paul99

*********** heck zoe they don't stand around do they tell Richard he hasn't got permission to die he has to come through this big time there are a lot of people on here who will be rooting for him me included let me know if you will be at hospital early evenings im willing to pop up and see you both just tell him the next drink is on him when he comes out of hospital and home good luck zoe and Richard will pm my number if you need it take care

hi sweetheart what a blow please tell him it wont notice once his hair grows back and tell him he has got to eat lots and lots of mac Donald's:lol: and burgers to put weight on and lots of chips i think you could shoot me now lin has a shunt in place and will have for a long time to come the sleepiness and the tears i think will be the after effects of the surgery and will pass as i think the shunt has gone into the ventricles of the brain please try not to worry i know its easier said than done just let him know he is in the most elite club in the world and he is very special the scars will fade very quickly and he will forget them in time i think he will improve over the next couple of months just wish him well for me and if he wants a chat you have my number take care

hi zoe thats fantastic news so far just hope everything carries on this way never give up on the arm things can always improve has the hospital thought of using a muscle stimulater its like a tens machine and place's electrical impulse's on the arm affected it stimulates muscle reaction maybe this could be helpful take care sweetheart and carry on the good work make sure you get some you time

hi Sandi im sorry i haven't picked up on this thread before as everyone has said please take note of what your body is telling you you are so early in recovery one day at a time otherwise we will have to tell hubby to smack your bottom if you keep doing too much your health is more important to you and us and as lynn says find another route around the problem and keep on the level road to recovery take care and very good luck hugs and cuddles keep safe

hi rog boy how you ring bells i know only to well how you have felt and still do my lin had hers but was not so lucky as your wife so to speak i am so pleased your wife is recovering so well its such early days yet and she is doing so well so far the sick feeling will be with you for some time and the sleepless nights there are a few on here that were treated at Southampton and they will pickup later and introduce them selfs when they log on yes you will be scared witless but only time will reduce the gut feeling and the fear of it reoccurring which i hope it never does your wife will feel and be very tired for sometime to come its the bodies way of trying to heal and recovery from such a massive injury because that is what she has gone through it again will take time they all say time is a great healer and reading on here that is very true rog you must take time for yourself and try and take is easier believe me that is harder than you think try and get some sleep if anything happens which i believe is unlikely you will respond its natural the vaso spasm may never happen not everyone suffers one but the longer it goes on the better chance your wife has they only give the anti vaso drug for 28 days from the bleed so the more days she progress's is good please let her do what she wants within reason no sky diving but she will learn that her body will dictate what she can do and cant do yes she will sleep longer and more restfully but thats her brain trying to recover the only thing i can suggest is by taking one day at a time you must get some rest if you need to go out is there a neighbor or family member who will sit with her until you get back just to give you some rest and peace of mind you mirror how i feel and im 2 and half years down the line my lin is still with me i cant think of much more to put in for now but you must force yourself to rest and take some time out if you wish lins story is in carers support under my darling lin take care we are here i hope you enjoy the site if possible it may help your wife if she logs on as well take care best wishs

hi win im sorry i haven't picked this up before but well done getting into rehab now you know you have got to work hard to get more mobile make sure you perspire a lot that way we know you are trying hard remember no cursing or naughty words as you do your excerises and no pudding unless you earn it i know you will meet new friends enjoy yourself and no skiving either we want you up and mobile and happy take care will look for updates on your progress take care

hi bessie although a long time coming please give my congratulations to mum on her improvement long may it continue and well done you and dad stick with it girl maybe you could consider seeing if the hospital will offer mum some phyiso to see if it helps mum and possibly give you a break if they can pick her up and bring her home well done bessie hugs and cuddles sweetheart

i love the name welcome to btg i hope you will soon feel at home and not so alone as sami and Tina has said its early days listen to your body and take note take care and enjoy your new life

zoe that is such good news and may it continue some happy news as for the bedroom stuff take one day at a time sweetheart things will happen in there own time take care and enjoy the meals he does for you hugs and cuddles sweetheart

hi pete welcome to btg you are doing so well im glad your able to do the things you are doing but please please take note of your body and learn to understand what it is trying to tell you take time out and rest if you can its going to take some time to get over what has happened and you are at the beginning of a long road to full recovery i think rod comes from your neck of the woods his wife suffered an sah and was treated at addenbrooks i think he will pick up on your posting as well i hope your family have recovered and are a little more relaxed as such remember they can come on here as well my lin had hers in 2008 and there are also other carers on here as well we are a family and we support each other no matter what i wish you well in your recovery and that take each day as it comes take care

Brenda ive not met you before or read your previous posts an angiography is not such a problem you just need to hold in there and get it over im not sure why you need one but they would only do it if necessary just imagine the dr naked and all the other staff and try and relax i will virtually hold your hand and wish you well and may the new year bring good news and happiness take care and good luck

just popped in to wish everyone a happy Christmas and new year

hi zoe please think carefully about having Richard home and not have a further session of rehab yes i do understand that Richard wants to come home and that he is fed up with hospitals im going to be the devils advocate here could it be that Richard is bored with the rehab he is in at the moment and is the rehab not pushing him further than they could as you have said his walking has gone down compared with what it was he maybe only be going to the other rehab for a shorter length of time but have a different type of rehab if so it might be that he gets more benefit from it because when he comes home the rehab he needs will be either non exsistant or very limited then where would he be as such i hope Richard does make the right choice because its going to be hard on you and the family sweetheart all i can do is support you as much a anyone else and i can only hope Richard gets all the support from the system and everyone else and that the door is not closed on him take care sweetheart hugs and cuddles to you both

