Members that have had a non-aneurysm SAH?

[Karen]

Would be grateful if all members that have had a non-aneurysm SAH post on this thread and let us know who they are ....

I'm sure that it would be helpful to other members that have experienced the same, to realise that they're not alone.

Thank you..... xx

[kellieone]

hi mine was non aneurysm xx

[Cal]

Hi,

Jim also suffered a non-aneurysm SAH.

If you have any questions, let us know.

Cal

XXXX

[SamB]

Hi All

That'll be me! Bit of a newbie, so not much to contribute as yet!

Nice to find fellow members with the same problem - main gripe so far has been lack of info about this type of SAH.

All the best

Sam x

[Ann]

Hi all, mine was non aneurysm too.

Ann

[sue]

Hi everyone,

I had my non aneurysm SAH on the 31st December 2006.

Love Suexx

[susieb]

I had my Non-Aneurysm SAH stroke on January 29th 2008 - and it has taken nearly 2 years to get back to some "normality". My SAH was "an unfortunate accident" probably brought on by stress, or so I was told by my consultant. It came out of the blue, I was healthy 45 year old but It certainly was a life-changing event being so close to death. I am looking forward to putting it behind me, drawing a line, and getting on with my new life. The depression has lifted but I still suffer with fatigue, dizzy spells, not in a head-spinning way, but as if my balance is not quite right, or like I'm walking on the deck of a ship! Anyway it's getting better (they warned me it would be a long, slow journey) along with the fatigue and the weak leg. The fear of having another haemorrhage, however, never leaves me, and probably never will. I would love to meet up with people in Hertfordshire if possible. My bible is A Dented Image by Alison Wertheimer - a great read which has helped me through my recovery, I would thoroughly recommend it to all survivors.

[Janet]

Hi Susie

A warm welcome to you and thank you for telling us a little bit about yourself. We are a friendly bunch on here so any questions feel free to ask look forward to hearing more from you soon.

[Helenm]

My non-anuerysm SAH was on 22nd August 2009,

[melbury]

My husband suffered a non-aneurysmal SAH on 27th July 2009 and I think that I am more scared of it happening again than he is.:redface: Neither of us had every heard of a subarachnoid brain haemorrhage before.

[Ann]

Hi Susie B . I have pm'd you

Ann

[Jod-Dee]

I had my non-aneurysm SAH on Oct. 23, 2009. I am glad I found this site because I have found out 100 times more info through my own research than from the doctor I had while in the hospital. It seems universal that the doctors have no bedside manner. Is it because we are usually unconscious or incapable of talking while they look us over? lol. Not only does this subject involve our grey matter...it also seems to be a "grey area" with a lot of questions left unanswered or at least not fully answered. Hopefully some of my frustration in dealing with all of this can be relieved with info I get from other people's stories. Previous to this happening, I was not a very patient person and I am assuming that it is a skill I must acquire while recovering? I guess this is one big wake up call to live in the moment, and to stop and smell the roses...

[Ann]

Hi Jod Dee.Welcome to the site. A great first posting re the use of grey, thoughtful and showing insight.Do not think my grey matter was functioning quite so well just one month after SAH,or even at any time since, you must be doing well!

Patience is something that I too have in short supply but it is a useful virtue to have post SAH so try to see if you can find some from somewhere.

Look forward to hearing more from you.Any questions just ask.

Ann

[anneec]

Hello all

Mine was a non-aneurysmal SAH too. May 2007. I think we are lucky not to have needed an op etc., though when we don't have a definite cause it can be worrying. I have put mine down to lifting an extremely heavy bag of compost a few hours before it happened.

Lucky to be here and able to go on the computer. Reading all the stories of peoples experiences really put things in perspective. Cried reading some of them. I am the eternal optimist, have had times over the last two and a half years when I've cried for myself but seem to be out of that now and well on the way up.

Good luck to you all

Anne

[Aakki]

Hi to everyone,

I found this great webpages, when desperately seeking for information about the SAH without the aneurysm or without any other detectable reason. These pages have been a huge support for me, beside the great support from my beloved ones.

