paul99

hi Debbie welcome to btg I haven't been on for a while so I missed you joining just to say welcome many on here have said it all enjoy your new friends and wealth of information take care xx

hi lescaut lin has suffered big time with weight gain although lin is peg fed and because of it I requested that they modify lins regime and put her on a lower type of feed as you know lin is unable to do anything and I spend quite a lot of time exercising her limbs to keep her supple and to try and burn off the extra weight and its working is it possible to get a cycle machine with just the pedals which you can adjust the tension if your wife can cycle sitting in a chair and can you talk to the physio at the hospital for advice on what can be done to help

good morning Tricia this is a complex situation for hubby the anti convulsant's are or maybe affecting him I know lin was prescribed them in very large doses with the problems that entails. lin can still sleep for England one question I would like to ask has your hubby had any fits since the bleed I know lin was on very heavy doses of keppra and others even though she had never suffered from any fits I know its very common and always normal practice for the hospital to prescribe it as a normal precaution after an sah , but it could be due to where the bleed was located. I think you need to sit down with the neurosurgeon or the dr looking after hubby and discuss the situation and the anti epilepsy drugs do make lin very sleepy in the morning at one time they did use a sedative to help her sleep of a night time which can throw the normal pattern out of the window if hubby hasn't had any fits then maybe just maybe the hospital. can review the situation but this again needs to be discussed with the drs treating hubby and needs to be looked at in its full entirety and only the drs can make that choice. it is still very early days in hubbys recovery and it will take time to get everything right before life settles for him . lin is nearly five years down the line and all her medication has been stopped lin is now sleeping normally so please talk to either the neurosurgeon or the dr treating hubby I know its very tiring and stressful for you but hold in there things will get better. if I can be of any help please pm me take care get some you time and rest please I've been there and got the tee shirt make sure you get plenty of rest as well wishing you and hubby well

hi Anne since lin collapsed she has had two g/a and came back through with no problems one including the crainoplasty my thoughts are yes drs do need to take all precautions and inform the patient but the risk I thought would be miniscule if having the op makes your life more comfortable in the immediate future then go for it I think that nothing will go wrong anyway take care and good luck

hi David welcome back I hope the hospital or gp will keep a close eye on you I would suggest that you do take time off as you need to adjust from the tia it does take it out on you just take one day at a time welcome back

david go to hospital don't waste time with gp he will only send you to hospital your bp is off the scale the and you need looking at take care speak to you soon let us know how you get on I have sent you a pm take note please

hi sweetheart very sorry to hear the sad news my thoughts are with you and the family at this time another angel keeping an eye on those he loves think happy thoughts and the good times you had together don't be too sad think happy times we are here for you should you wish to let it all out you sound so proud of dad and rightly so hugs and cuddles sweetheart memories laughter and giggles will never leave you xx

hi mick I understand where your coming from in respect of the ambulance crew not picking up on your condition . even after forty years of being a paramedic within the nhs patients suffering from sah is a fairly difficult thing to pick up on they will most of the time go for something other than an sah in the forty years I have only had two patients which suffered sah ,which I am happy that I got the diagnosis right and the patient received the right treatment the one thing that is presenting from the beginning is the unequal pupils and is a direct link to the brain there are many other signs that also link to sah but they are so varied it is not unusual for it to be overlooked .did the crew check your pupils if I remember the facts there are 1800 people suffer sah every year compare that to how many patients the ambulance service see per year it plain that its a very small group of people in a very large pond unfortunately the crew who picked you up may have never seen a sah but knowing the crew I think they would be more aware of what to look for now im pleased that you are on the road to recovery now if I remember once the hospital recognised your condition things move rather rapidly one thing I would like to add although its no comfort to you once the bleed took place the pressure inside the skull compressed the bleed which in turn stopped the bleed therefore preventing any further damage I witnessed my lin suffering her bleed and despite all my skills I had to call for help and when it arrived I fell apart and yes I did recognize the symptoms and tried to deal with in but I still fell apart take care don't blame the crews or the hospital it happened you survived to lead a normal a life as poss I wish you well and hope to see more from you in your recovery take care

hi girls it is a common problem try a wheat bag if you can heat up in microwave for a couple of mins I know it would be difficult at work but most schools have a microwave even for five mins may give relief good luck

hi Gary and Joanne im pleased you going to see GP but I think you might be banging your head against a brick wall he will probably send you back to the consultant , can you phone his secretary and ask for him to put it in writing to either you or the GP so he is in the loop. it takes approx. three to four months for blood to be reabsorbed into the body Gary has to learn to pace himself listen to his body drink plenty of fluids NOT booze lol listen to his own body telling him when he is overdoing things sleep when his body tells him you are still in the very early days of recovery you will have good days and bad and you will know when to push the boundaries and when to relax more take one day at a time and no more slowly slowly catchee monkey and you will get there take care

