Louise

Deb, good motto onwards and upwards - as time passes it'll get better and better (another one) I think maybe you would be helped by counselling you should ask your GP to set that in motion.... I know this waiting 4wks for an appointment when your trying to get past the receptionist I know not easy, say about the SAH, I've had a 'brain haemorrhage' and I really need to speak with my doctor as soon as possible - don't just take sorry 4 weeks as an answer.... I didn't like the 'new me' in the beginning, now Yay! go new me...... Hang in there, find out about counselling .....

Thanks for the lovely comments I'm truly humbled... was at the hairdressers on the 1st ha! how things change... Subs, thank-you for Ronnie's pat on the back yeh he is my rock and I wouldn't be the person I am today without his encouragement.

Last night saw 17 years for me. Also 17yrs last night since I last worked now I havent thought that one before.?

With Karen there, I lost my sweet tooth with the SAH - but will eat chocolate but don't crave it so one good thing came from my SAH I guess. Its also good as a booster especially if your out in the early days when we came out of the supermarket I always got a small bag of buttons just enough in that pack to give me the boost I needed...

Hi there Warm welcome to the site, so glad that you found us.... As always great replies, its a horrible feeling but it does get better as time passes honestly I used to feel just like that, next Tuesday I think it is, is 17yrs so it does ease... Yes think a trip to the GP good idea and coucelling a great idea. Hope to hear more from you soon...

Hi there And warm welcome to the site, glad that you found us. Yes agree too, sometimes Google is not your friend (that's what I got told) Another one I too, have a shunt like you pressure adjusted, humid days are a challenge but hey here to tell the tail yay! Take care hope to hear more from you soon...

Hey Deb Warm welcome, glad you found us. Great replies not a lot to add really. So just one thing I too agree that you have to let family know what you are going through and just because you've got back on the doing stuff does not mean your recovered sometimes I suggest letting your nearest and dearest read some of the things on here to get a grasp of it.... take care honey

Hi there Warm welcome glad that you found us. I too am sorry to hear that your friends have dispersed they were no real friends then - I too had that with friends and family too, they see your ok on the outside but its the inside stuff they cant see but good your getting therapy it really can help a lot.. take care onward and forward

Sami I had that with the ESA I went to the people at CAB applied to get the group changed that I was in. Dont know if you know about that! Or if it would apply to Paul but thought Id mention it. X

Thats great news so pleased...

Yes like super says that is a good thing so dont worry. Xx

Hey Jan No not a tribunal put the daunting of filling in the forms and medical. welfare rights or citizen advice would do, I'm glad John is going with you same advice as going for the medical be honest about your worst days push the fatigue. I wish you luck lets know how you get on.... cyber hugs hun. xx

I can relate to the younger version of you. I found that with my husband and friends I'd look at them but saw there younger versions eventually this did ease thankfully, its draining. Good you've had Mum at the docs you just have to keep reminding her....

Hi Chris warm welcome glad you found us.. I think your neurologist is lacking in people skills what a horrible thing to say to you,

Hey Suzy Yes very brave Def Leppard Wow!! know what you mean but you will be able to enjoy things again - its not really been that long since your SAH. I too was the same, but have been to things. Just took a few years but really enjoyed them when I did.. I know people use ear plugs - they don't work at all for me they make my balance problem worse than the noise problem...

I find it like the rollercoaster when you think its ok wham good days bad days and weeks then calms down again and so it goes on... On the bad days/weeks always know it'll pass and the better days lie just ahead that's how I see it... The first year is defo the hardest and longest I have never celebrated after the first year on the day of my second Anni I was organizing my Dad's funeral that kind of took away the celebrate thing.

Yep can relate, you are lucky you got meals on wheels when I have that still have to cook can never totally switch off....

Hello Brian Welcome, ditto what Super has said, maybe small but it does take it out of you. Don't think there's a run of the mill recovery on this we're all different with different outcomes to our bleeds... Relax and take things slowly Take care

Hi Brian Welcome to the site, glad you found us. Hope to hear more from you once your home recovering... take care

Yes that's only used when you have diarrhea, keeping hydrated is water normally or liquid keep the body hydrated...,

Yep have to agree visual reminders work for me too - white board would be the best.... And I also agree with an alarm you switch it off and mins later its forgotten.. I hope you took the advice from yesterday about maybe looking into getting your Mum help for washing and dressing just for now get her into a routine....

Sorry Luke no idea about the smart watch - seems like you've had some good replys hope some have helped you.

Hi there Like Daff says as ever great advice from Paul. My thoughts are maybe you should speak with the GP about getting some help (for now) maybe a nurse/carer coming in to help her would be the motivation she needs and I read it as 'she can wash and dress herself on her own' but at the min can she? the more she's in bed the less she will. I so understand your concerns and frustration about it, its a huge thing you've ALL been through but at the min your Mum is trying to analise it so I really do think you need to contract the GP and the neuro too like Paul's advice... sending you, & your Mum and Dad my very best wishes... and please take care of yourself too...

From the initial onset, NO total blank even to this day & I'm ok with that who wants to remember things like that!!! If he has to have rehab they will help with the memory things. But for me writing things down every thing now with me is lists, notes, diary's, stuff on the callender. But it is all early days for you the brain need time to heal, its kind of like a computer re-booting itself easiest way I find to explain to people if your computer savvi you get it.

I always say to the carer/family member 'take time for YOU' because without our carers where would WE be...