paul99

hi karen we think alike ?????? i love the new picture sends shivers down my spine corrrrr lol

hi michelle im sorry you have met such a bigot i think you now need to sort this out with management fast because this person is acting against the law it is an offence to discriminate against someone who is disabled no matter how slight or severe that the person suffers the fact that you are still recovering is even more shocking the union may not have anyone with the experience to deal with your situation [no excuse ] i would pressurize them to get their finger out but i would go to management as soon as possible hopefully with witness's to confirm what is happening to you please try not to worry too much but make sure you get some rest take care sweetheart

hi di boy you are going through it somewhat i can only think that the frontal lobe may have been affected through the sah which controls a few behavioral and inappropriate language outbursts can you get to speak to the surgeons secretary to see if you can get him seen and possibilities of seeing a neuropyscologist who maybe able to help him control the verbal and temper type incidents and make him a little more settled or reffer him to people who can help him i hope its frustration thats making him like he is and that sonmething can be done to offer you some peace of mind good luck sweetheart take care

hi zoe i think you need to bring this up at the rehab center and try and get the carers involved before richard comes home you are taking on a mammoth task and you have to think of the children and yourself we wouldn't want you to be flagging three months down the line because things are getting out of hand god forbid has the rehab asked for Richard to have councilling before he comes home because you don't want him wallowing in self pity and getting you to do everything while he stays in bed it would be lovely if he does try to help and try and do whatever he can for himself both you and the children are a little more important and so is your welfare i know you want to try and do things together god there are times i wish lin would but its going to be hard 24/7 and you cant tear yourself into three you will need your space and the children will need to be children are they putting in a respite time for you to have a break when Richard comes home full time what will happen if you cant manage Richard or Richard gets stroppy im sorry for bringing this up zoe you have gone through so much as i have but im worried for you it seems as if your being pressurized in taking Richard home please don't hate me for saying that but im worried for you and the children their lives will change if i read your previous posts correctly and it may affect them i hope not but sitting outside the box so to speak all my fears that i have about lin are coming to light by what you are going through i hope you can get promises in writing before they release richard to you so you can scream for help if and when you need it sweetheart take care you have my number hugs and cuddles sweetheart the only thing that i can relate to is that IS richard suffering from depression i know that hormones are changed big time after an sah and that he could slide into depression and not realize it hence the somber mood he is in not wanting to take part in anything

hi crystal you have been through a nightmare to say the least i am pleased that mum is improving slowly and it would be lovely for mum to prove the dr wrong there are many days i wish my lin would prove a little more and show the drs they were wrong we are always here so welcome and i hope you get a lot of support because going through uni is hard and also helping mum makes it more so i wish you all the luck in the world and remember we are here hugs and cuddles to you and the family lins story is in carers support under my darling lin good luck sweetheart

the normal guide for blood pressure is systolic 100 plus your age and diastolic is between 70 to 80 is within the normal range or if your an athletic it can be lower

hi zoe i have just refreshed myself on Richards thread i am alarmed at what ive read has the hospital referred Richard to a councilor which i would have thought by his statements to you i am also worried about you with young children in the house this is going to run you into the ground unless proper arrangements are put in place before Richard comes home also the stair lift needs to be in place as well if you stopped work to look after Richard will the funding be enough to give you both a decent standard of living with the 24 hour care i take it they will provide a night watchman to check on richard while you sleep im glad you have said richard is still the man you fell in love with im pleased just remember you have my umber anytime take care sweetheart

well done Tina 60 you have done so well but let your body be your guide push a little but not too hard take time out and try and relax not easy when you have a youngster around keep well and stay safe

hi john will you please give julie a massive hug from me the tears are running down my face i have just relived lins time in miu and ward 23 its brought back so many memories which arnt very nice but i love the way julie did a record for you im now on volume 5 of lins diary still in the hope things will improve you are a very lucky man please thank her for me good luck

hi ash its good news and mum seems to be doing well hopefully it wont be long before you hear mums dulcet voice i think it will be about 12 weeks before mum has the peg taken out once mum starts putting on weight and she is feeding well and hopefully it wont be long before she is tucking into a nice roast beef dinner ahen she goes to rehab i reckon you will be surprised and chuffed take care ash

ash don't worry about posting as things will move slowly im finding that with lin im really chuffed that mums had traci removed its going to take time for her to realize that she can now talk when she gets all the wiring repaired so to speak very pleased she is beginning to move her arm slowly catchee monkey northwick park is brilliant mum will have intensive treatment they will get as much out of mum as possible but it will be stressing for mum frustration more than anything as they start to work her and stimulate her good luck i just hope your taking time for yourself hope dad is ok and beginning to understand how things will progress take care regards to everyone

