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Everything posted by donna79
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hi I'm new in here but have suffered a SAH in april of last year.
donna79 replied to jaffalinda's topic in Introduce Yourself
First of all welcome to Behind the grey hun x x x OH MY GOD x x x You have been through it hun and whilst reading your post it reduced me to tears x x x Myself found it soooooooooooo hard when I first came out of hospital x x coping emotionally with what had happened x x and when I read your post I cant believe that someone can be like that x x When you have been through what we have you need ALOT of support x x thank heavens for your daughters x x and I am sooooooooo happy that you finally have your time to recover x x x (which takes time) I look forward to speaking to you more and reading your posts x x x positive thinking and forwards is the only way x x x x No looking back lots love donna xxxxx -
Headaches...do they get better?
donna79 replied to Vicki Hobbs's topic in Subarachnoid Haemorrhage Discussion
Like Sami says everyone's recovery is different x x I find I suffer with headaches more when I feel dizzy, tired or over done things x x Hope you are feeling well and that the headaches ease for you very soon donna xxxxx -
Hi All, I know I have posted lately about me feeling really dizzy x x I have been to the doctors ALOT and they just seem to try different meds (I have now tried them all) and they cant do anything for me x x I am trying to figure out if I have to live with this x x Symptoms Dizzy Feel sick Headaches fuzzy head spinning feeling whooshing around in my head weak feeling in my limbs Room spinning Walking like I am drunk (when I am not) I am finding it really hard to work with these symptoms but like most of us I need the money,,,,,,,,bills to pay I don't know what else to do x x who to turn to x x x and keep thinking the worse (like I do) so that does'nt help me x x x Is anyone else suffering with this or have done in the past x x I know if something bad was going to happen it would of done x x x but like you all know i am a worrier x x I thought about asking to be ref to a neurologist or if there is anyone else who could help me but I don't like wasting peoples time, also to see if i can have my MRI scan earlier (I am due to have it in April 2013) I know I am rambling on now x x But just wanted to know if anyone has any advice on what they think I should do or could do if they are or have been in my position x x thank you all for taking time to read my post donna xxxxx
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What were you doing when your aneursym burst
donna79 replied to Scoobs's topic in Subarachnoid Haemorrhage Discussion
On Computer doing course work x x But I find my laptop a comfort now funny enough -
Ty all, I have been feeling really dizzy/spinny again today, thats been a week now. Thankyou all for your advice and help it really does mean alot to me and I take it all on board. Kris I will give your techniques a go x x x scared though because the thought of doing them whist feeling dizzy seems like it would be worse but I need to do something its rule my life for a week now.... I have meds to take for two weeks and if I am no better I am going back to docs again (feel so paranoid) I am 4 days in now x x x so fingers crossed x (not working so far) love to all again donna xxxxx
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Hello all, Thought I would post this really to get advice and see if anyone else suffers like this x x A week ago I became really dizzy and needed to lie down, felt so dizzy I felt sick x x started to cry (which I know does not help) saying why me why cant I just move on from all this x x My sah was 4 years ago x x x Now a week later I still feel rubbish x I have been to doctors and he said it is some sort of ear infection and it can effect alot of the body he called it something beginning with L x x I have headaches and pains in my eyes x x back ache all down my spine and around my neck x x it feel like my head wants to explode and I just dont know what to do I sleep and I still feel dizzy I have been feeling like this for a week and also when I stand up feel like I am going to fall or black out x x x I keep thinking what if it is this or that x so someone tell me how every ache or pain I have do I think I am having a sah or there is some complications x x I really want another baby but really dont feel strong enough when I feel ill now x x x I want to go to work and come home and be a mum x x normal life x Does anyone else ever feel like sah rules each day ? x x This happened 3 weeks ago also causing me to have time off work again x Also a question for the ladys what do u feel like when it is the time of month x x Sorry to rant just dont know who to talk to x x lots love donna xxxxx
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Ladies question...pregnancy
donna79 replied to Juliette's topic in Subarachnoid Haemorrhage Discussion
