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What are the odds of this happening


janevo

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Hi, Am just waiting to go back to the hospital to see how my husband is. He had a mini stroke on thursday evening but we were sent home. He had another one yesterday and on the way back to the hospital he had a few more in the ambulance. They did a CT scan and have found he has had a small bleed. We are just waiting for the neuro surgeon from stoke to get back to us with regard to the treatment - if any. The weird thing is that his bleed is in the same place as mine was 15months ago. I can't believe that this is happening. He is not in any pain and is chatting away as if nothing is wrong which is great. It just affects his speech when it happens. Just going back to the hospital so fingers crossed for good news. x

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Good morning Jan - What a scary thing for both of you! I hope the hospital keeps him there until they figure out cause of the bleed and what's happening with the little strokes!!! Wisihing you well and keeping you and your husband in my thoughts. Please let us know, as you're able, how things are going.

Hugs,

Carolyn

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Hi Jan,

I am so sorry to hear about your husband and hope it all turns out well for him. My little boy had to undergo brain surgery in January & I felt the same as you - how can this be happening after what happened to me? The positive (if you can call it that) is that you will be with him as he recovers and, like me, you know exactly how they are feeling emotionally and with fatigue etc. Having someone who completely understands will be a huge benefit for him as he recovers.

Best wishes & good luck to you both.

Michelle xx

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The coincidence is startling.

I am glad that he is chatting however and seems of himself.

One thing is for sure, he will have an excellent counsellor in you. How fortunate he is, that he will be able to seek guidance from you as to his feelings. It is bound to help him.

I daresay you will both develop a stronger understanding of one another given that your experiences have mirrored each other so much.

I hope you're ok and that you're husband is as settled as possible.

L xx

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Hi, thanks for your thoughts. Hubby is doing really well. He's back to his normal self - still in hospital but not on any meds. They've taken him off his warfarin (he had a DVT and PE 10 years ago) so they have to decide tomorrow what the risks of a re-bleed are with the warfarin or a clot without. Hopefully they will let him come home as I'm really struggling with driving to and from the hospital- it's 25 miles away. Feel awful complaining about how I feel but I know you all understand where I'm coming from. Sandi - he's not been on any painkillers - he's just not had any pain at all.

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Don't feel that you are complaining, you are simply pointing out that a 50 mile round trip is difficult for you to manage.

Being stressed is a tiring experience for us alone, I am not surprised that the journey to and from hospital is taking its toll too. Are there any family members / freinds who can assist with some journeys?

L xx

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Hi Jan

That is shocking that he is suffering a bleed in the same place as you. But it is amazing that he is not in pain and is his usual self.

The 50 mile round trip must be very tiring for you and we all understand. I agree with Lin's idea - any family/friends who can help with the driving?

Fingers crossed hubby will be okay

Kel x

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Had a really bad night - couldn't sleep cause of numbness in my arms - i'm ok now but feel really low. Think the last few days are just catching up with me. Lin/kel - I'm not at home at the mo cause this all happened while we are down at the caravan but i have text my sister today and asked her to come over as i am struggling. I've been trying to manage on my own cause they were all really supportive when i was in hospital and I didn't want to bother them again. My daughter came down the night he was admitted and once she knew he was ok she had to go home to the children.

As has been said lots on here, we look ok so everyone assumes we can cope with everything. Someone actually told me on saturday that we were attention seekers - had to sit on my hands so that I didn't hit her. Can think of easier ways to get attention. Rant over!!

Just waiting for my sis to arrive.

Jan x

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Jan,

Awww - I'm sorry you've had a bad night! I imagine with everything you've been dealing with since Thursday (and incredibley rude and uncaring people making horrid comments :mad5:) your own sysem isn't working so well right now. It's a lot to have to deal with, hon, and you're doing the best you can! So glad to hear your sister will be with you soon, to help you through this. Hopefully the dr.s will get your husband's medications sorted soon and he'll be able to come home.

Keeping you and hubby in my thoughts,

Carolyn

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Jan,

My Sister was always up the hospital when I was down and out of it ...That's whats Sisters are for, they love us ...don't worry

your Sister will be happy to see you and boss you..... lol joke.

