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weedrea

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Everything posted by weedrea

  1. I feel there is something about people not wanting to see the fragility of life and the realisation that we're not really in control sometimes with what happens with our bodies. I remember a colleague saying to me "but you're fine now" and I was so annoyed I couldn't put together a coherent sentence to answer them. Yes, I am fortunate that I don't have any noticeable physical issues but that doesn't mean I'm fine emotionally or mentally. Some people's reaction seems to be that it's easier to just pretend nothing ever happened.
  2. Very sound advice. I think it's a very good point to stress that it doesn't matter how small the bleed is, there is always some residual impact - whether it's physical, emotional or both. I'd love to say everything was back to where I was before my bleed but, amongst other things, my perspective on life has changed and for me I've balanced how I live and manage stress etc. (i.e. no more 30+ flights a year!). PS Pat - I've maybe said this before but I grew up desperate to go to BC. My gran's brother emigrated out there and we got sent "Beautiful British Columbia" magazine every qua
  3. This sounds quite like me other than mine was caused by an aneurysm that was coiled. But I too didn't lose consciousness and it was a fairly small bleed which had me in hospital for about 10 days. Best advice - take it easy on yourself. Think of this as like having a broken leg, healing will take a while - any blood on the brain causes some level of damage. In my case, I'm 5 1/2 years post bleed but fairly close to where I was before it. Though stress and tiredness impact me much quicker than they used to. I'm back working full time ( I know I've been very lucky!). I also have the benefit of w
  4. Not sure if this is the right place to post this but I've been thinking about how different we can react to similar events/life challenges/lockdown. I came across this interview with Amy Callaghan, the MP who had an SAH earlier this year. It's interesting and honest perspective on dealing with serious illnesses (she's also had cancer twice). https://www.holyrood.com/inside-politics/view,battling-through-exclusive-interview-with-amy-callaghan It reminded me of a song written by Julie Matthews called "The sum of what I am". It was written for a Radio 2 program whic
  5. Agree with what Karen says. I'd just add that the first year after my bleed I went for a lie down/snooze every day from 6pm to 7pm. Definitely the quiet and dark is good for resetting things.
  6. Well a bit of a fright this morning from Google Photos! Here's your photo memory of something that happened 5 years ago today....and it's a picture of me in my hospital bed! Thanks for all the support! Andrea x
  7. The song thrush was out last night in the garden....made me think of Win. x
  8. Matt I'm quite like you as well...two aneurysm, one of which bled. Though if we're taking count, I only needed 1 coil as my aneurysm was so small! I think they needed to get the microscope out to see it. As others have said, take it easy on yourself and remember that you have had brain surgery, and that is definitely not nothing. I took a little longer to get back to work than you and by then had so many holidays that I took every Wednesday off for about 3 or 4 months. I still take a couple of Fridays/half days off when things get too much. Evening snoozes, even for 30 mins, are a
  9. Daff Congratulations on 8 years. When I was in hospital my hubby came across your blog and I want to thank you for writing it. During that scary time in hospital, your blog was a real comfort. Not that you glossed over the difficult moments or made light of it all but because of your honesty at the struggle and adaption you were going through. Like many of us I had no clue how seriously ill I was, what the challenges would be or indeed what recovery (I think you say it better as "adaption") could look like. But your blog helped me know that I was
  10. Welcome to the forum. I'm not sure I can give you any advice here but I know others who have been in similar situations will. Just wanted to say 'hi' and thinking of you as you go through this difficult time. A x
  11. I agree with Skippy....a 'small leak' is still a bleed and any blood on the brain will cause damage, whether that's temporary or not will remain to be seen. I had a coil fitted after a small bleed. I didn't pass out at the time or have any other side effects during recovery but for me it took 3 months before I went back to work and then it was one month for 3 days, then another couple of months for 4 days. Headache was there constantly for about 6 months but have improved greatly since. Tiredness is another side effect to be aware of. I went at least a year with a 30-60 mins nap ev
  12. I had my SAH in 2015. I had an MRI after 6 months, 12 months, 2 years and 4 years. Doctor then told me he never wants to see me again So I think it varies, whether they're happy that things are stable, or low risk etc. I'm a little nervous that the doc doesn't want to see me again but I'm trying to take it as a positive sign! I'd think if they don't want to see you for another 4 years that they're happy with what they've seen over in your last scan. All the best Andrea
  13. I remember as a kid going to the optician and the whole time he called me Amanda rather than Andrea. It definitely didn't fill me with much confidence in his eyesight!!