hi pam im sorry to hear the news about hubby I was in the same position you are in now I know how you feel but don't give up its still early days so far it took lin 18 months before she left hospital and is now in a nursing home lin had a massive bleed sounds very much like your hubby I also worked in the health service and the fact that what happened is so close to home if it had been someone else you could deal with it but like me because lin is so close to me and personal I fell apart because there is nothing I can do to make it better and that's what's hurts big time I and you cant do anything except be there I do have empathy for you big time its sound strange he is in a nursing home so soon but if he gets the phyiso and help he should make some progress the peg feed is normal don't feel guilty about it you did right one question did you and hubby have life insurance with critical cover if so claim it should pay the mortgage off take time before you make such a heavy decision take a deep breath only time will tell how hubby will progress lin is very much like hubby but lin shows that she is still with me even after 4and half years I will send you a pm with my number use it if you wish chin up we are here to support you and hubby take care keep us updated if you can which part of the country are you in? take care thinking of you

hi Gary and partner stop what you are doing straight away the drugs were given for a reason its nice for the dr to say stop taking them without thinking of the consequences or telling you how to reduce them GARY was given them for a reason and as he has been dependent on them in his recovery contact the consultant tomorrow even his secretary and ask how to stop taking them some drugs have an addictive manor and will play havoc with Gary some drugs have to be reduced slowly smaller dose's until the last dose by your statement I would put Gary back on them until you have spoken to the consultant or your gp do not do this yourself please I know its nice to come off something you don't like taking but be wary of the side effects Gary could suffer . take guidance please lin had to come off baclofen and it took over a year to reduce and wean her off and that was a small dose it as the drug has some nasty side effects the neurologist planned the withdrawal which was very convoluted believe me and having worked in the nhs for forty years I have seen many who have done the same with horrible consequences please contact the consultant or gp soon as you can please looking forwards to your updates take care

hi looby welcome to btg im glad you have found us firstly congratulations on mum coming out the other side and is starting to recover it must have been a nightmare for all the family but as you say mum is home now and in her own way will start to improve as time march's on mum will have the odd day where she takes a step back as you probably know already and she will get angry and frustrated all you can do is be there for her sooth her when she gets like that and support and encourage her when she has a good day I hope the hospital has arranged some support for mum and hasn't discharged her totally and she will be on a regular trip for phyiso and speech therapy and other support for her remember good days are better than bad days but the good take over as time goes on let us know how mums progressing and we are here to help if we can there are so many on here who will come on later to introduce themselves will speak later best wish's to mum and yourself take care

hi Karen and Jim congratulations your progress so far Karen I hope your taking some time out for yourself I would talk to the gp about jims leg it could be lymphatic fluid build up he can refer you to a lymphatic nurse either at the hospital or she can come to you lin had it by massaging the foot and leg you can help disperse it but you will need to be shown how to do it or get someone in from the support team I wouldn't recommend the circulation booster it can do more harm than good if you can talk to the lymphatic nurse first I am really chuffed that you are both doing so well keep up the good work and don't worry about Jim sleeping so much lin can sleep for England I think its because Jim and lin are using so much energy recovering internally it drains them so much keep up the good work girl

hi tulip I feel for you as I have been in the same situation with my lin. dad is still in the early days of recovery and you are going to go through two steps forwards the one back lin was on a ventilator for two weeks and had a traciostomy which made lin to look more normal and enabled the airway to be cleaned and breathing easier so please don't fret about it lins Traci was in for three months and soon healed over once it was taken out the evd's are prone to blocking with the blood being drained from around the brain that is a good thing and can be changed very quickly it helps with the absorption of blood within the body and will help with that lin was very vague for about a two months just talk to dad as normal its a nightmare for both you and the family which none of us would ever want to go through but we do get through it eventually honest it also gives us a different outlook on life because of it im afraid you have to take one day at a time sweetheart and there will be the odd step back but remember dad has done the hard part he has survived wishing you all well regards to family take care of yourself and make sure both you and mum take time out for yourselves otherwise you wont be any good to dad take care

hi wade welcome to the site you have all the symptoms of going back to work to early and you are over doing things your brain has gone through the mill big time and its going to take some time to recover the brain takes its own time in recovery as there is such a lot to repair as such recovery can take up to three months before you see the light at end of the tunnel so back off take some time off work please recovery is a partnership with the missus let her come on as well and we will help you together though this hard time keep up the fluids as the brain needs more fluids to flush the blood from the brain it takes three months to dissipate and the body to reabsorb it back into the body take one day at a time because there wil be days to you need to take a step back sleep when you feel tired listen to your body there is a letter to your brain in the inspration page read and digest take one day at a time please regards to you both

hi nick lin has had clexane which is heperin in a different guise lin had it first in 2008 and again last week when she had her crainioplasty they can only give it for a short time of seven to ten days because lin was bed bound however this time they only gave one because she is kept active ie excersises lin no longer wears her compression stockings because she is doing her phyical jerks so to speak karen has offered good words but also talk to mums gp and take guideness from him/her wishing your mum well