Thank Goodness For Sisters xx

Love

WinB143 xxxx Good luck to you and hubby

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  • 2 weeks later...

Hi, well it's 2 weeks and 3 hospitals later and still don't know what is wrong with hubby. Shrewsbury thought it was a TIA and discharged him after 5 days so we returned home to lancashire with copies of his CT scans to give to our GP. He arranged for me to take them to Walton Neuro which I did last wednesday. On thurs morning he was rushed into our local hospital and they gave him meds for epilepsy and sent us home. On thurs evening he took a turn for the worse and was admitted to aintree hosp. He is ok in himself but his speech is affected and he finds it difficult to speak. We are now waiting for him to be transferred to the neuro centre when a bed is available. Tomorrow he has a lumber puncture. He's had ct and MRI scans and they still don't know.

It's our 33rd wedding anniversary tomorrow and we were hoping to spend it on a beach in the sun but hopefully we will have good news and they'll be able to give us some answers.

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Hi Jan,

It's bad enough that your husband is ill, even worse to still not have any concrete answers 2 weeks later. I hope you get some answers tomorrow so you both know what you are dealing with. Best wishes to your husband, it must be very scary for him just now.

Happy anniversary for tomorrow. Try to make some nice memories of the day to share when you are both fit & well next year on your 34th!

Take care, look after yourself too

Michelle xx

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Jan! I'm so sorry to hear things haven't been resolved at this point. I'm sure it must be incredibley frightening for both of you having to deal with the unknowns right now. You've been through the mill and back again. Hopefully the lumbar puncture will bring diagnosis and correct medical care. Obviously not the way you want to spend your wedding anniversary - I really feel for you, hon. I'll keep you both in my thoughts and prayers - for strength and good outcome tomorrow :wink1:

Huge hugs coming your way,

Carolyn

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Hello Jan,

Like others, I'm sorry to hear that neither of you have any medical answers yet.

Good luck to him with the lumber puncture, let's hope it gives the answers needed.

Happy 33rd Anniversary, you can talk about plans for next years anniversary while he has to lay flat and still after the test!

You're both in my thoughts and prayers.

Take care,

SarahLou Xx

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Jan,

Try and keep your chin up....I will keep my 3 chins up if it helps any lol .. seriously though keep yourself well and then you can look after hubby when you have rested. ..............As for the person who said attention seekers..Well put on a crash helmet. and give her a Scottish kiss from all of us ie nutt her in head lol but dont hurt your head j/k ........don't take no notice of what others say.....

Keep yourself and husband well and ignore any nasty comments.....

Always smile and sing when possible.....singing does help sometimes (tone deaf Win here singing and driving hubby potty lol)

Hope all goes well for you both and remember SMILE XX

Love

WinB143 xx

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  • 8 months later...

Hi Jan, happy 33rd anniversary..hope they find the problems soon for your husband.

I hope you dont mind me replying to you and others with my problems. Who know there may be some help we both van receive from someone here or any medics watching may help us both.

If i see anything on any other sites il send you the link.

Its hard Jan, for both you and husband, i know, my wife and i celebrated our 25th anniversary 3weeks ago, but its hard for my wife because im consumed by illness and im not the man she married..

Il keep you both in my prayers and may Jehovah God keep you in his love.

Thank you x;-)

To all other forumites members Hi My name is Dave. Im a newbie on here today.

I am needing any help feedback, as to whether anyone else seems to have or have had recurring stroke like symptoms, 3years after a small stroke.

8years ago, at 39 yrs old I was a senior manager at a large uk ftse company, I then had a massive nervous breakdown.

This was due to 20years of 15hour day 6days a weeks workaholic lifestyle, in business management and also running my own parttime business as well as working for private and public companies.

I was and still suffering with hypertension, high cholesterol, and abnormal heart electrical QT wave signal diagnosed when I was 24years old, due to constantly having heart pain, I underwent stress tests which I couldnt complete and after having an angiogram,it was found that under stress, my heart arteries and blood vessels constrict severely causing me pain.

All this eventually with my high work ethic, caused me to have a breakdown 8years ago, I then was unable to work and fell into severe depression.

3years ago whilst having a nice stroll near the beach at cleethorpes,with my wife i experienced loss of feeeling in my left leg for approx 10minutes and then the same thing in the left arm.

