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Post Treatment following SAH


Guest mojojojo
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Guest mojojojo

I'm very curious how each individul was treated? What you/they was offered in terms of recovery. What operations did you/they have? Just by reading various post i can see that each person is affected differently. Most symptoms post SAH is memory loss and confusion do everyone suffer this? Is there anyone on here that believe thier treatment was handled wrong in terms of who you/they was referred to?

I'm struggling getting the right treament for Mum and would appreciate knowing individual treatments.

Best Wishes

Sharon

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Hi Sharon,

Just about to finish off the dinner ... but will hopefully get back to you later ..... care, aftercare etc, seems to be a bit of a "postcode lottery" .... it varies greatly, from excellent, to not so good and having to fight all the way. I would say to you, that you might be interested in doing a search for Hannah's posts on this website .... she had a real struggle with her Mum, Marian ..... but was successful in the end ..... go to the Members button at the top right hand of your screen, click on the "H"'s find Hannah and search for her posts .... you might find them interesting reading and who she contacted etc for help. xx Hannah and her Mum are pictured in our members photo album...click on the following page link http://picasaweb.google.co.uk/behindthe ... 0968185106 .... Hannah was a real gutsy lady, but had to fight tooth and nail for her Mum ..... but, as you can see from the photo, she got her home ....

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Hi Sharon, I was exactly the same as Jess, I came out of the hospital at the end of Feb, had one check up in April and then they were not sure if they were going to see me again, and then decided yes we better had and that was in July. That was it goodbye Sarah now get on with it all yourself. The treatment that I received at the time of it happening was good but then once I was out it was non-existent. I think that it is really bad with something that serious xxxxx

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Hi Sharon,

Jim was treated the same way. We went for 2 follow ups. One because he was having headaches and then was basically told get on with our lives. If it was not for BTG and ALL the wonderful people on this site we would have been lost. We were not given any type of information and did not know what to expect from day to day.

Take care,

Cal

XXXX

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Hi there,

Unfortunately I was discharged from hospital and given no support, apart from seeing my GP, who was totally clueless and gave me a lot of incorrect information, so I stopped seeing him. It's only this year, 2 years on, that I've found the help I was craving. Headway is a brain injury charity that really helped me, you could try them. I'm also due to see an occupational therapist and clinical psychologist through the NHS. I've learnt that you've got to seek this help, it might not come to you. Good luck :) x

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Guest mojojojo

My Mum is to go to Headway in october, i am excited about her going there as i have heard so much about them. they also have been so suppoting to our whole family...... whilst my Mum is being taken great care of in the Nursing i sometimes forget how hard it must be for my Dad who after 40 years off marraige finds himself alone. I see him everyday too and i see the sadness in his eyes. He adores her and still hold hands when they see each other.

When a SAH happens it affects everyone dosent it. Including her little Dog sophie who wags her tail at mum every time i take her to see her.

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Yes EVERYONE is affected not just the person that its happened to but those around them I sometimes think I had the easiest part at least I hadnt a clue what was going on, what had happened to me I still have ne memory of it at all - and that I'm glad about....

Take care

Louise.x

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Hello everyone, I'm new to posting, but not new to the site, which has been a great source of support for me over the past few months...

I had my SAH at the beginning of March '08 and have had no follow up from the hospital at all. I was initially told I would have an appointment 3 weeks after leaving the hospital, but heard nothing so called them a few times and was eventually told to wait until my 6 month scan. I went to this on the 19/09/08, full of questions and expecting to see the specialist, but realised it was just the MRI that day. I've been leaving messages since asking for an appointment, but never get a response and have now received a letter (2 sentences!) to say they will see me in another 18 months. I know I should probably be pleased about this, but I've got loads of questions and am feeling like I need to speak to someone about how I have been feeling since my SAH. My GP has been amazing and very supportive, but is not a specialist so is not able to answer my questions.

