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Alison2015

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Alison2015 last won the day on September 10 2015

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About Alison2015

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  • Birthday 26/03/1975

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    Burlington, Canada

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  1. Hi Patc I'm in Canada as well. Sounds like you and I both had the same post-care. I saw my neurologist once post-bleed with the MRI results. All was good and he said this will most likely never happen to you again. I just had my 5 year anniversary on March 28, 2020 and all is good I too get the feeling in my head. It feels like water is pouring slowly over the top of my head. It doesn't hurt, doesn't cause me any concern but it is a weird feeling that never happened prior to my brain hemorrhage. Alison
  2. Thank you for all your nice comments and well wishes! I now consider myself not only a survivor but my head is now a barometer. My head throbs when I'm stressed or feeling anxiety ... about anything - life, work, etc. I swear I can feel the exact vein pulse that bled 4 years ago, when I'm feeling tension. It reminds me to stop, breathe and relax. I can't stand the wind, it makes my ears hurt and feel full for hours. I wear a hat when I go walking. My eyesight has changed. I've always had glasses but now my eyes are worse, new script each year a
  3. Hi everyone, Today marks my 4 year NASAH anniversary! March 28, 2015, just two days after my 40th birthday, I experienced 'the headache'. I knew something was wrong within minutes and had my first ambulance ride to our local hospital. They thought I had an aneurysm so they rushed me to the trauma hospital the next city over. A few hours later a neurologist told me I had blood on the brain. He never used the term SAH, NASAH or stroke, just blood on the brain. When I was discharged days later, I asked, what happened to me? What is this called so I know my medical history
  4. Hi Clare, I too suffered a NASAH (almost 1 year ago). I have noticed lately as well the impact the wind has on my head. Just last week we had lots of wind (in Toronto, Canada) and I had terrible temple pain each day. When the wind died down so did my pain. I wore a hat to keep the wind out of my ears. Maybe this is our new normal? If you feel worried about it, it's always worth a trip to your physician. I wanted you to know you're not alone. Take care, Alison
  5. Hi Debbie, I checked the name of the nose spray, it's Nasonex (50mcg).
  6. Hi Debbie, I actually kept the bag of drugs I was on at the time of my bleed. It reminds me what I can no longer take. I had really bad flu bug, sinus and ear infections at the time so I was on lots of stuff. The label has a generic drug name so I will google the name and find out the brand name. I will get back to you on that. My neuro doctor said nose sprays can put strain on veins and arteries. I'm not allowed to even take sprays for my seasonal allergies anymore. I will get back to you soon on the name! Alison
  7. Hi Gillian, I'm almost 6 months into my recovery. I had a NASAH on March 28, 2015. I was told I would be back to normal after 6 weeks. They were partially right. The first 4 weeks were awful but then I turned a corner and returned to work 6 weeks post bleed. I felt good. I take micro breaks away from the computer and turned off the lights above me. But I know what you mean, we don't quite feel back to normal. Random headaches, fogginess and inability to concentrate still occur for me. I don't know if this is my new normal or if over more time, things will get ev
  8. Wow! Your story really resonated with me. My birthday is March 26 and my re-birthday is March 28. Two days after my 40th birthday this year, I suffered an NASAH just prior to going out for my birthday dinner. Needless to say we didn't make it for dinner and it will be a birthday I will never forget Thanks for sharing! Alison
  9. Hi Sammy, My apologies for not writing back sooner. I haven't been logged in for a couple of months now. Medications are a tricky thing. They are given to us to help with one ailment but can cause a host of others. I suppose all meds carry risk. Interesting you heard the same thing on nose sprays. Never again for me. You were in hospital for 6 weeks?! I feel lucky I was only in for 5 days. My recovery was slow at first but then I felt quite 'normal' after 2-3 months. I'm almost at the 6 month mark and I'm noticing some re-occurring symptoms i.e. pressure in the head, tender at th
  10. Happy Brain-iversary Win With your spirit and positive outlook, I'm not surprised how well you're doing. I think our outlook on life contributes to so much of our overall health. Cheers! Alison
  11. Hi Sleepyhead, I'm 4 weeks into my recovery and sleep is a challenge for me as well! I take the rest when my body demands it. I'm still off work so I have the luxury of napping in the morning or afternoon (I feel like my 6 mo. old nephew some days). I'm not sure if this is available where you live and certainly ask your doctor first, but Gravol works for me. It was designed for motion sickness and nausea but it makes me sleepy and works well taken right before bed. I also believe in winding your body down starting after dinner. Herbal tea, relaxation, meditation, limited TV, no screen
  12. Hi Debbie, Thanks! I'm trying to take this all in stride. I'm only a month into my recovery (no surgery, it was a NASAH) but I get random headaches and pressure spots as well. Strange sensations in the head; unlike any other feeling I had prior to this. I've done quite a bit of reading on SAH, people who've had surgery and those who have not and seems like anxiety, depression and panic attacks can be par for the course. A stressful situation was given to us and our bodies react. Like a post traumatic stress syndrome. Although my doctor gave me a light sedative for the panic attacks, they
  13. Hi Everyone, Hope you are all well and enjoying some spring weather. We had hail here today in Ontario! Crazy! So a little update ... I had a visit with my family doctor, who confirmed my 'flu' like symptoms were indeed withdrawal from coming off steroid drugs. I was on a high dosage and even with weaning off, my body suffered. I have a new found respect for anyone coming off drugs or alcohol. But during that time due to the muscle weakness and pains, I couldn't look after myself properly, so I moved over to my Mum's place (we live in the same city) for a couple of weeks. Feeling much be
  14. Thanks Tina for your post. My incident was only 2 weeks today. Maybe my body is feeling the trauma for the first time without any meds. My Mom is coming to stay with me today and tonight. If this feeling doens't subside today, we will go to our local hospital. I do have anxiety issues at the best of times, so I'm thinking that's part of it too.
  15. Has anyone heard of sharp, shooting body pains post SAH? Not sure if this is a side effect of coming off steroid meds or part of SAH recovery?? I was woken this morning at 4am with sharp pains moving around my entire body. It has subsided a little but I'm still extremely achy. It was a scary feeling. Nothing like flu or overuse/exercise pains.
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