phil13 Posted June 2, 2009 Share Posted June 2, 2009 Hi Everyone, Sharon is saying something virtually every time I see her now - 'Hello baby', 'I love you, baby' and I'm videoing them on my phone. However, at the same time there are some heart breaking moments such as last night when she said, 'Help me, can you help me?' and this isn't the first time she's said this. This is very hard to deal with and is really getting to me as it's so wonderful to hear her talking but she's realising that there is something very wrong. Her GP has been onto Walkergate Rehabilitation Centre but has had no reply. I'm sceptical about them in view of the last time but I really think Sharon is crying out for help and something needs to happen now. I'm sorry if I'm a bit all over the place, but this is the moment I hoped would happen and unfortunately I didn't really think about how I would deal with it. Phil x Quote Link to comment Share on other sites More sharing options...
donna79 Posted June 2, 2009 Share Posted June 2, 2009 Hello Phil Its fantastic that Sharon is talking and I hope you get the suppoert and help you need xx When you say she is asking for help it brought tears to my eyes x x but i'm sure with her hearing that you love her and are there for her every step of the way it helps her so much x x I found it hard to come to terms with what happened to me and the day to day challanges life brings but with help from others from this site I know I can do it x x its just going to take time x x and i hate that saying because there is no answer to how long x x Phil your wife is a lucky person having someone like you who is there for her x x and remeber we are ALL allowed bad days/weeks x x x One day at a time x x Phil i wish I had a magic wand x x x x lots of love to you and Sharon x x love donna xxxxx Quote Link to comment Share on other sites More sharing options...
Karen Posted June 2, 2009 Share Posted June 2, 2009 Hi Phil, Sharon communicating regularly is certainly a step in the right direction ..... but yes, I can see how very distressing it must be for you and Sharon herself, when she's asking for help, bless her.... it must be so frustrating. It definetly sounds as though something needs to be done now, to lessen the anxiety for her ..... Sorry Phil, I'm not much help I'm afraid, as I haven't got a clue what to suggest ..... apart from what you've done already and to keep hassling the GP until he gets fed up and puts some pressure on the rehab centre and you get an answer. Hope that you get some joy soon ....and wishing you both, the very best..... Love Karen x Quote Link to comment Share on other sites More sharing options...
Tina Posted June 2, 2009 Share Posted June 2, 2009 Hi Phil So lovely to hear sharon is communicating now.....but can also understand how very difficult it must be for you when she asks for help......just keep doing what you have been doing....as Donna says...one day at a time...and as karen says....keep hassling your GP. I so hope you get some joy.....take care ...love to you both.....love Tina xx Quote Link to comment Share on other sites More sharing options...
paul99 Posted June 2, 2009 Share Posted June 2, 2009 hi phil fantastic news i know how you feel i know your gp is dealing with it can you ring them direct and badger them to help sharon or ring headway and see if they can get something rolling or ring the consultants secutary [sorry about spelling ] the fact sharons asking for help i know all you can do is say you are trying to get her the help she needs that the fact sharon is talking means sharon is becoming more aware and now needs help to further her improvement you are now entering a new chapter in life so to speak take it one day at a time phil take the phone to walkergate and let them see how much progress sharon has made if sharon has been there before you should have an open door policy try it it might surprise you im not sure how far it is from you im here if you want to rant a rave take care of yourself phil if i can help give a shout hugs and cuddles to you both fingers crossed Quote Link to comment Share on other sites More sharing options...
phil13 Posted June 2, 2009 Author Share Posted June 2, 2009 Thank you so much everyone, and yes, Karen & Paul, I think getting in touch with Headway will add some pressure to Walkergate as the GP is getting exasperated with them. It's a viscious circle, with the joy and euphoria of Sharon making such amazing efforts to talk, and then the down side of her realising there is something very, very wrong and almost pleading for help, bless her. Unfortunately, I've been churning up all day thinking about her and feeling so helpless but I'll see what she says tonight. Speak to you soon. Phil x Quote Link to comment Share on other sites More sharing options...
