paul99

sorry karen i just had to say dont use it as it may make you fall apart he he

enjoy sue dont forget the pictures on the first flight

hi sue welcome to btg sorry i havent picked up on your story i beleive you should check with your surgeon i know a commercial flight maybe ok but a light aircarft maybe a different matter as its not pressurised and would be more suppseptable to turbulance which maybe a problem have a look on the web i think in the states companies like life flight and medical repat companies would have the answer for you but i think a phone call to the surgeon's would be a good idea if your given the clearence enjoy

hi alison i understand where chris is coming from he dosnt see the dangers through but also he may not be able to retain anything said to him in respect of the dangers have a word with the phyiso's at the hospital and ask if the would supply a head cover its like a cycle helment but made skelital to protect the crainiotomy site untill he has it replaced this may make him realise the risk's he is taking

hi kris its the bodies way of dealing with what has happened since lin collapsed i have found that i cry more often ive given up trying to stop them flowing i know when they stop flowing i feel better for a little while enjoy the feeling

rod you cheeky so and so speak to you later take care my friend love to mel hugs and cuddles from lin and me

hello everyone i have been speaking to rod 123 for some weeks now and with his permision tonight i have been permitted to post on his behalf as you know rod is the husband of mel who suffered an sah some years ago and has been a regular contributer on btg how ever over the last few months rod has been admitted to hospital for treatment of cancer of the lung which was removed by a lobectomy and found to be clear however he has returned for a body scan and the drs found two cancers in the brain one is larger than the other over 2cms in diamater he is now finding it hard at times to remember names and in mid speech forgets what he was saying the prognisis is very very poor and he is due to be admitted into john radclife on sunday i hope you will join me in wishing rod well in his fight over the next few months his children have stepped up to the plate to care for mel and i wish everyone well for the ongoing fight rod is facing good luck rod

teecher you are doing too much please please slow down you need to understand that your body has changed and your brain needs to heal itsself and you need to slow down you will not be able at the moment to do what you used to please listen to your body keep up with the fliuds which helps but you HAVE TO slow down as bagpuss says crash and burn the recovery is slow and at least fairly long term its takes about three months for your body to reabsorb the blood you have outside the blood vessels around your brain i certainly dont want to see you suffering because you wont slow down please take things easy you have to let the brain heal in its own way and time hugs and cuddles

teech look in the mirrror and give what you see a kiss you have done so well so far DONT put the cart before the horse because you wont get anywhere take one day at a time frustration can be dealt with there is an old saying patience is a virtue give yourself a hug and say well done but dont put the horse before the cart slowly slowly catchee monkey listen to your body sweetheart and good luck

hi girls welcome to btg you all need to listen to your bodies many on here have gone through what you are all going through and will come on later and chat to you but the common theme is the fatigue and tiredness please take one day at a time please there will be good days and bad im pleased you found us and you are all making good progress and that you have survived which is the most important thing others will come on later and give you more information and support i wish you good luck in your recover which will be different for each of you listen to your body and keep the fluids up good luck

hi phil im sorry to hear the your wife has had a setback hopefully it wont be a long one . i can only speak from what i have gone through with lin who had her bleed in 2008 and three years down the line lin is still throwing up the odd surprise and complication which has led me to keep asking questions to get a reason as to why things keep happening with lin. a brain injury is such a complicated condition and even the surgeons and drs cant answer or give an explanation as to what is going on inside because they dont know . i dont know why they always plump for a mental condition it i think depends on what area of the brain suffered and was damaged by the bleed do you know what area the bleed took place as karen has said the frontal lobe is responsible for behavior and temperment dont forget even a year down the line that the brain is may be trying to make new pathways if it can and at times the signals get messed up have they done a scan since she fell asleep and woke up confused there are many questions you have the only way to clear them up is to have a meeting and ask write them down so you have a list to go through i know and understand the home bit i would love to have my lin home but because im getting past it in all honesty which i have to admit as much as i want to cope and think i could the oppisite is true so i spend all my time with her in a home but we do have freedom to go out things do change on a day to day shedule you can only take one day at a time one step forwards and two back this seems to been the norm i wish you well and your wife to be able to pick up after this step back take care

hi lisa welcome to btg you are doing so well for a month well done you the sadness and anxiety seems to be the norm after such a bleed the sleepless nights are also normal many people on here will tell you to have the odd nap everyday let your body be your guide and take note of it please dont try and remember what happened when your feeling stronger it will come naturally the suture area will be ichy for quite some time as the skin is healing and rebuilding the strenght so it will ich if it helps gently rub some body loition in providing the sutures have healed also make sure you drink plenty of water everyday this seems to help with the tiredness your body is trying to ajust to what has happened the emtional feeling is totally normal it pass's in time as many on here will tell you JUST listen to your body please you will have bruiseing around the scar area which maybe the cause of the swelling around your eye which i think will go down in time congratulations on your recovery so far and may it continue in leaps and bounds just listen to your body and do what it says lol take care

