ninja Posted September 12, 2008 Share Posted September 12, 2008 Hi All With reference to the gap that has appeared in my coiled aneursym. We haven't heard anything so my wife Barbara phoned the secretary at the Heath Hospital, Cardiff and was told that a decision hasn't been made as the surgeon who did the coiling is on holiday until Monday so she is putting my file on top of the pile I am a little amazed by this as I had the angiogram weeks ago. As you can appreciate after being told by the doctor with whom I had an appointment a week last Thursday that it was dangerous to leave I am to say the least stressed out. We have told my GP and between us we shall be pushing them on Monday. In the meantime I have been told to take it easy, not to bend, not to lift anything heavy and NOT TO GET STRESSED!!!! At least the weather has changed for the better. Just one other query if they decide to monitor it and not recoil what do they in fact do? Cheers John Quote Link to comment Share on other sites More sharing options...
Cal Posted September 12, 2008 Share Posted September 12, 2008 Hi John, I can not believe how insensitive this is. You should have been a priority before the doctor went on holiday or at the very least had someone else help you with the decision. Please take care and the very best of luck on Monday. Cal XXXX Quote Link to comment Share on other sites More sharing options...
Tina Posted September 12, 2008 Share Posted September 12, 2008 Hi John I agree with Cal, take care, and hope all can be sorted on Monday, i think it is disgraceful. Love Tinaxx Quote Link to comment Share on other sites More sharing options...
Louise Posted September 12, 2008 Share Posted September 12, 2008 Ditto its terrible.... know its hard but try to stay calm Take care Louise.x Quote Link to comment Share on other sites More sharing options...
Shanti Posted September 12, 2008 Share Posted September 12, 2008 Oh dear John! Hope it gets sorted out promptly on Monday Big hug Lesley xxx Quote Link to comment Share on other sites More sharing options...
Janet Posted September 12, 2008 Share Posted September 12, 2008 Hey John Usual NHS insensitivity hope that you get all the answers you need Monday. Thinking of you and sending some hugs. Janet x Quote Link to comment Share on other sites More sharing options...
jess Posted September 12, 2008 Share Posted September 12, 2008 Hi John That is terrible having to wait hope you get your answers soon.Jess.xxx Quote Link to comment Share on other sites More sharing options...
tennissmithy Posted September 12, 2008 Share Posted September 12, 2008 Hi John. Our system is naff isn't it!!! Try and say calm, you can't afford to get stressed Hope Monday brings better news Love, hugs and prayers Laura xx Quote Link to comment Share on other sites More sharing options...
ninja Posted September 15, 2008 Author Share Posted September 15, 2008 Hi All Thanks for your comments. Yet a further update, my wife rang this morning (Monday) and was told by secretary that doctor was on his rounds and that she would speak to him when he finished. Barbara my wife said she would ring back and secretary told her she would ring when she knew anything. No phone call has been received and secretary finished at 2.30pm so another day has passed. Obviously we are going to pressurise them tomorrow and involve my GP. Will keep you informed. Cheers John Quote Link to comment Share on other sites More sharing options...
jess Posted September 15, 2008 Share Posted September 15, 2008 Goodluck John. Jess.xxx Quote Link to comment Share on other sites More sharing options...
Cal Posted September 15, 2008 Share Posted September 15, 2008 Good luck John. Call them many times tomorrow to ensure you get some type of answer. My prayers are with you. Cal XXXX Quote Link to comment Share on other sites More sharing options...
Sasbo Posted September 15, 2008 Share Posted September 15, 2008 Good luck John, thinking of you and know just what you're going through. Frustration just isn't in it - it's a whole lot bigger than that! Keep on top of it, we're all there with you Sarah x Quote Link to comment Share on other sites More sharing options...
tennissmithy Posted September 15, 2008 Share Posted September 15, 2008 John, How frustrating- still with it and get some answers tomorrow. I don't think they realise how much extra worry them playing around gives you/ Good luck and we are all fighting with you Laura xx Quote Link to comment Share on other sites More sharing options...
