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Sharlua

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  • Content Count

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Sharlua last won the day on May 28 2016

Sharlua had the most liked content!

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About Sharlua

  • Rank
    Established Member
  • Birthday 14/03/1959

Profile Information

  • Gender
    Female
  • Location
    Newcastle upon Tyne
  • Interests
    Gardening, reading, baking, nights out, cycling slowly!

Recent Profile Visitors

785 profile views
  1. Belated wishes Michelle hope day went well with Jan and very poignant posts shows strength of character x
  2. Hi Darcy I guess you both must be worried but it does sound like he is making some progress. I was off for six months and returned with a phased return for a month. It was really hard as I was in a stressful job in Social care with high responsibility. I appreciate that husband will feel pressure from this as that is not a long time, I am not sure if financially he has to return I certainly had to. Can he negotiate reduced hours for a few weeks or take holiday. I know from my son who lives in America that he does not get as much holiday/leave entitlement. My headaches were bad in the first months and worsened initially when back to work, hopefully they will ease. He needs to keep hydrated as this is really helpful. It is very scary having surgery but I am sure this will be okay but make sure you check everything out with the medics. Dont be afraid to ask family for more help, I have caring responsibilities as my mum who lives with us has Alzheimer’s so it was hard having this too. Let us know how you both get on Sharon x
  3. Hello Darcy, sounds like your husband has had a very tough time, it is very early days in his recovery. I guess the complication of the DVT is an added scare too. I had an aneurysm SAH with coiling unlike your husband and not too many complications. In the first few months after the bleed I had headaches and a lot of weird sensations. I also suffered terrible insomnia even though I was exhausted. This I felt contributed to headaches and feeling light headed. I am aware that other members have had problems with sight and dizziness so may be able to offer advice on what helped them. I do hope you are looking after you too as it very traumatic for our families who have to bear the brunt of caring together with the worry about the loved one. Your husbands recovery maybe slow but I am sure your support will be a great help. I do wish you both well and sure others on the site will share their stories which may help. Regards Sharon x
  4. 14 year Anni-versary and your post clearly defines what an excellent life you have made and faced all lost through this event in such a positive manner. Long may your travels continue and oh a cleaner would be wonderful xx
  5. Welcome Joel and great to hear of the progress started by your wife. Whilst my bleed was nowhere as serious as your wife’s I still had memory loss and often repeated myself. It is a significant impact to our cognitive functioning and whilst mine has improved I still have issues mainly on my short term memory. It is very early days and I am sure slowly she will recover more recall but your support will be vital in this. I know my husband required a lot of patience with me as my emotions were all over in the first few months, I was frustrated and embarrassed about my memory or mix up of words and found this really hard when I was phasing back into work. By celebrating the progress she has made which is significant and providing gentle understanding reminders I am sure this will help your wife on her recovery journey, just go at her pace. Look after yourself too as must have been a traumatic time for you. Sharon
  6. Welcome Dotty and sorry to hear about your Dad, it must be very scary for all the family particularly as he is relatively young. I had anuerysm which was coiled and much lighter bleed. As Daffodil has so wonderfully explained there are bleeds where they are often not sure of origin so treatment often cannot take place. Even when they are anuerysms it is dependent on where it is on whether it can be coiled or clipped. I am sure if at this stage it was an option they would do. With relation to confusion if you think of your brain having pathways to pass messages, recall memories, process information and help everything function a bleed can play havoc with those pathways so what comes out is often mixed up, hopefully as they recover or the brain compensate by finding new routes there will be less confusion. I am sure having your support will aid that recovery, it maybe slow and result in changes but I am sure each day will bring some element of healing. There maybe hiccups on this journey, there definitely was in mine as you do have an emotional rollercoaster with good and bad days. Make sure you also take care as it is a hard journey for families too. Wishing your dad all the best. Take care Sharon x
  7. Oh so pleased that everything has gone well, you must be so relieved. I hope BP stays stable and he recovers well. Hope you manage to relax a little as must have been very stressful for you and rest of family. Take care xx