hi karen its great news about mum and fantastic to read as long as its not little old ladies mum's chasing but it is great news take care and will look forwards to hearing more about mum's escapade's in the future hugs and cuddles

hi ash good news mate about mum and the traci it will take mum some time to realize that she is able to try and talk you are right about it being a long haul it wont be long before they remove the traci completely if she is able to go up to 12 hours with it capped off its not the end of the world if they decide to leave it in long term mum when she realizes she can make noises and hopefully begin to talk im pleased about the movement as well this i reckon will improve over the long term i understand about dad and his feelings if i can help give me a call wish your sister a happy birthday from us and don't forget to write all your questions down before you see the dr then you wont forget anything but his answers may bring up other questions through a smile on anyones face does mean so much take care ash regards to mum

lemonade i am so sorry to hear that and somewhat shocked you haven't mentioned how old they are i will pm you with my number check the private message icon on the top chin up girl

hi ben im pleased to hear that janey is progressing in respect of the enablement team ask the sister on Janey's ward to ring them and ask for an urgent visit or contact the pals at kings and also ask for a s/worker who will take up janeys care and welfare to help you janey will need a full work up before she is discharged from the multidisciplinary team at the hospital i thought i pmd you my number will do it again tonight just click on private messages if i can help i will chin up mate you are doing well just make sure you have some you time and try to relax somehow hard i know but try take care

hi kasim thanks for updating about mum i wish her all the best for a fairly speedy recovery and that she will be back on here soon i hope you are looking after yourself as well mum wouldn't be happy if your not taking time to look after yourself don't forget we are here for you anytime just have some you time take care

hi bagpuss yes you will heal slower than before the sah this is because a lot of hormones have been suppressed because of what you have gone through and its going to take time for this to correct itself i think it would be prudent to see your gp and have a blood test to make sure you haven't gone anemic i believe this is a fairly common event after sah and it also relates to the sensitivity of your scar all scars ich like crazy during the healing process so recommend popping into gp and ask for a blood test the central line you had put in will take quite a while to fade but it will take care

hi lemonade and tina you are both in the very early days of recovery and you will feel depressed and suffer from anxiety it is normal one thing you are coming to terms that things have changed big time and its going to take quite some time for your bodies to adjust and recover but this will be in your own bodies time unfortunately you cant rush this process your hormones have also been altered by the sah and it will take time to adjust it will happen promise and it may take time to get the medication just right for your own body you will go through many different signs and symptoms during the first year or so but what you need to do is try and take one day at a time please the tears lemonade is part of the healing process many on here have gone through the same thing i don't think the family will desert you it will also be hard for them to come to terms of what you and them have gone through the threat of possibility of losing either of you because that what has happened and that is very hard to shake no matter who goes through this nightmare it there any chance that you could sit with your own family and have a talk to see how each other feels about what has happened and try to get everything out in the open air so they know how you feel and you get to know how they feel i still cry because of no reason something just triggers me and im away ive given up trying to hide them i just let them flow and the friends i do have understand and im never belittled either nor are the staff who look after lin you will have good days and some bad days but within a fairly short period of time the good days take priority and the bad days diminish promise you could also talk to the surgeon and get a refferal to have counciling at the hospital and it may help your families if they logged on and read the posts on the site all i have to say now is take one day at a time and let go on here if you find it hard thats what we are here for to support each other take care

hi ash good news about mum beginning to move and that they are beginning the downsizing of mums traci just wait until they put a frenistrated traci in and you can hopefully hear mums voice or groan in lins case that will send the hackles up on your neck before they removed it completely my fingers are crossed for you all now comes the part where you want things to move even more quickly but remember its up to mum to make the running its nice she has friends popping in giving you a breather sorry i don't do running or gym work those days are over for me please give mum and family my regards and im looking forwards to your next posting take care ash

hi ash so pleased to hear the news that mum is now at the whittington i think you will mum improve quite a bit now she is in a normal ward i don't think it will be long before they cap mums Traci and it removed which will be another step in the right direction and you should be able to relax a little more good luck for mum next week will keep my eyes open for the updates as and when you post take care

