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Hi, Thank you for posting this. I hear what you say, but I think it is important that whatever action people may take they should only do so having taken professional medical advice first. This is because none of us are doctors and what works for one might not work for others. The potential for mishaps is ever-present. The potential consequences, for instance the interaction between this and other medications some people may already be on, could be serious if not done in a properly supervised environment. Best wishes, Macca

Thanks so much Daffodil for your kind comments and encouragement. I posted initially because, having read a lot of the various posts in this website, I felt that almost everyone else had been so badly affected by their 'incident' that I felt somewhat fraudulent in being here at all. I can't say that the stroke I had has really made a massive difference to my existence (except the driving thing and the realisation that there could be worse around the corner!). I shall, however, continue to contribute if my experience may help others. That's what it is all about isn't it. Re your PS, yes it seems to be a marvellous job but I think most do it for the love of dance, singing and acting generally rather than to become wealthy. I had a bizarre night last night at the after party for the opening of Carousel, in which she appears with Alfie Boe, Katherine Jenkins and Nicholas Lyndhurst. There were so many acting greats there milling about and I even had a chat with Nicholas Lyndhurst, who was just lovely. I shall continue to bask in the reflected glory and skills of my daughter!

Johnnie, the great thing about this forum is you are included and welcome and just by sharing your experience you will help someone, they may never comment, choosing instead to be a guest or silent member but by letting people know what helped you regain, recover and get to where you are now whilst coping with everyday life and adjusting to living with your quadtroponia it will help them have ideas they can try and have hope. In return hopefully you as a member will get encouragement from others who whilst they don't have the same condition post stroke we know what the impossibility of a new situation can feel like and how hard it is to try and keep moving past that with a song and a smile. I had my SAH 5 years ago now and whilst I would say I have adjusted to the effects of my bleed and know it's impact on me I have been left with hydrocephalus which has more of an impact on my day to day not to mention the kit I now iphave in my head. But I wear hats to protect my head from sun, wind and rain and we go on. You'll get driving again and belting out those song tunes in high altitutudes. PS ? Love the fact your daughter sings on the west end. What a marvellous job.

Hi there warm welcome if I've not already said it glad you found the site.

Hi all! A relative newbie here; attracted to the site because I have quadrantanopia following an ischaemic stroke with haemorraghic transformation in the left occipital lobe. My driving licence has been revoked by the DVLA. Some of the post below is copied from another part of the site in which I responded to someone else's question so apologies if you've seen it before! I am just wondering where I fit in on this site. I have no idea what an SAH is and whether that correlates with what happened to me? Am I relevant here? Have others experienced what I experienced? I really don't want to waste the precious time of others but I think that I have had an experience that many others would benefit from knowing about. I am 56 years old and had no idea I had, or was having, a stroke. With strokes to the back of the head (I am told by a consultant) there are none of the signs that television adverts tell us to look out for in others. I was on the way to work and I had a headache at the top of my neck and back of my head, that is all. I am not prone to headaches. When I arrived at work, after a week off driving the mountains of the French Alps, I started typing an email and found that part of my right vision was missing. I thought it might have been a cricked vertebra in my neck pinching a nerve, or a detached retina. I went first to my Chiropractor. It wasn't a pinched nerve in the neck. I then took myself off to Moorfields eye hospital. The consultant said, "it's not your eyes so it must be neurological". It was then that the 'S' word was first mentioned! They put me in a taxi to University College Hospital and I stayed for 24 hours being prodded and poked and thoroughly checked out. CT scan, MRI scan, Physio coordination checks etc etc. The staff on the stroke unit were a marvel. I dared not tell my wife why I was in hospital because when a stroke is mentioned the immediate image that springs to mind is a massive loss of movement, not being able to walk or lift an arm, collapsed face and dribbling! I mean that in a tongue in cheek way but it is true; people always think the worst until they see you. My wife is the sort of person who would have panicked and rushed to see me when really there was no point in her making a massive journey to see me looking exactly as I was when I left first thing that morning. I was back at work a week later, although I imposed fewer working hours on myself as, luckily, I own my own business with four other guys and have very supportive partners and staff. Six months later I am back to where I was work-wise. Still trying not to stress too much though and still dreaming of getting back behind the wheel and joining my mates on the annual driving trip to Europe in 2018!

