Karen

Hi Molly, I had something similar about 2 years ago....pain in my right arm which was excruciating, worse when I was in bed. It eventually moved up and turned into a frozen shoulder and was nothing at all to do with the SAH. I had it for about 18 months and the arm still hasn't fully recovered, but hugely better. I would advise that you go back to your GP and ask if they've ruled this type of thing out .... however, you may have done that already. Hope that you're feeling better soon xx

I use Mozart for meditation to de-stress and have done so since the early days of my SAH. I did some research on the "Mozart Effect" on the brain years ago and wrote about it on the site... I was also completely stressed out about the return of seizures and the anxiety it was causing when I was reducing the medication and used a specific piece of music to help. It does take a while to get used to, but I can totally focus on the music now and block anything else from going on in my brain...very calming and peaceful. The CD that I use is called Mozart for Meditation: http://www.amazon.com/Mozart-Meditation-Classical-Music/dp/B0006OL5E0/ref=sr_1_3?s=music&ie=UTF8&qid=1371044864&sr=1-3&keywords=mozart+for+meditation However, you can find Mozart for meditation on You Tube if you do a search, such as the following piece:

Hi Lynne, You're absolutely fine to post the titles of the DVD's here, there's no problem and thank you. xx

Hi Erin, If I had to personally weigh up the stroke risk of having another angio, up against the potential damage of having another bleed and another stroke caused by this, I would take the angio any day in order to prevent this from happening again. I've had two bleeds and the second one was much worse. I would probably be extremely worried when having the angio, but I would think that the medics would have my best interests at heart, as they wouldn't perform this procedure if they didn't feel it was necessary. Just to add for anybody else looking at this thread, that if you're worried/panicky about this procedure, discuss having some sedation with your Consultant. I did and received it. It was only light sedation, but it helped to take the edge off the anxiety before and during the procedure. xx

Note to members from Admin/Moderators Would members please consider the feelings/sensitivity of other members who use this forum before they submit a post that may be construed as upsetting or controversial.

Thinking of you and your family Tulip ... bless him, your Dad has had plenty to deal with and hope that he manages to regain some strength soon. xxx

Thank goodness Daff! So very pleased for you! Take it easy for a while. xx

Hi Daff, I know how you feel and it's absolutely horrible when all of those thoughts come rushing back to you. After my first scare post SAH, I kind of felt as though I had gone back to square one again and when I was in hospital, I couldn't stop crying, felt so depressed. The good news was, that nothing was found ... but why had all of this stuff happened again? I didn't have an answer for it, but felt rough for quite a while afterwards and had to try to re-build some confidence again. I think that I said on here, it was like trying to re-build a brick wall over the months, only to have it kicked back down again and having to start over. Horrible times! Take care Daff and hope that you get your results soon. xxx

Daff, you posted as I was writing ... take care lovely and good luck with the Doc tomorrow xx

Hi Daff, I would always advise that you get yourself checked out, for peace of mind if nothing else and don't worry about feeling daft going to the Doc's or A & E with your worries. I ended up in A & E about a year after the bleed - nothing was found, but I felt like something had kicked off again and felt like I was back to square one again, especially with the fatigue. However, I've had many "blips" along the way since then and the anxiety returns big time....I personally think that the mental torment is worse than the physical side. You need to ask yourself if you're doing too much? I have a neck left on my coiled artery and am still being monitored for it. I also have an infundibulum (spelling) on the opposite artery. None of this stuff helps, when things kick off, but at nearly 8 years on, I'm still here, but still have the odd time when it kicks off. Wishing you well Daff and hope that you're okay...xx

Sending hugs to you Anna.... We shall always be here and the door will always be left open for you.....come in and see us, whenever you feel you need to. Your Mum would be so proud of you and how far you've come....xxxxx

Congratulations Tony in reaching your 1st year, I normally always celebrate my SAH anniversary, just grateful for being here and given a 2nd chance. That was a very lovely post to read and just to say, that I'm still experiencing recovery nearly 8 years on. Enjoy your day ...xx

Hi Karl, Just to let you know, that no, you're not going mad or nuts! Many of us have experienced quite a few things on your list. We can't offer or give medical advice on this forum, as none of us are qualified to do so and if you see anybody doing so on this site, then you should completely ignore it. Those who post, can only give a reply as to their own personal experiences, which may not mirror your own. You don't state what hospital you were treated at, but some Neuro Hospitals in the UK will have a specialised SAH/Neuro Nurse that you can contact. It's a bit of a post code lottery as to where you live, but if you have, then it's worth contacting them with your concerns. If not, try ringing or emailing http://www.brainandspine.org.uk/ This organisation deals with all types of brain injury, including SAH and they have qualified Neuro Science Nurses who will be able to help with anything medical that you need to ask. They also have a forum. Never be worried about asking anything that you might feel to be insignificant. As Daffodil has also pointed out, you can ring the hospital that you were treated at and ask to speak to your Consultant's Secretary. I was once told by somebody post SAH, "That GP's know a little about everything" but they don't specialise in one particular field, so it's always worth posing the questions that you need to ask, to somebody that does know. There are a lot of people on here, that have suffered depression, anxiety and post traumatic stress too ... none of these, help the physical symptoms either. I've had all three and wish that I sought help a lot earlier, rather than thinking that I could cope alone ...or should I say, was kind of just left deal with them, as there wasn't much advice given on the subject/if anything. I sometimes feel that the mental health element post SAH is worse than the physical aftermath. You really do need to get yourself checked out with what you have listed above ... you may have already done that, but you haven't said, so it's hard to reply to anything specific on your list. Take care xx

Hi Karl, Did your Doctor see this list of problems that you're experiencing? Thought that I would ask you that first as I'm wondering whether he's treating you/referring you for any tests etc?

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