paul99

Hi Greg Infection is always a risk after surgery and its s**ds law so to speak but you have come through quite well up to now but I can assure you the window for improvement never close's as a certain young lady I know very well is eight years and six months down the line and small improvements are still being made so patience is a virtue you will make improvements every day and not realise it just look after yourself and your body and brain will do what it can in its own time good luck

hi Tricia thank you for bringing this very difficult problem up and I admire you for doing so. I know you have been to the drs, but has the dr thought of referring him to a psychologist who may have a better understanding of what in layman's terms makes your hubby like he is? I know he has to make the first move in trying to stop or reduce his consumption down, so you and the family are safe. Also could you contact Alcohol Anonymous to see if they can give you some advice? The family must come first. I'm worried about him becoming nasty and your safety take care

Andrea, I know the shine charity does a hydrocheplus card, also there is medic alert who do a pendent or bracelet which can and does hold the relevant information. I think they are all online so easy to get hold of, good luck in your recovery.

massive hugs and cuddles sweetheart and thank you for everything

Sarah My heart goes out to you and the children. it is as one would say early days the shock will be with you for a while, let the tears roll don't hold them in sweetheart. As it has been mentioned try the support sites given I would think the hospital may be trying to support you as well. After so many years in the health service over here, all I can suggest is to remember hubby the good days and the funny times you both rolled over laughing the days the babies were born. the times you may have thrown a saucepan over his head ..no one can take those thoughts from you and in time I hope you may be able to cherish everything you did together without the pain you are currently suffering. Think about starting a memory book so in the months and years ahead you will be able to look together the children and your self. Their isn't much anyone can say at the moment but from the UK, massive hugs and cuddles from us all.

Hi Jump Sorry to hear about dad but pleased he is making progress dad is going through a lot, so its understanding how he feels. You could ask if you or someone could go in to support your dad and encourage him to take part during physio and let him know. The sooner he is able, he maybe able to go home sooner, but as much as he dislikes what's going on, he has to make the effort. The food situation is another matter which you need to speak to the speech therapist for their reasons again it. Means someone asking if someone can go in about tenish or just after. if you don't ask you don't get. wishing dad well.

whoa! there mandie you are in the very early stages of recovery take some time out and take a deep breath you will have many thoughts going through your head at the moment im sorry you have joined the unwanted club but there are many who have gone through exactly what you have and survived. that is the main point here you survived you will find there will be many steps forwards and the odd step back enjoy the family and let them carry you and support you through this recovery . I would think it unlikely to happen again I haven't heard of many people being hit twice with lightening lol just focus on the future and take one day at a time please listen to your body sleep when your body tells you and don't overdo things so soon there is an item on here called a letter from your brain please read and digest we will always be here to support you you can let off steam you can rant and rave and remember most on here have experienced exactly what you are experiencing enjoy life and cuddle the family any time you want take care

happy anni versary Michelle just a year but what a year you have done fantastically well and its our privilege to have gotten to know both you and Verdun so their is no excuse not to have chocolate and more chocolate enjoy the day sweetheart

hi laura im sorry to hear about dad but as a few have already said he is in the best place. it is very early days yet you will get ups and downs the best advice is to let dad set the pace I have kept a diary for my partner in the hope one day things will improve so a diary would be a good idea I left mine on the bedside so that anyone who looked after my partner and visitors could put things in for a future date so dad can refresh his memory when he goes home. confusion is common believe me one thing possible is to put together a photo album with pictures from the past and new ones to let him at his own pace recovery some earlier memories DONT push him but encourage him if he tries to do anything hopefully things will continue to improve but be prepared for the odd step backwards now and then wishing you all well and that dad goes home soon best wishes

hi Chris my lin suffers that with both weight and excoriation lin has a airflow mattress which has cells that fluctuate and I place a pillow under her bottom from one side and that has sorted it out we also use meconium from the supermarket its the same as nappy cream but works wonders your Annie sound identical to my lin. lin is peg fed and although she gained weight we have adjusted lins feed she lost weight and now we have adjusted her feed and its stopped the weight gain and things have levelled off I found that the weight gain caused the excoriation things are far better and when lin sits in her chair we use the roho cushion which I adjust so that lin sits in and not on the cushion I will send you a pm take care

hi Chris I understand how you feel. im in much the same situation although lin is still in a home we are able to go out together I still don't want to do anything else . I feel lost to say the least when im on my own I think we both need to make that concerted effort to try and relax the hold that we feel we have to our other half. its not forced on us but we do it because of the love we have for our partner im still reluctant to do anything on my own because we have worked ourselves into a position of love to care for our other half of ourselves and nothing else matters. I will try and have the odd weekend now and then to recharge my batteries with friends who have supported me I don't want to go but I have realised that once I come back I feel I have more energy and yes I do feel better I miss lin but im in a better place and can care for even better as such so s** the housework and go fishing relax in the sunshine enjoy a full breaky at a café and relax as you catch fish even take a boat out and catch some cod or mackerel for Annie to eat on her return from the centre as I get told repeatly you will not be able to help lin if you don't relax every once in a while and through experience it does work Chris think again take a deep breathe and go and relax please

well done chris just make sure you have some support for yourself love to both

Hi mum of five I have sent you a private message, don't give up on mum I do know nothing can be done regards to power of attorney whilst mums in hospital that I do know. If mum is as bad as they think mum will fall under the court of protection, take care