My wife and I laughed it off, wondering what was going off, I also felt unwell and dizzy so we decided to drive back home to Doncaster.

My left side felt weak, so after having a couple of drinks he went to bed early.

The next morning I was unable to get up properly, so my wife came upstairs and noticed i had the drooped mouth and eye on the left side of my face.

I was unsteady and weak on my left leg and left arm, and I had a severe pain behind my left eye socket and was very slurring and unsteady due to dizziness.

Luckily my 24year old daughter who had popped in stated that this looked like a stroke, and the paramedics were called and came out and confirmed hospital treatement.

I was treated for a stroke and subsequent scans and consultant reports within the next 48hrs states scans have shown white changes on the left hand side of my brain, which should have affected the right hand side, and I had no changes on the right hemisphere to cause the left side issues. A conundrum as one specialist called it.

I am on treatment, for the above confirmed illnesses, but ive been told that the stroke type symptoms are due to stress and called functional symptoms and I have been recommended for psychotherapy,but will not be allowed down this road until my depression stabilises.

My grown up children, aged 30, 24 and 21 and myself and wife are getting exccedingly worried, as I am having more of these episodes especially over the last 8-10months.

These episodes are now as frequent as three times a day and sometimes 7days a week, where I suffer episodes of stroke type symptoms, during my sleep, and twice during the day.

These attacks which can be from light to severe attacks are as follows, a light attack feels like an electrical current going through my head to a bad one sometimes precedes with a tingle initially in lefthand side of my face, which then ends with me displaying the symptoms as already described on numerous occasions and literally ends with me sleeping,and my leg and arm feeling like a lead weight, these have been seen by many medical professionals within Royal Hallamshire Sheffield Hospital, Doncaster Hospital, the nurses at the local GP and local CMHT.

Once i have recovered ie woken up after a sleep from 2 to 4hrs, i feel sometimes like I am drunk and hungover for a day or two, and i am unable to walk once these attacks happen and i am very weak on my left side leg and arm continuously.

A heavy attack has the following symptoms,severe pain behind my left eye socket, dizziness, pain in my head, a drooped mouth and left eye and left handside face, weakness in left arm and left leg, unable to walk, slurred speech, tingling in the lefthand side of face, blurry vision.

These attacks whether light, medium or heavy, always ends up with myself being completely fatigued and then my brain forces me to sleep, from 2 to 4 hrs or so.

These attacks happen during my sleep, as my wife is unable to wake me up in the morning and when i do finally wake up, i have the telltale left sided face droop etc, they can happen anytime of the day, whilst im sat watching tv etc. sometimes 2 to 3 times a day for upto 7days.

My memory is terrible, i am unable to concentrate for long periods,i also lose my balance a lot, painkillers do nothing for the pain in head and eye socket its a nitemare.

Ive been tested for bells palsy, ms, but no joy..does anyone have these effects or symptoms after 3 yrs after a stroke?

Im under a neurologists at Sheffield Royal, but theyve put it down to functional symptoms due to stress,..we need help or any info from stroke survivors, has anyone suffered or experienced anything like this...ps excuse the length of this.

I have also been experiencing in addition to the other symptoms, pain in my bones on my left side and back, especially when i retires to bed at night, to the point where we have had to obtain a loan to purchase, a £3000 hospital type adjustable bed, which has not really alleviated the pain.

I have never ever regained the strength in my left leg or arm, this was only a small stroke, due to furred up carotid artery the consultants have informed me.

I am constantly in turmoil over this, feeling very depressed and very suicidal on a daily basis, I just need some answers or other experiences and how they have coped or resolved.

This is affecting my whole family too, in a depressive way.

So 3years ago I had a mild stroke, and since that day, ive been having TIA type attacks near daily. WHY? I need answers and help PLEASE.

Just to confirm, my stroke was not a bleed, it was a mild stroke, possibly caused by a clot from the diagnosed furred up carotid artery in my neck.

My mri scans show white matter changes in the brain left hemisphere and i have been diagnosed as having cerebral vascular disease,hypertension, angina, diabetes type2, reflux, glaucoma, asthma, depression.