hi bay welcome to the site you are in the very early stages of your recovery many of the symptoms you are describing are the same as many on here and will come on to say hello we are hear to support people who have come through such a nightmare all i can say is it does get better over time rant and rave on here if it helps just take one day at a time and if your worried about anything talk to your gp and consultant take care and stay safe

hi rod sorry to hear about mel having a funny turn and pleased she seems to have shaken it off the blood clot check would proberly be a angio as they may inject a dye into her veins and do a scan the head to check the progress and should highlight any problems re the heart a twelve lead ecg should throw up any concerns they may also do an ultrasound but both are painless if still have my number by all means give me a call take care love to you both

hi wend thanks for the message enjoy the tipple and try and relax but don't climb inside the bottle i know its up to mum now but please don't give up you will find if mum continues to hold her own then thats good news if you want a chat any time give me a call and don't worry about what time it is take care good luck to mum

hi wend im sorry i didn't catch this post earlier you are going through my experience and i know very well how you feel please talk to us and let fly whenever you wish i know everyone on behind the gray helped me a really massive amount im sorry about mum but the fact she has come out the other side is a massive bonus don't worry about mum being fed through a tube my lin is still being fed that way even after two years now and she looks fantastic and now is on a diet to help her lose some weight mum can live quite well being fed by a tube and will get a lot of benefit from it i went through the sudden calls to the hospital but lin survived as mum has so far it can only be good news which may follow on and mum can get more mobile and a lot stronger it has helped me by writing things down on here and it has stopped me going round the bend i have kept a diary since lin had her sah and i still keep it up to date in the hope that lin may be able to read it herself or that i could read it to her when she is more able to understand so that is something you could consider i think when you see the dr go in with an open mind but also you could ask if mum could be referred to a rehab hospital for help and therapy and to see if they can work on her to get her more mobile some homes do take patients with the peg feed as it seems more normal than you think lin is in a home and about 20% are on the peg feed and depending on mums progress she maybe able to eat and swallow hence returning back to a more normal way of life i will send you a message with my number when you read this message look on the top of the page and click on private message hope to speak to you ad if i can help you and yes you are not alone take care find some time for yourself please and take a rest because if you wear yourself out you wont be able to look after mum and hubby wont be happy either take care

surfer 34 if you have any concerns talk to your gp it seems as if you are fishing without being sure of what you require there are many signs and symptoms of hydrocephalus which are easily diagnosed and treated very easily please talk to your gp please

yes lin developed hydrocephalus 4 months after sah now has a shunt in place permanently if i can be of any help please ask

hi painter welcome to the site im pleased you did find us i cant really answer your question as such as my lin has a second annie on the other side of the one that did rupture and i live in the fear that it will let go so im in the same boat as you but from a different aspect you are on the way to recovery so no thoughts of death think about the new life you are going to have all i can offer is that they have done two so far with not major problems i hope and i can guarantee that they will keep you under observation to make sure they keep it in check and will not let you get to the stage where they have to worry you to much when the time is right i believe they will call you in and do elective surgery as apposed to emergency surgery all i can offer is please take one day at a time and over the next few months you will find that the worry and concerns you have will fade into the background as you get more able its not going to go away completely but you will find life does become a little more bearable you may be able to progress in your recovery sooner than you thought possible and that the fear does get less and you will do well the hospital will keep an eye on you promise don't forget we are here and you have friends here who had gone through the same and are wearing the t shirt to prove it and will support you so from me take one day at a time rant and rave on here any time and if you have any concerns that is what we do listen and help if we can take care hugs and cuddles for doing so well up to now chin up speak to you soon i will also virtually hold your hand as well

hi zoe im really so pleased that things have been good for you and Richard and that the family are stepping in to help i know what you mean by being unable to sleep with Richard downstairs i can really hope the carers step in and give you some very much needed support i have my fingers and toes crossed for both of you just remember we are here anytime hugs and cuddles sweetheart regards to Richard

hi jane welcome to btg im sorry hubby is like he is it sounds as if he hasn't come to terms with what has happened to him like post traumatic stress disorder i mean no disrespect but it seems he has been discharge rather early may i ask you to contact the surgeons secretary and ask for him to be refered to a neuropyshcoligist who may be able to help him come to terms with what has happened again may i ask if you maybe are mothering him a little to much i know you love him but maybe you could step back a little and let him do as much as he can the independent type of thing i know it was very hard on you because ive been there so to speak the event would have been more traumatic for you as well that i do know or ask your gp if he can contact the headway group in your area they may also be able to help you im sorry i can be of much more help but remember we are here for you and hubby if he wants to come on line again it might help him take care and best wishes and good luck

john congratulations on reaching the first milestone of your new life and may it continue your posting i think says it all and i also wish people would get it right it was a brain injury not a stroke i hate it when people say oh you had a stroke as if its nothing a stroke is a totally different discipline and a brain injury is a brain injury be traumatic or a bleed is a brain injury sorry i didn't mean to hijack your posting but my heart go out to you enjoy the day don't dwell look to the future and enjoy congratulations john

michelle it dosnt make any difference management or not they knew what you were like when they took you back on after being off sick so to speak they cannot penalize you or belittle you is there anyone else above him let me at him lol i really hope you can get him sorted isn't there a disability advisor's in the government i some how think there may be a ombudsman who can sort this out

Sonia fill it in now and claim and tell them its due to run out and when because you have had other happenings in your life which has made it more difficult for you also contact the council and say you have sight problems and other disabilities they should come and collect from the house good luck