I am so glad that this thread has started I dont know why I didnt start one myself really (no I am not pregnant) but having another baby is something big on my mind and I really want another but so worried only because lately I have been feeling so dizzy and having stiff neck and back x x I wonder how I would cope if I had these feelings and was pregnant too which I can remember last time I was sooo tired so I will have that on top of my fatigue I have now x x I speak to Jess alot about this and she has given me alot of advice of what she would do and I always think this is the best form of advice because that is always my moto "this is what I would do" because everyone is different.....ie fatique and emotions and have very strong ones of these and i know when/if i ever had another baby these will be my main worrys x x I had a c section with my last one and I have requested if I could have another again x x they say yes because I have had one before and because of my health history x My neuro team just told me to get on with my life has normal and this included having a baby (wish it was that easy) It is so lovely seeing a few pregnant people on here and i am sure you will be able to support each other and hopefully me one day x x x CONGRATULATIONS - I have a moto that everything happens for a reason x x lots lots love donna xxxxxx (god i do go on lol) -
Well hello all x x x I am still here x x x what a strange experience x x x cant even remember going under x x just remember anithetist doing tricks hehe and then waking up to a man saying my name x x which was a nice surprise ..... I stayed in hospital over night and came out yesterday about 7.30pm x x I have been to see the nurse today and had my dressings off and hope to have a shower later and get in bed x x x Thankyou all for your well wishes x x x and thankyou louise for my card x x x love to all and i will keep you all updated x x donna xxxxx
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Hi all, Been a while x x think i have been loosing track of my life working 30-40 hours a week x x my husband is a slave driver and believes keeping me busy stops me thinking x x I am having my gall bladder out on Tuesday and nervous is not the word x I am petrified x x SEDATION what if something goes wrong, what if I dont wake up.........all running through my head x x x god knows what i am going to be like on the day x x thankgod i am first on operation list x x x My head really hurts and i feel sooooooo dizzy and sick.... Has anyone ever had sedation since their SAH x x x I cant even remeber what it was like and dreading if i have a panic attack x x x I hope you are all well and smiling lots love donna xxxxx
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Hi all, I have a date for my operation to have my gall bladder out and to say the least I am sooooooooo nervous, I have been through worse than this and come out the other end BUT this will be my first operation since SAH and I am dreading being put to sleep. The last time I was sedated I woke up to tubes everywhere and my head half shaven, I am looking for ANY advice anyone can give me so I can keep calm. aNYONE BEEN SADATED SINCE sah X X I have tried to loose weight and lost 1 stone so far so hopefully this all gpes towards the risk factors x x x (1 day I will be thin) I have had a few bad days of feeling really dizzy and a headache that will mot go grrrrrrrrrrrrrrrrrrrrrrr x x I hope you are all well and that 2012 is treating you well so far x x lots love to all and any help grateful donna xxxxx
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Hi Jilly, Huge welcome to btg x x look forward to hearing more from you x x x x x love donna
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Hi David, yes i do suffer in heat x x x one of my main factors that sets off panic attacks x x i have 2 fans at home x x and even these cold months i have them on if to warm x x in shopping centres is worse i avoid them at all costs x x x people rushing around, head spinning, and red hot x x I run for air con hehe x x love donna
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Hi Janet Sorry to read your having a tough time x x I think a few of us are feeling it lately x x I also have a headache, feel dizzy and resulting in feeling/being sick x x Its so hard to just get on with life when feeling like this x x I get through by focusing on this is just a rough patch and I will have good days again x x even though i am on my 6th day of feeling like this x x and trying to get out at least once a day helps x x fresh air and in my words keep you sain only so many days I can take of looking at 4 walls x x The good days are just around the corner hun hang in there and keep smiling x x x a smile a day keeps the doctor away in my moto x x lots hugs donna xxxxx
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Hi Kate, Welcome to the family and look forward to hearing more from you in the future x x I find talking is the best source of medecine and we are all good listeners x x x donna xxxxx
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H Sandi, Karens right always get things checked out x x x I have been/have still got the same problem has yourself and lately my head just doesnt feel right its hard because I want to get through these feelings without going to the doctors (feel i spend most of my life there with paranoyer) but then i think i need to deal with these sensations on my own otherwise i will never recover from my anxiety x x x I will mention the sensations when I am next getting my BP checked but they never seem concerned x x x My previous doctor did say to me that my ear problem would more than likely happened even without me having a sah x x (not everything is related to sah) I always find I feel worse around my period (sorrys guys) my head plays up more for about week i'm on and week after x my doctor put me on some tablets for a bit for my ears which i now have finished and they did help so sandi if its annoying you get it checked x x all my love donna xxxxx