I am on medication for my issues as follows,clopidogrel 75mg, amlodopine 10mg, montelukast 10mg, atorvastatin 40mg, irbesartan 300mg,bendroflumethaizide 2.5mg,pregabalin 600mg, metformin 500mg, isosorbide mononitrate 60mg, lansoprazole 30mg. salbutamol and seretide inhalers. Glyceryl nitrate GTN spray for angina. Cocodamol and paracetamol for pain.

The odd times,when im not suffering with these attacks, my left hand side arm and leg are weak, but not as weak as when i have the attack. However after an attack, my limbs are weak for a day after.

In addition i still get the pain in the head or pain just behind my left eye socket, during an attack and also when im not suffering an attack that day.I take painkillers but unfortunately the doctors are unable to give me anything else for the pain, due to my medication, which could cause internal bleeding.

I do get dizzy spells when i have attack and also when im not having an attack.

However im only slurring,or mumbling during an attack, my speach is clear when im not suffering attacks however my wife and children have stated that sometimes i say the wrong words or speak sometimes putting the wrong words that im trying to say, in the wrong part of a sentence, which they find amusing, and i find frustrating and angry with myself for doing that, but i dont have slurred speech outside an attack.

My memory short term is terrible and i struggle to concentrate ie i use to enjoy watching football,but now struggle to watch a full football match.

My vision has deteriorated since the stroke, and my left eyesight is terrible, i have just been diagnosed with glaucoma and diabetes, and they are looking into my eyesight issues with no joy.

I am under a psychiatrist for depression, but nothing seems to be working for me, im on medication, ive been tried on different medication over the 8years and im currently on 40mg of fluoxetine a day. My depression seems deeper since the stroke and i am struggling daily.

I feel like im a pain to the medical profession, and as a previous management and business troubleshooter and consultant who has worked in performance and productive environments and with working knowledge of performance measures within the national health service, i feel im a problem to performance and productivity figures as i am still on the consultants caseload. However these are just my feelings.

I believe the medics feel that the current issues are all in my head and they have called it functional symptoms caused by stress.

My wife and children and finally myself, is starting to think theyre wrong on this, as my attacks are increasing and they seem to take something out of me each time the attacks happen. The only person i could excuse from this statement is my local GP, who is understanding and very GOOD

I need help and answers and im praying loads, please help someone, i feel very suicidal..Doing this is very hard mentally as i am constantly drained,it has taken me 3 weeks on and off to try and compile this email with the help of my wife.

Thanks

Kind Regards

Dave and Nicola

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Get to Docs....do not be fobbed off...even if you print out what you wrote to us and hand it to him...do so ...keep chin up..AND GET HELP...

I do think you should see someone who can help you ie Medical/Doctor and repeat all you have written on here....copy post and hand it to Doc....

Good luck and hope you get some answers to your problems...only medical profession can help you...Good Luck once again xx

Regards

WinB143 xx

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Hi Dave,

Like Win, I think you should print off what you have written down & give it to your GP. If you are feeling suicidal whilst on anti depressants, they should be looking at increasing them or changing them to another one (I'm sure you already know that different kinds suit different people better). I think you said that there may be some other treatment for you once your depression in under control, so this would be a good starting point.

I'm sorry to hear how much you are suffering and it must be like a vicious never ending circle with Dr's saying stress causes the symptoms - having the symptoms so often must also be adding to the stress & depression? The memory issues could well be related to the original stroke as could the muddling up of words. That's something many of us suffer permanently after a stroke or bleed. I find muddling up words, slurring & being dizzy all happen when I am tired (it doesn't take much for me to be tired). I am only pointing those symptoms out as they be left over from the original stroke & not a new illness each time they happen, I hope that made sense? The numbness in your left side is when you have attacks must be very frightening for you and your family.

I think it's really important that you let your GP know exactly what you've said here. Going through the TIA type symptoms repeatedly is not something anyone would manage to live comfortably with.

Good luck Dave. Let us now how you get on.

Michelle

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Hi Wyn, goldfish girl and other kindhearted members.

Thank you ever so much for your caring reply.

I have redone my post and added some information which i had not put in previously, hopefully this will explain a few things.

