johntaras Posted January 18, 2012 Share Posted January 18, 2012 So near and yet so far. I thought when my 2 year anni...versary went by quietly in November that North Staffs MRI Department had forgotten me. I was a bit disappointed because I just wanted closure I suppose. The Consultant I saw after 1 year told me that it normally takes 2 years for the dreaded annies to shrivel up and become non existent. So I was looking forward to confirmation of the fact. Also just piece of mind that the pesky little anni they coiled was still behaving itself and had not sprouted a tail! So you could have knocked me down with a feather when arriving home this evening to see a letter from Stoke on Trent. I knew it was not a late Christmas Card but an invitation to the MRI Ball. But not content with an MRI they want to do an MRA as well. Each appointment three hours apart, both on Sunday afternoon. So I get my wish after all. No time to ponder as Sunday will soon be here. Quote Link to comment Share on other sites More sharing options...
goldfish.girl Posted January 18, 2012 Share Posted January 18, 2012 Hi John, I've never before heard that they shrivel up & disappear??? That's a nice thought! Good luck for Sunday and it's great that you don't have long to wait Michelle Quote Link to comment Share on other sites More sharing options...
Gill C Posted January 18, 2012 Share Posted January 18, 2012 GG the blood gets reabsorbed as it doesn't have a fresh flow. I was told once the clipped my annie they used a syringe to extract the blood from the balloon to collapse it straight away! Quote Link to comment Share on other sites More sharing options...
goldfish.girl Posted January 18, 2012 Share Posted January 18, 2012 Thank you Gill. I'm still confused though - were do the coils go if the annie has gone? I'm happy to admit I am a bit thick these days but I'm really interested in this because I thought the coils filled the annie up to stop the blood flowing into it, I honestly didn't know that the annie goes away??? Michelle x Quote Link to comment Share on other sites More sharing options...
Gill C Posted January 18, 2012 Share Posted January 18, 2012 not sure with coils but they would strenghten the weak spot & prevent blood pressing on the weak spot maybe? Quote Link to comment Share on other sites More sharing options...
goldfish.girl Posted January 18, 2012 Share Posted January 18, 2012 Sorry John, I seem to be highjacking your thread! This highlights how much we learn on BTG though. I am 3 & half years post SAH & I'm still learning things I'd never been told by doctors If I can think how to word the question I'll start a thread to see what other members know about it. (now there's a challenge - not sure how to ask what I want to know!) Thank you Gill for sharing what you know too. Michelle Quote Link to comment Share on other sites More sharing options...
Skippy Posted January 18, 2012 Share Posted January 18, 2012 Perhaps our annis with coils in now look like raisins - all shrink-packed around the coils - mmm nice thought to know that its not got blood in there still that could leak out. Quote Link to comment Share on other sites More sharing options...
johntaras Posted January 18, 2012 Author Share Posted January 18, 2012 I did not realise I would raise such a question as to what happens to a shrivelled up anni? The note I made about the pesky anni maybe growing a tail was the one that got away. Or should I say the one that did not burst. The two bleeds I had were the ones the doctor implied would shrivel. The coiled anni was filled about a week later via an angio after a follow up CT scan discovery. Quote Link to comment Share on other sites More sharing options...
Karen Posted January 18, 2012 Share Posted January 18, 2012 As far as I'm aware, blood clots around the coils in the aneurysm thus creating a seal, hence the reason for tightly packing in as many coils into the aneurysm as they possibly can for the best results. The Brain and Spine have some very good information on their site: http://www.brainandspine.org.uk/information/publications/brain_and_spine_booklets/coiling_of_brain_aneurysms/index.html Hi John, Wishing you all the very best for Sunday ... Do you know why they're doing a MRA as well as MRI? Quote Link to comment Share on other sites More sharing options...
goldfish.girl Posted January 18, 2012 Share Posted January 18, 2012 Totally confused! I was told the coils can compact & more may need to be inserted over time which doesn't make sense if the annie has shrivelled? I was also told that coiling is not a permanent fix unlike clipping which is? John I'm glad you mentioned it! It just shows we are all told different things (if anything at all). Thank you for the link Karen - I'm going to have a look now or I'll be awake all night pondering the issue. I quite like the thought that the annies are no more but can't help thinking that's too good to be true..... Michelle x Quote Link to comment Share on other sites More sharing options...
goldfish.girl Posted January 18, 2012 Share Posted January 18, 2012 I would just like to add, in case my last post scared people, I was told that coils weren't a permanent fix but that the first ones were done 15 years before I had mine done (3+ years ago) and that they did last that long. That would now be a total of 18 years so that's looking good! Michelle x Quote Link to comment Share on other sites More sharing options...
johntaras Posted January 18, 2012 Author Share Posted January 18, 2012 Hi Michelle, don't know how long the coils last. I was not aware of my op until several weeks later as at the time I was away with the fairies and the decision to operate was granted by me julie. The Consultant told her that the two bleeds that I had had should have finished me off but if the third anni they found bled that probably would have been enough to do it. I can only go on what I was told last year by my doctor who indicated that after two years the bleeds should have been totally absorbed and the balloon shrivelled up. Hi Karen, just had a look at the link and that is exactly what I had done. Don't know why they want an MRA as well. Nite nite all Quote Link to comment Share on other sites More sharing options...
Skippy Posted January 19, 2012 Share Posted January 19, 2012 Hi there As far as I'm aware there will be no need for the coils to be replaced -would interesting to know how they'd do that:crazy:. All I was told is that there is a chamce they might compact and more would need to be added - however, if this doesn't happen within the first 2 to 3 years then they're not likely to - this is the info I was given by my specialist so it'd interesting to see if others have been told differently. Quote Link to comment Share on other sites More sharing options...
Super Mario Posted January 19, 2012 Share Posted January 19, 2012 I think every neuro has their own ideas. I was given a repeat angio at about 6 months and nothing since. No follow up later or anything. Quote Link to comment Share on other sites More sharing options...
Sandi K Posted January 20, 2012 Share Posted January 20, 2012 I can't add to the info about coils, just popping in to say good luck on Sunday John! I'm glad they didn't forget you and I hope the tests go well. Sandi K. Xoxoxo Quote Link to comment Share on other sites More sharing options...
Winb143 Posted January 20, 2012 Share Posted January 20, 2012 (edited) Imagine this........Anni has shrivelled up.......now the coil well okay ready for my idea lol A magnet is stuck up your nose.....suction then plop and hey presto here is the coil joke xxx lol Love to All and hope you got on okay John T at hospital x WinB143 xxxxxxxxxxxxx Edited January 20, 2012 by Winb143 Quote Link to comment Share on other sites More sharing options...
Winb143 Posted January 20, 2012 Share Posted January 20, 2012 Hi Karen just read the link..many thanks. .....good link ..... Keep Well Karen Regards Winb143 xxxxxxxxxx Quote Link to comment Share on other sites More sharing options...
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