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Hi Guys, Well today I phoned the hospital to inform them of my change of address and number and spoke to the neuro nurse x I asked when my next scan is and its on April 2013 x she said that they want to keep an eye on the neck on the annie that I had coiled April 08 x I knew I had a small opening but then I heard the word neck so thought I would post this x I have been having alot of headaches lately and pains in my eyes and with hearing this I now feel worried x AGAIN x The nurse also told me that if there is any change then they would operate :confused: This is all a suprise to me x x BUT I have come this far so I know I will be ok x I have to be for my family x x Does anyone else have a neck on their anni ??????? what was you told about this ??????? love to all donna xxxxx
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Bay, Let me know how you get on hun x x x god bless mother nature hey x x love donna xxxxx
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Hi Ian Welcome to BTG x x x look forward to hearing more from you in the future x x take care donna xxxxx
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Karen - I am having my live love laugh tattoo x x not sure where yet :confused::confused: Jess - I am going to TRY and do this re-focus and move forward x x (not easy with my ears playing up alot - but will try) I will try anything if it helps me x x onwards and upwards x x its my fear of fainting that is slowing down my recovery so I am going to try and ignore it and see if it helps x x x love to all donna xxxxx
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Hi Fiona Welcome to BTG and a big welcome to the family x x 3 weeks in and you are posting that is fantastic x Headaches and fatigue are very normal at your stage x I have a 4 year old (1 1/2 at the time I had my bleed) and it is VERY hard work trying to look after yourself and little ones x x rest when you can x x its fantastic that you have family and friend support x x look forward to hearing more from you in the future x love donna
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Jess - I understand your advice and I must say the words have stuck (and not many do ) I dont think I will be trying for a baby this year :confused: x I am just soooooo broody and really want another person in my life x x but like you say I need to get myself on track and move forward x x I am moving home and job and think that it is a good time for me to do so x x onwards and upwards x x x just hope the bad days dont drag me down to far I can tell myself and pick myself up but sometimes its just so draining x x I dont think it hel x ps that I have quite a few personnel past history to deal with it just all goes together x x but I know I can get through it and I am sure when it is time hopefully I am lucky enough to have another child x x Jack keeps asking also for a sister x x if it was only that easy hey x x x I hope you and your family are well x x keep in touch x x love donna
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Hi Bay, SNAP I have had a REALLY bad period this month and the thought of fainting is my biggest fear it even leads to massive panic attacks x x and like yourself this month I nearly phoned for a paramedic but I just thought I cant phone them everytime I feel weak and feel faint so agaion like you I just went to sleep to wake up feeling 10 times worse x x I am only 31 and want another baby (which aqlso worries me how I will feel) x x I dont want to go on the pill or anything like that because I am trying to loose weight and I know I will just put even more weight on if I did x x some months I feel fine but some are like a nightmare and like others takes over at least a week of my life x x x I am moving doctors soon and going to talk to them with regards my periods so will let you know what they say x x keep smiling donna
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oh and did your tattoo on your neck hurt x x x
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Guys you are all amazing and your words mean the world to me x x x Karen - The low times are so horrible and come with no warning x x coming back off holiday wont help But like other guys say try and keep yourself busy (difficult with fatique) x x I am trying so hard to come off my anti-depressents because I want a baby and the ones I take are not good for baby x x going to cut down to 10mg when I have moved (Doctor Knows) and I know I will have to fight the bad days x x x x you are doing fantastic x I wish I had the guts to fly for a warm holiday but between you and btg I am soooooooo scared x x I think I just keep putting ideas in my own head x pressure on the plane and what if I have a really bad panic attack that I struggle to cope with x x x so maybe you could inbox me some hints x x x I really do hope the good days are here soon its horrible feeling low x x x TC hun and stay strong x x love donna xxxxx
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Thankyou for keeping us informed Karen x x x x x
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