paul99

hi myra I hope you have gone to the hospital the symptoms are a worry so please tell us you have gone. When you have time please update us, good luck I hope all is well. Hugs from this side of the pond xx

hi I would speak to the consultant who treats you it may or maybe not related to the treatment given so far just to put your mind to rest stay well

HI MYRA I think its time to talk to HR about the level of work at this time

Robert I also was not going to reply to your post but reading and digesting I think you are torn between work and trying to get back to the old Robert. I think you will have to accept what has happened I know when my Lin had her bleed 8 years ago plus it wasn't until Lin went into rehab that I got help as I had been struggling on my own and became a very unpleasant person to the staff who looked after Lin at the home. However I was introduced to a clinical psychologist who came to see me and like you thought why do I need to see her im doing all right but with her asking the right questions she unlocked my mind and I did let all my frustrations flood out. I was reduced to tears. Very much like yourself I've been always able to handle anything but somehow I got into a rut of being obnoxious and very unpleasant thinking I knew it all and having that one person unlock my frame of mind has certainly helped me as a carer. I have had to fight to get what my partner needed including medical services which I think is very much like you trying to recover. Please think about contacting the neuro unit and ask for an appointment with a clinical psychologist for some help wishing you well.

Hi Jan I don't think you ever plateau its the little things that improve without you realising. Lin is eight years down the line and look at what she keeps surprising me with. So please keep your chin up sweetheart it seems like its a down day and review this time next year and look at how much you have achieved. Hugs and cuddles sweetheart xx paul

Gill A horrible thing to happen to someone so young. I really hope Nathan does not dwell on it too much. My thoughts go out to everyone who is affected by this news, hugs and cuddles to everyone. xxx Paul

Hi Maya Its only normal to think too much about the unknown the what ifs and what's going to happen. That is outside your control just be happy and loving to the children you will have plenty of time to rationalise things after your appointment and hopefully it wont be as bleak as you think. Good luck and enjoy the kids

Hi Sammy Anne Im sorry to read your post and a little more than concerned have you any documents from the UK driving license or any issued by the UK. If so please contact the embassy and ask for help to repatriate you if your parents are uk residents and if you explain the situation of d v I am sure they will help get you back. Please be very very careful about taking the drugs given to you, you could inadvertently overdose which not be a good idea I wish you well take care.

Hi Maya You are still a young chicken so try and continue your studies you obviously love the course and just think about the benefits you will be able to bring to patients in the future the third year maybe a bit easier. Try to carry on as normal and stop thinking about what might be it may turn out that they will monitor you and do nothing else. But also think and play with the youngers and have fun take care hugs and cuddles.

hi luke im sorry to hear that mum may still have a problem I think there are quite a few on here that have been recoiled and I will leave them to give you some insight just wish mum well take care and good luck

Hi Cassandra I've just read your post and feel for you although we cant give medical advice would like to suggest that the fatigue is a normal side effect from the sah the numbness maybe permanent side effect of the sah the congestion could have another reason I would suggest seeing your dr and ask if he could check your sinus's Please don't use the web for self diagnoses as it could lead you way off track and panic you . Be careful of which sites you use if you continue. It may also help you if you could get to see a clinical physiologist to help you come to terms with what has happened and suggest routes to recovery which you may not have thought of or been offered. Wishing you well Paul

Jan Good luck to you just tell the truth on a worse day scenario don't rush your answers hugs and cuddles.

Hi Boozysuzi I've just read your post and understand your concerns having worked in the nhs for a long time I think it depends on the surgeon as to which way and how he treats his patients. The effects are sometimes devastating for those who take anticonvulsants. Once the dose is right, then there are no complications, but its getting the dose right in the first place that is the problem. Some use the drug as a precaution for certain surgeries. Take his word and trust him. Good luck for the 31st.

Hi boozy sue Im sorry you have been delayed I hope all goes well on the 31st we are all here for you to rant and rave if you want sending you a massive hug and cuddles to calm you down xx Paul

Hi boozy suzi I understand how you feel and can understand how you feel it sounds as if your surgeon has your health and wellbeing at the top of his priority. That is good and although its terrifying the consequences of not having it dealt with could be a lot worse I'm really pleased you seem to have everything under control reading on the web is also a terrifying experience and will frighten you so not a good idea. Its not tampering with your brain as its normally on the outside of the brain but it is being done so you can lead a normal healthy life without restriction and the dreaded consequences of a full blown bleed. I really wish you well and a happy future please come back after and let us know you are ok, best wishes. Paul

Luke Its nice to read mum has started her recovery long may it continue, please keep us informed great stuff.

