is he… Yeh it takes a hell of a lot of time those feelings don’t happen as often now its just the waiting on time passing that’s the challenge they say patience is a virtue how true is that….. Take care Louise.xx

Hey Sami Why wait till next week!! if its reducing you to tears!!! Heck I'd get that if I went to Alton Towers, my thinking is that the Surgeons are brilliant & I applaud them (dont know if thats the right word) mines saved my life not once but twice, but I think unless you've been through it how can they quote a time scale or say that you can go on the biggest ride at Alton Towers/Blackpool maybe its just my way of thinking, or maybe its as I found that their time scales for me were way out. See if you can call the hospital ours has a nurse you can have a chat with sometimes just having a chat to someone that in qualified helps no end believe me. Take care Louise.xxx

Hi there I'm kind of like Karen I'm not fit enough to work now, but I think when your ready you'll know it we are all different we all have had different sorts of SAH's the hospital told me 4 months but I think they just give an estimate they dont actually know themselves I dont think. you know just now your not ready so then you'll know when you are I think we all progress at out own pace I wouldnt worry about it at all its what suits you that counts. Take care, keep warm its freezing today. Louise.xx

Hi there First, I wasn't a great singer but since the SAH cant hold any tune Aw!!! :? The sleep pattern thing is a thing, I find when I have something on my mind its worse. Try not to sleep during the day which is hard if you've not been sleeping during the night but I try to nod rather than sleep/nap in the afternoon for me that helped. Hope you soon have sweet dreams. Louise.xx

Hi there I dont really remember much about it except that I got myself all worked up & it was just a chat about all that had happened & what the next step would be which for me was an angio. So dont get yourself worked up about it I learned that one the hard way. Hope your well today. Louise.

Hi John Oh that's such good new so pleased to hear it. And those are the kind of friends you can do without in my book, yes weathers a lot better here too so I'm feeling a bit better today than yesterday. Take care and again great news.... Louise.

Hi there Blowing a gale here too. Glad your visit with the consultant went well yesterday the bawling in the consultant's off was mortifiying to you but more than likley quite normal for them I think its releif that does it... Ah an access device I used to get annoyed at my pumps on the head the tube but hey if it works pumps 'N' all its fine by me... Isn't it a good feeling when you achive something like that peeling spuds its the small achivements that got to me, things people take for granted I had to learn all over again. Keep warm & take care Louise.x

Hi Yes that is really good news. Take care Louise.xx

Hey Sarah I remember Germany also as being soooo clean & efficient. I know what you mean about making decisions I even toil now in the Supermarket with things I was never as bad as I am now. Sami, Its ok I know my lifes not boring it be good to be able to do something though but I have gained so much since this happened to me. bye just now Louise.xx

Hi guys God my life's so boring. But couldn't handle it any other way now so hey so what. Sarah, that sounds really interesting work you do, we used to go over to Germany on holiday Ronnie's brother was in the forces (Army) If I remember Germany is lovely very clean. Take care Louise.x

Hi Tracey Warm welcome to the site your not alone in feeling like a party pooper I feel like that often. look forward to hearing from you Take care Louise.xx

Hey there Its something I've always wondered about, I too was told not to fly till I'd seen my consultant, they said they didnt see any reason not to. My thing is my tube reacts to the pressure of the weather how's it going to be way - up - there :? We concidered a flight to London & if I didnt want to fly back we could either get the train or hire a car, needless to say we havent done it yet.. Louise.x

Hi Hannah No problem & if you've any other questions just ask me. It did surprise me that you were able to sit in on the physio sessions we didnt have that at all. I showed Ronnie my reply he said I'd mentioned it all very well. Karen, yes that's why I was taken to the Supermarket with the OT, though I have to say I was far better then than now, hope you learn a few tips about it all & the appointment's not to long away. Yeh Scott's right try fast tracking through Headway.. Bye just now Louise.xx

Hi Hannah I didn’t know that there were a few different kinds I can only talk about 1. Yes its physio OT physiologist mainly I had a time table kind of like classes at school to be honest the days passed fairly quickly because of this if I remember. I had to make a cup of coffee or it could be tea what ever is your thing, the OT took me to the supermarket & we bought some things to make a lunch. Speech Therapy: Just what it is. When I got there this girl was there her Dad used to come in every night from work to see her, he used to come around & speak with other visitors he was a Lawyer & now he’s actually our Lawyer because when my Dad passed away & I needed legal advice who better someone that knew & understood me, as who I now am. Emily is still there in the Re-hab hospital, she’s been there a long time now. Physio: Well its what you think, I thought it was pretty tough but without it my limp would be far worse & the movement that wasn’t there in my right hand is fully back although both are bad when I’m tired but that’s maybe just me. Occupational Therapy OT: My first meeting with her to me was strange I had to dress in front of her, but then she could asses how I was doing I understand that now but then wow!!! I had to brush my teeth, I held the toothbrush like a child holds a spoon & I had no idea what you did with it, she motioned teeth ah now I remember I though. I was given picture cards of Concorde landing, taking off, in flight & taking I had to put them into order – it was way wrong…… I was given a ball with the shapes out of it I used to look after my friends little boy who I used to do the same thing with, I thought “oh please don’t insult my intelligence†the shock to me came when I couldn’t fit the shapes into the ball I couldn’t understand why my brain couldn’t see that there was a problem I thought I hadn’t changed at all…so….. Physiologist: I saw someone every day I was there we just chatted I don’t remember what we talked about, what had happened to me they assessed me a lot I think. None of it made much sense to me if I remember I thought it all so silly but now I am so glad that I went there, I got out at the weekends, I used to call Ronnie my jailer when he took me back on the Sunday night, if I hadn’t went there I wouldn’t be able to do half the things I do or function in the way I do, it was the OT that got me the place at college too. So all in all I am pleased that I went to the Re-hab hospital although I know at the time I didn’t want to go & Ronnie & my Dad had a terrible time with me, because although they explained it over & over again I thought that they didn’t want me I thought that they didn’t love me anymore that was very tough on all of us but I’m glad they were strong & didn’t weaken because now I am so grateful…. I hope that this is ok, if you want to ask anything you only have to ask. Take care Louise.xxx