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I thought they had forgotten me!


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So near and yet so far.

I thought when my 2 year anni...versary went by quietly in November that North Staffs MRI Department had forgotten me.

I was a bit disappointed because I just wanted closure I suppose. The Consultant I saw after 1 year told me that it normally takes 2 years for the dreaded annies to shrivel up and become non existent. So I was looking forward to confirmation of the fact. Also just piece of mind that the pesky little anni they coiled was still behaving itself and had not sprouted a tail!

So you could have knocked me down with a feather :shock: when arriving home this evening to see a letter from Stoke on Trent. I knew it was not a late Christmas Card but an invitation to the MRI Ball. But not content with an MRI they want to do an MRA as well. Each appointment three hours apart, both on Sunday afternoon.

So I get my wish after all. No time to ponder as Sunday will soon be here. :shock:

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Thank you Gill.

I'm still confused though - were do the coils go if the annie has gone? I'm happy to admit I am a bit thick these days :lol: but I'm really interested in this because I thought the coils filled the annie up to stop the blood flowing into it, I honestly didn't know that the annie goes away???

Michelle x

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Sorry John, I seem to be highjacking your thread!

This highlights how much we learn on BTG though. I am 3 & half years post SAH & I'm still learning things I'd never been told by doctors :roll: If I can think how to word the question I'll start a thread to see what other members know about it. (now there's a challenge - not sure how to ask what I want to know!)

Thank you Gill for sharing what you know too.

Michelle

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I did not realise I would raise such a question as to what happens to a shrivelled up anni? The note I made about the pesky anni maybe growing a tail was the one that got away. Or should I say the one that did not burst. The two bleeds I had were the ones the doctor implied would shrivel. The coiled anni was filled about a week later via an angio after a follow up CT scan discovery.:roll:

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As far as I'm aware, blood clots around the coils in the aneurysm thus creating a seal, hence the reason for tightly packing in as many coils into the aneurysm as they possibly can for the best results. The Brain and Spine have some very good information on their site: http://www.brainandspine.org.uk/information/publications/brain_and_spine_booklets/coiling_of_brain_aneurysms/index.html

Hi John,

Wishing you all the very best for Sunday ... Do you know why they're doing a MRA as well as MRI?

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Totally confused! I was told the coils can compact & more may need to be inserted over time which doesn't make sense if the annie has shrivelled? I was also told that coiling is not a permanent fix unlike clipping which is?

John I'm glad you mentioned it! It just shows we are all told different things (if anything at all). Thank you for the link Karen - I'm going to have a look now or I'll be awake all night pondering the issue. I quite like the thought that the annies are no more but can't help thinking that's too good to be true.....

Michelle x

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Hi Michelle, don't know how long the coils last. I was not aware of my op until several weeks later as at the time I was away with the fairies and the decision to operate was granted by me julie. The Consultant told her that the two bleeds that I had had should have finished me off but if the third anni they found bled that probably would have been enough to do it. I can only go on what I was told last year by my doctor who indicated that after two years the bleeds should have been totally absorbed and the balloon shrivelled up.

Hi Karen, just had a look at the link and that is exactly what I had done. Don't know why they want an MRA as well.

Nite nite all

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Hi there

As far as I'm aware there will be no need for the coils to be replaced -would interesting to know how they'd do that:crazy:. All I was told is that there is a chamce they might compact and more would need to be added - however, if this doesn't happen within the first 2 to 3 years then they're not likely to - this is the info I was given by my specialist so it'd interesting to see if others have been told differently.

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Imagine this........Anni has shrivelled up.......now the coil well okay ready for my idea lol

A magnet is stuck up your nose.....suction then plop and :lol: hey presto here is the coil joke xxx lol

Love to All and hope you got on okay John T at hospital x

WinB143 xxxxxxxxxxxxx

Edited by Winb143
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