  14. I was a similar age to you when I had my bleed (I was 39). My advice would be: - Drink lots and lots of water - Have a lie down or nap, even for just 1/2 hr, every evening - does wonders to just give your brain a little rest for a while. I had a whole year of this and still do it when stress levels are high - Take it easy with work. I had 3 months off and then 3 months building back up to full time. I'd recommend either Fridays off to give you a long weekend or Wednesdays. Wednesdays I found particularly helpful so that I was only worki
  15. Very wise to cross the T's etc. I had a period of continual headaches and in the end found out it was caused by sucralose. I'd started taking some supplements to try and help with my arthritis and ended up giving me a constant headache! Fingers crossed that you find some answers.
  16. Thanks all for your kind words. I used to have to fly to Glasgow or Inverness 3 or 4 times a month with work before my bleed. Now I'm not quite so relaxed about traveling but still have to do it at least one a month. So as well as my scan, I get to distract myself with work meetings... Lucky me! I'll also hopefully get to finish my book on Edwyn Collins' recovery. It's been a tough, but inspiring read. I watched a programme last week on The Proclaimers (if you like them I'd thoroughly recommend it on iPlayer). Edwyn had been the producer on one of their albums. It was just so lovel
  17. 4 years today I had my bleed. Where does the time go? Been feeling pensive and a little anxious about it. I'm off to Glasgow on Monday for my 4 year check up scan. The last one I had was 2 years ago so having another scan suddenly brings the memories all back. Also, when I had my 1 year scan, I went with my mum. At that stage she had already had terminal cancer for 18 months. Those few days in Glasgow were probably the last quality time I spent with her as she was just overwhelmed by cancer during her last 6 months. So many mixed emotions about it all. Thanks guys for
  18. Welcome to the group. I live in the Western Isles and I too got the air ambulance to the central belt....though I got taken to Glasgow, so I presume you're from the east coast of Scotland. What would we do without the air ambulance? Live savers indeed. I'm just coming up on 4 years since my bleed and coiling. It definitely takes a while to get back on an even keel. As for stressing about the coil - that is normal. I had check-up scans after 6 months, 12 months, 24 months and (after none last year) I'm off in the next week for my 4-year scan. They'll keep monitoring it until they'r
  19. Welcome! A Doonhamer are you? My hubby is from Dumfries and we used to live there a while back. Beautiful part of the country to live in. Andrea x
  20. For me it is like a brain fog when I can't think on my feet, take extra time to answer questions when someone's talking to me. Almost like the words are hidden. The other sign for me is grumpiness! When I loose my cool because I can't think straight, I get sent to my bed like a kid!! Half-hour eyes shut is usually enough to reset.
  21. I'm 3 1/2 years past my SAH. I went back to work 3 months after it - first month back 3 days a week, second month 4 days then full time. By the time I went back full time I had lots of annual leave allowance so I ended up taking most Friday's off for another few months. Overall I've not had any real negative impact from my SAH. I'm back working full time but I have the benefit of managing my time to fit with my energy levels. I work at home and I've never been a 9-5 worker. I have the benefit of being in control of my own work so it's no issue if I work at 9pm or 10pm if that's wh
  22. Mine has been like that since the start. I had scans at 6 months, 12 months, 24 months and now they've said not to come back until 48 months. Sometimes they settle or change shape so it means an extra coil could be put in. My has changed slightly but not enough and clearly they're not worried given they didn't want to see me for my 3rd year scan. My understanding is that most changes happen fairly early after coiling so it is probably just the coils compacting a little and settling in their place. A scan every year sounds like a good level of monitoring as if there's any additional
  23. I had my bleed 3 years ago and for the last year I've been on a Keto diet. I've had no negative issues from it. There's lots of incorrect information out there about it being bad/unhealthy/dangerous but I haven't seen anything to convince me. There's definitely a lag between "current nutritional advice" and the latest nutritional research. I've just finished reading "The Big Fat Surprise" and "The Obesity Code" and I spend lots of time listening to talks/reading blogs on all things nutrition. Convinced this is a healthy way of eating, but clearly everyone is different!
  24. Congratulations! First year down, here's to many more!
  25. I have two aneurysm, one which bled and was partially coiled and a further one that is being monitored. I had scans at 6 months, 12 months and 24 months. Last year the neuro nurse phoned me and said everything was stable and so they'd ask me back for another scan next year (she said they'd do it every year "because you're young"....aww thanks!). I never got a formal letter from them confirming last year's scan and when I phoned this year they said it was actually on my file that my next scan would be next year and nothing this year. How regularly do you get scans? Thin
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