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SarahLou last won the day on May 31 2016

SarahLou had the most liked content!

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953 Excellent

1 Follower

About SarahLou

  • Rank
    Established Member
  • Birthday 20/01/1972

Profile Information

  • Gender
  • Location


  • Biography
    I'm a survivor of a few rough journeys over the past 10+ yrs. Have a wonderful hub who I love with all my heart,soul and right kidney(I donated to him nov 06) and we have a beautiful daughter who gives us laughter,light and strength.
  • Location
  • Interests
    Walking, reading, skipping around the house!!
  • Occupation
    Hospital Pharmacy Dispenser
  • SAH/Stroke Date
    SAH 25/08/10 clipped 27/08/10

Recent Profile Visitors

979 profile views
  1. Hi Matthew, A huge warm welcome to BTG Some great advise from others so far. Firstly well done on posting this, it couldn’t have been easy. As others have already said I think it would be a great idea for your wife to look in on this amazing site. It’s almost 10 years since my SAH. And sadly yes, fatigue still gets me bad. I had a career change after my SAH, now only working 21 hours a week. I’ve also tried changing my shifts/work days to see what works best. I now do my hours spread over four days with a rest day on Wednesdays. For the first few years my head pains, temple pressure and fatigue floored me. Then I listened to advise from Super Mario and saw my GP as I felt this just could not all be SAH aftermath, and it wasn’t. I was diagnosed with other health conditions. Tough ones to learn to live with on top of SAH, but the diagnoses gave me understanding. For me it was all about learning to adapt, adjust, pace and planning. I had to stop comparing myself to who I was before my SAH and accept who I was now, to remember how far I’d come since my brain got re-arranged. I was never going to be the same as I was and that’s ok, I’m happy with that. I believe I’m a better person now, I have more patience, understanding and empathy. I don’t worry about the things I can’t change, I don’t waste my ‘spoons’ Yes, I still get fatigue but you do learn to accept that, kind of! My best bit of advise is for you to read ‘A Letter From Your Brain’ and to look up ‘The Spoon Theory’ , it truly is the best way to describe to others what life is like after SAH. I still refer to them now and I still have copies of them on my bedroom wall, they keep me grounded when I’m being too tough on myself. Have patience and understanding with yourself Matthew, you will get there. We are the lucky ones. Take Care, SarahLou.. Xx
  2. Sarah, I’m so so sorry to hear this sad news. Over the years dear Win gave me such strength and lots of laughter, through some very difficult times. Heaven has gained a truly amazing bright star. I shall sing out loud for you lovely Win. Much love and great big gentle hugs to you all SarahLou Xx
  3. Hi Bill, It’s truly great to see you back here, I too have been ‘missing’ for a while from BTG. I totally get everything you’ve said. Its over 8 years on for me and I’m still not near to finding acceptance. The things you say about balance issues, double vision, not being able to cross a road... yep, that’s me too. Last Friday was a horrendous day at work for me, I am in constant pain and due to that I was loosing concentration and I made errors, I ranted and raved and wanted to pull the clip from the middle of my brain. I cried so much I thought I’d break. That cry did me good. I still fight every day, to learn who I am now. I do still miss who I once was and I’m still on a learning curve but that’s ok, as I know one day I’ll get there. Just not right now. My beautiful daughter is still the one who gives me a reason to fight, she is and always will be, my laughter, my light and my strength. Sending you great big hugs dear Bill. Take Care SarahLou.. Xx
  4. I’ve just finished reading this book and it was brilliant! I highly recommend it. It made me laugh and it made me cry, I can relate to so much of it. It’s made me view some things in a very different way now. Thanks for the recommendation Kay. SL Xx
  5. I have also struggled with going to the cinema, it’s over 7 years since my SAH and I’ve only been to the cinema a couple of times. It’s so loud! I take ear plugs and wear sunglasses, I must look like a crazy woman! The last film I saw was Fantastic Beasts (no way was I missing that!!) however I waited until it was on the smaller screen and it was so much better. There’s going to be two films I want to see this year so it’ll be interesting to see how I cope with those. Another thing I struggle with,but make myself do,is a theatre trip now and again with a dear bud, that has got easier over the years, but again I take ear plugs and wear sun glasses. I’m also very mindful of what time of day I go, having rest beforehand and after. I also struggle with some things on the tv, flashing lights and images etc. Truly love Big Bang too but also need to look away at opening credits!! Have patience and understanding, pace and plan, your’ll get there. Take care, SL Xx
  6. Hi Krislwal, I’m sorry to hear you’re in such pains with the headaches and of such difficult struggles in your life. Wise words from Macca, his words have given me great support, strength and understanding over the years. Also good advice from The Super, drinking plenty of water really does help. Me, well I’m over 7 years in and I still have headaches and temple pressure every single day. I honestly can’t remember what it’s like not to have them. I wake up with headaches every day, they take about an hour to ease off. So my start to the day is quiet, I don’t want to look at or talk to anyone, no radio etc on at all. I have to work through those pains alone. Most of the time I can cope with them, other times I can’t, they floor me, my whole head hurts. I have visual issues too as my bleed was behind my eye and my clip irritates my optic nerve (so my latest MRI showed after referral back to Neuro following my visual issues) Like