hi siobhan im please you have found us for support and making it through a terrible incident i know quens sq very well and know what good they do you will have to take one day at a time you arnt sick your brain will have to take its own time in healing one day at a time please your brai has taken a right battering so it needs time to get itself back on track many who you meet may not understand the tiredness you suffer because of what you have gone through this is when you find out who your friends are sweetheart take one day at a time drink plenty and try to be yourself dont push things to quickly at thisstage listen to your body and take note things do get better right young lady take the trip alert the airline that you will need a wheelchair to take you from departure to the plane and from the aircraft to arrivals arrange someone to meet you at the other end if you can that way you should be able to save some energy you may feel a little uncomfortable on the aircraft but not as bad many on here have flown and will come on here over the next day or so by the sound of it i think the holiday will boose you up no end so go for it girl one other thing it would be prudent for your brother to be checked out by his gp and have a scan because it can be genetics in play here just to put your mind to rest so have the holiday and enjoy it take care

hi nic congratulations to mum for coming out the other side so to speak mum will have many little problems in her recovery many can be explained as daffodil has said its going to take up to three months before the blood is absorbed back into the body the jaw ache could be very well down to the shunt and intubation possible dislocation of the manadable jaw bone during the intubation but it will pass maybe mum could eat a soft diet untill the pain subsides the vaso spasm would have occured within three weeks so mums passed that hurdel so look forwards to the future it will take time for mum to gain full benifits of her recovery take one day at a time but be prepared for the odd step backwards it happens the double vision could be due to where the bleed was but hopefully intime it will recede i wish mum well she has done the hard bit coming through goggleing is the worse nightmare anyone can do as you have said but you have found us we are here to support everyone if you want a rant or rave we are here good luck to mum and remember take one day at a time and make sure you have time for yourself best wishs to you all

hi sweetheart good news so far in all honesty it dosnt really matter who treats you the standard care given by neurosurgeons is way up there you may not need an angiogram if queens send all they had on you the surgeon may have enough information the neurologist isnt a surgeon they aere there to help people get over things such as a an sah or stroke and deals more with the rehab side the if your anni can be treated by coiling then your surgeon wont be far away the radiogrefer is the man who keeps track of the machine which follows your bit going inside so he makes sure it goes where its needed and not ending up in glasgow only the neurosurgeon will deside when the op takes placesorry for the quips but i think you need a giggle now and then dfingers crossed that you will get the help you need soon try not to go private just ask your gp to reffer you urgently to a neurosurgeon now the choice has been made you get seen just as quickly honest once he has seen all the info he may have enough to move on ps and NO jumping off the top of the wardrobe either and sorry for my spelling errors

hi kel your not being over anxious you can go to your gp and sit and ask for an urgent refferal to a neurologist there are some that specialize in migrains and the treatment of them i know charing cross hospital and they do pass patients on as soon as they can lin now has a self refferal permission at both hospitals she is being seen at you could ask this when you get to see your neurologist good luck

hi scarlet both lin lin and cathmat talk sense much better than i can im just someone who has a partner who has suffered try and relax please wlk the dog BUT no swinging from the light fittings lol

hi scarlet i know you are terrified as to what is going on but im worried for you by reading what you are writing im worried you may have a breakdown which wont help you , you have done what you can you have a confirmed diagnois and it now in the hands of the board to decide i hope its the result you wish, but like all nhs hospitals they seem to take their time but in all honesty there is a lot going on behind the scene before they get on with things and when they do things can move sharpish . no matter where you have the op to correct the problem everyone will do their upmost to make sure it goes well its unfortunant that you have spent money but you have to take one day at a time many people carry anursims around with no problem if you feel you want to take the dog out for a walk do so please dont put your life on hold try and enjoy life for now and as i have learnt sometimes ops get put back because of emergencys but you will get sorted if that the right word but when the dr see's you he will keep you fully informed and hold your hand through untill all is ok then you will want to know what all the fuss was about no matter when and where the surgery or coiling happens we will always be here to hold your hand and support you i did send you a couple of pm use the number and have a scream at me if it helps do what you wish to do at home because unless you try and relax and look after yourself who is going to look after your son im sorry to go on but im worried about you and your health consider your bottom smacked young lady take care hugs and cuddles ps no swinging from the chanderlers

hi lescaut having dealt with many patients in my career anyone who has a history of sah within their family, it would be prudent for them to be scanned as mum has suffered therefore any children should be scanned just to put their minds to rest but should anything be found then they can be monitered from them i dont think you or your wife could go through it all again because it is known that genetics play a roll in some take care

holly you are normal you are still in the very early days of recovery your body is still trying to dissapate the blood which came out during the bleed that can take up to three months to complete and your body settles down it depends where the bleed occured which may give you peace of mind there are many on here which have gone through the same sort of anger and flying off the handle its normal honest hopefully hubby will understand he can also join in because we are here for suffers and carers if thats the right word we will support both parties then he may understand how you are feeling and maybe he can also understand and we can help him comes to terms with what has happened .the bleed does have many effects which many people keep locked up inside which is not good for anyone take care and forget what happened and try and take a step forwards together because an sah is a major event to everyone close to you take care