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babygracie


babygracie

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hello from hastings . my names jan and i had a SAH in september 2009...was on my own working away when it happened and as you all know its VERY scary...i know i've been very lucky as are we all that we are still here but find it can be a lonely and scary place when people cant understand how i feel...now at least i know i'm not alone..just found this website by accident and it seems that there is loads of friendly support here..:-D

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Hello Jan,

A very warm welcome to you. I know you will not feel as lonely now that you have found this site and are amongst others who have had the misfortune to suffer a sah too.

It was just over a year after mine, that I discovered this site and I have not looked back - it is full of friendly people who regularly use it and offer a lot of support as well as helpful advice.

Don't hesitate to air any concerns/queries that may crop up - it's the best way to get through what is, as you describe, a scary experience.

Take care,

Sarah

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hello jan again. i have never been the type of person to get stressed, i have worked for 26 years and miss not going back. i miss the company and meeting lots of different people but DO worry if it happens again . I'm an arcade manager and it would scare me to think that it could happen with all the little people that come in the summer. I do however get angrier now than before and have to try really hard not to let it take over..my sister died 10 yrs ago with a massive tumour and my oldest brother died 3 years ago with a sah. needless to say i have to work hard at it. the good thing is my lovely family and as much as i get the support they still dont understand and i dont like to talk to them about it. My doctor said that it is genetic and the children should be checked out but i havent told them yet..have to soon though..xxx

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Hi Jan,

Welcome to the site.

As everyone says, it is so good to finally find some help, support and understanding! We are a friendly bunch on here, and there is always someone who can offer an answer, assistance, or point you in the right direction to get an answer to your questions.

Sorry to hear about your sister and brother. How old were they when they suffered? And how old are your children? (hope you don't mind me asking!)

Take care

Kel x

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hello kelbel. my sister was 54 and my brother had just retired and he was in spain when it happened. we have 4 children the oldest being 42 the youngest 35.. i just think its such a shock when you have been one of those people that are always on the go, then a whole life change. i was 58 when i had my sah, i bent down to water a plant when i felt an almighty pain to the left side of my head.. unfortunately i was in scarborough and didnt know the area but managed to get to work were they took me straight to the hosp..as other people have said you just know when things aren't right..i was diagnosed within the hour and sent to hull royal infirmary who were brilliant. it took the family 7 hours to get to me and they thought that i wouldnt still be here when they arrived...i had a clip on wednesday and they were pleased with my recovery...so many of these lovely people are sooo much worse than me on here....it seems to be the phycalogical side thats the problem.. had 3 angiograms now and they say all is well but now i have a heart problem (not major) and severe arthritis. just seems that i've fallen apart all at once..there is only two of us left from a family of nine so i consider i'm very lucky, in fact i feel guilt when i read the other letters for getting through as well as i did..i wish everybody else so many best wishes and my thoughts are with them..xx

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Hi Jan! Its true that all the stories are different but what happened to you is just as hard for you as it is for anyone else here. You life isn't the same as it was before. That is really difficult. It can have a profound impact on our emotions, up and down, elation and sobbing.

It helps to read everyone's stories, I always cry! I think it's because we can feel for everyone here. Although everyone has different experiences and recovery times there are many many similarities that we all share.

It sounds like you have concerns speaking with your kids about possible genetic factors. Some members have their family and friends read these posts. Would that help you?

Sandi K. Xoxoxx.

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hi Sandy...since posting i have told 2 of my daughters now and they are both going to the doctors this week...just 2 to go. think it is just not wanting them to feel as scared as i was but as the doctor says regular scans will be better for them and if anything does arise it hopefully can be detected early as i;m sure that is why physically i have recoved well. its surprising how just putting it into words is so much better its the first time i've really spoke about it as i keep it all bottled up so as not to worry the family (dont suppose that works though)...its just nice to think that somebody is there .x

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Hi Jan

Welcome to BTG. That was a difficult conversation to have with your daughters, well done in doing it. Now it's over to the doctors to look after them.

I was about 8 months into my recovery when I found this site and it's been such a support. They are such a great group of people. Take care.

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hello again to you lovely people, only jan again..i would just like to say that i have always been a VERY positive person i have suffered lots of premature deaths in the family (mum at 3 dad at nine and 2brothers and one sister within 4 month) but have never felt sorry for myself and have always thought that if you do your bit and listen to your body all should be well, but alternately whatever happens you can't change so dont worry too much... having said that i still get badish days when i worry about it becuase of the children and grandchildren but they seem to take after me...a brief story..4 yrs ago i lost the top of my finger in a machine and my 5 yr old grandaughter said "thats ok nanny you just wont have to put any nailvarnish on that finger now" :) great outlook..just to say i am going through a very positive phase and i just wish i could sent it out in a box to everybody else (might not last too long ) but as i cant i wish you ALL best wishes and if i come on moaning one day i will apologise in advance....Jan:lol:

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Jan

Ditto what Tina said! ;)

You are very positive, and I love the comment your grandaughter made about not having to do nail varnish!... bless her...positivity must run in the genes too

Keep smiling :) (it makes people wonder what you have been up to! ;) )

Kel x

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