yourself I live with other health conditions too, including Osteoarthritis, Fibromyalgia, Diabetes... blah blah blah the list goes on! My Mama has been fighting cancer for a couple of years, she’s had many operations but there is no cure, my sister fought breast cancer last year,she still has a way to go yet. These ladies are amazing. My husband is a transplant patient, so we live on a double edged sword. Throw in a SAH and can we take any more!!!??? We are stronger than we think, because everything happens for a reason. I have learnt the hard way to have patience and understanding, and yes I know there’s members screaming at me that I have very little patience! That is true, but I have learnt understanding. I know to plan things differently, I know when my brain will go into shut down because it can’t take any more. Resting in complete peace and quiet, even for a short time, is something I have to do every day after work. I do take paracetamol pain relief as that is the only pain medications I can take, most the time they take the edge off if I can’t cope. The daily headaches have become a part of me, but I wish for just one day without them! For me I’ve learnt that there’s just some things that I can not change, I’ve had to learn to adapt. Adapt but not Acceptance. Not sure I ever will find that little gem! We are the lucky ones, we survived. Cherish every day and do things that make you smile and laugh. Take care, SL Xx
  7. I totally agree with Karen and Skippy, I also loved reading before my brain got re-arranged and missed it dreadfully. It took a very long time and a lot of patience but I’ve got back to it, in fact last year I read all the Harry Potter books! I’m very proud of that!! I am more mindful now though, I have to make sure the print isn’t too small etc. It has to be a good book that grips me from the first page. My Stroke Of Insight looks like it will be a very good read. SL Xx
  8. My Dearest Paul, Lin is the brightest star in the sky. You are in our thoughts and prayers. With much love to you, Sarah-Louise, Paul and Caitlin Xx
  9. Sending you and Lin much love Paul, you're in my thoughts and prayers. SL Xx
  10. Good luck Maya, your'll be in my thoughts and prayers. SL .. Xx
  11. Hello Jan, I'm sorry to hear that you've been having these troubles, I think it's a good idea to have a chat with your Optomitrist. There are other methods of having the pressures of the eyes checked, next time you have a full eye examination explain the issue you had so that you don't have to go through that experience again, I'm sure that it was rather frightening for you. Although you have a new varifocal prescription it is worth remembering that when we are over the age of 40 then presbyopia does start (the lens of the eye begins to get stiff and less able to focus) so it could be that a seperate pair of reading glasses will help, although varifocals are great, the reading area is small. The full prescription is only in the central part of the lens, so if your eyes are going to the inside or outside of the lens it won't be the full strength you require. A full frame of reading lens will give you a full field of vision, therefore easier on the eyes. If you have exactly the same strength in each eye then ready readers off the shelf will be suitable, if you have any astigmatism correction required they will not correct that. My SAH was behind my left eye, clip is very near my optic nerve so my vision was effected. I've recently been having lots of visual migraines and had an MRI in December, they can not get a clear picture of my optic nerve because the clip is so close, therefore they're not sure what to do with me at the moment!! I wear reading glasses and glasses for computer work, due to balance issues varificals aren't an option for me. My last test was March last year so I'm due another test soon (I'm diabetic so tested every year) however, I know my eyes have got worse so I'm fully expecting a stronger prescription to be required! Please try not to worry and let us know how you get on. Take care, SarahLou Xx
  12. Hello Jan, I'm over 6 years down the line and I still get good days and bad. It was after the 2 year mark for me that things started to improve. You have done amazing, remember how far you have come and try not to be so tough on yourself. Have patience and understanding. Remember that it is OK not to be OK. I've been having a few issues so have been back to see my Neuro Nurse Specialist and Consultant. Neuro Nurse said to me that there will always be times, for all brain injury patients, that they jog along fine and then something gets thrown into the mix and we don't cope so well. For me personally I think it will often be a case of sometimes I'll take a few steps forward and then now and again I will take some back. Yes, fatigue still floods me. Yes, I still have daily headaches and temple pressure but I am still on a learning curve of the new me. I have learned to plan and pace, but there are many times when things are beyond my control. So I too have to still learn that word patience! I still kick out now and again, rant and rave and throw a paddy! But then I'll pull myself together and count my blessings. I'm very stubborn! You will be OK Jan, your'll gather strength from those around you and us lovely lot! Sending you big gentle hugs. Take care, SarahLou Xx
  13. Gill, My dear friend. I know that you're so saddened by this news, it's such a blunt reminder of how close we came. As Jess says, it wasn't your time. This is a very tough lesson for all the children to learn. It sounds like the school are doing all they can. Nathan has two very loving parents, you will guide him through with any questions he may have. I'm here for you, 24-7 SarahLou Xx
  14. Belated 17th SAH Anniversary wishes to you lovely lady. Your kind words and support have given me such strength over the years. Thank you. You are an amazing, inspirational lady. My world sure is a brighter place with BTG in it. Take care, SL Xx
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