I had my NASAH ( nonaneurysmal sah) jus two weeks ago on Saturday evening 07.02.2010. Only thing I had was a terrible , sudden headache and a bit sore neck.

They couldnt find any reason for my SAH, not in CT, angioCT neither MRI. I was not operated and I stayed 6 days in hospital resting in bed , without need for any medication. Dr. prescribed me 1 month out of my work-studies, I should return back 08.03.2010.

I am 42 yrs old woman with healthy lifehabits ( at least I thought so) and happy, loving relationships . Previously healthy, regardless mild subclinical hypothyreoidism. Yes, admitting to have somekind of stress from the work/studies due to the few reasons: beacause of my own nature, who wants to do everything always so 101%( instead of 90%) and cant give up easily. But to be honest also, because unsatisfaction about the quality and the quidance of the specialising studies .

It has really been a life stopping scary experience. I cant say how thankful Im to be alive. I would like to hear from you who have experienced the same, how have you copy with this schoking experience? Has anyone of you get a new SAH afterwards ? Have you been previously healthy and perharps under a demanding tasks and stress?

When have you been able to comeback to the normal life: doing sports and the other things which make youre hearbeat faster ?

Its -15 degrees and lots of snow up here in North. I wish everyone of you nice sunny, winterdays ,where ever you are. Nice to know, that im not alone.

Best wishes

Aakki

[Ann]

Hi Aaki and welcome. I had non aneurysm SAH too and you will see my posts on here if you click on my profile. Mine was two years ago and I now feel I am probably as mended as I will ever be if that makes sense! It took much longer to recover than I anticipated and you will have to be patient and perhaps return to previous lifestyle in a very controlled, slow way. Tiredness and neck ache were my main problems for many months but we are all different and recover at different ways.

I understand how diificult it is to find information about our type of SAH. Any questions you have just ask. All the best with your recovery

Ann

[Aakki]

Hi Ann,

nice to hear from you. I am glad to ask the questions, but if you feel not to answer them all, I will understand that too.

Did you ever make a control angio or MRI or CT, to be really able to exclude the aneurysm or congenital vessel malformation? Could they ever find a reason for your sah? When you now look back, did you feel that you had stressload before Sah-happening? Or do you have yourself an idea about that, what could have caused the sah?

I understand that we everybody are different individuals in recovering, but when did you were able to the do the normal things again? Im unsure when to go jogging again, when to have a wineglass with my friends, when to be able to jump into the cold water after sauna and when to have a nice intimate times with my spouse.......and....and.... all those nice things what life offers .

I havent had headache since my sah happening in that eve. Once a day I still feel a momentary painlike feeling in my head, in left temporal, in the place where the hemorrage happened and sometimes behind the left eye too. For how long you were out of work?

Im so happy to hear that youre better than ever and back in life again. Life is a great thing!

Hope to hear from you and lots of thanks for your help.

- Aakki-

[Jod-Dee]

Hi Aakki,

Sounds like our stories are very similar. I, too, had an Non-anneurysm SAH that came about for no apparent reason. I was not doing anything strenuous or had not had any recent trauma. I also had an extreme amount of stress in both my personal and work life. (I often wonder if the stress is what caused it, or if that is even possible? Haven't come across anything in all my searching that mentions stress contributing.) I had the huge, bad headache when the SAH happened, then another one a week later when they did the contrast dye angiogram. My SAH was also in the left temporal lobe. Other than that, there has been no real side effects, beyond sometimes taking a little bit longer to recall peoples names or searching for the right word that just won't come to mind immediately. I had a CT scan with contrast dye in the middle of January, and it came back as no more bleeding to be seen, and no aneurysm to be seen. So I am one of the lucky ones (like you, hopefully) who do not need surgery to repair it. I would say though, that it was almost 2 months before I could start doing anything that was too strenuous, like exercise or use my sauna. I figured that the sauna would increase my blood pressure and could contribute to a headache. I went back to work after 2.5 months, but my job (now) is not very stressful or physical. They say to wait at least a month I think before you have any alcohol. I found that it would give me a headache/hangover after just one glass of wine! Generally speaking, for me, I felt pretty much back to normal after about the 3 month mark. Even though I want to exercise like before though, I find I still get tired somewhat easily, but at least there are no more headaches for an after-effect. Like everyone says...your body will tell you what you are capable of, and it will tell you when you need to rest.

