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Karen

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Everything posted by Karen

  1. I also suffer from smells, mainly of burnt toast, but also chemical smells - Just found this on the Daily Mail - http://www.dailymail.co.uk/sciencetech/article-2568230/Smell-funny-You-STRESSED-Neutral-scents-unpleasant-youre-pressure.html
  2. Sending you love and hugs Myra ..... not easy doing all of this on your own. Good luck with your move. xxx
  3. Hi Leanne and welcome... I've sat and pondered your thread. I'm not sure whether withdrawal from all of those around you is particularly a good or healthy thing or whether you perhaps need to go and seek some help from your GP and tell him/her exactly what you have told us. However, I do not know your personal circumstances, as in your relationship with your family. Your family are bound to be worried about you and not to see your parents or have contact will make them worry about you. I have a 24 and 27 year old son and daughter and would be going out of my mind if they had the same happen to them and didn't make contact or respond. I would strongly advise that you go and see your GP and discuss the issues that you're having. Having family and good friends around to aid/support your recovery at this point is the best thing for you....keep them close to you. Wishing you all the very best. xx
  4. Sarah, I would really step away from Google ... I did the same and always found the worse case scenario. We haven't lost any SAH survivor on this site, so take heart lovely. I still have a neck left on my aneurysm and may be have one developing on my left hand side of the brain....I'm due to be scanned again next year, which will be 10 years on from this bleed. Still alive and kicking since 2005 ... I know what you mean about sneezing and coughing ... it freaked me out for quite some time and only normal to worry about it. Time is a great healer and you will restore your confidence in your body/brain. Good advice has been offered to you and your GP should also have a copy of your discharge notes from the hospital and should now be looking after your care and making sure that your blood pressure/pain relief is monitored etc. Always go with a written list of questions that you need to ask and just hand it over to your GP ... I still do that... xx
  5. Sarah, I had my SAH nearly 9 years ago this year and my children truly suffered in the beginning ... they're very resilient, and they do get back to normal, honestly. My youngest did nothing but talk about it and after a few months, we were truly "all talked out" ... It took quite a while for them to get some confidence back in themselves and for me too, that nothing awful was going to happen again .... time is a great healer. Keep talking and keep reassuring .... both she and you will feel scared for quite a while .... that's normal and it will eventually pass. I'm hoping that you have other family about you that can also help. xx
  6. Bless you John and welcome back. I'm also glad to hear that you've got your mojo back .... there's quite a few of us here, who know how you feel. Congratulations on your weight loss ... it's something that I need to tackle. xx
  7. I've personally improved with noise over a large time period post SAH. I can only presume from a personal viewpoint that loud noise and other stimulus on the brain is just too much when the brain is still trying to recover and repair. I also think that I would throw in a disruption of concentration with it....as in; I find that I'm easily disrupted and can't deal with the noise at the same time and it all can become a bit much, so I need to manage it. I also had an exaggerated startle reflex post SAH, so anything loud or visual in some cases would start off the adrenaline and I would experience a flight or fight response and felt the need to flee from it. xx
  8. You should be very proud of yourself Win .... Walking is still difficult for me, but have improved so much....still have my walking stick in the cupboard, but haven't used it for quite a while. You're doing well lovely. xx
  9. It's always worth asking your GP for a full set of blood tests to actually see if you're deficient in anything. I was and was prescribed supplements. I also suffered with heavy periods, so I was low in iron and folic acid .... which can and will contribute to fatigue as well....my B12 levels were also low. You do need to check out your supplements, especially if they thin the blood or interact with other medicines. xx