  8. Welcome Rachel, sounds like a pretty tough time, I was lucky in that my hospital had a support group running monthly which helped in the early days as I remember feeling quite alone after the intensity of hospital. My GP was lovely but knew very little about it, and as bleeds impact on each person differently it is difficult to have a one size fits all approach. I think the emotional impact is really not well understood and fatigue and memory issues have more impacts than is often recognised. My first follow up appointment was six months after the coiling, where I had MRI scan, I then saw consultant a few weeks later who discussed results and showed me my scans. I would guess follow ups maybe very much quicker if they have any concerns or the impact from the bleed requires more aftercare. We have a wide range of members and their partners who can provide support and whose experiences I found really helpful, particularly in my early recovery months. i look forward to hearing how you get on and wish you well. Regards Sharon xx
  9. Welcome Clara, hope you do seek advice as others have suggested. I had lots of terrible aches after my SAH and coiling, my legs and feet were really bad. I also had shoulder pain which was found to be unrelated and was a frozen shoulder which later developed tendonitis. I had real bad heads and some awful crawling sensations in head, It is extremely early days for you and after this shock you are naturally worried, this does take away your belief in being invincible. You may have to let others be strong for awhile I certainly had to do this for a while. Please never think you are a nuisance to your medical staff better be safe than worry needlessly. i wish you well in your recovery keep us updated and members here are a great support. Sharon
  10. Will certainly keep fingers crossed that all goes well x
  11. Hi Jan I went straight into menopause at 44 after hysterectomy as they thought I had cancer. I was shocked by the symptoms that followed and the depression was awful, hormones definitely do impact on your emotions and mood, I was bad tempered, tearful and hysterical all within an hour some days - husband was very patient?. I was given HRT it worked initially but only stayed on for a year. I hope your appointments help you get the right support, it is very easy to blame our heads for everything but I guess we are not immune to other ailments. Good luck x
  12. Well done for making it through that first year you have achieved so much. I hope fatigue does gradually get better and I know sometimes over two years later I have a sudden pain in head and freeze thinking is another SAH. I don't think it will ever leave I just manage it better. I wish you much luck for the future Sharon xx
  13. Welcome Wayne and pleased to see you have found us. Very early days in your recovery and as a SAH is such a shock it does bring about some rollercoaster emotions and physical impacts. I had a SAH over two years ago, luckily mine was coiled but it took a good six months to feel slight recovery and probably this year to feel more like my old self. I had time where I felt I hit a brick wall my memory in early days was terrible, still not 100% but I now don't get so embarrassed by it. A illness like this does impact on family and sorry that has led to family taking advantage, hopefully as you recover more you will gain strength to challenge this. I do hope you have some support as it is vital, this group will be happy to share experiences and provide a listening ear, sometimes it is hard for others to understand the trauma of a brain injury. i wish you well in your recovery and link forward to hearing more from you. Alaska is definitely on my bucket list to visit but not I guess so close for medical emergencies. Take care Sharon
  14. So sorry to hear how you are feeling Jan some excellent advice from others. I do agree perhaps go back to GP or seek some counselling/therapeutic support independently. You are not unlike any of us who have hit brick walls at different times and where families fail to understand, often this comes out in anger and arguments. Remember dealing with loss is a journey where you go through many emotions often swaying between them all, SAH has seen such losses for you particularly having to give up your business and also loss of some physical abilities. Families and friends often don't pick up signals we are struggling or need their support perhaps you could try writing them a letter to help them understand if you cannot face a meeting. Mine were great at the time of event but after leaving hospital found it difficult to understand my recovery was only just beginning. After counselling I also understood I often gave them very mixed messages and wanted something they could not give, to take away my feelings of depression, sadness and anger. unconsciously I was blaming stress of taking on a caring role for mum, giving up a home I loved and pressure at work. None of these probably contributed to my SAH, I think I was also jealous about life just continuing as normal for them - that green demon does play with your mind. Just remember you have so much more to give, achieve and that things will improve slowly. Perhaps see a life coach to help you look at your strengths, and to explore opportunities you have not looked at. From your posts you have great empathy, sense of humour and good people skills all valuable assets. I am not sure if you have any close friends who can also help, of course we also here to support. I know you will survive this blip, you have survived so much worse. Sharon x
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