Karen Posted June 2, 2009 Share Posted June 2, 2009 Hi Phil, All you can do is apply the pressure, as Paul has said and reassure Sharon that you're doing all that you can and that it will all come good ..... damned frustrating for you both ........ as I've always said, if these guys could "walk a mile in our shoes" ..... Try to keep your chin up Phil and think about the joy of Sharon's efforts ..... she's one gutsy lady with a lot of determination. Hope that you get some help soon.... Love Karen x Quote Link to comment Share on other sites More sharing options...
Janet Posted June 2, 2009 Share Posted June 2, 2009 Hi Phil Wonderful news that Sharon is speaking more but very distressing for you both when she is asking for help. Really hope Sharon gets the rehabilitation and help she needs soon. Love to you both. Janet x Quote Link to comment Share on other sites More sharing options...
tennissmithy Posted June 2, 2009 Share Posted June 2, 2009 Hi Phil, Fab news to hear that Sharon is talking more, I can understand how distressing it must be for you when Sharon asks you to help her. Fingers crossed things keep improving Love and hugs Laura xx Quote Link to comment Share on other sites More sharing options...
Vivien Posted June 5, 2009 Share Posted June 5, 2009 It is heartbreaking to read your posts, I hope you and Sharon get the help you need. Vivien x Quote Link to comment Share on other sites More sharing options...
jess Posted June 5, 2009 Share Posted June 5, 2009 Phil great news Sharon is talking hope you get the help she needs. Jess.xxx Quote Link to comment Share on other sites More sharing options...
perrycornish Posted June 5, 2009 Share Posted June 5, 2009 Phil, just how up and down does life have to be? I bet you wonder that a lot! It's so good to hear the positive side of Sharon's recovery but do so understand your fears and concerns that you cannot 'apparently' give her the help she wants. I said apparently deliberately because you can and you have and I am more than sure that your dear Sharon knows that. I agree with the others on the nagging advice, but know just how tough that can be....just remember you are doing it for Sharon not for you and it will seem easier. Good Luck and our thoughts are with you Quote Link to comment Share on other sites More sharing options...
Skippy Posted June 6, 2009 Share Posted June 6, 2009 Hey Phil Great news about Sharon talking and am with everyone else for the nagging to get something done part. Just reassure Sharon that you are doing all you can to help her and that you're going to be with every step of the way. We're all rooting for her and you. TTFN Love Sami xxx Quote Link to comment Share on other sites More sharing options...
phil13 Posted June 7, 2009 Author Share Posted June 7, 2009 Hi everyone, Thanks so much for your kind words, Sharon is asking for help every night as well as 'I love you, my baby' which is so sweet. She is attempting to say other things which I can't make out at the moment, but she's certainly gaining her confidence and awareness of things around her. I'm still doing her arms exercises and telling her that this has helped her up until now and will continue to do so. I can't, however, do her leg exercises as they tend to irritate any potential bed sores. But when I think of how she was a year ago compared to now the difference is incredible, and I'm so proud of her. I have a wonderful video of her from two weeks ago where I was telling her that I needed her back so much because she is one that I do everything with from going out to just being with. She replied, 'I love you and I love being with you'. And then she said 'Help me, I'm all...'. At this point, I can't make it out but she's definitley referring to her condition, bless her. I would have to say that my sweetheart is just as she was upstairs which is amazing considering what I was told of her prognosis. Well it's a case of keeping up the pressure on Walkergate or possibly somewhere else. Apparently there is a new rehabilitation place in Gateshead and also, the GP tells us, a neuro specialist in Sunderland Royal Hospital who is brilliant. So there are a few options compared to two years ago. Well I'll speak to you soon and thanks again everyone. Phil x Quote Link to comment Share on other sites More sharing options...
jess Posted June 7, 2009 Share Posted June 7, 2009 Phil so pleased she is recovering. Jess.xxx Quote Link to comment Share on other sites More sharing options...
donna79 Posted June 7, 2009 Share Posted June 7, 2009 Phil I am so happy that Sharon is improving x x send her my love x x x donna xxxxx Quote Link to comment Share on other sites More sharing options...
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