  10. I've also never heard of Rcvs ... xx
  11. Mike, if you're able to give me the link to the site, then I can have a look at it.
  12. You can't really change what has happened and can't turn back the clocks ... I had lots of if's and but's too. I had an undiagnosed bleed at 38 and had another one, which was a lot bigger at 42 ... with seizures and a stroke on my left hand side. I've never had my question answered, so it's been a case of seeing how things go. 8 years on from the second one, I still suffer from dizziness, which is often brought on by doing too much ... if you're only 6 months on, then yes, you still might experience dizziness, mine was worse at this stage as I wanted to get back to normal too quickly... you need to ask these questions to a professional, as nobody here is qualified to do that and each case of SAH is always different, as to where the bleed was and what might have been affected in the brain. Personally, I think that you're perhaps doing too much and you might need to re-think what you are doing and calm it down a little ... the recovery time is at least 3 - 6 months (set by the Doc's for the physical sense ie. blood to dissipate etc and the healing process to take place, but it doesn't mean that you'll be totally healed in other senses) and that is the minimum time. For a lot of us, it's at least a couple of years before a decent recovery sets in. xx
  13. I've been asked by Tony Banks from the Stroke Association to promote their annual Life After Stroke Awards for 2014 as nominations are now open. http://www.stroke.org.uk/LASA Do you know someone affected by stroke who’s truly inspirational? Then nominate them for our 2014 awards and help them get the recognition they deserve. All over the UK, there are people who show amazing courage, determination and compassion on a daily basis in an effort to overcome the debilitating effects of stroke. We want you to help us find them. Whether that person is a stroke survivor, carer, professional or volunteer, let them know just how remarkable they are by nominating them for a Life After Stroke Award 2014. Nominate someone online or request a nomination form in the post by emailing lasa@stroke.org.uk or call 0207 566 1540. Nominations close on 28 February 2014. Karren Brady needs you.... BBC’s Apprentice star, businesswoman and football’s first lady, Karren Brady, is urging people to nominate stroke survivors, carers and volunteers in the Stroke Association’s 2014 Life After Stroke Awards (LASA). The 2014 Life After Stroke Awards, which are sponsored by TONI&GUY CHARITABLE FOUNDATION, recognise the courage and determination of stroke survivors, and celebrate the commitment and dedication given by carers and volunteers. In 2006, Karren survived a brain aneurysm, which could have led to a stroke. Karren, a long-term supporter of the charity, said: “Stroke remains one of the greatest health challenges of our time. Too many people don’t understand it or ever think it’ll happen to them, yet stroke is closer than you think. The Stroke Association’s Life After Stroke Awards are about celebrating stories of courage, commitment and determination. “As Patron of these brilliant Awards, I’m inviting you to do something special for someone who has shown that there is life after stroke. Nominate a stroke survivor, devoted carer or passionate group of volunteers for a Life After Stroke Award and give them the chance to shine.” There are several award categories and the closing date for nominations is 29 February 2014. Winners are invited to attend a star-studded award ceremony at London’s Dorchester Hotel on 12 June 2013. Details of how to make your nomination are available at www.stroke.org.uk/lasa. For further information please contact the Stroke Association’s Life ATER Stroke Award team at lasa@stroke.org.uk or 0207 566 1540
  14. My hormones were affected after the SAH and my periods stopped for a few months and came back with a vengeance. As Gill (bagpuss) has said, the Pituitary gland is close to the Circle of Willis, where a SAH bleed occurs. Gill has offered good advice... don't suffer and go and have a chat with your GP. I was tested and was found to be low in Folic acid, Iron which needed to be replaced. My periods have always been heavy, so a lack of Iron due to this can contribute to your fatigue/dizziness. I'm not sure what age you are, but I think that I was also peri-menopausal which didn't help. Good luck and I know exactly how you're feeling with the dizziness and the menstrual headache as everything is heightened and in the early months it does cause a huge amount of anxiety. xx
  15. Zoe, sending love and huge hugs to you and your children .... so very sorry to hear your news. An absolutely awful time for you and all of Richard's family.... so very sorry. xxxx
  16. Hi Liz and a warm welcome, As a site, we can't give you medical advice for obvious reasons, but if you're at all concerned with the vomitting give NHS Direct a call/or the hospital where she was treated for advice, especially as it's Christmas day tomorrow and it might give you some peace of mind. I know of a few members who have suffered with vomitting/nausea problems. Keeping up the fluids such as water is something that I can only say is helpful with the headaches in order not to get dehydrated. Tiredness post SAH is something that we all experience and for a lot of us, our eyes hurt or are sensitive to light. Go and have a chat with your Mum and see how she feels .... xx
  17. Hi Michael, That's really good positive news! xx
  18. Zoe, my thoughts and prayers are with you all. xx
  19. From my own viewpoint, I can only say that I didn't change, not as a person, just needed to adapt and adjust to this new life that was suddenly thrust upon me. It took me a fair few years to work it out and it wasn't easy, but I needed to stop comparing myself now, to who and what I did before the SAH, as all I did was set myself up to fail each time and become more miserable. I think that I became emotionally more stable once I accepted that I would have some pretty big limitations in my new life and instead of working against them and fighting it, try to work alongside them and have as good a life, as I possibly could and no, it's not a perfect situation, but I'm fairly happy with it all now and have finally found some peace. I think that it really is a question of time, not months, but years and adaptation and to be honest, I can't really remember what life was like pre-SAH now, it's almost like looking at another person, but life's pretty okay and as the years go by, I'm doing a lot more than what I was doing in the early years. Good luck guys, you will get there too. xxx
  20. Zoe, there are times when I really just don't have the words ..... sending you hugs and love xxxxx
  21. Michael, keep fighting for your brother and never give up on hope .... sending you a much deserved hug. (((()))) xxx
  22. Daff, it's okay to be scared ... I was scared witless for many years, not that I would have admitted it back then. I don't think that there are many of us that don't get another spell or two back into A & E and nothing has been found. I've been there. It sounds as though you've totally gone into overload ... or meltdown ... you're doing too much and you're going to have to off load some of it where you can. I'm just a phone call away Daff, if you ever need to talk. Sending huge hugs and remember that you're never alone with this. xx
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