[Ann]

Hi again

I had a CT, MRI, MRA and catheter angiogram and still no aneurysm was found. I took longer to recover than Jodee, well done Jodee, I suffered from pain behind my eye for many months and got very bad neck ache too whenever I got overtired which was frequently as I was determined to get back to normal as soon as possible so pushed myself too far. Although I could work for a few hours a day after a few months it was a year before I could do a full day and even then I could not do a full week but as I said, we are all different.. If I could go back in time I would be more patient and let my body dictate the speed of recovery rather than try to rush things. I know now that the eye pain and neck ache meant I should rest straight away rather than carry on and end up in bed for a few days feeling dreadful! Just take your time and you willl recover better.

[Diduck]

Hi All

I had my SAH on 1th February 2010 whilst walking to work. It was a very cold morning at -5 degrees and I was walking to get fit and slim for a wedding where I will be a bridesmaid. I am 52 years old and have a stressful job, especially during february/march as it is finance related.

I had the typical thunderclap headache which almost floored me and was then left with vomitting, stiff neck and photosensitivity.

I only went to hospital 5 days after it happened as I thought it must be a migraine though I have never had a migraine or even suffered with headaches before

CT, CTA and angiogram all showed nothing though lumbar puncture and symptoms confirmed SAH

I had MRA on easter saturday but do not see consultant until 21 May for results so life is in limbo waiting for explanations and hopefully all clear then I can kick on with my life again

I went back to work, only reduced hours, two weeks ago and feel quite well generally

I am more tired than before the SAH and definately more emotional, crying very easily. I have clumsy moments and tend to drop things when tired. Also more jumpy than before so the "flight" part of fight or flight seems more accentuated. Must be a self preservation thing

I feel extremely lucky to have got through this but I also feel a bit of a fraud

I look the same, in fact probably better due to weight loss, than before and so everyone seems to think there is nothing wrong and they appear to wonder why I have been off work two months.

Or is that just me feeling guilty???

Anyway it is wonderful to read other peoples experiences and it is so helpful and encouraging

Thank you all

Di xxx

[JayKay]

Di - I could have written that post!! I had mine on 10th Feb 2010 in the evening (!) and was transported to Queen Square when you had yours.... I was also in a VERY stressful job. In fact, I could have lost my house over this so am seriously thinking of suing IF a link can be proved. I shall wait to see what the neurosurgeon says.

I too feel a bit of a fraud. It's hard to put into words though, but I really understand you!

Ann - I'm in Herts but I don't have a car We could hook up some time!

[rod123]

Hi Di, (poetry) and welcome,sorry to hear of your illness, I've never had an sah i am a carer for my wife but must be very frightening for you when it happened, hope it all get sorted when you get to see the consultant on the 21st, Good luck with your recovery Rod

[LUISA]

hi Di, ´wellcome to the site

most of us apart from the sha also had aneurysm (will never be able to spell this word popperly) coilling/craniotomy and side effects etc. Glad to hear you are recovering well but anyhow you will find all of us will recomend you take it easy and let your brain tell you when to stop

all the best

[Ann]

Hi Di and welcome. Recovery from SAH with no aneurysm is very similar in all respects to with an aneurysm so take care and take each day as it comes, keep on the reduced hours and dont beat yourself up if you have bad days when you feel you cant cope. Keep up with the positive recovery and enjoy life!

Ann

[Guest federalstreet]

Hiya

Mine was a non-aneurysmal SAH - I was assured by my doctor of the following:

1) I didn't do anything to cause it

2) I couldn't have done anything to stop it

3) He has NEVER seen anyone have two of them.

I am really finding this forum very encouraging

k