Vivien Posted September 16, 2008 Share Posted September 16, 2008 Good Luck John, the waiting must be awful Vivien x Quote Link to comment Share on other sites More sharing options...
ninja Posted September 16, 2008 Author Share Posted September 16, 2008 Hi Wife rung secretary again today as no one had rung. She said notes are still on his desk and that he was in surgery and she hasn't seen him. She told us she would get him to ring me direct, GUESS WHAT- HE HASN'T. We have left details with my GP's secretary. Apparently there is a letter for me waiting to be signed at the hospital. What a ****** system I was told about the gap in my original coiled aneurysm was dangerous a fortnight this Thursday!!!! Never mind its good character building and tomorrow is another day. When its all over I'll have a good "My Story" to tell from the original misdiagnosis to the present day. Cheers John :? :? :? Quote Link to comment Share on other sites More sharing options...
Cal Posted September 16, 2008 Share Posted September 16, 2008 Hi John, I have been waiting for your post all day. I CANNOT believe the system. I hope when you finally get through to someone you will let them know how unfair this has all been. I will be awaiting your post again tomorrow. Take care! Cal XXXX Quote Link to comment Share on other sites More sharing options...
tennissmithy Posted September 16, 2008 Share Posted September 16, 2008 Its unbelieveable John. lets hope and pray tomorrow brings some better news Love and hugs Laura xxx Quote Link to comment Share on other sites More sharing options...
ninja Posted September 17, 2008 Author Share Posted September 17, 2008 Hi All Here we go! Rang this morning numerous times phone just kept on ringing not even an answerphone. Rang different telephone number at the hospital who gave us another number for secretary still phone just kept ringing, eventually we found that neurosurgery secretary was day off. Asked if she had an assistant and answer was "NO" and this is in a neurology department. No one has rung me from hospital today. My GP has rung me and between us we'll try tomorrow he was very concerned as obviously am I. Hopefully the letter which was waiting for signature at the hospital will arrive tomorrow but I'm not holding my breath. Other than standing outside neurosurgery with a placard I can do no more!!!! Cheers John Quote Link to comment Share on other sites More sharing options...
Sasbo Posted September 17, 2008 Share Posted September 17, 2008 Hi John How awful for you, really feel for you. Would you like a deputation of BTGers to join you with placards....just tell us where and when! Sarah x Quote Link to comment Share on other sites More sharing options...
tennissmithy Posted September 17, 2008 Share Posted September 17, 2008 I'll come too John- its shocking Get your local paper involved! Hopefully tomorrow will be better news Laura Quote Link to comment Share on other sites More sharing options...
myratas Posted September 17, 2008 Share Posted September 17, 2008 Hi John That's totally unacceptable behaviour from them. I really think you should do what Laura suggests, go to the local paper. We are behind you 100% Myra xx Quote Link to comment Share on other sites More sharing options...
Cal Posted September 17, 2008 Share Posted September 17, 2008 Hi John, I also agree. It is time to take this unbelievable treatment further. Please do not hesitate to call the paper. YOU are the one who matters. I also would like to let them know how I feel about their lack of compassion for you. Cal XXXX Quote Link to comment Share on other sites More sharing options...
ninja Posted September 18, 2008 Author Share Posted September 18, 2008 Hi its me again Rang numerous times this morning phone either kept on ringing or answerphone. Barbara my wife pleaded over the answer phone for a reply. This afternoon no one had rung back so we tried again and eventually got through. She said that she has spoken to a doctor who has now spoken to the doctor who did embolization. She said that the doctor in charge of my problem (I won't name him) wants to see or speak to me direct and if I don't hear from him I should ring on Monday. I agree I should go to papers BUT I feel I should make waves AFTER I have been dealt with as I don't fancy lying in a hospital bed having complained about those who are tending my needs, I appreciate they have to give me proper care but it could be embarrassing. One problem that has arisen as a result of this is my blood pressure has gone up so am off to take it easy. Bye All John Quote Link to comment Share on other sites More sharing options...
Louise Posted September 18, 2008 Share Posted September 18, 2008 Gosh John I'm not surprised your BP has gone up, yep take it easy its terrible all this and your right wait till you've been seen funny I was going to say go to the papers about it, its disgusting take care Louise.x Quote Link to comment Share on other sites More sharing options...
tennissmithy Posted September 18, 2008 Share Posted September 18, 2008 Gosh John, it really is shocking but yeah thinking about it I can see your point about the paper. You really need to try and take it easy, I know its impossible but you really must try. Barbara needs to remember to take care too Love and hugs and lots of warm thoughts and prayers Laura xx Quote Link to comment Share on other sites More sharing options...
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