hi chris no you are not overreacting I fought for my lady big time and I trod on many a toe and didn't regret doing so because she needed support and I gave it to her so tread on as many toes as you need. however the nursing home are under no obligation to accept your Annie unfortunately. is it possible you can find another home which is nearer or offers better support talk to the dr treating your wife and ask why the other bits haven't been done you can always send me a pm if I can help love to you both

welcome back poppy really happy things went ok may your recovery continue xx

Hi Ian Welcome to btg and for being so open your post has opened some very same feelings in regard to my partner who had a bleed in 2008 and survived but was very badly affected and resides in a nursing home which I visit every day. And yes I want her back I want a cuddle I want her back so much .but I have to take one day at a time I long to hear her voice and her laughter but not as yet but im hoping for something to happen. I would suggest you speak to the drs secretary so see if the dr would refer you so someone who could help but I think it also depends on your wife wanting to ask for help It I think comes under the vulnerable adults act so please be very careful I wish your wife and yourself well and that things improve for you both

hi dune welcome to btg do you know which hoist they are using as it maybe unsuitable for her and is causing pain there is an oxford hoist and an arjo hoist the oxford can be painful as it maybe that your wife cannot do what is required whereas the arjo lifts completely and safely which is what my partner needs there are different sizes so who ever needs it will not slip through when they lift her. you need to make sure that when your wife is discharged that a care package is in place including phyiso and o/t is included and do not let them discharge her without that help in place I would ask the dr treating your wife is the shunt working properly as I know that confusion could happen because the shunt may not be working as well as it should but it should be remembered that because of type of injury it takes time for things to settle I've been dealing with my partner for over five years this year and I have learnt if you don't ask you don't get if I can help please send a pm good luck and best wishes to the family

that's what we want those talks do work keep it up Jane keep reminding him from time to time wishing all goes well for you and hubby go girl

hi jane its still early days with hubbys recovery, I understand how you feel I can tell you now hubby will improve some more when he is in his own home. it takes time for the brain and body to kick into full a head of steam, I think the staff don't think of what they say and how they say it it seems as if they don't care but to them its normal and do not take into account of the family. as they have decided to move on when the o/t comes to the house push for everything you can a ramp if necessary a wet room a hoist to lift hubby if he is unable to move himself you will also need extra help around the house bathing getting dressed and when he goes back to bed in the evening. but most of all is that you take time out to recoup because it is and will be very draining on you ask for all the help you can get. also ask for physio to come in to work on hubby twice a week or get them to arrange to take hubby to the rehab centre for further physio and o/t a couple of times a week for as long as they can. I've had to fight for my lin every step of the way because lin can do what she can every small step is a good one but be prepared for the odd step backwards I think hubby will do what he can. push for as much as you can you can always send a p/m and if I can help I will good luck paul

hi mike from my knowledge the shunt is for life as the ventricles' are blocked or damaged from the bleed as it is required to maintain a safe level of cfs you should be able to live a normal life no problem

hi jane welcome to btg and I pleased that hubby has come through such an event I have gone through the same with my lin and the care fell below standards and boy did I treat on some toes big time .and didn't worry about who I upset because I knew what was right and the matron I spoke to corrected most of it like yourself im also ex NHS staff and with the knowledge I had realised thing weren't right. is this the treatment on the gastric ward or neuro? don't bank on hubby being in hospital for that length of time. its still fairly early days as things go once his medical needs are met suggest to the dr hubby is referred to a rehab unit for further encouragement and phyiso to help get him on the road to having a better life im not sure which part of the country you are but it would be worth talking to the matron of that particular ward and put your concerns with a caviate that if things do not improve then take it higher to the chief executive good like I will send you a private message look top right hand side of the screen under notification good luck

hi neveluna take one day at a time my lin didn't respond for three weeks I sat there and held her hand and rubbing her arm slowly everyday all day take a Walkman in which is what I did for lin, time is a great healer all we can do is sit and wait that's I know is so so hard without anything else going on have the drs said what class of bleed mum has had? I know how you feel sitting in itu with everything going on around you I did lin was in itu for over month before being moved to a neuro ward but moved she was so I hope mum will be well enough sooner rather than later before she shows signs of improvement. I take it mum is being fed via the n/g tube but as I learnt the hard way make sure you take time for yourself to decompress and relax. I know that sounds stupid but I learnt the hard way, when someone took my phone and made me sleep and in after thought the couple did me a favour, which I can not repay so make sure you relax and take time for yourself I will send you a private message look on the top right side hand side under notifications good luck and take care

steph im going to send you a private message look up to the notification it does get better but I have concerns for you and the children xx paul

hi young Stephen Im sorry you are having to worry again having TIA s is not good I see you thought it maybe epilepsy has the dr done an EEG which would confirm epilepsy? I understand how you feel I know that TIA's don't always show immediately it takes time to develop and leave traces of the site if there has been TIA's. TIAs are not a good thing as such but I would push for an earlier appointment to see the stroke expert when you get it I would also ask that the epilepsy specialist gives you an EEG to put your mind at rest and to rule out a particular type of epilepsy. All you can do is wait unfortunately and trust in the drs. good luck

hi lin lin You could ask the dentist to sedate you if they will do it explain how you feel terrified. its not a g/a but it sends you off to sleep and you wont feel a thing but one problem you will need to get someone to go with you to bring you back home and be with you for a couple of hours good luck hugs and cuddles