Welcome Gemma sorry to hear about mum but pleased she is making a good recovery. Whilst I cannot advise on whether she is safe to fly and take the heat, only a Doctor could provide that advice, I can tell you of my experience. I had a SAH in Jan 2015, due to a bleed from an aneurysm - fortunately mine was coiled and I did not have any after effects like mum from her clipping. I had a holiday booked for the March with my family with son coming over from America to fly with us to Lisbon, I was very nervous about it as was still very fatigued and at that time suffering real bad heads and suffering leg pains. Consultant said I was safe to fly and relaxing may help me as was quite depressed. I did go, it was for me a bit early and I found it quite tiring, I could not keep up the pace with my family, who tried very hard but I think could not understand my fatigue or inability to cope with even low level activity. Lisbon was hilly so I don't think that helped and was very busy, as well as beautiful. I think it will depend on how your mum feels and if doctors agree it's safe, you may need to be led by her. If she does decide to go I would advise building in total relaxation days and taking things at a slower pace. I do wish her well and I know for families who have had to watch someone go through this they also need time to recover as it is psychologically very stressful and frightening, so I do hope you take care too. Look forward to hearing how mum gets on and hope you have the lovely wedding you have planned Sharon x

I also want to add in this topic something that I discovered recently that shook my world and it pertains to the title of the thread. My latest Neurologist (by far the the rudest health professional I have ever met and due to get the sack from me) was exasperated at my questions so he pulled out the blue book. The Blue book gives advice to doctors on what to do for a particular condition. He flips to post SAH advice and literally, in its entirety this is what it says.... Post SAH headache, more research needs to be done in this area. That was ALL! And they have been pushing pills and stuff on me for years, basically guessing, it was staggering.

Similar, I never used to get headaches ever but started getting little 'knocks' that last 20 seconds or so. I had these for three weeks until the SAH. When they scanned me they said the Aneurysm had destroyed itself and I was all clear. I doubted it and thought there was a weakness in there as I didn't like the explanation they gave me and was expecting it to 'blow' again but it never did. 6 years & 3 months on I am still here. I have seen approx 7 neurologists, at best they are patronising, some are rude and all but one were pill pushers. Find the 'one' and stick to him like a limpet. GL

I think you have to retrain your memory. The problem with having a permanent headache / mental lethargy / prescription drug haze is that your concentration can be a joke. My wife will be chatting with my and I lose the thread almost immediately as I can't soak it in lol.

Thank a lot Louise :o) love Shobs xx

Meant to say,when you are okay, come in green room we leave messages in there, some are silly when written by me lol But it is a good place to vent or let off steam or ask questions if needed xx Take care JM Win xx

Hello Sharlau - yes, sleep is still eluding - it is quite scary that he is able to go on about day-to-day (albeit grumpy and very tired) The yoga session that we have signed up recently, i am hoping will continue to help us! Love Shobs xx

Sure Tina - it is comforting to see many similar experiences, so i feel far less panicky and very much positive love Shobs xx

Hello Michelle, Thanks for your lovely words. He has now slowed down a bit at the work front and properly listening to his body . It is visibly helping him a lot. We both went for a 1.5 day yoga session and it has significantly improved our state of minds. Thanks Love Shobs xxx

Thanks for the response Winb, you seem to have a fantastic attitude to the S word! I sing too! How mad is that?! I am a big musical theatre fan. I always have been ever since I saw Mary Poppins in the 60's I think! Luckily my daughter is now at the top of the musical theatre game and is appearing in Carousel at the London Coliseum with Alfie Boe and Katherine Jenkins! The trouble is that the songs in musicals always become earworms to me and often keep me awake at night. Whatever you do be careful if you ever go to see Half a Sixpence! It's amazing but the songs get stuck in your head! Hehe. All the very best to you. JM

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