hi alison im sorry i hadnt picked up on your posting before as i have been involved with lin im really pleased that chris is making progress and is able to talk im unhappy with what you have posted please ask to speak to the matron soonest about the way you found chris and the way the nurse's are treating him its unacceptable both to chris and you having said that it could be that the brain is still trying to rewire itself and being agressive is par for the injury he has and the staff need to understand this its not his fault if there is a nueroligist at the hospital get an appointment and ask as many questions you have make a note of them before you go in and maybe the rehab would be good but this is early days still alison the roller coaster is a long one but with us here hopfully it will support you and take one day at a time chris has done the hard part he is very much alive and by the sounds of it he wants to make a go at getting better i will pm you with my number if you want to chat anytime chin up girl and take time out for yourself thats important because if you dont you wont be able to help chris hugs and cuddles sweetheart

hi debbie welcome to the btg you have done well and i wish you even more happiness for the future i would see your gp and ask for an urgent appointment at the hospital with a nuroligist who speacialise's in epilepsy my lin was given massive dose's and after talking to the epilepsy specialist all anti convulsents have been removed there are diferent drugs which controls the fits if the gp refuse's ask your surgeon to refer you you dont have to be pushed or fobbed off the hospital asking the question have you been drinking is standard for i think most hospitals because sah are so rare so dont think to badly i dont post much now but i always pop in every day take care

hi anna bless you for thinking of us i know what you mean about losing faith as much as it hurts it very slowly gets less painful i found that out when lin collapsed it will take quite some time for everyone including dad to come to terms if you would like let me know and i will pm you with my number god bless sweetheart i think mum is looking after you and dad and the family and will do for many years to come hugs and cuddles darling

hi sweetheart im so so sorry to read the posting i know you had such high hopes for the future after everything you have gone through we know that sah's do change people but always live in the hope that things would be the same but sometimes this dosnt happen you have worked so hard looking after richard and the children and proberly you have run yourself into the ground doing so it seems that richard may have more problems than first thought which is a pity you quite rightly have to put yourself and the children first and their safety and stabiltiy and normallity my heart feels very much for you and the choice you have made with a heavy heart im pleased that everyone is talking to each other and i can only hope that richards parents are able to cope and i hope the family support them i think you may still have my number if you want to talk anytime i know the children will see dad regularly i just hope richard gets some help to help him come to terms with what has happened just take care of yourself and remember we are here anytime chin up sweetheart you have done something that many people would have walked away from but love does so much for each other but brick walls still come and hit us in the face well done darling i for one is so proud of you hugs and massive cuddles darling love to the kids xx

hi sharon this is a nightmare you are going through please dont take too much notice of what mum is saying at the moment is is way too early to get a true picture of mums condition please bear with it mum will come round in time its good she can talk this early but have patience it does get better in time make sure you take time for yourself as well mums brain is all mixed up at the moment and it wiill take time for the brain to sort itself out and reconnect all the pathways i wish you well take care

hi momo you are perfectly entitled to a second opinion you have to ask your gp to refer you to a neurosurgen or neuroligist if its for your current condition or dr if its a new condition at a hospital of your choice if this is what you wish he/she may ask the reasons why and you may have to sign a form giving the new dr permisson to view your records good luck it shouldnt take long if its for your current condition i did requst lin to be reviewed and it was done fairly quickly

hi tracy welcome to btg your story seems to ring so many bells about the lack of information post sah you have done so well up to keep up the good work and take care of yourself please dont do too much

im going to add my pennies worth with this thread if you dont mind anurisms are a mostly a genetic fault which one is born with a weakness in the wall of a blood vessel which over time weakens and causes the bulge and will sometimes burst rupture hence the sah some go with a bang others weep a small amount then reseal if you have a family history of family members suffering sah the drs sometimes scan the rest of the family as a matter of course it appears that women are more at risk but men still carry the same risk smoking may be a factor as is stress and high blood pressure its a conumdrum and i wish there could be a pill to prevent such events but there isnt i hope you dont mind me putting this in the pot

again they are using the american medical views a sah is not cured by reduceing blood pressure it needs surgery in most case's :shocked: why dont they talk to neurosugeons here in the uk sorry no offence to our friends in the states

not that angry carolyn :-D8)

hi winter im not going to carry on ive been depressed many times since lins had her bleed but one thing i have learnt even before this happened to lin and that is do get down get angry this seems to help me come to terms i would do anything to get lin back and over the last few weeks i have had bad news and more bad news in respect to lin so i get angry in respect of that which gives me the boost to source other types of things i can do to try and help lin i only hope this may help dont get down get angry and hope that it may give you that little boost take care hugs and cuddles xx

hi montana welcome to btg you are in the very early stages of recovery after such a double whammy its going to take a few more weeks before you start to feel the benefit of your surgery its going to take up to 3 - 4 month before the body absorbs the blood within the spinal cord from the bleed once that has happened with phyiso hopefully you will find with effort hopfully you will achieve full mobility wishing you well speak to you soon take care

hi chelle i know how you feel big time im not sure how long its been since your son had the shunt placed but it can take up to six months before the brain will reajust dont forget its been hurt much the same as you were please have a little more patience please you have my number scream as much as you like with lin and her shunt it took more time to improve and it will in its own time we are not machines we are individuals and everyone is diffrent please hold on there it is hard but everyday you look for something new in either speech or what he does and he is in a better age group for what they call brain transference where the other side of the brain picks up the signels and takes over my dauhter who suffers from cerbal palsy who was written off now leads a normal life so there is hope hugs and cuddles chelle