Hi Teresa I'm pleased you have found us. I have just brought my partner back from a rehab unit. I found that a clinical psychologist helped my partner and I believe that if you can contact the surgeon's secretary and ask if the surgeon could forwards a request to a neurologist for onwards help for cognitive therapy and a clinical psychologist who may help your son. As many will say memory is profoundly affected more so short term. The referral is part of the recovery so ask, even talk to the occupational therapist. They should also be able to gain the access you need and I believe they can supply the key for your son and help him move forwards. Just because he was working overseas it doesn't exclude him from getting the help to recover. You can help him by contacting the job centre and signing him off sick long term and depending on the severity, think about claiming PIP which will ease the financial problems, as I think this may be part of his problems. You can always send me a private message on here and if I can help I will, good luck Paul.

Hi Quine If you are still under the hospital, you can request the referral with the surgeons secretary or you can request via your GP hope this helps.

Hi Jen Jen It is still very early days in hubbys recover and I think because of what has happened the brain may still be trying to reboot and I think the anxiety is part of the reboot system. Please have a little more patience, I hope within the next few weeks you will see hubby settle and be less agitated. I wish you and hubby well but its really very early days in his recovery. One thought it maybe his body's reaction to the blood still round the brain as blood is an antagonistic to the brain out side of the blood vessels. I hope all goes well.

Hi Luke I'm sorry Mum has had a second bleed and has what appears to be significant problems with her memory. I am surprised that you don't have any outside help coming in, infact i'm rather shocked. Have you spoken to the GP about getting help? I know you said that mum can do a lot herself but reading your postings it seems your maybe frustrated at the appeared lack of progress. My partner had a class five bleed eight years ago and after such a long time is now getting the help she needs. You don't say where you are in the country but I would have thought the hospital would have put in place some form of rehab for mum. As for mum throwing up, causes me some concern, has Mum been seen by a speech therapist because there could be a risk to Mum for aspirational pneumonia which is not good. If you can contact the surgeon who looked after Mum and the gp to get you some support and help to look after Mum. Its nice to look after Mum but you need to take a step backwards take time for yourself and make sure Dad is not overdoing it. I know because I've been in your situation and it nearly killed me. I think Mum needs to see a clinical neuro psychologist to help Mum come to terms with what has happened to her again through the surgeon at the hospital. You can send me a private message if you wish but I am concerned about your situation, take care and regards to your Mum.

Hi Jen Jen Hubby is in the very early days in fact I wouldn't take much notice at the moment as It can take up to three months before you get a better picture of hubbys progress. The brain needs to recoup some of any damage caused before he can make any steps forwards. You will have some steps backwards but they will lessen as time goes on. Eight days to fourteen days is so very early on in his recovery and hopefully his memory will return. Patience is so hard, but take one day at a time and remember we are here to support you. I wish hubby well.

Hi Ian I m sorry to hear you have been readmitted to hospital and released with more information than you really wanted but his offer to get you some help is a massive step forwards. I hope things do improve for you and that you do try not to focus on the down side but I do wish you well we are always here for you should you wish to express your fears and have a rant. good luck.

Hi Jan The saying of you will get there is just as you get there it moves. Because its the stages of recovery, once you reach a milestone someone ruins it up by moving the goal posts so you have another goal to reach. Every day is different and the elusive you will get there. Will always move just as you get there its murphys law lol Sorry. I think the adage is never give up and always strive to achieve whatever you can.

Ian I haven't commented on your postings before and I feel for you. I would like to try and extend a hand out to you to see if together, we can get you on the road to a better frame of life, so to speak . It is very unlikely to happen again. a lot of people are walking around with annies yet to be discovered and many who have had bleeds who have the odd niggle in the way of limitations but also lead a fairly normal life. I know you say you try not to dwell on what happened, but you seem to be unable to break the habit, so to speak without being condescending. Could you phone your consultants secretary direct for an appointment with a neurologist so you can discuss your fears and concerns and ask for counselling fairly urgently. Write all your fears and concerns down on a note pad and take the with you by doing so it hopefully will put your mind to rest I've been dealing with my partner for over eight years and by talking to the specialists, I gained a better understanding of my partners situation and found ways of getting her help. Another idea is contact a group called headway... they specialise in brain injury and people who have suffered sah. they have meetings talking to others always help im not sure which hospital you were treated at but im sure they will get you in. List all your symptom's and clear the air with the dr and hopefully get you back on the road to recovery.... another thing is to take up a hobby... if you can model make, where you can relax and make something you can be proud of. I hope this isn't sounding condescending, I just want to help you break the rut you seem to be in at the moment... as you said you have no one to talk to and that's the problem. All the best for now and good luck Paul

hi Trace from you statement I believe you should be asking for a neurologist appointment and ask him or her to give you a full work over... my partner is eight years down the line and it took me to get someone to see what I had, in my partner and now things are moving forwards. it could be nothing and everything has an explanation, but for your peace of mind I would suggest getting an appointment sooner, rather than later. write everything down so when you see the neurologist he can request tests and the results should settle your worries. good luck paul