I saw my GP yesterday, and unfortunately there is nothing they can do, but refer me to see psychotherapist, as the whole neurological medical consultant team im under believes that these TIA or stroke like symptoms, are functional symptoms, maybe caused by stress.

Has anyone else suffered these?

3years ago I had a mild stroke, and since that day, ive been having TIA type attacks near daily. WHY? I need answers and help PLEASE.

Hi my name is Dave.

I am requiring any help feedback, as to whether anyone else seems to have or have had recurring stroke like symptoms, 3years after a small stroke.

With the help of my wife and others, I have compiled this.

8years ago, at the age of 39 yrs. I was a high flying energetic senior manager within a large uk-ftse. company, I had worked for many corporations in a senior position very successfully, however I suffered a massive nervous breakdown.

This was due to 20years 15hour day 6/7days a week workaholic lifestyle, in senior business management and also running my own part-time business as well as working for private and public companies.

I suffered and am still suffering with hypertension, high cholesterol, and abnormal electrical QT wave diagnosed when I was 24years old.

Due to constantly having heart pain, I underwent stress tests which I was unable to complete, after having an angiogram, it was then found that under stress, my heart arteries and blood vessels constrict severely causing me pain.

All this eventually with my high work ethic, caused me to have a nervous breakdown, I then was unable to work and I fell into severe depression, all this was been treated with medication as belpw.

Then 3years ago whilst having a nice stroll near the beach at Cleethorpes, with my wife, I experienced loss of feeling in my left leg for approx. 10minutes and then the same thing in the left arm.

My wife and I laughed it off, wondering what was going off, I also felt unwell and dizzy so we decided to drive back home to Doncaster.

My left side felt weak, so after having a couple of drinks we went to bed early.

The next morning I was unable to wake up and get up properly, so my wife came upstairs and noticed that the left hand side of my mouth and eye had drooped on the left side of my face.

I was very dizzy and unsteady and weak on my left leg and left arm, and I had this very severe pain behind my left eye socket, and my wife states that I was slurring and unsteady due to dizziness.

Luckily my 24year old daughter who had just popped in mentioned to my wife, that this looked like a stroke, the paramedics who came out were shocked that on inspection I had not gone to the hospital for treatment the day before, they immediately took me into Doncaster Royal Infirmary for hospital treatment.

I was treated for a stroke and subsequent CT, MRI scans and the consultant reports within the first 48hrs states as follows;

‘‘ This gentleman’s symptoms suggestive of ataxic hemiparesis, would be in keeping with a lacunar syndrome although the white matter changes in the MRI are more predominant in the left hemisphere than the right and I cannot identify any clear brain stem lesion on review on the PACS today.

Undoubtedly there is some functional overlay component. This gentleman’s presentation is in keeping with his significant history of depression. His signs would be in keeping with a lacunar stroke and I note that carotid dopplers show carotid atheromatous disease in the asymptomatic artery, Therefore it is entirely reasonable for him to be on appropriate vascular preventative therapy. He is aware of persistent sensory deficit which is causing him anxiety.’’

I have been diagnosed as having cerebral vascular disease, hypertension, angina, diabetes type2, reflux, glaucoma, asthma, depression.

I am on medication for my above health issues as follows, Clopidogrel 75mg, Amlodopine 10mg, Montelukast 10mg, Atorvastatin 40mg, Irbesartan 300mg, Bendroflumethaizide 2.5mg, Pregabalin 600mg, Metformin 500mg, Isosorbide Mononitrate 60mg, Lansoprazole 30mg. Salbutamol and Seretide inhalers. Glyceryl Nitrate GTN spray for angina. Cocodamol and Paracetamol for pain management.

However from the moment I had this mild stroke I have been getting recurring stroke like symptoms, for now 3years after.

Initially my left leg had a small shake uncontrollably, however since being prescribed Pregabalin in the 1stsix months, I have not hardly had a recurrence, just slight shakes now and then.

These episodic attacks are now as frequent as three times a day and sometimes 7days a week, where I suffer episodes of stroke type symptoms, during my sleep, and twice during the day.