hi ash thanks for the update on mum it is good news that she is on a normal ward and that there is no further damage recorded yes i understand that they want mum to a local hospital because their job is completed this happened to lin it is a blow you feel comfortable at queens and you feel that going to a new hospital brings all the fear back again as you feel that you are starting all over again it took Linda until the middle to latter part of October before i saw Linda move anything and even then i thought i was seeing things but slowly things did start moving it was a shock but a pleasant one it is still early on and mums Glasgow coma scale will improve as the brain is still trying to make sense of what has happened lins varied from 2 through to eleven mum has done well believe me she has come through what would normally have had a different conclusion one thing i will ask you is mums eyes clear and focused if the are although they maybe drifting i think mum will come round although slowly you should pick up signs of mums recovery yes you will feel lost and bewildered i was its the only thing you can do is stay positive otherwise you will fall apart ive got the tee shirt one thing you could ask is do they have a neuro rehab unit they could send mum to but if they don't then the hospital will have neuro phyisos who will push mum to the best of her abilities and you have the joys of the tilt table to come that was a joy to behold seeing lin standing up instead of lying in bed queens deal with the crisis then pass mum onto people who will help her get whatever they can out of mum it is horrible but you have to learn to take one day at a time its going to be hard believe me but we will be here to support you your last paragraph says it all "mum seem to smile when we played some music " that is a small step in the right direction for mum if you can leave a tape or walkman or cd player with her then she can listen to her type of music all the time and you will get a smile a little more often yes its going to be a long haul but remember you are not alone you have my number and everyone on here is hoping for better news as the days go on chin up give me a call anytime take care regards to mum and dad and sister

hi ben its good to hear your janey is doing ok and im hoping she will keep on improving as the days go on will you please contact the enablement officer at the hospital they are within the social workers unit they are people who help with the change from hospital to home it sounds as if the home is unsuitable for janey to go back there as it sounds like a private hiring the enablement people will help find a place that is suitable for wheelchair users and also make sure that the equipment that janey will need is in place before janey comes home it may mean you will have to move to a place they can find and it will proberly be local authority housing talk to the o/t who visited you and get her to help you find somewhere thats what they are there to do help they wont discharge janey until the property is right for her don't forget you will be able to claim dla for janey and there are loads of benefits which janey will now fall into i will pm you my number if i can be of any help regards to you all and just make sure you have time for yourself take care

hi ash im pleased that mum has made it onto a normal ward at long last i think dad and you and your sister will be a lot happier and so will mum i believe you said it was a big bleed this in itself will affect mum quite a lot try not to worry too much now mum is on the ward the physios can now start working mum fairly intensively so see it they can gear mum into doing things herself it took lin quite a while to kick herself into gear but she had a class 5 plus bleed i think when mum realizes that she is out of the beeps and alarms world i think she will surprise you i hope so i really do i hope the family are able to relax a little more now and you will be able to have a more pleasant a time with mum and that you get very little treats along the way courtesy of mum fingers crossed ash will await more from you in time take care and chin up

hi vonk im sorry about the loss of your mum and send my condolence's im going to answer you with the knowledge that i have and what my partner went through and which i still ongoing it depends on the level of mums bleed that governs if she survives im sorry to be fairly blunt in that respect and mum's fitness as well i do understand where your dad is coming from you haven't said how old mum was as this and mums general health did she have surgery to treat the bleed if so was it a crainiotomy or was she coiled a shunt is not necessary unless the venticals block that will be apparent from the start of surgery or in lins case hydrocephalus occurred later the ventricles blocked and was treated with a shunt three months after diagnosis if mum had a crainiotomy then there would be no reason for a drain as the skull would have been opened and all blood vessels would have been sealed before the skin was closed although sometime some people do have an evd which is an external drain attached to the skull and removed shortly after surgery the other shunt is the ventrical peritoneal shunt which is placed to control the flow of cerebral fluid within the skull one thing you must understand is that mum went through a massive brain injury and it leads to complications everywhere else particularly the bodies organs it must be very difficult for dad to come to terms with what has happened i know what i was like when it happened to lin as Liz says many people who suffer sah don't make it through for which it is a shock to say the least different country's treat people differently and unless the cousin is a neurosurgeon i would treat it with a pinch of salt if you can try and get into to see and speak to the neurosurgeon please its i think is the only way dad will be able to come to terms with what has happened again im so so sorry mum didn't make it through but please try and talk to the neurosurgeon please my regards to the family my thoughts are with you all

hi zoe im please that Simon is going to sort Richard out so that he is more stable and has a chance of a fuller life i understand how Richard feels he has done so well in such a short time i have a feeling that he thinks that he is going to be in hospital for ever and that the October date will disappear and he wont get home but he will its just a side step i think reminding him that October is still the date things should happen and to aim for that until someone says different i know how you feel about stage 2 and 3 but Richard needs to focus on October as the end date and that it is important that he gets stuck in i wish you both well and await your update as and when you can do one hugs and cuddles sweetheart