I know I've been lucky as I have made a good recovery overall, however, I'm still suffering from fatigue, am often tearful and emotional and struggling with things I didn't before. I don't really remember a lot of what happened in the hospital and would like the chance to see my scans etc and to get a better understanding of what's going on.

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Hi Jane

Welcome to BTG sorry to hear that you were.nt given a follow up appointment after your scan. As you say it probably means there are no problems with it. If you're really concerned phone the Consultants secretary and ask for an appointment explain you have a lot of unanswered questions.

Alternatively ask her for the Consultants email address and send him the questions you want answers to .

Good luck and look forward to hearing more from you.

Janet x

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Thank you all for your replies... already feeling a lot better. Think I will just keep requesting a follow up appointment - my letter says there is a small remnant to the coiled aneurysm and I've no clue what that means so will be really helpful to get some answers.

My Internet connection keeps playing up today so I'll keep this post short (after my rant this morning), but good to meet you all and hopefully speak to you again soon. It's good to know there is other support out there as I find myself not wanting to upset my family having caused enough panic and stress over the past few months!

Thank you all again, J. x

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Jane, post here any time ... it was good talking to you in the chat room too .... I still have a neck left on my aneurysm too .... still alive and kicking after 3 years and 3 months .... don't worry too much.... they'll keep an eye on you ..... I'm back for a scan in 2010 .... but know how you're feeling, it takes time for recovery and as much time to come to terms with what's happened ....xx

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I was sent home with a book and told that I would see the consultant 2 months later which I did, I have researched all info via internet and of course BTG which has been a great help, I still feel tired and lack of energy but otherwise ok. Good to chat

Caroline

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HI JANE IT HAS BEEN THREE YEARS NOW AND NO ONE OFFERED ANY INFO EVEN WHEN WE ASKED JUST BLANK STARES. I HAVE GOTTEN ALL MY ANSWERS ON THE WEB AND I HAVE TO SAY NONE CAME FROM THE USA ALL THE SITES WERE FROM OTHER COUNTRYS. AND THERE ARE NO SITES LIKE THIS ONE THANKYOU BHG!

I STILL GET FATIGUE, A STIFF NECK, DIZZY, SPRING PAIN, WEEPY, WELL YOU GET THE PICTURE BUT KNOW ONE WANTS TO FOLLOW UP ON THAT IT APPEARS. SEEMS TO ME THERE IS MORE RESEARCH TO BE DONE.

XXX EVELYN :mrgreen:

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Hi Evelyn,

I agree, not enough research has been done into the aftermath of a SAH .... it's kind of like, okay you're brain is fixed and that's it .....discharged and left in limbo. There's nobody to ask .... and if you do, they can't give you an answer..... they just don't know.

That's why it's good for all SAH'ers to share their experiences and take their time out to post on the medical forums here and hopefully, it's a comfort to those that unfortunately, follow us and have the same problems.

By the way, what's "spring pain"? xx

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I CAN FEEL MY SPRINGS WHEN THE WEATHER CHANGES OR IT IS COLD THEY HURT AND EVEN SOMETHIMES WHEN I AM STRESSED. I KNOW EXACTLY WERE THEY ARE SO THERE IS NO MISTAKING IT. IN WINTER I LIVE IN SOCK HATS TO KEEP THEM WARM. I HAVE QUITE THE COLLECTION OF HATS GOING :D

IN AWAY WE ARE DOING THE RESEARCH WE CAN ALL SAY THAT WE HAVE A LOT IN COMMON.

XXX EVELYN :mrgreen:

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Hi Evelyn,

Now I know what you're springs are! D'oh... I'm a bit thick today, as in dense!! :lol:

I can feel my springs too! (or coils) especially when I get stressed .... it pulses....like a heartbeat or the blood pumping around..

I also have to wear a hat in winter .... quite a few of us do on here ..... must buy a new one this year, as my old woolly hat is horrible, but it does the trick though!

Think that you're right, in that we're doing the research ourselves ..... xx

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