These attacks which can be from light to severe attacks are as follows, a light attack feels like an electrical current going through my head and dizziness, and then a bad attack sometimes precedes with a tingling numb-like feeling in left-hand side of my face, which then ends with me displaying the symptoms as already described on numerous occasions and literally ends with me sleeping heavily, and my leg and arm feels like a lead weight, these have been seen by many medical professionals within Royal Hallamshire Sheffield Hospital, Doncaster Hospital, the nurses at the local GP and local CMHT.

A heavy attack has the following symptoms, dizziness, pain in my head, a drooped mouth and left eye and left hand-side face, weakness in left arm and left leg, unable to walk, slurred speech, tingling in the left-hand side of face, blurry vision. These attacks whether light, medium or heavy, always ends up with myself being completely fatigued, confused with dizziness and then my brain forces me to sleep, from 2 to 4 hrs. or so.

These attacks happen during my sleep, as my wife is unable to wake me up in the morning and when i do finally wake up, i have the tell-tale left sided face droop etc, they can happen anytime of the day, whilst I am sat watching tv etc. sometimes 2 to 3 times a day for up-to 7days. My memory is terrible, i am unable to concentrate for long periods, i also lose my balance a lot, and I sometimes have a very severe pain, behind my left eye socket, and this does not go away with painkillers.

However after an attack, my limbs are weak for a day after.

Once i have recovered ie woken up after a sleep from 2 to 4hrs, i feels sometimes like I am drunk and very hung-over for a day or two, I am completely washed out, with varying pains, headaches and i am unable to walk once these attacks happen and i am very weak on my left side leg and arm daily and on-going.

I get dizzy spells during an attack and also when im not having an attack.

Also I am slurring, or mumbling during an attack, my speech is clear when I am not suffering attacks however my wife and children have stated that sometimes i say the wrong words or whilst speaking sometimes put the wrong words that im trying to say, in the wrong part of a sentence, which they find amusing, and i find frustrating and angry with myself for doing that, but i do not have slurred speech outside an attack unless I am tired.

.

My vision has deteriorated since the stroke, and my left eyesight is terrible, i have just been diagnosed with glaucoma and diabetes and early stages of diabetic retinopathy, however the medics are looking into my eyesight issues but with no joy.

I have also been experiencing in addition to the other symptoms, pain in my bones on my left side and back, especially when i retires to bed at night, to the point where we have had to obtain a loan to purchase, a £3000 hospital type adjustable bed, which has not really alleviated the pain.

I am under a psychiatrist for depression, but nothing seems to be working for me, I am on medication, I have been tried on different medication over the 8years and im currently on 40mg of fluoxetine a day. My depression seems deeper since the stroke and i am struggling daily.

Im under a neurologists at Sheffield Royal, but they have put it down to functional symptoms due to stress, I have been recommended for psychotherapy, but will not be allowed down this road until my depression stabilises, we need help or any information from stroke survivors, have you suffered anything like this...

I feel like im a pain to the medical profession, and as a previous troubleshooter in management and business, in working as a consultant in performance and productive environments and with working knowledge of performance measures within the national health service, i feel I am a problem to performance and productivity figures as i am still on the consultants caseload. However these are just my feelings, and does not reflect on anyone’s professional expertise.

My local GP, is understanding and very GOOD at helping me emotionally and with medication to control my symptoms.

Ive been tested for bells palsy, ms, but no joy, does anyone have these effects or symptoms after 3 yrs after a stroke?

I have never ever regained the strength in my left leg or arm, this was only a small stroke, due to clotting from furred up carotid artery the consultants have informed me.

I am constantly in turmoil over this, feeling very depressed and even suicidal on a daily basis,

My stroke was not a bleed, it was a mild stroke, possibly caused by a clot from the diagnosed furred up carotid artery in my neck.

I just need some answers or other experiences and how they have coped or resolved.

My grown up children, aged 30, 24 and 21 and myself and wife are getting exceedingly worried, as I am having more of these episodes especially over the last 8-10months.

This is affecting my whole family too, in a depressive way.

I need help and answers and im praying for answers, please help someone, all this makes me feel very suicidal.

Doing this email is very hard mentally as i am constantly drained, it has taken me 3 weeks on and off to try and compile this email with the help of my wife and others.

Thanks

Kind Regards

Dave and Nicola

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