Tony H Posted May 15, 2014 Share Posted May 15, 2014 Two years today since my out of the blue life changing event. Once again I am motivated to post on BTG just in case something I write is helpful to someone else. Like many on BTG I had unrelenting head pain and profound fatigue for a long time after my bleed. Other symptoms seemed important at the time but not now. The head pain is mostly at a low level these days such that I am only motivated to grab some analgesics when I have over done it. My head still does not feel normal, as best as I can remember normal, but how it feels is not dominating my day like it used to. I have not felt the need to sleep during the day for months. My capacity to work and just do the things that we do is probably at about 60% of my pre-bleed capacity. As many BTG'ers have said would happen, I continue to improve with time, albeit at a seemingly glacial pace. So what have I learned in the last 2 years? I have learned that it is ok to take life at a slower pace and not feel that every spare moment needs to be filled with doing something productive. And it is ok to just take some quiet time by myself with no music, radio, TV, computer or other noise or distraction to give my brain a rest. Also I have learned that pacing myself is better than trying to push on, and I am better now at spotting when I need to back off. If I overdo it I pay, sometimes for days, sometimes for weeks. And I have discovered that the medical profession is very caring and supportive but knows little about what to expect in recovery from SAH. Recovery is a long journey and one that requires careful listening to ones body, and brain. It is a unique life lesson for me to learn. And I have learned that there is nothing like BTG for people who want to find answers to the many questions that emerge at different stages of recovery from SAH. Most importantly I have learned that there are some wonderful, generous people on BTG who have a unique understanding of what we go through and I feel fortunate to have been able to join this community. I am so grateful for the support that I have received from BTG and for Karen's ongoing commitment to this website and all her friendly helpers who just keep giving. Best wishes to all. Quote Link to comment Share on other sites More sharing options...
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