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One year anniversary


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Before 2:40pm on November 2, 2021, I worked in office and took care of family from 6am to 9pm daily. Now I’m trying hard to accept the new me suffering from fatigue and anxiety daily since I had NASAH one year ago.

 

I’m fortunate that I didn’t lose any function after the bleeding, but the road of recovery is bumpy and endless. It took me two months after SAH to gain energy to walk 1 mile and nine months to walk 2 miles. My recovery seems to stop at 9 months and I have setbacks when I push myself too hard.  

 

My battery runs out after about 1 hour. No matter I talk over the phone, walk in grocery store or along the beach, I become exhausted, have palpitations and headache after 50 minutes or so. I have to lay down on bed quietly to recover. One day I couldn’t drive home and had to call for a ride. I lost my job eventually and have to go through this recovery all by myself…

 

How about your recovery journey?

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Hello JuneZ,

I had my bleed 5 years ago this past May.  The first year did not deliver to me what I had hoped for.  I still very much did not feel at all like myself.  Everything was a chore, cooking, cleaning laundry, all of it.  I did return to work but thankfully it was a 3 eight hour shifts per week and a position I had held for over 20 years, it did not tax me very much at all.  My family was grown as I was 64 when I had my bleed so did not have that responsibility at that time.

 

What I will say is that I see progress when I look back better.  I knew that at the end of one year I was better than I was when I came home from rehab.  Again when year 2 rolled around I could look back and see....yes I am making progress.  There has been the challenge of learning to accept and love the new/changed me. 

I run out of energy quickly and want to check out of what is happening.  My balance is not the best and I work hard to use caution as to not fall or bump into things.  When I push too hard, as you mentioned, it takes a toll.

 

I did stop working after 3 years but did pick up a volunteer job, just once a week at a zoo.  It is fun as I love animals and children and plenty of both there.  I can sit when I want and chat about the animals.  Yes I am exhausted afterwards.

 

A brain injury, as I found out, is slow to recover.  My road to recovery has had its bumps but I have seen a grand child born, a son marry, taken some vacations and little things like sitting in the yard and fixing some plants.  

I will tell you I also did some mental health counseling, it was helpful to me.  I learned how to reset myself (doesn't work everytime) when I am able to it is like washing my face with cool water :)  

 

My thoughts are with you on your first year and also my best wishes for many many more.  This is tough, but life is beautiful and we are survivors.

Be well

xx

Jean

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Jean,

Thank you so much! Your kind words and encouragement is the best gift for my anniversary. I’ll be strong and look forward to seeing improvement year after year!
Wish you all the best!
June

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Hi June :) 

 

Congratulations on your one year anniversary :) 

 

Be very proud of how well you have done and are doing. The first year is the hardest. As Jean has written so beautifully above, it is tough, but things will improve. I just takes time. I found it very frustrating in the early days. Like you i used to work full time, looked after my family. I tried so hard to get back to the old me.

 

I still get very tired and balance is not always good, also my short term memory ( drives me mad :rolleyes:). I have an on going cancer problem that is being managed, but life is good in so many ways and feel very blessed xx

 

I have now learnt how to know my limits. Still catches me out sometimes ;) Also learnt to accept and love the new me :) 

 

On 02/11/2022 at 20:02, Swishy said:

 

 

My thoughts are with you on your first year and also my best wishes for many many more.  This is tough, but life is beautiful and we are survivors.

Be well

xx

Jean

 

Had to quote our lovely Jean :) She says it all so eloquently :) 

 

Wishing you well June and here's to many more anniversaries where you can look back and see those improvements and just how amazing you are :)  xx

 

Take care

Love Tina xx

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👍Happy 1st year Ani-versary 👋 my 23rd was on the 1st Nov.... 

 

its not an easy thing to recover from it takes time..  I hope you have a good support network around you kind of helps..

 

Take care. 

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9 hours ago, Tina said:

 Wishing you well June and here's to many more anniversaries where you can look back and see those improvements and just how amazing you are :)  xx

 

Take care

Love Tina xx

Thank you, Tina! I’ll be patient and report improvement every anniversary or more often!

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2 hours ago, Louise said:

👍Happy 1st year Ani-versary 👋 my 23rd was on the 1st Nov.... 

 

its not an easy thing to recover from it takes time..  I hope you have a good support network around you kind of helps..

 

Take care. 

Congratulations on your 23rd anniversary! I’m looking forward to 10th, 20th, … anniversaries. 😀

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Happy anniversary 🎉 

 

It gets easier, 20 years on I work full-time have had 2 kids naturally passed driving test it gets better xxx

 

Hope things keep improving for you xxx 

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On 06/11/2022 at 09:51, jess said:

Happy anniversary 🎉 

 

It gets easier, 20 years on I work full-time have had 2 kids naturally passed driving test it gets better xxx

 

Hope things keep improving for you xxx 

Thanks for the encouragement. I wish I can go back to work too after several years’ recovery.

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